...Potential To Be Regular Children.., Dr. J. Goldberg, MD, FAAP-NIDS

[Guest guest]

Autism and Neuro Immune Dysfuntion Syndrome (NIDS)

NEURO-IMMUNOLOGY HYPOTHESIS CONCERNING AUTISM

http://groups.yahoo.com/group/NIDS/message/5687

From: " Dr. J. Goldberg, MD, FAAP "

Date: Mon Feb 5, 2001 10:33pm

Subject: RE: [NIDS] Digest Number 673

General Posting NIDS list (please feel free to repost . . . )

As we come very close to launching the NIDS effort fully for your

children (thanks to the hard work and dedication of some very

dedicated parents and researchers out there), the " question " always

comes up, what are my " statistics, " what is my " success " rate in the

practice. Unfortunately, as I have always explained, as a clinician,

doing things the way I have, it is very difficult to

present " statistics " based on many, many variables involved.

Anything within the practice is regarded scientifically as

antidotal. However, in preparing for some recent presentations I

came across a sheet from a visit back east 3 years ago, which

actually creates a very valid document / statement for all of you.

At that visit I saw 48 patients. 24 are still with me (as has been

remarked it would be interesting to look at the 24 who are no longer

with me). Of the 24 still seeing me, 7 are " not good enough " Most of

these are children who are doing better than ever predicted or

imagined by the parents, but for a combination of reasons (older age,

poor education and rehab assistance, lack of immune modulators), they

are not what I can call " normalized. " Of the remaining 17, 10 are

FULLY normalized (functioning in regular classes, academically often

at the top of their class, healthy, bright, " regular " children -

usually still on some type of " maintenance " therapy); the other 7

are almost there (will be shortly).

Needless to say these are unheard of statistics or results in the

world of " Autism. " Preparing for the NIDS effort to launch, the

first 2 - 3 weeks in January, within the office I have another list

of 40 - 50 " normalizing " (already there or will be) patients seen or

spoken too in follow up in that short time period. NONE of these

patients have been treated with megavitamins, multi supplements,

IVGG, steroids, Secretin, Chelation, cod liver oil, or ANY of the

many recommendations you all continue to receive. As I have spoken

and written, this has become pediatrics for me, these are children,

this is a MEDICAL problem. In the end, ONLY science and medical

logic are what are going to prevail / work. As I say repeatedly to

the parents, IF there children were born " defective, " IF they were

ever what the world still tries to think is " Autism " this could

never occur; as a physician I could not " fix " a " presumed " defective

brain. As is the focus of current thinking, you might be able to

improve function, but you could never expect a truly normal child,

and that is what you are all still told today.

Years ago I was warned " don't say the wrong things to parents, don't

give false hope. Thankfully, it is now the other way around. NOT to

be told to believe in your children, NOT to be told they have the

potential to be regular children IS thankfully WRONG. Over the

years the " myth " of Autism (some undefined, unknown, congenital,

developmental defect) continues to doom your children and you as

parents to accept a " fate, " with NO science to support what that

really is and WHY they are supposedly doomed to the fate

alled " Autism. " Thankfully, as the years progress, EVERY piece of

solid science support the idea of an autoimmune, often chronic viral

process in your children, and THAT does make sense medically, it can

be defined objectively, and it has become reality. It is time the

system focused on the real crisis facing all of you, this country,

and the world. NOT something your children thankfully do not have.

In a short time the NIDS effort will be officially launching a chance

to bring NEW agents, open the door expediently to potentially very

safe, potentially very effective therapies for your children. While

I have become use to ongoing success with what I am doing (it remains

difficult). It is up too all of you however whether this is going to

have a chance to receive the focus, NATIONAL attention it should,

whether we are going to have a real chance to change that " Autistic "

system, the image of how your children are perceived, how they are

treated and educated, in essence create literally a 180 degree shift

in medical thinking, educational thinking, therapy approaches, or

will that system manage to maintain control for another decade or

so. AS noted, thankfully, ongoing research and scientific facts

support everything I have been saying for many years. When I now

present science, clinical logic, and appropriate MEDICAL information

to physicians, therapists, and parents, IT makes sense, it is

logical, and it is scientifically valid.

Sadly, as reflected by the recent " discussions " re my failure to be

invited to the upcoming rally in DC, you are all living in a

VERY " controlled " world that wants you (I might add obviously the

media and congress, representatives) to hear what it wants you to,

not open to " other " opinions, ideas (even based on hard science),

etc. That world continues to pursue funding for " Autism, " says it

wants to encourage " advocacy " for Autism (than vague, UNKNOWN

dysfunction) which thankfully, happily as noted, a " disorder " (as

currently understood) your children DO NOT have, CAN NOT have. As

many of you have appropriately begun to ask, WHY is that system

afraid for you to hear " other " opinions, to have a chance to be

presented with medical facts that do NOT support their false

conceptions or ideas. Most important, why continue to pursue ADVOCACY

for a disorder your children do not have, a disorder that dooms the

world to believing your children can not really be fixed. What might

happen IF the media, congress really understand we could help truly

change your children, their futures, and our societies future now?

Isn't it time the truth became known? Isn't it time you all demanded

science, logic, NOT ideas built around a " mystic " of some unknown

disorder, undefined dysfunction, your children seem to have. Or at

least, expect that ALL information should be open to you, the media,

and congress. Fortunately, science, the understanding of " neuro-

immune " has progressed such that you're children are going to have a

chance in spite of the system, NOT because of it. As a pediatrician,

this remains a Very SAD statement, a terrible tragedy UNLESS we all

change this NOW. Thankfully it's looking like we will finally be

able to do that!! None of you should allow this chance to be missed

(it won't come again for many years IF the system continue in

its " usual " manner).

So, this is IT. Either this effort succeeds, or it will be many more

years before the system will do what we can make happen now. We must

not let these old ideas, old " mystics, " old concepts, old prejudices

old " politics " stop you're children from having a chance to truly

become children, to have a chance for a truly productive life. The

chance too change this is about to be right in front of you. It's up

to all of you to help break down the false walls, false information,

false knowledge surrounding your children. (I might add, that as

noted on one of the recent Tuesday night Chats, the chance to make

this happen, the evolution of the necessary science and technology,

the chance to really change things now, is NOT based on penny

spent on " Autism " research in the last 6 - 7 years - think about

that!!)

With hope for a very exiting 2001

Goldberg, MD

(Note: With apologies for my lack of time (primary day-to-day focus

is always patient care), please approach any posting on this list

with the same type of skepticism and review. Certainly, this list

will continue to provide you with an open forum and place to look at

any " logical " idea as NIDS evolves. BUT as reflected frequently,

physicians, therapist, informed parents will take a logical piece of

the NIDS approach and evolving science, and still make what may be

very unlike " scientific " presumptions, etc. One of the first lessons

in medical school, is how to decipher, look at " studies " ??

validity, etc. As noted by many recent patient visits, when

patients are in contact with relatives with " scientific " backgrounds,

previous research experience, the " credibility " of the multiple

pieces of pseudo-science and logic you are all presented with rapidly

falls apart!

Dr. J. Goldberg, M.D., F.A.A.P. is a Fellow of the American

Academy of Pediatrics and Director of the non-profit NIDS Medical

Board and Research Institute.

Autism - Present Challenges, Future Needs - Why the Increased Rates?

Testimony

http://www.house.gov/reform/hearings/healthcare/00.06.04/goldberg.htm

Neuro Immune Dysfunction Syndromes

http://www.nids.net/

NIDS Hypothesis

http://www.nids.net/draft-hypothesis.htm

Neuro Immune Doctor

http://www.neuroimmunedr.com/

- NIDS

http://groups.yahoo.com/group/NIDS/

Autism - Disease, Disorder or Syndrome? and its connection to

ADD/ADHD, CFS/CFIDS

http://www.neuroimmunedr.com/present3/index.htm

The Texas Center for Autism Research And Treatment

(TCART) and the Autism Society of America-San

are sponsoring the 2nd Annual State Medical Conference

on Autism. The conference will be held on Saturday,

February 24, 2001, at the University of Texas Health

Science Center Auditorium in San .

Featured speakers:

-- Dr. J. Goldberg, M.D.

-- Dr. Sidney Baker, M.D.

-- Dr. Vijendra K. Singh, Ph.D.

-- Dr. Vernon L. , M.D. (TCART Founder)

Parents and families of individuals with Autism

are welcome, and should strongly encourage their

physicians to attend. Four hours of C.M.E. credit

will be available to physicians. Practical treatment

protocol and options will be discussed.

Call for registration information.

Registration fees:

Physicians: - $40 (C.M.E. Bargain!)

Parents/Educators: - $25

Message Circulated by:

Autismnet http://groups.yahoo.com/group/autismnet

Autismnet is NOT affiliated with Dr. J. Goldberg nor the NIDS

Project. We are mainly circulating important autism information.