Guest guest Posted March 24, 2005 Report Share Posted March 24, 2005 Hi all, Joe is having more problems, this time with his right leg not working (he's limping and not using the right leg basically dragging it along). After more X-rays and thorasic/lumbar spinal MRI, there is concern that his spinal chord is having more problems. Joe saw his local neurologist yesterday and confirmed that the syrinx (fluid filled cavity in the spinal canal) is definitely larger than on previous films and there appears to be more fatty lipomas in the chord. Both issues (rethethering or enlarging syrinx) seem to be at this point have another spinal chord surgery looking very likely. It doesn't appear at this point to be retethered (but it could be in the process of tethering again) but she is very concerned that we see the neurosurgeon ASAP. She also ordered an MRI of the brain and cervical spine, we go monday for that. Hopefully there isn't more going on. We are schedule for the 4th in DC but are trying to get Joe seen sooner. Any input, support and prayers would be most appreciated. Hope you all have a wonderful Easter weekend. Praying for us all, AnnMarie L. - Complex IV (pre-diabetic, hypothyroid, adrenal/endocrine issues) Married to my best friend Rick, Very Busy Mom to (15), (12), Cassandra (6) and Joe (5) - complex IV, lactic acidosis, CP, tethered chord syndrome, dysautonomia, and a smile that never quits :-) Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.