Regression/Possible causes?

[Guest guest]

In a message dated 02/07/2001 9:13:12 PM Eastern Standard Time,

trdugan@... writes:

<< Also, he loves fruit gummies...I haven't noticed a problem with them

before, but he's been obsessed with eating " Fruit Gushers " ...they look ok to

me, but does anyone have more info? >>

Hi, I just wanted to share, we just realized that my son is intolerant to

carageenan, which is a seaweed derived gooey stuff that they use in alot of

the gummies. It is listed as a source of MSG on some of the websites I found

in my research on the net. I don't know if this will help or not, but I

noticed that stuff sends my son off the deep end, lots of visual stims,

spinning, etc.

Hope this helps,

April (in mass)

Success is the ability to go from one failure to another

with no loss of enthusiasm.

Winston Churchill

[Guest guest]

Hi all, I have been lurking for a long time. I'd like to get everyone's opinion

about something. We've had our son Shane GFCF since August 2000. He is almost

6 yrs old, diagnosed with Asperger's Syndrome. He was doing SO WELL on this

diet. We saw significant improvement in his frustration tolerance, willingness

to socialize, and his creative play. He was asking all of us questions about

what WE thought about different things. His moods improved significantly and

meltdowns were VERY rare. He would tolerate change more easily. So we thought,

great, this diet is wonderful. He started Kindergarten with a one-on-one aide

last Sept and has been doing wonderfully. The aide is barely needed. Mainly

just to help him stay organized.

Here's the problem. Around Christmas things started falling apart. His aide

quit for personal reasons, requiring an adjustment to a new aide in January.

His OT thought he was doing so well this past fall that she wanted to discharge

him...so he hasn't had OT since the middle of Dec. His speech therapy/social

skills group that he had been going to for 9 months broke up because the

therapist moved and they needed to rework all the groups...we are still waiting

to get that restarted. We also started talking about a possible move for our

family coming up this summer. Shane overheard us and starting asking all kinds

of questions..which we have tried to answer but we don't have all the answers

right now.

Since Christmas, his frustration tolerance is very limited, he hasn't had much

interest in socializing, and he has started all kinds of self stim behavior that

I haven't seen him engage in for some months. (ie, watching object spin, making

odd squeaks and humming noises.) He has had several more tantrums. He has

started awakening at night and now wants to sleep with us or with his sister

each night. He has also started a weird kind of stuttering and is having

difficulty getting his sentences out...and he is completely verbal and has never

had any problem communicating previously.

I have continued to follow the diet...but I'm wondering about a few things. I

switched his cheese from soymage to the tofutti slices. He doesn't eat this

regularly, but I think I switched right around Christmas, and it would coincide

with all this stuff. Last time he had some was about 2 weeks ago....

Has anyone noticed this pattern in their kids...great improvement and then

regression? Or has anyone had a problem with tofutti slices??? How long does

it take for an infringement to work itself out?

Also, he loves fruit gummies...I haven't noticed a problem with them before, but

he's been obsessed with eating " Fruit Gushers " ...they look ok to me, but does

anyone have more info?

I really appreciate any info. Sorry this is so long.

Tricia Dugan in PA

[Guest guest]

Tricia

Do you use the GFCF website to check for food updates, cross contamination

issues and foods known to be O.K.? I can send it to you.

Leighanne

ton MO

Regression/Possible causes?

> Hi all, I have been lurking for a long time. I'd like to get everyone's

opinion about something. We've had our son Shane GFCF since August 2000.

He is almost 6 yrs old, diagnosed with Asperger's Syndrome. He was doing SO

WELL on this diet. We saw significant improvement in his frustration

tolerance, willingness to socialize, and his creative play. He was asking

all of us questions about what WE thought about different things. His moods

improved significantly and meltdowns were VERY rare. He would tolerate

change more easily. So we thought, great, this diet is wonderful. He

started Kindergarten with a one-on-one aide last Sept and has been doing

wonderfully. The aide is barely needed. Mainly just to help him stay

organized.

> Here's the problem. Around Christmas things started falling apart. His

aide quit for personal reasons, requiring an adjustment to a new aide in

January. His OT thought he was doing so well this past fall that she wanted

to discharge him...so he hasn't had OT since the middle of Dec. His speech

therapy/social skills group that he had been going to for 9 months broke up

because the therapist moved and they needed to rework all the groups...we

are still waiting to get that restarted. We also started talking about a

possible move for our family coming up this summer. Shane overheard us and

starting asking all kinds of questions..which we have tried to answer but we

don't have all the answers right now.

> Since Christmas, his frustration tolerance is very limited, he hasn't had

much interest in socializing, and he has started all kinds of self stim

behavior that I haven't seen him engage in for some months. (ie, watching

object spin, making odd squeaks and humming noises.) He has had several

more tantrums. He has started awakening at night and now wants to sleep

with us or with his sister each night. He has also started a weird kind of

stuttering and is having difficulty getting his sentences out...and he is

completely verbal and has never had any problem communicating previously.

> I have continued to follow the diet...but I'm wondering about a few

things. I switched his cheese from soymage to the tofutti slices. He

doesn't eat this regularly, but I think I switched right around Christmas,

and it would coincide with all this stuff. Last time he had some was about

2 weeks ago....

> Has anyone noticed this pattern in their kids...great improvement and then

regression? Or has anyone had a problem with tofutti slices??? How long

does it take for an infringement to work itself out?

> Also, he loves fruit gummies...I haven't noticed a problem with them

before, but he's been obsessed with eating " Fruit Gushers " ...they look ok to

me, but does anyone have more info?

>

> I really appreciate any info. Sorry this is so long.

>

> Tricia Dugan in PA

>

>

>

[Guest guest]

Tricia,

I didn't have the astounding improvements when we went gfcf but I noticed a

dramatic downward turn six months after we started the diet. I have also

noticed that many have said that there has been a downward turn at about the

4-6 month mark, which lasts for an indefinate time period. We are still

struggling. Good luck.Keep me posted. -Phyllis

Regression/Possible causes?

> Hi all, I have been lurking for a long time. I'd like to get everyone's

opinion about something. We've had our son Shane GFCF since August 2000.

He is almost 6 yrs old, diagnosed with Asperger's Syndrome. He was doing SO

WELL on this diet. We saw significant improvement in his frustration

tolerance, willingness to socialize, and his creative play. He was asking

all of us questions about what WE thought about different things. His moods

improved significantly and meltdowns were VERY rare. He would tolerate

change more easily. So we thought, great, this diet is wonderful. He

started Kindergarten with a one-on-one aide last Sept and has been doing

wonderfully. The aide is barely needed. Mainly just to help him stay

organized.

> Here's the problem. Around Christmas things started falling apart. His

aide quit for personal reasons, requiring an adjustment to a new aide in

January. His OT thought he was doing so well this past fall that she wanted

to discharge him...so he hasn't had OT since the middle of Dec. His speech

therapy/social skills group that he had been going to for 9 months broke up

because the therapist moved and they needed to rework all the groups...we

are still waiting to get that restarted. We also started talking about a

possible move for our family coming up this summer. Shane overheard us and

starting asking all kinds of questions..which we have tried to answer but we

don't have all the answers right now.

> Since Christmas, his frustration tolerance is very limited, he hasn't had

much interest in socializing, and he has started all kinds of self stim

behavior that I haven't seen him engage in for some months. (ie, watching

object spin, making odd squeaks and humming noises.) He has had several

more tantrums. He has started awakening at night and now wants to sleep

with us or with his sister each night. He has also started a weird kind of

stuttering and is having difficulty getting his sentences out...and he is

completely verbal and has never had any problem communicating previously.

> I have continued to follow the diet...but I'm wondering about a few

things. I switched his cheese from soymage to the tofutti slices. He

doesn't eat this regularly, but I think I switched right around Christmas,

and it would coincide with all this stuff. Last time he had some was about

2 weeks ago....

> Has anyone noticed this pattern in their kids...great improvement and then

regression? Or has anyone had a problem with tofutti slices??? How long

does it take for an infringement to work itself out?

> Also, he loves fruit gummies...I haven't noticed a problem with them

before, but he's been obsessed with eating " Fruit Gushers " ...they look ok to

me, but does anyone have more info?

>

> I really appreciate any info. Sorry this is so long.

>

> Tricia Dugan in PA

>

>

>

[Guest guest]

Tricia,

I didn't have the astounding improvements when we went gfcf but I noticed a

dramatic downward turn six months after we started the diet. I have also

noticed that many have said that there has been a downward turn at about the

4-6 month mark, which lasts for an indefinate time period. We are still

struggling. Good luck.Keep me posted. -Phyllis

Regression/Possible causes?

> Hi all, I have been lurking for a long time. I'd like to get everyone's

opinion about something. We've had our son Shane GFCF since August 2000.

He is almost 6 yrs old, diagnosed with Asperger's Syndrome. He was doing SO

WELL on this diet. We saw significant improvement in his frustration

tolerance, willingness to socialize, and his creative play. He was asking

all of us questions about what WE thought about different things. His moods

improved significantly and meltdowns were VERY rare. He would tolerate

change more easily. So we thought, great, this diet is wonderful. He

started Kindergarten with a one-on-one aide last Sept and has been doing

wonderfully. The aide is barely needed. Mainly just to help him stay

organized.

> Here's the problem. Around Christmas things started falling apart. His

aide quit for personal reasons, requiring an adjustment to a new aide in

January. His OT thought he was doing so well this past fall that she wanted

to discharge him...so he hasn't had OT since the middle of Dec. His speech

therapy/social skills group that he had been going to for 9 months broke up

because the therapist moved and they needed to rework all the groups...we

are still waiting to get that restarted. We also started talking about a

possible move for our family coming up this summer. Shane overheard us and

starting asking all kinds of questions..which we have tried to answer but we

don't have all the answers right now.

> Since Christmas, his frustration tolerance is very limited, he hasn't had

much interest in socializing, and he has started all kinds of self stim

behavior that I haven't seen him engage in for some months. (ie, watching

object spin, making odd squeaks and humming noises.) He has had several

more tantrums. He has started awakening at night and now wants to sleep

with us or with his sister each night. He has also started a weird kind of

stuttering and is having difficulty getting his sentences out...and he is

completely verbal and has never had any problem communicating previously.

> I have continued to follow the diet...but I'm wondering about a few

things. I switched his cheese from soymage to the tofutti slices. He

doesn't eat this regularly, but I think I switched right around Christmas,

and it would coincide with all this stuff. Last time he had some was about

2 weeks ago....

> Has anyone noticed this pattern in their kids...great improvement and then

regression? Or has anyone had a problem with tofutti slices??? How long

does it take for an infringement to work itself out?

> Also, he loves fruit gummies...I haven't noticed a problem with them

before, but he's been obsessed with eating " Fruit Gushers " ...they look ok to

me, but does anyone have more info?

>

> I really appreciate any info. Sorry this is so long.

>

> Tricia Dugan in PA

>

>

>

[Guest guest]

Hi,

I just joined the list as I've recently started Diego on the diet. My son

also loves gummy candy but I am avoiding it. I used to buy all types of

gummy candy for him he loved it so much. I just read the ingredients on a

fruit gusher bag that I have left from pre-diet days and two ingredients

that are suspect are " natural flavor " and red 40 (i assume this is an

artificial colorant). I am also avoiding all artificil colorants (it just

seemed logical; what does everyone think?). Call general mills, though. They

probably have a website with an e-mail link. I usually ask questions by

e-mail since answers and explanaations in writing are so much more reliable

than over the phone.

By the way, I recently posted about substitutes for gummy candy (preferably

without corn). This is the one thing my son misses tremendously....

Thanks, la

>

>Reply-To: GFCFKids

>To: gfcfkids >

>Subject: Regression/Possible causes?

>Date: Wed, 7 Feb 2001 21:08:05 -0500

>

>Hi all, I have been lurking for a long time. I'd like to get everyone's

>opinion about something. We've had our son Shane GFCF since August 2000.

>He is almost 6 yrs old, diagnosed with Asperger's Syndrome. He was doing

>SO WELL on this diet. We saw significant improvement in his frustration

>tolerance, willingness to socialize, and his creative play. He was asking

>all of us questions about what WE thought about different things. His

>moods improved significantly and meltdowns were VERY rare. He would

>tolerate change more easily. So we thought, great, this diet is wonderful.

> He started Kindergarten with a one-on-one aide last Sept and has been

>doing wonderfully. The aide is barely needed. Mainly just to help him

>stay organized.

>Here's the problem. Around Christmas things started falling apart. His

>aide quit for personal reasons, requiring an adjustment to a new aide in

>January. His OT thought he was doing so well this past fall that she

>wanted to discharge him...so he hasn't had OT since the middle of Dec. His

>speech therapy/social skills group that he had been going to for 9 months

>broke up because the therapist moved and they needed to rework all the

>groups...we are still waiting to get that restarted. We also started

>talking about a possible move for our family coming up this summer. Shane

>overheard us and starting asking all kinds of questions..which we have

>tried to answer but we don't have all the answers right now.

>Since Christmas, his frustration tolerance is very limited, he hasn't had

>much interest in socializing, and he has started all kinds of self stim

>behavior that I haven't seen him engage in for some months. (ie, watching

>object spin, making odd squeaks and humming noises.) He has had several

>more tantrums. He has started awakening at night and now wants to sleep

>with us or with his sister each night. He has also started a weird kind of

>stuttering and is having difficulty getting his sentences out...and he is

>completely verbal and has never had any problem communicating previously.

>I have continued to follow the diet...but I'm wondering about a few things.

> I switched his cheese from soymage to the tofutti slices. He doesn't eat

>this regularly, but I think I switched right around Christmas, and it would

>coincide with all this stuff. Last time he had some was about 2 weeks

>ago....

>Has anyone noticed this pattern in their kids...great improvement and then

>regression? Or has anyone had a problem with tofutti slices??? How long

>does it take for an infringement to work itself out?

>Also, he loves fruit gummies...I haven't noticed a problem with them

>before, but he's been obsessed with eating " Fruit Gushers " ...they look ok

>to me, but does anyone have more info?

>

>I really appreciate any info. Sorry this is so long.

>

>Tricia Dugan in PA

>

>

>

[Guest guest]

Hi Tricia,

Aside form checking into possible cross contamination issues, it could be

that the soy, corn and/or yeast sensitivities are starting to show

themselves. As the body adjusts to being free of the gluten and casein,

other sensitivities are revealed. Several months after my sons started the

diet, we ended up having to get really serious about yeast, and cut out all

sugar, yeast, moldy foods, and anything fermented. We also had to get rid

of soy and corn--not as completely as some on this list, but practically

eliminated. Oh, and even before we cut out the soy and the corn, we

realized that the phenol/salicylate issue was big for us--so out went the

artificial food dyes and preservatives, and even some deeply colored fruits

and berries and apples and bananas and chocolate. GFCF did wonders for us,

but was not sufficient. We are definitely among the more extreme food

eliminators on this list--maybe you won't have to go as far as we did, but

it is probably worth looking into the foods I have just mentioned.

Good luck,

[Guest guest]

Hi Tricia,

Aside form checking into possible cross contamination issues, it could be

that the soy, corn and/or yeast sensitivities are starting to show

themselves. As the body adjusts to being free of the gluten and casein,

other sensitivities are revealed. Several months after my sons started the

diet, we ended up having to get really serious about yeast, and cut out all

sugar, yeast, moldy foods, and anything fermented. We also had to get rid

of soy and corn--not as completely as some on this list, but practically

eliminated. Oh, and even before we cut out the soy and the corn, we

realized that the phenol/salicylate issue was big for us--so out went the

artificial food dyes and preservatives, and even some deeply colored fruits

and berries and apples and bananas and chocolate. GFCF did wonders for us,

but was not sufficient. We are definitely among the more extreme food

eliminators on this list--maybe you won't have to go as far as we did, but

it is probably worth looking into the foods I have just mentioned.

Good luck,

[Guest guest]

Hi Tricia,

Yes, I noticed the same thing with my 8 year old - she's been on

the diet for almost a year. Her first regression came after 3-4

months on the diet. We had allergy testing done and removed

most of the offending foods. Also, I knew she was sensitive to

dyes, but I thought fruit juice was okay. She hadn't tested allergic

to cherries, but she was obsessed with a natural cherry juice

that I am sure was gfcf. However, I am almost convinced that it

was a big part of the problem. I took away the cherry juice, and

with that and the other foods out of her diet, she got much better.

Then in October or early November, more trouble. A weird sort of

stuttering and problems with word retrieval - this is a child with

good language. And bed wetting again. Finally in December I

decided to take soy out of her diet (Although she did not test

positive for that allergy in a IGg). She had been eating a lot of soy

puddings. I don't know still if it was the corn in the chocolate

pudding or the soy, but things are back on an upward swing

again. Isn't tofutti made with soy? You might try removing it for a

week and see what happens.

Kathy

[Guest guest]

While I would not rule out the diet issues, I would think that the number of

changes and concerns about changes could be the cause of all of it. I think

the number of changes would throw a typical child.

Write a social story about whatever change or concern seems to be most

disconcerting to him, (email me privately, I can help you with the wording

if you like) and let him read it over and over until it doesn't seem so

scary.

Good luck

Alice

[Guest guest]

I have two thoughts here. The first is definately the possibility of

infringement, but more likely with the fruit gushers. Second, have you

considered having him see a Ped. Dev. Specialist to rule out Tourettes

syndrome? My brothers stepson started developing the symptoms around the

age of 6. He stuttered, squeaked, started stimming and began waking often

at night. He is now taking medication to control it, and doing great.

a

> Hi all, I have been lurking for a long time. I'd like to get everyone's

opinion about something. We've had our son Shane GFCF since August 2000.

He is almost 6 yrs old, diagnosed with Asperger's Syndrome. He was doing SO

WELL on this diet. We saw significant improvement in his frustration

tolerance, willingness to socialize, and his creative play. He was asking

all of us questions about what WE thought about different things. His moods

improved significantly and meltdowns were VERY rare. He would tolerate

change more easily. So we thought, great, this diet is wonderful. He

started Kindergarten with a one-on-one aide last Sept and has been doing

wonderfully. The aide is barely needed. Mainly just to help him stay

organized.

> Here's the problem. Around Christmas things started falling apart. His

aide quit for personal reasons, requiring an adjustment to a new aide in

January. His OT thought he was doing so well this past fall that she wanted

to discharge him...so he hasn't had OT since the middle of Dec. His speech

therapy/social skills group that he had been going to for 9 months broke up

because the therapist moved and they needed to rework all the groups...we

are still waiting to get that restarted. We also started talking about a

possible move for our family coming up this summer. Shane overheard us and

starting asking all kinds of questions..which we have tried to answer but we

don't have all the answers right now.

> Since Christmas, his frustration tolerance is very limited, he hasn't had

much interest in socializing, and he has started all kinds of self stim

behavior that I haven't seen him engage in for some months. (ie, watching

object spin, making odd squeaks and humming noises.) He has had several

more tantrums. He has started awakening at night and now wants to sleep

with us or with his sister each night. He has also started a weird kind of

stuttering and is having difficulty getting his sentences out...and he is

completely verbal and has never had any problem communicating previously.

> I have continued to follow the diet...but I'm wondering about a few

things. I switched his cheese from soymage to the tofutti slices. He

doesn't eat this regularly, but I think I switched right around Christmas,

and it would coincide with all this stuff. Last time he had some was about

2 weeks ago....

> Has anyone noticed this pattern in their kids...great improvement and then

regression? Or has anyone had a problem with tofutti slices??? How long

does it take for an infringement to work itself out?

> Also, he loves fruit gummies...I haven't noticed a problem with them

before, but he's been obsessed with eating " Fruit Gushers " ...they look ok to

me, but does anyone have more info?

>

> I really appreciate any info. Sorry this is so long.

>

> Tricia Dugan in PA

>

>

>

[Guest guest]

Tricia, Love your sons name, it's mine too ..Have you looked into a corn

issue? My Shane (now 7) was doing great, and then had the same regression,

we thought it was fall fall back ( a lot of parents notice " cold time "

regression) We did implement an elimination diet, and found out corn was a

BIG culprit. It is in everything...we took corn away, and noticed he got a

LOT calmer. You may want to try an elimination diet to further find what

might be offending him. People find soy, corn, apples, bananas, carrots,

sugar, and yeast as big offenders. (Depending on whether there is a phenol,

salicytate ((Not even going to ATTEMPT spelling on this one, too tired)), or

yeast problem)-Shari NY

Re: Regression/Possible causes?

> I have two thoughts here. The first is definately the possibility of

> infringement, but more likely with the fruit gushers. Second, have you

> considered having him see a Ped. Dev. Specialist to rule out Tourettes

> syndrome? My brothers stepson started developing the symptoms around the

> age of 6. He stuttered, squeaked, started stimming and began waking

often

> at night. He is now taking medication to control it, and doing great.

>

> a

>

> > Hi all, I have been lurking for a long time. I'd like to get everyone's

> opinion about something. We've had our son Shane GFCF since August 2000.

> He is almost 6 yrs old, diagnosed with Asperger's Syndrome. He was doing

SO

> WELL on this diet. We saw significant improvement in his frustration

> tolerance, willingness to socialize, and his creative play. He was asking

> all of us questions about what WE thought about different things. His

moods

> improved significantly and meltdowns were VERY rare. He would tolerate

> change more easily. So we thought, great, this diet is wonderful. He

> started Kindergarten with a one-on-one aide last Sept and has been doing

> wonderfully. The aide is barely needed. Mainly just to help him stay

> organized.

> > Here's the problem. Around Christmas things started falling apart. His

> aide quit for personal reasons, requiring an adjustment to a new aide in

> January. His OT thought he was doing so well this past fall that she

wanted

> to discharge him...so he hasn't had OT since the middle of Dec. His

speech

> therapy/social skills group that he had been going to for 9 months broke

up

> because the therapist moved and they needed to rework all the groups...we

> are still waiting to get that restarted. We also started talking about a

> possible move for our family coming up this summer. Shane overheard us

and

> starting asking all kinds of questions..which we have tried to answer but

we

> don't have all the answers right now.

> > Since Christmas, his frustration tolerance is very limited, he hasn't

had

> much interest in socializing, and he has started all kinds of self stim

> behavior that I haven't seen him engage in for some months. (ie, watching

> object spin, making odd squeaks and humming noises.) He has had several

> more tantrums. He has started awakening at night and now wants to sleep

> with us or with his sister each night. He has also started a weird kind

of

> stuttering and is having difficulty getting his sentences out...and he is

> completely verbal and has never had any problem communicating previously.

> > I have continued to follow the diet...but I'm wondering about a few

> things. I switched his cheese from soymage to the tofutti slices. He

> doesn't eat this regularly, but I think I switched right around Christmas,

> and it would coincide with all this stuff. Last time he had some was

about

> 2 weeks ago....

> > Has anyone noticed this pattern in their kids...great improvement and

then

> regression? Or has anyone had a problem with tofutti slices??? How long

> does it take for an infringement to work itself out?

> > Also, he loves fruit gummies...I haven't noticed a problem with them

> before, but he's been obsessed with eating " Fruit Gushers " ...they look ok

to

> me, but does anyone have more info?

> >

> > I really appreciate any info. Sorry this is so long.

> >

> > Tricia Dugan in PA

> >

> >

> >

[Guest guest]

My aspie boy has been through a couple of regressions since gfcf. It

took some detective mom work to track down the infringments. The

first major one was daily exposure at school to wheat paste. Then

there was a problem with a product containing aspartame

(nutrasweet). Then a friend's mom was giving him snacks with rice

flour (she thought the no rice rule was crazy and just ignored it).

Then we found gluten in wetting spray his barber used and a shampoo.

It seems the reactions are more noticeable, and maybe more severe, as

he is on the diet longer.

The latest problem was fruit roll-ups, given by a teacher at school

(not any more!). Initially, he ate them seemingly without a

reaction, but now they are a definite no-no. Besides the phenol

overload, they also contain a variety of dyes and other additives

that should be avoided. Given your child's craving, IMHO try

removing that edible fruit chemistry set from his diet.

" ...Since Christmas, his frustration tolerance is very limited, he

hasn't had

> much interest in socializing, and he has started all kinds of self

stim

> behavior that I haven't seen him engage in for some months. ...Has

anyone noticed this pattern in their kids...great improvement and then

> regression? Or has anyone had a problem with tofutti slices???

How long

> does it take for an infringement to work itself out?

> > Also, he loves fruit gummies...I haven't noticed a problem with

them

> before, but he's been obsessed with eating " Fruit Gushers " ...they

look ok to

> me, but does anyone have more info?

[Guest guest]

My aspie boy has been through a couple of regressions since gfcf. It

took some detective mom work to track down the infringments. The

first major one was daily exposure at school to wheat paste. Then

there was a problem with a product containing aspartame

(nutrasweet). Then a friend's mom was giving him snacks with rice

flour (she thought the no rice rule was crazy and just ignored it).

Then we found gluten in wetting spray his barber used and a shampoo.

It seems the reactions are more noticeable, and maybe more severe, as

he is on the diet longer.

The latest problem was fruit roll-ups, given by a teacher at school

(not any more!). Initially, he ate them seemingly without a

reaction, but now they are a definite no-no. Besides the phenol

overload, they also contain a variety of dyes and other additives

that should be avoided. Given your child's craving, IMHO try

removing that edible fruit chemistry set from his diet.

" ...Since Christmas, his frustration tolerance is very limited, he

hasn't had

> much interest in socializing, and he has started all kinds of self

stim

> behavior that I haven't seen him engage in for some months. ...Has

anyone noticed this pattern in their kids...great improvement and then

> regression? Or has anyone had a problem with tofutti slices???

How long

> does it take for an infringement to work itself out?

> > Also, he loves fruit gummies...I haven't noticed a problem with

them

> before, but he's been obsessed with eating " Fruit Gushers " ...they

look ok to

> me, but does anyone have more info?

[Guest guest]

My son is going through a similar regression, but we don't have all the

other changes in routine and adjustments that you're talking about. Just

a backsliding of behavior - tantrums, no frustration level at all,

impulsivenss, stimmy type of noises, pinching when he gets mad, etc. One

thing I've forgotten to do is to give him epsom salt baths when he eats

too many phenols, so he took a bath with epsom salts last night and

that's helped a lot. Also, I took him off Nystantin because his behavior

was so awful I couldn't deal with it. He's calming down a bit now.

Lastly, I'm not sure about the Fruit Gushers, but I don't think I'd give

them to my son. He loves fruit leathers, but they make him wild, and

even the Gerber fruit snacks make him a little crazy too. It could be so

many things. I'm praying that this is some kind of allergy that we

haven't figured out yet and that we can get a handle on it. Good luck to

you.

( & Malachi's mom)