RE: Re: Food sensitivities/intolerances in mitochondrial disease?

March 2, 2005

Recently I have gotten brave enough to eliminate all wheat/gluten from my

diet and it has helped GI issues a LOT. I say brave because with CPT, a

reduction of carbs is a known trigger. Given my other dietary restrictions,

its pretty hard to cut out wheat without reducing carb intake. In the past,

changes in diet have put me in the hospital, so I approach with caution.

At this point, I have been on and off wheat enough to be sure. Strangely, my

GI doc (dept chair of a big university hosp) had talked about celiac and did

do a biopsy when my J-tube was placed. As far as I know, the biopsy was

negative. Go figure. I may ask my PCP about antibodies, but I'm guessing he

will say why bother.

It seems ironic that I would end up with a sensitivity to wheat. I grew up

on a wheat farm and my long-time ID has been Wheatchild.

B

_____

From: thefourofus03

Sent: Tuesday, March 01, 2005 9:00 PM

To:

Subject: Re: Food sensitivities/intolerances in mitochondrial

disease?

My daughter has food sensitivities to wheat, peanut, milk and egg

and a little to soy. This cause her to have increased diarrhea. This

in turn causes loss of nutrients etc. She has to avoid those foods.

I know some have celiac disease (gluten issues) and some with autism

are on the gluten free casein free diet. I don't know what other

sympotms those food cause my daughter because she was only 2.5

yrs.old when we found out.

Dawn

http://us.adserver.yahoo.com/l?M=298184.6018725.7038619.3001176/D=grphealth

/S=:HM/A=2593423/rand=777590976>

_____

March 2, 2005

Interesting, Barbara

First of all, it is good that you found something that might alleviate

your symptoms, although I know it is a hard food to eliminate.

I explored Celiac. It was easy to do for me because about 10 years ago

a very old friend of mine was diagnosed celiac after many years of

illness. She became very knowledgeable on the subject and started a

local chapter of the celiac support group, which now has over 300

active members. They routinely get 10 new people a month that they give

initial information to.

From my friend I learned that celiac can be difficult to diagnose, even

with biopsy. Sometimes the biopsy is not taken from the right spot,

and sometimes it is not read correctly. Sometimes people are celiac

without the obvious signs - diarrhea and weight loss. Several blood

tests are fairly reliable, but not totally. I believe the antibody

test is the most definitive. I can get you more specific info on the

lab in California favored by a local gastro who is up on the stuff if

you would like. And not many docs are up on Celiac, I am afraid.

My friend's celiac was finally found because she had abnormal levels

(low I believe) of the fat soluble vitamins, and an unusual glucose

curve. Absorption problems finally became clear to about the 10th doc

she had seen. She also had thyroid problems and now is adult-onsel

diabetic. Anyone's guess if there is a connection. When she " cheats " ,

which is not very often, she is unable to absorb her meds properly,

(thyroxin, for one) and has problems with her other diseases not being

controlled. She has also pointed out to me that people can have

sensitivity to wheat/gluten without being celiac, which might very well

be the case with you. There is quite a bit of research going on. The

University of Chicago has a Celiac Clinic/program, and my friend feels

they are a very good source of information. Also, there is a strong

gentic component to it, and she tells me that it is very very common in

Northern Europe, especially the Scandanavian countries where blood

tests for celiac are now routinely given to school aged children, if I

am remembering correctly. This Northern European connection is

interesting, because certainly wheat/.grains have been a staple for

thousands of years.

I have had the genetic testing and biopsy, and been told it is

negative. One member of the local celiac group has now been diagnosed

with mito disorder. Who know the possible connections?

Sorry, just cant seem to stop on that subject.

Barbara, I hope it helps you to avoid gluten. While doing it would be

a nuisance, (and look out for the additives in some common foods you

might thing would not contain gluten) maybe some of your other problems

might be lessened also over time. My friend tells me it takes 2-3

months of not cheating to get her absorption back to a good state.

Best Regards

Sunny

> Recently I have gotten brave enough to eliminate all wheat/gluten from

> my

> diet and it has helped GI issues a LOT. I say brave because with CPT,

> a

> reduction of carbs is a known trigger. Given my other dietary

> restrictions,

> its pretty hard to cut out wheat without reducing carb intake. In the

> past,

> changes in diet have put me in the hospital, so I approach with

> caution.

>

> At this point, I have been on and off wheat enough to be sure.

> Strangely, my

> GI doc (dept chair of a big university hosp) had talked about celiac

> and did

> do a biopsy when my J-tube was placed. As far as I know, the biopsy

> was

> negative. Go figure. I may ask my PCP about antibodies, but I'm

> guessing he

> will say why bother.

>

> It seems ironic that I would end up with a sensitivity to wheat. I

> grew up

> on a wheat farm and my long-time ID has been Wheatchild.

>

> B

>

> _____

>

> From: thefourofus03

> Sent: Tuesday, March 01, 2005 9:00 PM

> To:

> Subject: Re: Food sensitivities/intolerances in

> mitochondrial

> disease?

>

> My daughter has food sensitivities to wheat, peanut, milk and egg

> and a little to soy. This cause her to have increased diarrhea. This

> in turn causes loss of nutrients etc. She has to avoid those foods.

> I know some have celiac disease (gluten issues) and some with autism

> are on the gluten free casein free diet. I don't know what other

> sympotms those food cause my daughter because she was only 2.5

> yrs.old when we found out.

>

> Dawn

>

> http://us.adserver.yahoo.com/l?M=298184.6018725.7038619.3001176/

> D=grphealth

> /S=:HM/A=2593423/rand=777590976>

>

> _____

>

March 2, 2005

Aha, this helps a lot. I guessed that the biopsies were not infallible, as

is the case with so many other tests devised and read by humans. I don't

really know how to tell the difference between a sensitivity and true

celiac. But my GI tract is now amazingly better, closer to normal than its

been in 20 years.

I also have a friend with Celiac......a friends' husband to be exact and she

has had contact with a local support group. I even gave her a wheat-free

cook book as a present a couple of years ago. She spends many hours every

week doing special cooking for her husband, which no one is going to do for

me! Instead I just stick to my 4 or 5 safe foods and my feeding formula.

Yes, I would be interested in info on the lab in CA. If my pcp wants to

pursue, then I can offer that option. The lineage aspect is interesting too.

My grandmother was born in Sweden.

Thanks much.

B

> Re: Food sensitivities/intolerances in

> > mitochondrial

> > disease?

> >

> > My daughter has food sensitivities to wheat, peanut, milk and egg

> > and a little to soy. This cause her to have increased diarrhea. This

> > in turn causes loss of nutrients etc. She has to avoid those foods.

> > I know some have celiac disease (gluten issues) and some with autism

> > are on the gluten free casein free diet. I don't know what other

> > sympotms those food cause my daughter because she was only 2.5

> > yrs.old when we found out.

> >

> > Dawn

> >

> > http://us.adserver.yahoo.com/l?M=298184.6018725.7038619.3001176/

> > D=grphealth

> > /S=:HM/A=2593423/rand=777590976>

> >

> > _____

> >

March 2, 2005

Kim

My kids have a lot of allergies, but so do others in the family. Of course,

there are others in the family who have mito as well. I don't know as if

they are connected or not. They have improved over time (they are now

adults).

My younger son had many autistic like tendencies when young. They are there

now, but he deals with them better. It has helped him to realize what is

causing him to deal as he does. He told me yesterday that he cannot skip a

word while reading. If he doesn't go back and read the word, he cannot move

on in his reading. He still has many sensory sensitivities.

laurie

>

> Reply-To:

> Date: Wed, 02 Mar 2005 04:21:05 -0000

> To:

> Subject: Re: Food sensitivities/intolerances in mitochondrial

> disease?

>

> My 13 year old is allergic to 44 of 90 foods she was tested for.

> When we found out at age 11, and took her off them, she had much

> less emotional/behavioral problems. She had many autistic symptoms

> when she was little, and didn't walk until 19 months. She had weak

> muscle tone, and a grand mal seizure at 2 years old. She has the

> most symptoms out of my kids, but I see things in all 4 of them.

> All have a lot of allergies too. Of course they won't test them

> until/unless they get a dx on me.

> Kim

>

>>

>> My daughter has food sensitivities to wheat, peanut, milk and egg

>> and a little to soy. This cause her to have increased diarrhea.

> This

>> in turn causes loss of nutrients etc. She has to avoid those

> foods.

>> I know some have celiac disease (gluten issues) and some with

> autism

>> are on the gluten free casein free diet. I don't know what other

>> sympotms those food cause my daughter because she was only 2.5

>> yrs.old when we found out.

>>

>> Dawn

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

March 2, 2005

Sunny

Becaude mito is metabolic, some have the symptoms of celiac disease without

actually having it. My son was diagnosed with it based on symptoms. He

didn't have it, but can't handle lactolose or glocose very well and stays

away from them. He was on the celiac diet, along with an allergy diet when

little. No wonder he was a fussy eater for years.

laurie

> From: z39z@...

> Reply-To:

> Date: Wed, 2 Mar 2005 10:16:44 -0500

> To:

> Subject: Re: Re: Food sensitivities/intolerances in mitochondrial

> disease?

>

> Interesting, Barbara

>

> First of all, it is good that you found something that might alleviate

> your symptoms, although I know it is a hard food to eliminate.

>

> I explored Celiac. It was easy to do for me because about 10 years ago

> a very old friend of mine was diagnosed celiac after many years of

> illness. She became very knowledgeable on the subject and started a

> local chapter of the celiac support group, which now has over 300

> active members. They routinely get 10 new people a month that they give

> initial information to.

>

> From my friend I learned that celiac can be difficult to diagnose, even

> with biopsy. Sometimes the biopsy is not taken from the right spot,

> and sometimes it is not read correctly. Sometimes people are celiac

> without the obvious signs - diarrhea and weight loss. Several blood

> tests are fairly reliable, but not totally. I believe the antibody

> test is the most definitive. I can get you more specific info on the

> lab in California favored by a local gastro who is up on the stuff if

> you would like. And not many docs are up on Celiac, I am afraid.

>

> My friend's celiac was finally found because she had abnormal levels

> (low I believe) of the fat soluble vitamins, and an unusual glucose

> curve. Absorption problems finally became clear to about the 10th doc

> she had seen. She also had thyroid problems and now is adult-onsel

> diabetic. Anyone's guess if there is a connection. When she " cheats " ,

> which is not very often, she is unable to absorb her meds properly,

> (thyroxin, for one) and has problems with her other diseases not being

> controlled. She has also pointed out to me that people can have

> sensitivity to wheat/gluten without being celiac, which might very well

> be the case with you. There is quite a bit of research going on. The

> University of Chicago has a Celiac Clinic/program, and my friend feels

> they are a very good source of information. Also, there is a strong

> gentic component to it, and she tells me that it is very very common in

> Northern Europe, especially the Scandanavian countries where blood

> tests for celiac are now routinely given to school aged children, if I

> am remembering correctly. This Northern European connection is

> interesting, because certainly wheat/.grains have been a staple for

> thousands of years.

>

> I have had the genetic testing and biopsy, and been told it is

> negative. One member of the local celiac group has now been diagnosed

> with mito disorder. Who know the possible connections?

>

> Sorry, just cant seem to stop on that subject.

>

> Barbara, I hope it helps you to avoid gluten. While doing it would be

> a nuisance, (and look out for the additives in some common foods you

> might thing would not contain gluten) maybe some of your other problems

> might be lessened also over time. My friend tells me it takes 2-3

> months of not cheating to get her absorption back to a good state.

>

> Best Regards

>

> Sunny

>

>> Recently I have gotten brave enough to eliminate all wheat/gluten from

>> my

>> diet and it has helped GI issues a LOT. I say brave because with CPT,

>> a

>> reduction of carbs is a known trigger. Given my other dietary

>> restrictions,

>> its pretty hard to cut out wheat without reducing carb intake. In the

>> past,

>> changes in diet have put me in the hospital, so I approach with

>> caution.

>>

>> At this point, I have been on and off wheat enough to be sure.

>> Strangely, my

>> GI doc (dept chair of a big university hosp) had talked about celiac

>> and did

>> do a biopsy when my J-tube was placed. As far as I know, the biopsy

>> was

>> negative. Go figure. I may ask my PCP about antibodies, but I'm

>> guessing he

>> will say why bother.

>>

>> It seems ironic that I would end up with a sensitivity to wheat. I

>> grew up

>> on a wheat farm and my long-time ID has been Wheatchild.

>>

>> B

>>

>> _____

>>

>> From: thefourofus03

>> Sent: Tuesday, March 01, 2005 9:00 PM

>> To:

>> Subject: Re: Food sensitivities/intolerances in

>> mitochondrial

>> disease?

>>

>> My daughter has food sensitivities to wheat, peanut, milk and egg

>> and a little to soy. This cause her to have increased diarrhea. This

>> in turn causes loss of nutrients etc. She has to avoid those foods.

>> I know some have celiac disease (gluten issues) and some with autism

>> are on the gluten free casein free diet. I don't know what other

>> sympotms those food cause my daughter because she was only 2.5

>> yrs.old when we found out.

>>

>> Dawn

>>

>> http://us.adserver.yahoo.com/l?M=298184.6018725.7038619.3001176/

>> D=grphealth

>> /S=:HM/A=2593423/rand=777590976>

>>

>> _____

>>

March 2, 2005

Barbara

I don't know how to tell the difference between celiac and wheat

sensitivity, from a symptom point of view either.

A lot of the special cooking that many celiacs do involves making foods

like cookies, cakes, breads, etc. without gluten. Seems that they

crave these foods. Myself, I would/do take the tack to eat what I

could. A lot of high gluten foods aren't that healthy in the big

picture anyway. But, that is coming from a person who is not tolerant

of high glycemi- index foods in general.The B vitamins gotten from

grains is one thing I do worry about. In total, it seems that finding

out what agrees with us individually is the challenge!

One food that I like particularly is avocado. It is rich in

nutrients, (high in fat- good omega's- and calories, as well as some

vitamins, etc} different that most fruits/veggies (and it is

technically a fruit, although behaves more like a vegetable, imo) seems

to be easy to digest for me, and is absolutely NO labor. I like 1/2

avocado, diced, with almost anything on my dinner plate. When I

consider the benefits, the cost is worth it to me.

Hopefully, I will have the Lab info for you tomorrow.

Regards

Sunny

l

> Aha, this helps a lot. I guessed that the biopsies were not

> infallible, as

> is the case with so many other tests devised and read by humans. I

> don't

> really know how to tell the difference between a sensitivity and true

> celiac. But my GI tract is now amazingly better, closer to normal

> than its

> been in 20 years.

>

> I also have a friend with Celiac......a friends' husband to be exact

> and she

> has had contact with a local support group. I even gave her a

> wheat-free

> cook book as a present a couple of years ago. She spends many hours

> every

> week doing special cooking for her husband, which no one is going to

> do for

> me! Instead I just stick to my 4 or 5 safe foods and my feeding

> formula.

>

> Yes, I would be interested in info on the lab in CA. If my pcp wants

> to

> pursue, then I can offer that option. The lineage aspect is

> interesting too.

> My grandmother was born in Sweden.

>

> Thanks much.

> B

>

> > Re: Food sensitivities/intolerances in

> > > mitochondrial

> > > disease?

> > >

> > > My daughter has food sensitivities to wheat, peanut, milk and egg

> > > and a little to soy. This cause her to have increased diarrhea.

> This

> > > in turn causes loss of nutrients etc. She has to avoid those

> foods.

> > > I know some have celiac disease (gluten issues) and some with

> autism

> > > are on the gluten free casein free diet. I don't know what other

> > > sympotms those food cause my daughter because she was only 2.5

> > > yrs.old when we found out.

> > >

> > > Dawn

> > >

> > > http://us.adserver.yahoo.com/l?M=298184.6018725.7038619.3001176/

> > > D=grphealth

> > > /S=:HM/A=2593423/rand=777590976>

> > >

> > > _____

> > >

March 2, 2005

Sunny, I have to smile at the NO labor point. One reason why I eat so much

yogurt. Avocado is an interesting suggestion. I have usually avoided it

because of fat content, but I might try a small amount for tolerance. I too

worry about B vitamins even though I take a multi-vitamin. It's not the same

as food. I LOVE whole grains and crave a good piece of whole wheat bread

more than chocolate. When my husband makes toast, I go to the other end of

the house!

B

> Re: Food sensitivities/intolerances in

> > > > mitochondrial

> > > > disease?

> > > >

> > > > My daughter has food sensitivities to wheat, peanut, milk and egg

> > > > and a little to soy. This cause her to have increased diarrhea.

> > This

> > > > in turn causes loss of nutrients etc. She has to avoid those

> > foods.

> > > > I know some have celiac disease (gluten issues) and some with

> > autism

> > > > are on the gluten free casein free diet. I don't know what other

> > > > sympotms those food cause my daughter because she was only 2.5

> > > > yrs.old when we found out.

> > > >

> > > > Dawn

> > > >

> > > > http://us.adserver.yahoo.com/l?M=298184.6018725.7038619.3001176/

> > > > D=grphealth

> > > > /S=:HM/A=2593423/rand=777590976>

> > > >

> > > > _____

> > > >

March 3, 2005

Hi, Barbara

The Lab where I had my Celiac testing done is Prometheus Lab,

1-.

The tests I had run were:

Anti-Gliadin IgA ELISA

Anti-Gliadin IgG ElISA

Anti-Endomysial IgA IFA

Anti-Human Tissue Transglutaminase IgA ELISE

Total Serumm IgA by Nehpelometry

CeliaGENE - Celiac Genetics - (HLA-DQ2/HLA-DQ8)

I believe the last one is the definitive one, but once this type of

test is over, I rather forget if the result is negative.

Several caveats -

The cost for this was $750, of which my insurance covered approximately

$400.

The gastro who ordered the tests is someone who diagnoses celiac with

much greater frequency that many other docs. People in the celiac

group are impressed by her. She does have a reputation for knowing how

to do the biopsys properly. It is only my presumption that she has

researched the issue of the best lab testing, etc

Best Regards

Sunny

> Aha, this helps a lot. I guessed that the biopsies were not

> infallible, as

> is the case with so many other tests devised and read by humans. I

> don't

> really know how to tell the difference between a sensitivity and true

> celiac. But my GI tract is now amazingly better, closer to normal

> than its

> been in 20 years.

>

> I also have a friend with Celiac......a friends' husband to be exact

> and she

> has had contact with a local support group. I even gave her a

> wheat-free

> cook book as a present a couple of years ago. She spends many hours

> every

> week doing special cooking for her husband, which no one is going to

> do for

> me! Instead I just stick to my 4 or 5 safe foods and my feeding

> formula.

>

> Yes, I would be interested in info on the lab in CA. If my pcp wants

> to

> pursue, then I can offer that option. The lineage aspect is

> interesting too.

> My grandmother was born in Sweden.

>

> Thanks much.

> B

>

> > Re: Food sensitivities/intolerances in

> > > mitochondrial

> > > disease?

> > >

> > > My daughter has food sensitivities to wheat, peanut, milk and egg

> > > and a little to soy. This cause her to have increased diarrhea.

> This

> > > in turn causes loss of nutrients etc. She has to avoid those

> foods.

> > > I know some have celiac disease (gluten issues) and some with

> autism

> > > are on the gluten free casein free diet. I don't know what other

> > > sympotms those food cause my daughter because she was only 2.5

> > > yrs.old when we found out.

> > >

> > > Dawn

> > >

> > > http://us.adserver.yahoo.com/l?M=298184.6018725.7038619.3001176/

> > > D=grphealth

> > > /S=:HM/A=2593423/rand=777590976>

> > >

> > > _____

> > >

March 3, 2005

Thank you very much, Sunny! I will print and save. This is exactly the

detail that I needed.

B

> Re: Food sensitivities/intolerances in

> > > > mitochondrial

> > > > disease?

> > > >

> > > > My daughter has food sensitivities to wheat, peanut, milk and egg

> > > > and a little to soy. This cause her to have increased diarrhea.

> > This

> > > > in turn causes loss of nutrients etc. She has to avoid those

> > foods.

> > > > I know some have celiac disease (gluten issues) and some with

> > autism

> > > > are on the gluten free casein free diet. I don't know what other

> > > > sympotms those food cause my daughter because she was only 2.5

> > > > yrs.old when we found out.

> > > >

> > > > Dawn

> > > >

> > > > http://us.adserver.yahoo.com/l?M=298184.6018725.7038619.3001176/

> > > > D=grphealth

> > > > /S=:HM/A=2593423/rand=777590976>

> > > >

> > > > _____

> > > >

March 4, 2005

Gillian

I don't know of any official info on the connection between mito and

Celiac. My guess is there is not much, since both of them are rather

" orphan diseases " not recognized and diagnosed sufficiently at this

time by mainstream medicine. I finally decided to rule it out by

having the genetic blood test.

Have you considered just trying to avoid all gluten for a while? Some

people in the support group have felt so much better that they don't

bother with further testing.

But, also know, that if you do have further testing, you should be

eating gluten for at least a month before the test, or you could get a

false negative.

Getting a correct diagnosis of celiac can be very tricky.

What are some other processes that would produce a high IgG?

Regards

Sunny

>

> This Coeliac diagnosis and mito. has me wondering if any official

> info, is available on it...I have very heavy IgG parietal antibody

> activity and twice have undergone endoscope biopsy for coeliacs, my

> mito. Doc suspects i have coeliacs but yet the biopsy he was told by

> the gastro. was negative also for H. Pylori, I do apparently have a

> patchy inflammation of my stomach

>

> Gillian

>

> > >

> > >> Recently I have gotten brave enough to eliminate all

> wheat/gluten from

> > >> my

> > >> diet and it has helped GI issues a LOT. I say brave because

> with CPT,

> > >> a

> > >> reduction of carbs is a known trigger. Given my other dietary

> > >> restrictions,

> > >> its pretty hard to cut out wheat without reducing carb intake.

> In the

> > >> past,

> > >> changes in diet have put me in the hospital, so I approach with

> > >> caution.

> > >>

> > >> At this point, I have been on and off wheat enough to be sure.

> > >> Strangely, my

> > >> GI doc (dept chair of a big university hosp) had talked about

> celiac

> > >> and did

> > >> do a biopsy when my J-tube was placed. As far as I know, the

> biopsy

> > >> was

> > >> negative. Go figure. I may ask my PCP about antibodies, but I'm

> > >> guessing he

> > >> will say why bother.

> > >>

> > >> It seems ironic that I would end up with a sensitivity to

> wheat. I

> > >> grew up

> > >> on a wheat farm and my long-time ID has been Wheatchild.

> > >>

> > >> B

> > >>

> > >> _____

> > >>

> > >> From: thefourofus03 [mailto:thefourofus03@y...]

> > >> Sent: Tuesday, March 01, 2005 9:00 PM

> > >> To:

> > >> Subject: Re: Food sensitivities/intolerances in

> > >> mitochondrial

> > >> disease?

> > >>

> > >> My daughter has food sensitivities to wheat, peanut, milk and

> egg

> > >> and a little to soy. This cause her to have increased diarrhea.

> This

> > >> in turn causes loss of nutrients etc. She has to avoid those

> foods.

> > >> I know some have celiac disease (gluten issues) and some with

> autism

> > >> are on the gluten free casein free diet. I don't know what other

> > >> sympotms those food cause my daughter because she was only 2.5

> > >> yrs.old when we found out.

> > >>

> > >> Dawn

> > >>

> > >> http://us.adserver.yahoo.com/l?

> M=298184.6018725.7038619.3001176/

> > >> D=grphealth

> > >> /S=:HM/A=2593423/rand=777590976>

> > >>

> > >> _____

> > >>

March 4, 2005

I read recently about a women that for a couple of years couldn't eat

tomato products because of an allergy and then one day all she did was

open a can of tomato sauce to make spaghetti for her kids and she did

pass out and die. She didn't eat it or even touch it, she only breathed

near it. BE CAREFUL!!!!!

ohgminion wrote:

>I now have a tomato allergy that only started after I started having

>mito symptoms. I'm not sure why, but within 10 minutes of eating

>tomatoes, especially fresh, I get weak and almost pass out. I don't

>get diarrhea or any other gastrointestinal symptoms, so I wonder if

>it wacks out my blood sugar somehow, or increases irritation or

>something.

>

>Someone told me " no, it couldn't be an allergy, because plants don't

>have proteins " , but I did some research and plants do have proteins

>(not as much as meat of course), and they can cause true allergic

>reactions.

>

>http://www.healthgoods.com/Education/Nutrition_Information/Nutrition_a

>nd_Health/food_allergies.htm

>

>Take care,

>RH

>

>>>> > >

>>>> > >> Recently I have gotten brave enough to eliminate all

>>>> wheat/gluten from

>>>> > >> my

>>>> > >> diet and it has helped GI issues a LOT. I say brave

>>>>

>because

>

>>>> with CPT,

>>>> > >> a

>>>> > >> reduction of carbs is a known trigger. Given my other

>>>>

>>dietary

>>

>>>> > >> restrictions,

>>>> > >> its pretty hard to cut out wheat without reducing carb

>>>>

>>intake.

>>

>>>> In the

>>>> > >> past,

>>>> > >> changes in diet have put me in the hospital, so I

>>>>

>approach

>

>>with

>>

>>>> > >> caution.

>>>> > >>

>>>> > >> At this point, I have been on and off wheat enough to be

>>>>

>>sure.

>>

>>>> > >> Strangely, my

>>>> > >> GI doc (dept chair of a big university hosp) had talked

>>>>

>>about

>>

>>>> celiac

>>>> > >> and did

>>>> > >> do a biopsy when my J-tube was placed. As far as I know,

>>>>

>>the

>>

>>>> biopsy

>>>> > >> was

>>>> > >> negative. Go figure. I may ask my PCP about antibodies,

>>>>

>>but I'm

>>

>>>> > >> guessing he

>>>> > >> will say why bother.

>>>> > >>

>>>> > >> It seems ironic that I would end up with a sensitivity to

>>>> wheat. I

>>>> > >> grew up

>>>> > >> on a wheat farm and my long-time ID has been Wheatchild.

>>>> > >>

>>>> > >> B

>>>> > >>

>>>> > >> _____

>>>> > >>

>>>> > >> From: thefourofus03 [mailto:thefourofus03@y...]

>>>> > >> Sent: Tuesday, March 01, 2005 9:00 PM

>>>> > >> To:

>>>> > >> Subject: Re: Food sensitivities/intolerances in

>>>> > >> mitochondrial

>>>> > >> disease?

>>>> > >>

>>>> > >> My daughter has food sensitivities to wheat, peanut, milk

>>>>

>>and

>>

>>>> egg

>>>> > >> and a little to soy. This cause her to have increased

>>>>

>>diarrhea.

>>

>>>> This

>>>> > >> in turn causes loss of nutrients etc. She has to avoid

>>>>

>>those

>>

>>>> foods.

>>>> > >> I know some have celiac disease (gluten issues) and some

>>>>

>>with

>>

>>>> autism

>>>> > >> are on the gluten free casein free diet. I don't know

>>>>

>what

>

>>other

>>

>>>> > >> sympotms those food cause my daughter because she was

>>>>

>only

>

>>2.5

>>

>>>> > >> yrs.old when we found out.

>>>> > >>

>>>> > >> Dawn

>>>> > >>

>>>> > >> http://us.adserver.yahoo.com/l?

>>>> M=298184.6018725.7038619.3001176/

>>>> > >> D=grphealth

>>>> > >> /S=:HM/A=2593423/rand=777590976>

>>>> > >>

>>>> > >> _____

>>>> > >>

Sign In

RE: Re: Food sensitivities/intolerances in mitochondrial disease?

Recommended Posts

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Join the conversation

Activity