Re: muscle cramping & head pain

[Guest guest]

I have a general and perhaps dumb question. Is muscle cramping a common

experience with mito? I sometimes get very severe cramps - in foot or

leg mostly. They are totally debilitating at the moment but they don't

last long. I never connected them with mito, or was too concerned about

them, because they always release rather quickly.

Ann Maire

It is interesting, I never saw anyone describe my head pain like you

did. It feels like someone has shoved a poker into my head from the

top down, right past the inside of my left eye down into my jaw. When

it hits, I feel my face get contorted with pain, I get out of breath

and I can't - don't want to- talk Have gotten it for years. But,

blessedly mine only lasts for a very short time. Most of the time it

comes at the end of a yawn, although it does also come spontaneously.

I always feel it is a muscle in my head cramping, and it always goes

away like a cramp would. Years ago I was diagnosed with TMJ - Tempo

Mandibular Joint problems. I really don't know how much the TMJ ever

contributed to my general neck pain, which is different than this head

thing, but I do feel TMJ is related to the one sided " cramps " I get

sometimes. When I get an attack I find someplace private immediately,

and try very hard to relax my face/head neck, let my jaw drop a little

bit, and sometimes massaging my neck near and around my on that side.

It usually does release quickly, and I can't remember one episode that

has lasted longer than 30 seconds. I say that with gratitude, because

it is an awful pain.

Regards

Sunny

Sorry to hear that you have some kind of stroke like events.

>

> I also get what I call " Brain Pain " . It is absolutely horrible pain

> that is sharp, stabbing and burning pain that travels from my left

> side of my head from the top to my eyes, down my whole side of my

> face, ear, and into my jaw. When I get this it comes and goes, it can

> last from a half hour to hours at a time. My last round of this lasted

> a total of 5 months. The docs said it was Neurological.

>

> Was it Athena Labs that ruled out the 2 more common forms of glycogen

> storage diseases? And do you know what tests Athena is doing on your

> biospy? Did you have the blood test to check to see if you have the 2

> gene mutations associated with MELAS?  Alot of people don't like

> Athena Labs and won't send their muscle biopsy or blood work there to

> test for Mito disorders. They have messed up quite alot of results.

> Some people here have had bad luck with Athena Labs and I am sure if

> you asked they would tell their stories.

>

> Good Luck. I hope you get your results back sooner than another

> month. waiting is just so hard.

>

> Hugs,

> Ann-Marie

>

>

>

>

>

>

> klaga5 wrote:

>

>

> That's why I wonder if I may have mito (or MELAS).  They always

> assumed I had a stroke in college, some 20 years ago.  Again 2 1/2

> years ago they had to rule out stroke.  With the new technology,

> they could tell I've never actually had a stroke.  I've had

> absolutely terrible sharp pains in my head on and off as long as I

> can remember.  I've even had my right hand, arm, and side of my face

> go numb for weeks.  I have a couple calcifications on my MRI also. 

>

>

>

>

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>

[Guest guest]

> I always feel it is a muscle in my head cramping, and it always

> goes away like a cramp would.

> Sunny

Sunny,

Mine isn't anything like a cramp. It sharp stabbing and I just have

to wait it out.

Kim

[Guest guest]

I describe my sinus pains as a " railroad spike " in the head. The

sharp pain I get in my temple is more like a really long needle. TMI

probably! The temple pain is often associated with me collapsing, at

least briefly, luckily it is intermittent. Sinus pain tends to bunch

up, although before I had surgery I had it continually - the dentist

even said they thought it was causing my chronic tooth pain.

Take care,

RH

> > >>

> > >>

> > >> That's why I wonder if I may have mito (or MELAS).  They

always

> > >> assumed I had a stroke in college, some 20 years ago.  Again

2 1/2

> > >> years ago they had to rule out stroke.  With the new

technology,

> > >> they could tell I've never actually had a stroke.  I've had

> > >> absolutely terrible sharp pains in my head on and off as long

as I

> > >> can remember.  I've even had my right hand, arm, and side of

my

> > face

> > >> go numb for weeks.  I have a couple calcifications on my MRI

also. 

> > >>

> > >>

> > >>

> > >>

> > >>   ----------

> > >>

> > >> No virus found in this outgoing message.

> > >> Checked by AVG Anti-Virus.

> > >> Version: 7.0.300 / Virus Database: 266.5.7 - Release Date:

3/1/2005

> > >>

> > >>

> > >>