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Hello all,

First let me start by saying " Thank Goodness " for Gluten Free Companies! I

couldn't do this with out them. I " HATE " (AND I DO NOT LIKE THAT WORD) TO

COOK! I always have, so it is very strange to me that I should get stuck in

the kitchen night and day! But that's my life, so I am there, along with all

of you. Ms. Robens and Specialty Selects send us big boxes and I smile every

time. We may have to move to a smaller house one day, but I'd do it in a

minute to stay out of the kitchen.LOL!!

I am still learning all the different companies and recipes out there!

The last year and a half has been tough. I don't know if I am the only one

on this list that has a child with CELIAC'S Disease or not??? The doctors

wouldn't listen to me and thought that I was nuts complaining about having a

skinny child. " Some kids are skinny " , only to find out when they finally did

listen to me that he was slowly dying from Celiac's Disease. When they

finally did the biopsy he had NO VILLI left in his small intestines, they

were completely flat, and he had been living in pain, but knew no different

and never said one word. He couldn't ride is bike from the pain, and

everyone but me thought he was uncoordinated. At 7 years old?? Needless to

say we changed doctors and I won't let a doctor not listen to me ever again!

He has osteoporosis, so his bones are very brittle. He can't ski this year,

we live in New Hampshire and Daddy ski patrols so that is hard on him. He's

a great kid and takes it all much better than I ever thought he would. Pizza

party at Scouts Friday night and he never said one word.

He started a club in our town called The I Can't Eat " THAT " Club! For all

kids with any type of food issue. They have 6 members and meet once a month.

They had a candy free Halloween Party with little prizes, made trick or

treating more fun, because they got to trade all the BAD candy for good

candy when they got home. They also had a piñata stuffed with toys instead

of candy. They all have the attitude that they will not miss out on fun

things at school or home because of this. My son goes to birthday parties

and brings his own cake and a scope of ice cream in a baggie and when its

time, I scope it onto the place, no one is the wiser most times. He doesn't

hide it, because Celiac's is so serious, but he doesn't make it an issue

either. He refuses to let it hold him back! I hope he is well soon, as he is

still a very sick little boy!

Some of you might be wondering why I didn't join a Celiac's List, I have,

but I am very interested in learning about GF/CF diet in regards to Autism

as well. My younger son has DSI(Dysfunction of Sensory Integration)or SID.

We know he has an addiction to sugar, so we are interested to see that

connection to Gluten as well. I am also interested because what he eats does

seem to effect his DSI symptoms. I do know enough about Autism to know that

these children also have DSI issues as well. My son has changed so very much

since DSI therapy, both with a therapist and and OT. He is thriving in first

grade which is something I truly never thought possible a year ago. Before

therapy he was out of control. The book The OUT of SYNC CHILD< saved our

lives.

I have started a support group in Londonderry, NH for DSI this past June. I

have recently joined forces with Dr. Lucy Jane ( who has worked in DSI

for 30 years) , I have helped a mom near her in Denver start another group

out there and Dr, will be announcing DSI PARENT CONNECTIONS at this

weeks LA Conference with many top people in the field. We have 30(We hope)

groups set to start this spring around the country. More to follow as word

spreads that we are looking for parents to host one meeting once a month.

Soon parents will be able to log onto

SInetwork.org and search by state to find a DSI PARENT CONNECTION near them.

I am now a true believer in the POWER OF ONE!!!!

I am sure someone has posted the POWER OF ONE day coming up in March in

Washington, DC. It is sure to be exciting and get National attention. I am

thrilled for that.

Sorry for the long intro. Now for my questions!

1. Are there any other Celiac Parents on this group?

2. How many of you know about the connection to DSI with Autism and also

FOOD?

3.Fast FOOD is our BIG ISSUE, as I haven't had a minute to search outside of

my home, except Mcs. They have a list on their website, which is

wonderful, but,THey have for example Pickles on the GF list, well they have

distilled vinegar in them.( THIS is OK, for some on GF diet, but not

CELIACS) So I am so afraid to take him anywhere. Anyone have any help here??

Thanks so much for all your help in advance!

God Bless,

Laurie Renke

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