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Interesting. I have exactly the opposite problem----a prolonged paralytic

and sedative effect with general or spinal anesthesia. This has been

reported in other mito patients. I also had slurred speech for several days

following general, but spinal is almost worse for me. Won't go into all the

gory details but with the last spinal in 1991 it took 6 months to recover

nerve function in my legs. With the last general in 2003, it's hard to tell

how many of the problems stemmed from anesthesia as opposed to surgical

insult. The last thing the anesthesiologist said before they rolled me down

the hall was we'll try to minimize the reaction, but there's no way you're

going to come through general anesthesia without some problems. Yikes. You

can see why I don't want craniotomy right now.

BTW, our particular mutation is known to be associated with malignant

hyperthermia----that is another patient with this mutation has had MH

following anesthesia, but I have not had this reaction. They always prepare

anyway.

B

_____

From: Laureta Fitzgerald

Sent: Thursday, January 27, 2005 5:09 PM

To:

Subject: Re: General Anaesthetics for a child...

* Sunny

They have had problems intubating me, because I become rigid when given the

anesthetic. They now intubate me while awake, so if it happens, I will at

least have a good airway established.

I also come out of some anesthetics, especially locals and spinals long

before they expect.

laurie

> From: z39z@...

> Reply-To:

> Date: Thu, 27 Jan 2005 17:36:25 -0500

> To:

> Subject: Re: General Anaesthetics for a child...

>

>

> Hi, Chris

>

> I too have had severe problems after surgeries, and I feel a likely

> culprit is the general. If it were me, I would worry that my child

> might have my tendencies, and do everything to avoid a general for him.

> I believe sometimes they give generals because it is the easiest thing

> to do for them, and alternatives might be just as effective if they

> are pushed to use them. Just my two cents worth.

>

> Regards

>

> Sunny

>

> PS

> I would love to compare notes as to the effect of general anesthsia on

> people who have had problems. I won't go into my problems at this

> time.

>

>

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Share on other sites

Barbara

My last anesthesiologist explained that the newer drugs that are using are

much less likely to cause MH, but those are the ones we shouldn't have. The

older ones that are easier on the mitochondria are more apt to cause MH.

Another anesthesiologist at CCF whose wife has mito, explained that I

probably had the reaction I did (stiffening out) was because they used

Anectine and I have myoclonus. He said that if you have myoclonus, you

shouldn't have Anectine.

laurie

>

> Reply-To:

> Date: Thu, 27 Jan 2005 17:38:15 -0600

> To: >

> Subject: RE: General Anesthetics

>

> Interesting. I have exactly the opposite problem----a prolonged paralytic

> and sedative effect with general or spinal anesthesia. This has been

> reported in other mito patients. I also had slurred speech for several days

> following general, but spinal is almost worse for me. Won't go into all the

> gory details but with the last spinal in 1991 it took 6 months to recover

> nerve function in my legs. With the last general in 2003, it's hard to tell

> how many of the problems stemmed from anesthesia as opposed to surgical

> insult. The last thing the anesthesiologist said before they rolled me down

> the hall was we'll try to minimize the reaction, but there's no way you're

> going to come through general anesthesia without some problems. Yikes. You

> can see why I don't want craniotomy right now.

>

>

>

> BTW, our particular mutation is known to be associated with malignant

> hyperthermia----that is another patient with this mutation has had MH

> following anesthesia, but I have not had this reaction. They always prepare

> anyway.

>

> B

>

>

>

> _____

>

> From: Laureta Fitzgerald

> Sent: Thursday, January 27, 2005 5:09 PM

> To:

> Subject: Re: General Anaesthetics for a child...

>

>

>

> * Sunny

>

> They have had problems intubating me, because I become rigid when given the

> anesthetic. They now intubate me while awake, so if it happens, I will at

> least have a good airway established.

>

> I also come out of some anesthetics, especially locals and spinals long

> before they expect.

>

> laurie

>

>> From: z39z@...

>> Reply-To:

>> Date: Thu, 27 Jan 2005 17:36:25 -0500

>> To:

>> Subject: Re: General Anaesthetics for a child...

>>

>>

>> Hi, Chris

>>

>> I too have had severe problems after surgeries, and I feel a likely

>> culprit is the general. If it were me, I would worry that my child

>> might have my tendencies, and do everything to avoid a general for him.

>> I believe sometimes they give generals because it is the easiest thing

>> to do for them, and alternatives might be just as effective if they

>> are pushed to use them. Just my two cents worth.

>>

>> Regards

>>

>> Sunny

>>

>> PS

>> I would love to compare notes as to the effect of general anesthsia on

>> people who have had problems. I won't go into my problems at this

>> time.

>>

>>

>

>

>

>

>

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Share on other sites

Thanks, Laurie and Barbara

I take forever to come to, with extreme nausea and feeling just god

awful. With my first surgery (spinal) I was in the OR before 8:00 am,

and was the last to get out past midnight. I could not get warm, even

with the heated blankets they gave me. I rejected the pain injections

because it was suggested that they might increase the nausea, and

generally I just wanted to die. The pain from the spinal fusion was

secondary to the awful feeling of being in the twilight zone for hours.

My muscle weakness also go worse after the surgery. Not sure if the

anesthesia or the prolonged bedrest contributed most there. I just

felt I never was the same.

After my second surgery I came out with noise sensitivity which was

really extreme for several days. It was very difficult then, and is

still a problem for me. I had a touch of it before, but got worse

right when I came out of that surgery. My rheumatoid count went sky

high, and I had extremely unusual muscle/tendon pain, stiffness and

weakness. That took about 2 years to settle down. I do not have RA,

Lupus, etc. The weakness remained. (That is why I am soooo happy that

weight lifting counters some of it) Mentally, I am not sure I ever was

the same after the surgeries either, but that is more difficult for me

to say.

I feel strongly that the surgeries/anesthesias contributed to my

symptoms getting worse. I just did NOT recover the same way other

people I knew recovered. I am just curious if others here feel the

same way or had similar experiences. I didn't even understand about

the anesthesia until I reflected on it way after the second surgery,

but I intend to avoid generals if at all possible in the future.

Barbara,

I sure can see why you would want to avoid craniotomy! I really hope

that Lazier Knife treatment will work for you.

Regards

Sunny

> Interesting. I have exactly the opposite problem----a prolonged

> paralytic

> and sedative effect with general or spinal anesthesia. This has been

> reported in other mito patients. I also had slurred speech for

> several days

> following general, but spinal is almost worse for me.  Won't go into

> all the

> gory details but with the last spinal in 1991 it took 6 months to

> recover

> nerve function in my legs. With the last general in 2003, it's hard

> to tell

> how many of the problems stemmed from anesthesia as opposed to

> surgical

> insult. The last thing the anesthesiologist said before they rolled

> me down

> the hall was we'll try to minimize the reaction, but there's no way

> you're

> going to come through general anesthesia without some problems.

> Yikes. You

> can see why I don't want craniotomy right now.

>

>

>

> BTW, our particular mutation is known to be associated with malignant

> hyperthermia----that is another patient with this mutation has had MH

> following anesthesia, but I have not had this reaction. They always

> prepare

> anyway.

>

> B

>

>

>

>   _____ 

>

> From: Laureta Fitzgerald

> Sent: Thursday, January 27, 2005 5:09 PM

> To:

> Subject: Re: General Anaesthetics for a child...

>

>

>

> *      Sunny

>

> They have had problems intubating me, because I become rigid when

> given the

> anesthetic. They now intubate me while awake, so if it happens, I

> will at

> least have a good airway established.

>

> I also come out of some anesthetics, especially locals and spinals

> long

> before they expect.

>

> laurie

>

> > From: z39z@...

> > Reply-To:

> > Date: Thu, 27 Jan 2005 17:36:25 -0500

> > To:

> > Subject: Re: General Anaesthetics for a child...

> >

> >

> > Hi, Chris

> >

> > I too have had severe problems after surgeries, and I feel a likely

> > culprit is the general.  If it were me, I would worry that my child

> > might have my tendencies, and do everything to avoid a general for

> him.

> > I believe sometimes they give generals because it is the easiest

> thing

> > to do for them,  and alternatives might be just as effective if they

> > are pushed to use them.  Just my two cents worth.

> >

> > Regards

> >

> > Sunny

> >

> > PS

> > I would love to compare notes as to the effect of general anesthsia

> on

> > people who have had problems.  I won't go into my problems at this

> > time.

> >

> >

>

>

>

>

>

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It's an interesting topic I started! I'm glad to have started it though,

because I've never found other people that had problems with general's like I

do!

My first two surgeries I just had the unbelievable nausea, course after that

they started giving me something in the sedation for that... On the third

surgery they could not rouse me for more than half an hour... On the next

surgery I came through, but was not able to speak or move for a time.. I was

awake, but that was my condition for a day... The following surgery after that

my body just melted down.... I wound up in the hospital for three days with

such an unbelievable reaction of vomiting & not being able to speak and move

properly, I felt in my head like a caged animal... Even after I left the

hospital I was ill for two weeks.... That was it, I plan never to have another

general unless it's a life or death situation.... So to say I want to avoid any

general for our son is an understatement :(

We've had three opinions on his mouth, so we are okay to go ahead... of the

teeth they are taking, only four are adult teeth, and they really need to come

out, there is just absolutely no room for them in his mouth.... the others

are just babies that are either already loose or will become loose within a

year.... I'll just be glad when it's over... it may take more appointments, but

I think it's the safest thing to do...

I really am relieved (sort of) to hear other people have some of the same

problems that I do...

Chris

In a message dated 1/28/2005 3:50:00 AM Eastern Standard Time,

writes:

Subject: Re: General Anesthetics

Thanks, Laurie and Barbara

I take forever to come to, with extreme nausea and feeling just god

awful. With my first surgery (spinal) I was in the OR before 8:00 am,

and was the last to get out past midnight. I could not get warm, even

with the heated blankets they gave me. I rejected the pain injections

because it was suggested that they might increase the nausea, and

generally I just wanted to die. The pain from the spinal fusion was

secondary to the awful feeling of being in the twilight zone for hours.

My muscle weakness also go worse after the surgery. Not sure if the

anesthesia or the prolonged bedrest contributed most there. I just

felt I never was the same.

After my second surgery I came out with noise sensitivity which was

really extreme for several days. It was very difficult then, and is

still a problem for me. I had a touch of it before, but got worse

right when I came out of that surgery. My rheumatoid count went sky

high, and I had extremely unusual muscle/tendon pain, stiffness and

weakness. That took about 2 years to settle down. I do not have RA,

Lupus, etc. The weakness remained. (That is why I am soooo happy that

weight lifting counters some of it) Mentally, I am not sure I ever was

the same after the surgeries either, but that is more difficult for me

to say.

I feel strongly that the surgeries/anesthesias contributed to my

symptoms getting worse. I just did NOT recover the same way other

people I knew recovered. I am just curious if others here feel the

same way or had similar experiences. I didn't even understand about

the anesthesia until I reflected on it way after the second surgery,

but I intend to avoid generals if at all possible in the future.

Barbara,

I sure can see why you would want to avoid craniotomy! I really hope

that Lazier Knife treatment will work for you.

Regards

Sunny

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Share on other sites

Yes, this is the dilemma. My anesthesiologist for the jejunostomy complained

that every drug in his bag of tricks was on the " no " list in Cohen's

article. He kept saying we have to use SOMETHING if we're going to do

surgery! He really wanted to use propofol because it is safer for MH but I

was not comfortable trying it because 1. I'd never had it 2. it is known to

inhibit mitochondrial function 3. I knew at least 2 mito patients who had a

terrible time with it. He ended up using a combo of several things as a

compromise on the theory that small amounts of several drugs might minimize

a reaction to any single drug. Not at all sure this theory panned out, but

I'm guessing the surgery itself was the biggest insult, as I recovered fully

from laparoscopic cholecystectomy 15 years ago and had a general then.

Though I was not nearly as sick or weak either.

B

_____

From: Laureta Fitzgerald

Sent: Thursday, January 27, 2005 10:18 PM

To:

Subject: Re: General Anesthetics

Barbara

My last anesthesiologist explained that the newer drugs that are using are

much less likely to cause MH, but those are the ones we shouldn't have. The

older ones that are easier on the mitochondria are more apt to cause MH.

Another anesthesiologist at CCF whose wife has mito, explained that I

probably had the reaction I did (stiffening out) was because they used

Anectine and I have myoclonus. He said that if you have myoclonus, you

shouldn't have Anectine.

laurie

>

> Reply-To:

> Date: Thu, 27 Jan 2005 17:38:15 -0600

> To: >

> Subject: RE: General Anesthetics

>

> Interesting. I have exactly the opposite problem----a prolonged paralytic

> and sedative effect with general or spinal anesthesia. This has been

> reported in other mito patients. I also had slurred speech for several

days

> following general, but spinal is almost worse for me. Won't go into all

the

> gory details but with the last spinal in 1991 it took 6 months to recover

> nerve function in my legs. With the last general in 2003, it's hard to

tell

> how many of the problems stemmed from anesthesia as opposed to surgical

> insult. The last thing the anesthesiologist said before they rolled me

down

> the hall was we'll try to minimize the reaction, but there's no way you're

> going to come through general anesthesia without some problems. Yikes. You

> can see why I don't want craniotomy right now.

>

>

>

> BTW, our particular mutation is known to be associated with malignant

> hyperthermia----that is another patient with this mutation has had MH

> following anesthesia, but I have not had this reaction. They always

prepare

> anyway.

>

> B

>

>

>

> _____

>

> From: Laureta Fitzgerald

> Sent: Thursday, January 27, 2005 5:09 PM

> To:

> Subject: Re: General Anaesthetics for a child...

>

>

>

> * Sunny

>

> They have had problems intubating me, because I become rigid when given

the

> anesthetic. They now intubate me while awake, so if it happens, I will at

> least have a good airway established.

>

> I also come out of some anesthetics, especially locals and spinals long

> before they expect.

>

> laurie

>

>> From: z39z@...

>> Reply-To:

>> Date: Thu, 27 Jan 2005 17:36:25 -0500

>> To:

>> Subject: Re: General Anaesthetics for a child...

>>

>>

>> Hi, Chris

>>

>> I too have had severe problems after surgeries, and I feel a likely

>> culprit is the general. If it were me, I would worry that my child

>> might have my tendencies, and do everything to avoid a general for him.

>> I believe sometimes they give generals because it is the easiest thing

>> to do for them, and alternatives might be just as effective if they

>> are pushed to use them. Just my two cents worth.

>>

>> Regards

>>

>> Sunny

>>

>> PS

>> I would love to compare notes as to the effect of general anesthsia on

>> people who have had problems. I won't go into my problems at this

>> time.

>>

>>

>

>

>

>

>

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Share on other sites

During one surgery, they woke me up in the middle to " see how I was

doing " . Very weird, no pain, could talk a bit, but it was extremely

odd. The main problem I have after surgery is that my blood pressure

goes up (200/150 or more), and I also stay groggy for longer, so they

try to give me info on the surgery, and I'm like " yeah, yeah, yes

mom, i'll do the dishes after i do my homework... "

It's too bad they don't monitor these things more closely, there are

MANY types of anesthesia. A list of what to avoid and what might

work best would be nice.

For example, a lot of vets are using Isoflurane for anesthetizing

rabbits, because other anesthetic methods prove toxic, and they found

that dogs and cats do better with it as well, better than halothane

which is more common (and cheaper I guess).

" Isoflurane has the largest circulatory margin of safety of all

potent halogenated agents; it produces the least myocardial

depression at a given multiple of MAC. "

Take care,

RH

>

> It's an interesting topic I started! I'm glad to have started it

though,

> because I've never found other people that had problems with

general's like I do!

>

> My first two surgeries I just had the unbelievable nausea, course

after that

> they started giving me something in the sedation for that... On

the third

> surgery they could not rouse me for more than half an hour... On

the next

> surgery I came through, but was not able to speak or move for a

time.. I was

> awake, but that was my condition for a day... The following

surgery after that

> my body just melted down.... I wound up in the hospital for three

days with

> such an unbelievable reaction of vomiting & not being able to

speak and move

> properly, I felt in my head like a caged animal... Even after I

left the

> hospital I was ill for two weeks.... That was it, I plan never to

have another

> general unless it's a life or death situation.... So to say I want

to avoid any

> general for our son is an understatement :(

>

> We've had three opinions on his mouth, so we are okay to go

ahead... of the

> teeth they are taking, only four are adult teeth, and they really

need to come

> out, there is just absolutely no room for them in his mouth....

the others

> are just babies that are either already loose or will become loose

within a

> year.... I'll just be glad when it's over... it may take more

appointments, but

> I think it's the safest thing to do...

>

> I really am relieved (sort of) to hear other people have some of

the same

> problems that I do...

> Chris

> In a message dated 1/28/2005 3:50:00 AM Eastern Standard Time,

> writes:

>

> Subject: Re: General Anesthetics

>

> Thanks, Laurie and Barbara

>

> I take forever to come to, with extreme nausea and feeling just

god

> awful. With my first surgery (spinal) I was in the OR before 8:00

am,

> and was the last to get out past midnight. I could not get warm,

even

> with the heated blankets they gave me. I rejected the pain

injections

> because it was suggested that they might increase the nausea, and

> generally I just wanted to die. The pain from the spinal fusion

was

> secondary to the awful feeling of being in the twilight zone for

hours.

> My muscle weakness also go worse after the surgery. Not sure if

the

> anesthesia or the prolonged bedrest contributed most there. I

just

> felt I never was the same.

>

> After my second surgery I came out with noise sensitivity which

was

> really extreme for several days. It was very difficult then, and

is

> still a problem for me. I had a touch of it before, but got worse

> right when I came out of that surgery. My rheumatoid count went

sky

> high, and I had extremely unusual muscle/tendon pain, stiffness

and

> weakness. That took about 2 years to settle down. I do not have

RA,

> Lupus, etc. The weakness remained. (That is why I am soooo happy

that

> weight lifting counters some of it) Mentally, I am not sure I

ever was

> the same after the surgeries either, but that is more difficult

for me

> to say.

>

> I feel strongly that the surgeries/anesthesias contributed to my

> symptoms getting worse. I just did NOT recover the same way other

> people I knew recovered. I am just curious if others here feel

the

> same way or had similar experiences. I didn't even understand

about

> the anesthesia until I reflected on it way after the second

surgery,

> but I intend to avoid generals if at all possible in the future.

>

>

> Barbara,

> I sure can see why you would want to avoid craniotomy! I really

hope

> that Lazier Knife treatment will work for you.

>

>

> Regards

>

> Sunny

>

>

>

>

>

>

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Share on other sites

" Twilights " generally make me go completely out anyway, and I have a

rough time recovering from them too.

Remember that the anesthesiologist may actually may know more about

this than you think - there are different types of general

anesthesia, some which depress the ANS more than others. It's

unfortunate, but sometimes insurance dictates who can do your

anesthesia, so you and your doctor may agree, but the only available

on-plan anesthesiologist may not.

You know, I wonder if the problem could be that we don't go under

fast enough (because the damaged mito mess up the liver's response to

drugs), so the anesthesiologist ends up using MORE anesthetic than

usual, so we get side effects that would be considered NORMAL for the

extra amount of anesthesia used. I remember going on one medication,

and it took my body TWO HOURS to respond to it, where they had told

me EVERYBODY responds to it within 20 minutes. Something just ain't

right...

Take care,

RH

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Share on other sites

Hi ,

Are you kidding? The anesthesiologist overrode what the doctor said? That's

just outrageous... you did the right thing... at this point, I would have to

be in serious trouble to ever allow another general...

:(

Chris

In a message dated 1/28/2005 6:16:12 PM Eastern Standard Time,

writes:

I went over all the precautions with the anesthesia head, just as a

precaution before I had my colonoscopy scheduled last year. I spent the

night before in the hospital so that I could be on D10 overnight instead

of fasting with all the problems that creates. The doctor and I got in

the procedure room and the anesthesiologist that they scheduled refused

to only give me a twilight like the doctor and I agreed. The

anesthesiologist said he would ONLY give me a general for this

procedure, despite the mito dangers. When the doc and I couldn't talk

him into anything other than the general, I got up off the table and

the doc and I walked out - no procedure thanks to the idiot that

wouldn't give me the twilight. We even told him I had the procedure

done with only a twilight in the past with no issues and he said he

didn't care. Arrhhh!!!!

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Barbara

The approach of several drugs in small amounts was what was used during my

shoulder surgery which turned out to be the longest rotator cuff repair he

had done and I had no anaesthesia problems, just allergic reactions to pain

meds.

laurie

>

> Reply-To:

> Date: Fri, 28 Jan 2005 08:47:49 -0600

> To: >

> Subject: RE: General Anesthetics

>

> Yes, this is the dilemma. My anesthesiologist for the jejunostomy complained

> that every drug in his bag of tricks was on the " no " list in Cohen's

> article. He kept saying we have to use SOMETHING if we're going to do

> surgery! He really wanted to use propofol because it is safer for MH but I

> was not comfortable trying it because 1. I'd never had it 2. it is known to

> inhibit mitochondrial function 3. I knew at least 2 mito patients who had a

> terrible time with it. He ended up using a combo of several things as a

> compromise on the theory that small amounts of several drugs might minimize

> a reaction to any single drug. Not at all sure this theory panned out, but

> I'm guessing the surgery itself was the biggest insult, as I recovered fully

> from laparoscopic cholecystectomy 15 years ago and had a general then.

> Though I was not nearly as sick or weak either.

>

>

>

> B

>

>

>

> _____

>

> From: Laureta Fitzgerald

> Sent: Thursday, January 27, 2005 10:18 PM

> To:

> Subject: Re: General Anesthetics

>

>

>

> Barbara

>

> My last anesthesiologist explained that the newer drugs that are using are

> much less likely to cause MH, but those are the ones we shouldn't have. The

> older ones that are easier on the mitochondria are more apt to cause MH.

> Another anesthesiologist at CCF whose wife has mito, explained that I

> probably had the reaction I did (stiffening out) was because they used

> Anectine and I have myoclonus. He said that if you have myoclonus, you

> shouldn't have Anectine.

>

> laurie

>

>>

>> Reply-To:

>> Date: Thu, 27 Jan 2005 17:38:15 -0600

>> To: >

>> Subject: RE: General Anesthetics

>>

>> Interesting. I have exactly the opposite problem----a prolonged paralytic

>> and sedative effect with general or spinal anesthesia. This has been

>> reported in other mito patients. I also had slurred speech for several

> days

>> following general, but spinal is almost worse for me. Won't go into all

> the

>> gory details but with the last spinal in 1991 it took 6 months to recover

>> nerve function in my legs. With the last general in 2003, it's hard to

> tell

>> how many of the problems stemmed from anesthesia as opposed to surgical

>> insult. The last thing the anesthesiologist said before they rolled me

> down

>> the hall was we'll try to minimize the reaction, but there's no way you're

>> going to come through general anesthesia without some problems. Yikes. You

>> can see why I don't want craniotomy right now.

>>

>>

>>

>> BTW, our particular mutation is known to be associated with malignant

>> hyperthermia----that is another patient with this mutation has had MH

>> following anesthesia, but I have not had this reaction. They always

> prepare

>> anyway.

>>

>> B

>>

>>

>>

>> _____

>>

>> From: Laureta Fitzgerald

>> Sent: Thursday, January 27, 2005 5:09 PM

>> To:

>> Subject: Re: General Anaesthetics for a child...

>>

>>

>>

>> * Sunny

>>

>> They have had problems intubating me, because I become rigid when given

> the

>> anesthetic. They now intubate me while awake, so if it happens, I will at

>> least have a good airway established.

>>

>> I also come out of some anesthetics, especially locals and spinals long

>> before they expect.

>>

>> laurie

>>

>>> From: z39z@...

>>> Reply-To:

>>> Date: Thu, 27 Jan 2005 17:36:25 -0500

>>> To:

>>> Subject: Re: General Anaesthetics for a child...

>>>

>>>

>>> Hi, Chris

>>>

>>> I too have had severe problems after surgeries, and I feel a likely

>>> culprit is the general. If it were me, I would worry that my child

>>> might have my tendencies, and do everything to avoid a general for him.

>>> I believe sometimes they give generals because it is the easiest thing

>>> to do for them, and alternatives might be just as effective if they

>>> are pushed to use them. Just my two cents worth.

>>>

>>> Regards

>>>

>>> Sunny

>>>

>>> PS

>>> I would love to compare notes as to the effect of general anesthsia on

>>> people who have had problems. I won't go into my problems at this

>>> time.

>>>

>>>

>>

>>

>>

>>

>>

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Share on other sites

Barbara

The approach of several drugs in small amounts was what was used during my

shoulder surgery which turned out to be the longest rotator cuff repair he

had done and I had no anaesthesia problems, just allergic reactions to pain

meds.

laurie

>

> Reply-To:

> Date: Fri, 28 Jan 2005 08:47:49 -0600

> To: >

> Subject: RE: General Anesthetics

>

> Yes, this is the dilemma. My anesthesiologist for the jejunostomy complained

> that every drug in his bag of tricks was on the " no " list in Cohen's

> article. He kept saying we have to use SOMETHING if we're going to do

> surgery! He really wanted to use propofol because it is safer for MH but I

> was not comfortable trying it because 1. I'd never had it 2. it is known to

> inhibit mitochondrial function 3. I knew at least 2 mito patients who had a

> terrible time with it. He ended up using a combo of several things as a

> compromise on the theory that small amounts of several drugs might minimize

> a reaction to any single drug. Not at all sure this theory panned out, but

> I'm guessing the surgery itself was the biggest insult, as I recovered fully

> from laparoscopic cholecystectomy 15 years ago and had a general then.

> Though I was not nearly as sick or weak either.

>

>

>

> B

>

>

>

> _____

>

> From: Laureta Fitzgerald

> Sent: Thursday, January 27, 2005 10:18 PM

> To:

> Subject: Re: General Anesthetics

>

>

>

> Barbara

>

> My last anesthesiologist explained that the newer drugs that are using are

> much less likely to cause MH, but those are the ones we shouldn't have. The

> older ones that are easier on the mitochondria are more apt to cause MH.

> Another anesthesiologist at CCF whose wife has mito, explained that I

> probably had the reaction I did (stiffening out) was because they used

> Anectine and I have myoclonus. He said that if you have myoclonus, you

> shouldn't have Anectine.

>

> laurie

>

>>

>> Reply-To:

>> Date: Thu, 27 Jan 2005 17:38:15 -0600

>> To: >

>> Subject: RE: General Anesthetics

>>

>> Interesting. I have exactly the opposite problem----a prolonged paralytic

>> and sedative effect with general or spinal anesthesia. This has been

>> reported in other mito patients. I also had slurred speech for several

> days

>> following general, but spinal is almost worse for me. Won't go into all

> the

>> gory details but with the last spinal in 1991 it took 6 months to recover

>> nerve function in my legs. With the last general in 2003, it's hard to

> tell

>> how many of the problems stemmed from anesthesia as opposed to surgical

>> insult. The last thing the anesthesiologist said before they rolled me

> down

>> the hall was we'll try to minimize the reaction, but there's no way you're

>> going to come through general anesthesia without some problems. Yikes. You

>> can see why I don't want craniotomy right now.

>>

>>

>>

>> BTW, our particular mutation is known to be associated with malignant

>> hyperthermia----that is another patient with this mutation has had MH

>> following anesthesia, but I have not had this reaction. They always

> prepare

>> anyway.

>>

>> B

>>

>>

>>

>> _____

>>

>> From: Laureta Fitzgerald

>> Sent: Thursday, January 27, 2005 5:09 PM

>> To:

>> Subject: Re: General Anaesthetics for a child...

>>

>>

>>

>> * Sunny

>>

>> They have had problems intubating me, because I become rigid when given

> the

>> anesthetic. They now intubate me while awake, so if it happens, I will at

>> least have a good airway established.

>>

>> I also come out of some anesthetics, especially locals and spinals long

>> before they expect.

>>

>> laurie

>>

>>> From: z39z@...

>>> Reply-To:

>>> Date: Thu, 27 Jan 2005 17:36:25 -0500

>>> To:

>>> Subject: Re: General Anaesthetics for a child...

>>>

>>>

>>> Hi, Chris

>>>

>>> I too have had severe problems after surgeries, and I feel a likely

>>> culprit is the general. If it were me, I would worry that my child

>>> might have my tendencies, and do everything to avoid a general for him.

>>> I believe sometimes they give generals because it is the easiest thing

>>> to do for them, and alternatives might be just as effective if they

>>> are pushed to use them. Just my two cents worth.

>>>

>>> Regards

>>>

>>> Sunny

>>>

>>> PS

>>> I would love to compare notes as to the effect of general anesthsia on

>>> people who have had problems. I won't go into my problems at this

>>> time.

>>>

>>>

>>

>>

>>

>>

>>

Link to comment
Share on other sites

Hi, Laurie

That is a good thought. Thanks.

> Barbara

>

> The approach of several drugs in small amounts was what was used

> during my

> shoulder surgery which turned out to be the longest rotator cuff

> repair he

> had done and I had no anaesthesia problems, just allergic reactions

> to pain

> meds.

>

> laurie

>

> >

> > Reply-To:

> > Date: Fri, 28 Jan 2005 08:47:49 -0600

> > To: >

> > Subject: RE: General Anesthetics

> >

> > Yes, this is the dilemma. My anesthesiologist for the jejunostomy

> complained

> > that every drug in his bag of tricks was on the " no " list in Cohen's

> > article. He kept saying we have to use SOMETHING if we're going to

> do

> > surgery! He really wanted to use propofol because it is safer for

> MH but I

> > was not comfortable trying it because 1. I'd never had it  2. it is

> known to

> > inhibit mitochondrial function 3. I knew at least 2 mito patients

> who had a

> > terrible time with it. He ended up using a combo of several things

> as a

> > compromise on the theory that small amounts of several drugs might

> minimize

> > a reaction to any single drug. Not at all sure this theory panned

> out, but

> > I'm guessing the surgery itself was the biggest insult, as I

> recovered fully

> > from laparoscopic cholecystectomy 15 years ago and had a general

> then.

> > Though I was not nearly as sick or weak either.

> >

> >

> >

> > B

> >

> >

> >

> > _____ 

> >

> > From: Laureta Fitzgerald

> > Sent: Thursday, January 27, 2005 10:18 PM

> > To:

> > Subject: Re: General Anesthetics

> >

> >

> >

> > Barbara

> >

> > My last anesthesiologist explained that the newer drugs that are

> using are

> > much less likely to cause MH, but those are the ones we shouldn't

> have. The

> > older ones that are easier on the mitochondria are more apt to

> cause MH.

> > Another anesthesiologist at CCF whose wife has mito, explained that

> I

> > probably had the reaction I did (stiffening out) was because they

> used

> > Anectine and I have myoclonus. He said that if you have myoclonus,

> you

> > shouldn't have Anectine.

> >

> > laurie

> >

> >>

> >> Reply-To:

> >> Date: Thu, 27 Jan 2005 17:38:15 -0600

> >> To: >

> >> Subject: RE: General Anesthetics

> >>

> >> Interesting. I have exactly the opposite problem----a prolonged

> paralytic

> >> and sedative effect with general or spinal anesthesia. This has

> been

> >> reported in other mito patients. I also had slurred speech for

> several

> > days

> >> following general, but spinal is almost worse for me.  Won't go

> into all

> > the

> >> gory details but with the last spinal in 1991 it took 6 months to

> recover

> >> nerve function in my legs. With the last general in 2003, it's

> hard to

> > tell

> >> how many of the problems stemmed from anesthesia as opposed to

> surgical

> >> insult. The last thing the anesthesiologist said before they

> rolled me

> > down

> >> the hall was we'll try to minimize the reaction, but there's no

> way you're

> >> going to come through general anesthesia without some problems.

> Yikes. You

> >> can see why I don't want craniotomy right now.

> >>

> >>

> >>

> >> BTW, our particular mutation is known to be associated with

> malignant

> >> hyperthermia----that is another patient with this mutation has had

> MH

> >> following anesthesia, but I have not had this reaction. They always

> > prepare

> >> anyway.

> >>

> >> B

> >>

> >>

> >>

> >> _____ 

> >>

> >> From: Laureta Fitzgerald

> >> Sent: Thursday, January 27, 2005 5:09 PM

> >> To:

> >> Subject: Re: General Anaesthetics for a child...

> >>

> >>

> >>

> >> *      Sunny

> >>

> >> They have had problems intubating me, because I become rigid when

> given

> > the

> >> anesthetic. They now intubate me while awake, so if it happens, I

> will at

> >> least have a good airway established.

> >>

> >> I also come out of some anesthetics, especially locals and spinals

> long

> >> before they expect.

> >>

> >> laurie

> >>

> >>> From: z39z@...

> >>> Reply-To:

> >>> Date: Thu, 27 Jan 2005 17:36:25 -0500

> >>> To:

> >>> Subject: Re: General Anaesthetics for a child...

> >>>

> >>>

> >>> Hi, Chris

> >>>

> >>> I too have had severe problems after surgeries, and I feel a

> likely

> >>> culprit is the general.  If it were me, I would worry that my

> child

> >>> might have my tendencies, and do everything to avoid a general

> for him.

> >>> I believe sometimes they give generals because it is the easiest

> thing

> >>> to do for them,  and alternatives might be just as effective if

> they

> >>> are pushed to use them.  Just my two cents worth.

> >>>

> >>> Regards

> >>>

> >>> Sunny

> >>>

> >>> PS

> >>> I would love to compare notes as to the effect of general

> anesthsia on

> >>> people who have had problems.  I won't go into my problems at this

> >>> time.

> >>>

> >>>

> >>

> >>

> >>

> >>

> >>

Link to comment
Share on other sites

Hi, Laurie

That is a good thought. Thanks.

> Barbara

>

> The approach of several drugs in small amounts was what was used

> during my

> shoulder surgery which turned out to be the longest rotator cuff

> repair he

> had done and I had no anaesthesia problems, just allergic reactions

> to pain

> meds.

>

> laurie

>

> >

> > Reply-To:

> > Date: Fri, 28 Jan 2005 08:47:49 -0600

> > To: >

> > Subject: RE: General Anesthetics

> >

> > Yes, this is the dilemma. My anesthesiologist for the jejunostomy

> complained

> > that every drug in his bag of tricks was on the " no " list in Cohen's

> > article. He kept saying we have to use SOMETHING if we're going to

> do

> > surgery! He really wanted to use propofol because it is safer for

> MH but I

> > was not comfortable trying it because 1. I'd never had it  2. it is

> known to

> > inhibit mitochondrial function 3. I knew at least 2 mito patients

> who had a

> > terrible time with it. He ended up using a combo of several things

> as a

> > compromise on the theory that small amounts of several drugs might

> minimize

> > a reaction to any single drug. Not at all sure this theory panned

> out, but

> > I'm guessing the surgery itself was the biggest insult, as I

> recovered fully

> > from laparoscopic cholecystectomy 15 years ago and had a general

> then.

> > Though I was not nearly as sick or weak either.

> >

> >

> >

> > B

> >

> >

> >

> > _____ 

> >

> > From: Laureta Fitzgerald

> > Sent: Thursday, January 27, 2005 10:18 PM

> > To:

> > Subject: Re: General Anesthetics

> >

> >

> >

> > Barbara

> >

> > My last anesthesiologist explained that the newer drugs that are

> using are

> > much less likely to cause MH, but those are the ones we shouldn't

> have. The

> > older ones that are easier on the mitochondria are more apt to

> cause MH.

> > Another anesthesiologist at CCF whose wife has mito, explained that

> I

> > probably had the reaction I did (stiffening out) was because they

> used

> > Anectine and I have myoclonus. He said that if you have myoclonus,

> you

> > shouldn't have Anectine.

> >

> > laurie

> >

> >>

> >> Reply-To:

> >> Date: Thu, 27 Jan 2005 17:38:15 -0600

> >> To: >

> >> Subject: RE: General Anesthetics

> >>

> >> Interesting. I have exactly the opposite problem----a prolonged

> paralytic

> >> and sedative effect with general or spinal anesthesia. This has

> been

> >> reported in other mito patients. I also had slurred speech for

> several

> > days

> >> following general, but spinal is almost worse for me.  Won't go

> into all

> > the

> >> gory details but with the last spinal in 1991 it took 6 months to

> recover

> >> nerve function in my legs. With the last general in 2003, it's

> hard to

> > tell

> >> how many of the problems stemmed from anesthesia as opposed to

> surgical

> >> insult. The last thing the anesthesiologist said before they

> rolled me

> > down

> >> the hall was we'll try to minimize the reaction, but there's no

> way you're

> >> going to come through general anesthesia without some problems.

> Yikes. You

> >> can see why I don't want craniotomy right now.

> >>

> >>

> >>

> >> BTW, our particular mutation is known to be associated with

> malignant

> >> hyperthermia----that is another patient with this mutation has had

> MH

> >> following anesthesia, but I have not had this reaction. They always

> > prepare

> >> anyway.

> >>

> >> B

> >>

> >>

> >>

> >> _____ 

> >>

> >> From: Laureta Fitzgerald

> >> Sent: Thursday, January 27, 2005 5:09 PM

> >> To:

> >> Subject: Re: General Anaesthetics for a child...

> >>

> >>

> >>

> >> *      Sunny

> >>

> >> They have had problems intubating me, because I become rigid when

> given

> > the

> >> anesthetic. They now intubate me while awake, so if it happens, I

> will at

> >> least have a good airway established.

> >>

> >> I also come out of some anesthetics, especially locals and spinals

> long

> >> before they expect.

> >>

> >> laurie

> >>

> >>> From: z39z@...

> >>> Reply-To:

> >>> Date: Thu, 27 Jan 2005 17:36:25 -0500

> >>> To:

> >>> Subject: Re: General Anaesthetics for a child...

> >>>

> >>>

> >>> Hi, Chris

> >>>

> >>> I too have had severe problems after surgeries, and I feel a

> likely

> >>> culprit is the general.  If it were me, I would worry that my

> child

> >>> might have my tendencies, and do everything to avoid a general

> for him.

> >>> I believe sometimes they give generals because it is the easiest

> thing

> >>> to do for them,  and alternatives might be just as effective if

> they

> >>> are pushed to use them.  Just my two cents worth.

> >>>

> >>> Regards

> >>>

> >>> Sunny

> >>>

> >>> PS

> >>> I would love to compare notes as to the effect of general

> anesthsia on

> >>> people who have had problems.  I won't go into my problems at this

> >>> time.

> >>>

> >>>

> >>

> >>

> >>

> >>

> >>

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Share on other sites

Sounds like two docs both had the same good idea! I'm glad it worked well

for you.

B

_____

From: Laureta Fitzgerald

Sent: Friday, January 28, 2005 4:25 PM

To:

Subject: Re: General Anesthetics

Barbara

The approach of several drugs in small amounts was what was used during my

shoulder surgery which turned out to be the longest rotator cuff repair he

had done and I had no anaesthesia problems, just allergic reactions to pain

meds.

laurie

>

> Reply-To:

> Date: Fri, 28 Jan 2005 08:47:49 -0600

> To: >

> Subject: RE: General Anesthetics

>

> Yes, this is the dilemma. My anesthesiologist for the jejunostomy

complained

> that every drug in his bag of tricks was on the " no " list in Cohen's

> article. He kept saying we have to use SOMETHING if we're going to do

> surgery! He really wanted to use propofol because it is safer for MH but I

> was not comfortable trying it because 1. I'd never had it 2. it is known

to

> inhibit mitochondrial function 3. I knew at least 2 mito patients who had

a

> terrible time with it. He ended up using a combo of several things as a

> compromise on the theory that small amounts of several drugs might

minimize

> a reaction to any single drug. Not at all sure this theory panned out, but

> I'm guessing the surgery itself was the biggest insult, as I recovered

fully

> from laparoscopic cholecystectomy 15 years ago and had a general then.

> Though I was not nearly as sick or weak either.

>

>

>

> B

>

>

>

> _____

>

> From: Laureta Fitzgerald

> Sent: Thursday, January 27, 2005 10:18 PM

> To:

> Subject: Re: General Anesthetics

>

>

>

> Barbara

>

> My last anesthesiologist explained that the newer drugs that are using are

> much less likely to cause MH, but those are the ones we shouldn't have.

The

> older ones that are easier on the mitochondria are more apt to cause MH.

> Another anesthesiologist at CCF whose wife has mito, explained that I

> probably had the reaction I did (stiffening out) was because they used

> Anectine and I have myoclonus. He said that if you have myoclonus, you

> shouldn't have Anectine.

>

> laurie

>

>>

>> Reply-To:

>> Date: Thu, 27 Jan 2005 17:38:15 -0600

>> To: >

>> Subject: RE: General Anesthetics

>>

>> Interesting. I have exactly the opposite problem----a prolonged paralytic

>> and sedative effect with general or spinal anesthesia. This has been

>> reported in other mito patients. I also had slurred speech for several

> days

>> following general, but spinal is almost worse for me. Won't go into all

> the

>> gory details but with the last spinal in 1991 it took 6 months to recover

>> nerve function in my legs. With the last general in 2003, it's hard to

> tell

>> how many of the problems stemmed from anesthesia as opposed to surgical

>> insult. The last thing the anesthesiologist said before they rolled me

> down

>> the hall was we'll try to minimize the reaction, but there's no way

you're

>> going to come through general anesthesia without some problems. Yikes.

You

>> can see why I don't want craniotomy right now.

>>

>>

>>

>> BTW, our particular mutation is known to be associated with malignant

>> hyperthermia----that is another patient with this mutation has had MH

>> following anesthesia, but I have not had this reaction. They always

> prepare

>> anyway.

>>

>> B

>>

>>

>>

>> _____

>>

>> From: Laureta Fitzgerald

>> Sent: Thursday, January 27, 2005 5:09 PM

>> To:

>> Subject: Re: General Anaesthetics for a child...

>>

>>

>>

>> * Sunny

>>

>> They have had problems intubating me, because I become rigid when given

> the

>> anesthetic. They now intubate me while awake, so if it happens, I will at

>> least have a good airway established.

>>

>> I also come out of some anesthetics, especially locals and spinals long

>> before they expect.

>>

>> laurie

>>

>>> From: z39z@...

>>> Reply-To:

>>> Date: Thu, 27 Jan 2005 17:36:25 -0500

>>> To:

>>> Subject: Re: General Anaesthetics for a child...

>>>

>>>

>>> Hi, Chris

>>>

>>> I too have had severe problems after surgeries, and I feel a likely

>>> culprit is the general. If it were me, I would worry that my child

>>> might have my tendencies, and do everything to avoid a general for him.

>>> I believe sometimes they give generals because it is the easiest thing

>>> to do for them, and alternatives might be just as effective if they

>>> are pushed to use them. Just my two cents worth.

>>>

>>> Regards

>>>

>>> Sunny

>>>

>>> PS

>>> I would love to compare notes as to the effect of general anesthsia on

>>> people who have had problems. I won't go into my problems at this

>>> time.

>>>

>>>

>>

>>

>>

>>

>>

Link to comment
Share on other sites

Sounds like two docs both had the same good idea! I'm glad it worked well

for you.

B

_____

From: Laureta Fitzgerald

Sent: Friday, January 28, 2005 4:25 PM

To:

Subject: Re: General Anesthetics

Barbara

The approach of several drugs in small amounts was what was used during my

shoulder surgery which turned out to be the longest rotator cuff repair he

had done and I had no anaesthesia problems, just allergic reactions to pain

meds.

laurie

>

> Reply-To:

> Date: Fri, 28 Jan 2005 08:47:49 -0600

> To: >

> Subject: RE: General Anesthetics

>

> Yes, this is the dilemma. My anesthesiologist for the jejunostomy

complained

> that every drug in his bag of tricks was on the " no " list in Cohen's

> article. He kept saying we have to use SOMETHING if we're going to do

> surgery! He really wanted to use propofol because it is safer for MH but I

> was not comfortable trying it because 1. I'd never had it 2. it is known

to

> inhibit mitochondrial function 3. I knew at least 2 mito patients who had

a

> terrible time with it. He ended up using a combo of several things as a

> compromise on the theory that small amounts of several drugs might

minimize

> a reaction to any single drug. Not at all sure this theory panned out, but

> I'm guessing the surgery itself was the biggest insult, as I recovered

fully

> from laparoscopic cholecystectomy 15 years ago and had a general then.

> Though I was not nearly as sick or weak either.

>

>

>

> B

>

>

>

> _____

>

> From: Laureta Fitzgerald

> Sent: Thursday, January 27, 2005 10:18 PM

> To:

> Subject: Re: General Anesthetics

>

>

>

> Barbara

>

> My last anesthesiologist explained that the newer drugs that are using are

> much less likely to cause MH, but those are the ones we shouldn't have.

The

> older ones that are easier on the mitochondria are more apt to cause MH.

> Another anesthesiologist at CCF whose wife has mito, explained that I

> probably had the reaction I did (stiffening out) was because they used

> Anectine and I have myoclonus. He said that if you have myoclonus, you

> shouldn't have Anectine.

>

> laurie

>

>>

>> Reply-To:

>> Date: Thu, 27 Jan 2005 17:38:15 -0600

>> To: >

>> Subject: RE: General Anesthetics

>>

>> Interesting. I have exactly the opposite problem----a prolonged paralytic

>> and sedative effect with general or spinal anesthesia. This has been

>> reported in other mito patients. I also had slurred speech for several

> days

>> following general, but spinal is almost worse for me. Won't go into all

> the

>> gory details but with the last spinal in 1991 it took 6 months to recover

>> nerve function in my legs. With the last general in 2003, it's hard to

> tell

>> how many of the problems stemmed from anesthesia as opposed to surgical

>> insult. The last thing the anesthesiologist said before they rolled me

> down

>> the hall was we'll try to minimize the reaction, but there's no way

you're

>> going to come through general anesthesia without some problems. Yikes.

You

>> can see why I don't want craniotomy right now.

>>

>>

>>

>> BTW, our particular mutation is known to be associated with malignant

>> hyperthermia----that is another patient with this mutation has had MH

>> following anesthesia, but I have not had this reaction. They always

> prepare

>> anyway.

>>

>> B

>>

>>

>>

>> _____

>>

>> From: Laureta Fitzgerald

>> Sent: Thursday, January 27, 2005 5:09 PM

>> To:

>> Subject: Re: General Anaesthetics for a child...

>>

>>

>>

>> * Sunny

>>

>> They have had problems intubating me, because I become rigid when given

> the

>> anesthetic. They now intubate me while awake, so if it happens, I will at

>> least have a good airway established.

>>

>> I also come out of some anesthetics, especially locals and spinals long

>> before they expect.

>>

>> laurie

>>

>>> From: z39z@...

>>> Reply-To:

>>> Date: Thu, 27 Jan 2005 17:36:25 -0500

>>> To:

>>> Subject: Re: General Anaesthetics for a child...

>>>

>>>

>>> Hi, Chris

>>>

>>> I too have had severe problems after surgeries, and I feel a likely

>>> culprit is the general. If it were me, I would worry that my child

>>> might have my tendencies, and do everything to avoid a general for him.

>>> I believe sometimes they give generals because it is the easiest thing

>>> to do for them, and alternatives might be just as effective if they

>>> are pushed to use them. Just my two cents worth.

>>>

>>> Regards

>>>

>>> Sunny

>>>

>>> PS

>>> I would love to compare notes as to the effect of general anesthsia on

>>> people who have had problems. I won't go into my problems at this

>>> time.

>>>

>>>

>>

>>

>>

>>

>>

Link to comment
Share on other sites

I wake up in recovery, and they are trying to " get rid of me " , and I

don't even know where I am...

That's one of my main concerns with my illness, it seems that what

works for a lot of people with mito doesn't work for me. I guess

there's a lot of research they still need to do (imagine if they

couldn't tell high blood pressure from low blood pressure).

Take care,

RH

> >>

> >> It's an interesting topic I started! I'm glad to have started it

> > though,

> >> because I've never found other people that had problems with

> > general's like I do!

> >>

> >> My first two surgeries I just had the unbelievable nausea, course

> > after that

> >> they started giving me something in the sedation for that... On

> > the third

> >> surgery they could not rouse me for more than half an hour... On

> > the next

> >> surgery I came through, but was not able to speak or move for a

> > time.. I was

> >> awake, but that was my condition for a day... The following

> > surgery after that

> >> my body just melted down.... I wound up in the hospital for three

> > days with

> >> such an unbelievable reaction of vomiting & not being able to

> > speak and move

> >> properly, I felt in my head like a caged animal... Even after I

> > left the

> >> hospital I was ill for two weeks.... That was it, I plan never to

> > have another

> >> general unless it's a life or death situation.... So to say I

want

> > to avoid any

> >> general for our son is an understatement :(

> >>

> >> We've had three opinions on his mouth, so we are okay to go

> > ahead... of the

> >> teeth they are taking, only four are adult teeth, and they really

> > need to come

> >> out, there is just absolutely no room for them in his mouth....

> > the others

> >> are just babies that are either already loose or will become

loose

> > within a

> >> year.... I'll just be glad when it's over... it may take more

> > appointments, but

> >> I think it's the safest thing to do...

> >>

> >> I really am relieved (sort of) to hear other people have some of

> > the same

> >> problems that I do...

> >> Chris

> >> In a message dated 1/28/2005 3:50:00 AM Eastern Standard Time,

> >> writes:

> >>

> >> Subject: Re: General Anesthetics

> >>

> >> Thanks, Laurie and Barbara

> >>

> >> I take forever to come to, with extreme nausea and feeling just

> > god

> >> awful. With my first surgery (spinal) I was in the OR before

8:00

> > am,

> >> and was the last to get out past midnight. I could not get

warm,

> > even

> >> with the heated blankets they gave me. I rejected the pain

> > injections

> >> because it was suggested that they might increase the nausea,

and

> >> generally I just wanted to die. The pain from the spinal fusion

> > was

> >> secondary to the awful feeling of being in the twilight zone for

> > hours.

> >> My muscle weakness also go worse after the surgery. Not sure if

> > the

> >> anesthesia or the prolonged bedrest contributed most there. I

> > just

> >> felt I never was the same.

> >>

> >> After my second surgery I came out with noise sensitivity which

> > was

> >> really extreme for several days. It was very difficult then, and

> > is

> >> still a problem for me. I had a touch of it before, but got

worse

> >> right when I came out of that surgery. My rheumatoid count went

> > sky

> >> high, and I had extremely unusual muscle/tendon pain, stiffness

> > and

> >> weakness. That took about 2 years to settle down. I do not

have

> > RA,

> >> Lupus, etc. The weakness remained. (That is why I am soooo happy

> > that

> >> weight lifting counters some of it) Mentally, I am not sure I

> > ever was

> >> the same after the surgeries either, but that is more difficult

> > for me

> >> to say.

> >>

> >> I feel strongly that the surgeries/anesthesias contributed to my

> >> symptoms getting worse. I just did NOT recover the same way

other

> >> people I knew recovered. I am just curious if others here feel

> > the

> >> same way or had similar experiences. I didn't even understand

> > about

> >> the anesthesia until I reflected on it way after the second

> > surgery,

> >> but I intend to avoid generals if at all possible in the

future.

> >>

> >>

> >> Barbara,

> >> I sure can see why you would want to avoid craniotomy! I

really

> > hope

> >> that Lazier Knife treatment will work for you.

> >>

> >>

> >> Regards

> >>

> >> Sunny

> >>

> >>

> >>

> >>

> >>

> >>

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