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Re: Re: General Anesthetics

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If you are going to have some teeth done at a time and not all, you may

want to consider having the adult teeth out first, so if your son does

have problems, the baby teeth will still have a chance to come out on

their own later.

chris1gill@... wrote:

>

>It's an interesting topic I started! I'm glad to have started it though,

>because I've never found other people that had problems with general's like I

do!

>

>My first two surgeries I just had the unbelievable nausea, course after that

>they started giving me something in the sedation for that... On the third

>surgery they could not rouse me for more than half an hour... On the next

>surgery I came through, but was not able to speak or move for a time.. I was

>awake, but that was my condition for a day... The following surgery after

that

>my body just melted down.... I wound up in the hospital for three days with

>such an unbelievable reaction of vomiting & not being able to speak and move

>properly, I felt in my head like a caged animal... Even after I left the

>hospital I was ill for two weeks.... That was it, I plan never to have another

>general unless it's a life or death situation.... So to say I want to avoid

any

>general for our son is an understatement :(

>

>We've had three opinions on his mouth, so we are okay to go ahead... of the

>teeth they are taking, only four are adult teeth, and they really need to come

> out, there is just absolutely no room for them in his mouth.... the others

>are just babies that are either already loose or will become loose within a

>year.... I'll just be glad when it's over... it may take more appointments,

but

>I think it's the safest thing to do...

>

>I really am relieved (sort of) to hear other people have some of the same

>problems that I do...

>Chris

>In a message dated 1/28/2005 3:50:00 AM Eastern Standard Time,

> writes:

>

>Subject: Re: General Anesthetics

>

>Thanks, Laurie and Barbara

>

>I take forever to come to, with extreme nausea and feeling just god

>awful. With my first surgery (spinal) I was in the OR before 8:00 am,

>and was the last to get out past midnight. I could not get warm, even

>with the heated blankets they gave me. I rejected the pain injections

>because it was suggested that they might increase the nausea, and

>generally I just wanted to die. The pain from the spinal fusion was

>secondary to the awful feeling of being in the twilight zone for hours.

>My muscle weakness also go worse after the surgery. Not sure if the

>anesthesia or the prolonged bedrest contributed most there. I just

>felt I never was the same.

>

>After my second surgery I came out with noise sensitivity which was

>really extreme for several days. It was very difficult then, and is

>still a problem for me. I had a touch of it before, but got worse

>right when I came out of that surgery. My rheumatoid count went sky

>high, and I had extremely unusual muscle/tendon pain, stiffness and

>weakness. That took about 2 years to settle down. I do not have RA,

>Lupus, etc. The weakness remained. (That is why I am soooo happy that

>weight lifting counters some of it) Mentally, I am not sure I ever was

>the same after the surgeries either, but that is more difficult for me

>to say.

>

>I feel strongly that the surgeries/anesthesias contributed to my

>symptoms getting worse. I just did NOT recover the same way other

>people I knew recovered. I am just curious if others here feel the

>same way or had similar experiences. I didn't even understand about

>the anesthesia until I reflected on it way after the second surgery,

>but I intend to avoid generals if at all possible in the future.

>

>

>Barbara,

>I sure can see why you would want to avoid craniotomy! I really hope

>that Lazier Knife treatment will work for you.

>

>

>Regards

>

>Sunny

>

>

>

>

>

>

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If you are going to have some teeth done at a time and not all, you may

want to consider having the adult teeth out first, so if your son does

have problems, the baby teeth will still have a chance to come out on

their own later.

chris1gill@... wrote:

>

>It's an interesting topic I started! I'm glad to have started it though,

>because I've never found other people that had problems with general's like I

do!

>

>My first two surgeries I just had the unbelievable nausea, course after that

>they started giving me something in the sedation for that... On the third

>surgery they could not rouse me for more than half an hour... On the next

>surgery I came through, but was not able to speak or move for a time.. I was

>awake, but that was my condition for a day... The following surgery after

that

>my body just melted down.... I wound up in the hospital for three days with

>such an unbelievable reaction of vomiting & not being able to speak and move

>properly, I felt in my head like a caged animal... Even after I left the

>hospital I was ill for two weeks.... That was it, I plan never to have another

>general unless it's a life or death situation.... So to say I want to avoid

any

>general for our son is an understatement :(

>

>We've had three opinions on his mouth, so we are okay to go ahead... of the

>teeth they are taking, only four are adult teeth, and they really need to come

> out, there is just absolutely no room for them in his mouth.... the others

>are just babies that are either already loose or will become loose within a

>year.... I'll just be glad when it's over... it may take more appointments,

but

>I think it's the safest thing to do...

>

>I really am relieved (sort of) to hear other people have some of the same

>problems that I do...

>Chris

>In a message dated 1/28/2005 3:50:00 AM Eastern Standard Time,

> writes:

>

>Subject: Re: General Anesthetics

>

>Thanks, Laurie and Barbara

>

>I take forever to come to, with extreme nausea and feeling just god

>awful. With my first surgery (spinal) I was in the OR before 8:00 am,

>and was the last to get out past midnight. I could not get warm, even

>with the heated blankets they gave me. I rejected the pain injections

>because it was suggested that they might increase the nausea, and

>generally I just wanted to die. The pain from the spinal fusion was

>secondary to the awful feeling of being in the twilight zone for hours.

>My muscle weakness also go worse after the surgery. Not sure if the

>anesthesia or the prolonged bedrest contributed most there. I just

>felt I never was the same.

>

>After my second surgery I came out with noise sensitivity which was

>really extreme for several days. It was very difficult then, and is

>still a problem for me. I had a touch of it before, but got worse

>right when I came out of that surgery. My rheumatoid count went sky

>high, and I had extremely unusual muscle/tendon pain, stiffness and

>weakness. That took about 2 years to settle down. I do not have RA,

>Lupus, etc. The weakness remained. (That is why I am soooo happy that

>weight lifting counters some of it) Mentally, I am not sure I ever was

>the same after the surgeries either, but that is more difficult for me

>to say.

>

>I feel strongly that the surgeries/anesthesias contributed to my

>symptoms getting worse. I just did NOT recover the same way other

>people I knew recovered. I am just curious if others here feel the

>same way or had similar experiences. I didn't even understand about

>the anesthesia until I reflected on it way after the second surgery,

>but I intend to avoid generals if at all possible in the future.

>

>

>Barbara,

>I sure can see why you would want to avoid craniotomy! I really hope

>that Lazier Knife treatment will work for you.

>

>

>Regards

>

>Sunny

>

>

>

>

>

>

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Yes, Chris

It is an interesting topic, and I am glad it is going. Not that I want

anyone else to have problems, but It is always good to hear from others

with similar experiences to validate the reality of our atypical mito

bodies. It took me years to conclude that the anesthesia might have

contributed significantly to my decline, but now I feel that anesthesia

can be one of the physiological stressors to make mito worse.

Something for all of us to be on the lookout for and guard against,

imo.

Regards

Sunny

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I went over all the precautions with the anesthesia head, just as a

precaution before I had my colonoscopy scheduled last year. I spent the

night before in the hospital so that I could be on D10 overnight instead

of fasting with all the problems that creates. The doctor and I got in

the procedure room and the anesthesiologist that they scheduled refused

to only give me a twilight like the doctor and I agreed. The

anesthesiologist said he would ONLY give me a general for this

procedure, despite the mito dangers. When the doc and I couldn't talk

him into anything other than the general, I got up off the table and

the doc and I walked out - no procedure thanks to the idiot that

wouldn't give me the twilight. We even told him I had the procedure

done with only a twilight in the past with no issues and he said he

didn't care. Arrhhh!!!!

z39z@... wrote:

>Yes, Chris

>

>It is an interesting topic, and I am glad it is going. Not that I want

>anyone else to have problems, but It is always good to hear from others

>with similar experiences to validate the reality of our atypical mito

>bodies. It took me years to conclude that the anesthesia might have

>contributed significantly to my decline, but now I feel that anesthesia

>can be one of the physiological stressors to make mito worse.

>Something for all of us to be on the lookout for and guard against,

>imo.

>

>Regards

>

>Sunny

>

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RH

There is a list of anesthetics and what they do to the mito and what to

avoid. I think it might be on the " " website, but if not, it should

be on the UMDF site. It is also in the booklet " think mito "

I have the opposite reaction than you do. When I have twilight sleep, I can

remember not only what they tell me after the procedure, but what was

discussed during it.

laurie

>

> Reply-To:

> Date: Fri, 28 Jan 2005 18:06:17 -0000

> To:

> Subject: Re: General Anesthetics

>

>

> During one surgery, they woke me up in the middle to " see how I was

> doing " . Very weird, no pain, could talk a bit, but it was extremely

> odd. The main problem I have after surgery is that my blood pressure

> goes up (200/150 or more), and I also stay groggy for longer, so they

> try to give me info on the surgery, and I'm like " yeah, yeah, yes

> mom, i'll do the dishes after i do my homework... "

>

> It's too bad they don't monitor these things more closely, there are

> MANY types of anesthesia. A list of what to avoid and what might

> work best would be nice.

>

> For example, a lot of vets are using Isoflurane for anesthetizing

> rabbits, because other anesthetic methods prove toxic, and they found

> that dogs and cats do better with it as well, better than halothane

> which is more common (and cheaper I guess).

> " Isoflurane has the largest circulatory margin of safety of all

> potent halogenated agents; it produces the least myocardial

> depression at a given multiple of MAC. "

>

> Take care,

> RH

>

>

>

>>

>> It's an interesting topic I started! I'm glad to have started it

> though,

>> because I've never found other people that had problems with

> general's like I do!

>>

>> My first two surgeries I just had the unbelievable nausea, course

> after that

>> they started giving me something in the sedation for that... On

> the third

>> surgery they could not rouse me for more than half an hour... On

> the next

>> surgery I came through, but was not able to speak or move for a

> time.. I was

>> awake, but that was my condition for a day... The following

> surgery after that

>> my body just melted down.... I wound up in the hospital for three

> days with

>> such an unbelievable reaction of vomiting & not being able to

> speak and move

>> properly, I felt in my head like a caged animal... Even after I

> left the

>> hospital I was ill for two weeks.... That was it, I plan never to

> have another

>> general unless it's a life or death situation.... So to say I want

> to avoid any

>> general for our son is an understatement :(

>>

>> We've had three opinions on his mouth, so we are okay to go

> ahead... of the

>> teeth they are taking, only four are adult teeth, and they really

> need to come

>> out, there is just absolutely no room for them in his mouth....

> the others

>> are just babies that are either already loose or will become loose

> within a

>> year.... I'll just be glad when it's over... it may take more

> appointments, but

>> I think it's the safest thing to do...

>>

>> I really am relieved (sort of) to hear other people have some of

> the same

>> problems that I do...

>> Chris

>> In a message dated 1/28/2005 3:50:00 AM Eastern Standard Time,

>> writes:

>>

>> Subject: Re: General Anesthetics

>>

>> Thanks, Laurie and Barbara

>>

>> I take forever to come to, with extreme nausea and feeling just

> god

>> awful. With my first surgery (spinal) I was in the OR before 8:00

> am,

>> and was the last to get out past midnight. I could not get warm,

> even

>> with the heated blankets they gave me. I rejected the pain

> injections

>> because it was suggested that they might increase the nausea, and

>> generally I just wanted to die. The pain from the spinal fusion

> was

>> secondary to the awful feeling of being in the twilight zone for

> hours.

>> My muscle weakness also go worse after the surgery. Not sure if

> the

>> anesthesia or the prolonged bedrest contributed most there. I

> just

>> felt I never was the same.

>>

>> After my second surgery I came out with noise sensitivity which

> was

>> really extreme for several days. It was very difficult then, and

> is

>> still a problem for me. I had a touch of it before, but got worse

>> right when I came out of that surgery. My rheumatoid count went

> sky

>> high, and I had extremely unusual muscle/tendon pain, stiffness

> and

>> weakness. That took about 2 years to settle down. I do not have

> RA,

>> Lupus, etc. The weakness remained. (That is why I am soooo happy

> that

>> weight lifting counters some of it) Mentally, I am not sure I

> ever was

>> the same after the surgeries either, but that is more difficult

> for me

>> to say.

>>

>> I feel strongly that the surgeries/anesthesias contributed to my

>> symptoms getting worse. I just did NOT recover the same way other

>> people I knew recovered. I am just curious if others here feel

> the

>> same way or had similar experiences. I didn't even understand

> about

>> the anesthesia until I reflected on it way after the second

> surgery,

>> but I intend to avoid generals if at all possible in the future.

>>

>>

>> Barbara,

>> I sure can see why you would want to avoid craniotomy! I really

> hope

>> that Lazier Knife treatment will work for you.

>>

>>

>> Regards

>>

>> Sunny

>>

>>

>>

>>

>>

>>

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Share on other sites

I found out later that the anesthesioligists aren't on staff at the

hospital, they are outsourced, so, my pre-meeting was useless. I never

saw a bill from the insurance or hospital for the overnights stay,

go-lightly and IV, and I had better not EVER see one.

chris1gill@... wrote:

>

>Hi ,

>

>Are you kidding? The anesthesiologist overrode what the doctor said? That's

>just outrageous... you did the right thing... at this point, I would have to

>be in serious trouble to ever allow another general...

>

>:(

>

>Chris

>In a message dated 1/28/2005 6:16:12 PM Eastern Standard Time,

> writes:

>

>I went over all the precautions with the anesthesia head, just as a

>precaution before I had my colonoscopy scheduled last year. I spent the

>night before in the hospital so that I could be on D10 overnight instead

>of fasting with all the problems that creates. The doctor and I got in

>the procedure room and the anesthesiologist that they scheduled refused

>to only give me a twilight like the doctor and I agreed. The

>anesthesiologist said he would ONLY give me a general for this

>procedure, despite the mito dangers. When the doc and I couldn't talk

>him into anything other than the general, I got up off the table and

>the doc and I walked out - no procedure thanks to the idiot that

>wouldn't give me the twilight. We even told him I had the procedure

>done with only a twilight in the past with no issues and he said he

>didn't care. Arrhhh!!!!

>

>

>

>

>

>

>

>

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