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Re: Re: Myoclonus vs. RLS

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The thing that has helped me the most is using a scooter or wheelchair and

not pushing too much. I know your life makes that difficult.

laurie

>

> Reply-To:

> Date: Mon, 24 Jan 2005 14:44:54 -0000

> To:

> Subject: Re: Myoclonus vs. RLS

>

>

>

> Thanks to all of you have been so supportive these past few weeks

> while I try to sort out what these new symptoms mean. I am glad to

> see that several " oldies " have benefited from the klonopin. I just

> made appt with the Neuro for Wed afternoon. I hope he is able to make

> some adjustments that help, whatever they want to call it :-)

>

>

>

>

>>

>> ,

>>

>> My 20 year old son has MERFF and is taking klonopin for myoclonus.

>> It has helped him more than anything else he's tried. He actually

>> had a few seizures, the first one precipitated by his myoclonus

> going

>> into overdrive from doing too much computer work at school. Funny

>> thing is that he's did the same amount of computer work right after

>> that and didn't have a problem (this all was before the klonopin).

>> His movement specialist said that is very common. They don't know

>> why something will cause problems one day and not another.

>>

>> As I'm getting older I've noticed some things that could be mito

>> related although I don't have any severe symptoms like him. I

> guess

>> they call them soft signs. Anyway, I have developed RLS although

> not

>> that often thankfully. Not bad enough to treat yet. It's very

>> annoying when it kicks in.

>>

>> Good luck.

>>

>> Kim

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