Guest guest Posted April 3, 2005 Report Share Posted April 3, 2005 Barbara, So glad to hear you survived through all this! You are " The Woman! " I give it to you. I have had the kidney stone thing and it is no piece of cake at all. I can't believe you went through that much pain! Try to rest now and heal! Hugs O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2005 Report Share Posted April 3, 2005 Barbara, So glad to hear you survived through all this! You are " The Woman! " I give it to you. I have had the kidney stone thing and it is no piece of cake at all. I can't believe you went through that much pain! Try to rest now and heal! Hugs O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2005 Report Share Posted April 3, 2005 Barbara, I will be keeping you in my thoughts and prayers. You are such an inspiration to many. I am sorry that you have been having such a hard time lately. Hugs and smiles, a On Sun, 3 Apr 2005 16:40:16 -0500 " Barbara Seaman " wheatchild@...> writes: The dime-sized kidney stone which the urologist said was too large to ever escape my kidney did just that. I was notified of this event about 4:30 pm on Palm Sunday afternoon by sudden pain which I suspected was related to kidney/bladder. An hour later a major mito crash occurred--the worst in over a year--and within a few minutes I could not get up from a chair or walk. This piggyback event told me the pain was " significant " , but I was so weak that it would have been difficult to get to a doctor and go through tests. I opted to wait and rest. All during Easter week, the stone inched its way down and by Saturday night was causing intense pain. When I tried to get up Easter Sunday morning, a second major mito crash occurred, this time accompanied by a stroke-like event, during which my speech garbles and I have difficulty thinking. The combination of kidney stone pain and stroke-like event was a bit overwhelming. Le could not get me to ER himself and called 911. Three paramedics took me to ER where Dr. Hunt did x-rays, trying to locate the stone. It didn't show up on their x-rays, which we now know is common. They gave me a pain shot and we opted to go home and call Dr. Stuever Monday. The rest of Sunday we ran J-tube feedings continuously to try to normalize my speech and offset the stroke-like event. But the tube feedings put additional pressure on the kidney and worsened the pain. We finally had to shut it off about midnight and I sipped formula the rest of the night. When we saw Dr. Stuever Monday, he said I had a fever and needed to be hospitalized until they figured out what was wrong. He sent us directly to the hospital from his office. They ran J-tube tests all afternoon but did not see any leaks. Tuesday morning a CT scan located the stone lodged in the ureter near the bladder. It was too large to get any further, and how it got that far is a mystery. We spent Tuesday afternoon and all of Wednesday working through the anesthesia and feeding problems inherent in surgery--which finally took place Thursday via spinal anesthesia. A second stone was also removed from the right kidney. A stent was placed to prevent swelling and will be removed in two weeks. I am home but quite weak, walking short distances with my walker on wheels, eating and sleeping in my office downstairs on my daybed. I finally got my hair washed this afternoon after two weeks. The next goal is to read my own email. For now Le reads it to me every evening. After that I hope to get back to using my voice-activated software. This will take time, as I had not recovered from the gamma knife when the kidney saga began. We had wonderful help from seven different doctors who all talked to each other and worked like a team. We are profoundly grateful for their help. As always, we appreciate all the support and concern. We are positive and hopeful. Clearly God is at work in our lives and that makes all the difference. Le (scribe) and Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2005 Report Share Posted April 3, 2005 Barbara, I will be keeping you in my thoughts and prayers. You are such an inspiration to many. I am sorry that you have been having such a hard time lately. Hugs and smiles, a On Sun, 3 Apr 2005 16:40:16 -0500 " Barbara Seaman " wheatchild@...> writes: The dime-sized kidney stone which the urologist said was too large to ever escape my kidney did just that. I was notified of this event about 4:30 pm on Palm Sunday afternoon by sudden pain which I suspected was related to kidney/bladder. An hour later a major mito crash occurred--the worst in over a year--and within a few minutes I could not get up from a chair or walk. This piggyback event told me the pain was " significant " , but I was so weak that it would have been difficult to get to a doctor and go through tests. I opted to wait and rest. All during Easter week, the stone inched its way down and by Saturday night was causing intense pain. When I tried to get up Easter Sunday morning, a second major mito crash occurred, this time accompanied by a stroke-like event, during which my speech garbles and I have difficulty thinking. The combination of kidney stone pain and stroke-like event was a bit overwhelming. Le could not get me to ER himself and called 911. Three paramedics took me to ER where Dr. Hunt did x-rays, trying to locate the stone. It didn't show up on their x-rays, which we now know is common. They gave me a pain shot and we opted to go home and call Dr. Stuever Monday. The rest of Sunday we ran J-tube feedings continuously to try to normalize my speech and offset the stroke-like event. But the tube feedings put additional pressure on the kidney and worsened the pain. We finally had to shut it off about midnight and I sipped formula the rest of the night. When we saw Dr. Stuever Monday, he said I had a fever and needed to be hospitalized until they figured out what was wrong. He sent us directly to the hospital from his office. They ran J-tube tests all afternoon but did not see any leaks. Tuesday morning a CT scan located the stone lodged in the ureter near the bladder. It was too large to get any further, and how it got that far is a mystery. We spent Tuesday afternoon and all of Wednesday working through the anesthesia and feeding problems inherent in surgery--which finally took place Thursday via spinal anesthesia. A second stone was also removed from the right kidney. A stent was placed to prevent swelling and will be removed in two weeks. I am home but quite weak, walking short distances with my walker on wheels, eating and sleeping in my office downstairs on my daybed. I finally got my hair washed this afternoon after two weeks. The next goal is to read my own email. For now Le reads it to me every evening. After that I hope to get back to using my voice-activated software. This will take time, as I had not recovered from the gamma knife when the kidney saga began. We had wonderful help from seven different doctors who all talked to each other and worked like a team. We are profoundly grateful for their help. As always, we appreciate all the support and concern. We are positive and hopeful. Clearly God is at work in our lives and that makes all the difference. Le (scribe) and Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2005 Report Share Posted April 3, 2005 Barbara, I am sorry to hear all you have had to endure recently. I hope you get some time of peace and healing. My thoughts and prayers are with you. Sunny > The dime-sized kidney stone which the urologist said was too large to > ever > escape my kidney did just that. I was notified of this event about > 4:30 pm > on Palm Sunday afternoon by sudden pain which I suspected was related > to > kidney/bladder. An hour later a major mito crash occurred--the worst > in over > a year--and within a few minutes I could not get up from a chair or > walk. > This piggyback event told me the pain was " significant " , but I was so > weak > that it would have been difficult to get to a doctor and go through > tests. I > opted to wait and rest. All during Easter week, the stone inched its > way > down and by Saturday night was causing intense pain. When I tried to > get up > Easter Sunday morning, a second major mito crash occurred, this time > accompanied by a stroke-like event, during which my speech garbles > and I > have difficulty thinking. The combination of kidney stone pain and > stroke-like event was a bit overwhelming. Le could not get me to ER > himself > and called 911. Three paramedics took me to ER where Dr. Hunt did > x-rays, > trying to locate the stone. It didn't show up on their x-rays, which > we now > know is common. They gave me a pain shot and we opted to go home and > call > Dr. Stuever Monday. The rest of Sunday we ran J-tube feedings > continuously > to try to normalize my speech and offset the stroke-like event. But > the tube > feedings put additional pressure on the kidney and worsened the pain. > We > finally had to shut it off about midnight and I sipped formula the > rest of > the night. When we saw Dr. Stuever Monday, he said I had a fever and > needed > to be hospitalized until they figured out what was wrong. He sent us > directly to the hospital from his office. They ran J-tube tests all > afternoon but did not see any leaks. Tuesday morning a CT scan > located the > stone lodged in the ureter near the bladder. It was too large to get > any > further, and how it got that far is a mystery. We spent Tuesday > afternoon > and all of Wednesday working through the anesthesia and feeding > problems > inherent in surgery--which finally took place Thursday via spinal > anesthesia. A second stone was also removed from the right kidney. A > stent > was placed to prevent swelling and will be removed in two weeks. I am > home > but quite weak, walking short distances with my walker on wheels, > eating and > sleeping in my office downstairs on my daybed. I finally got my hair > washed > this afternoon after two weeks. The next goal is to read my own > email. For > now Le reads it to me every evening. After that I hope to get back to > using > my voice-activated software. This will take time, as I had not > recovered > from the gamma knife when the kidney saga began. We had wonderful > help from > seven different doctors who all talked to each other and worked like > a team. > We are profoundly grateful for their help. As always, we appreciate > all the > support and concern. We are positive and hopeful. Clearly God is at > work in > our lives and that makes all the difference. > > Le (scribe) and Barbara > > > > > Medical advice, information, opinions, data and statements contained > herein are not necessarily those of the list moderators. The author of > this e mail is entirely responsible for its content. List members are > reminded of their responsibility to evaluate the content of the > postings and consult with their physicians regarding changes in their > own treatment. > > Personal attacks are not permitted on the list and anyone who sends > one is automatically moderated or removed depending on the severity of > the attack. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2005 Report Share Posted April 3, 2005 Please give Barbara a gentle hug from me and let her know she is in my prayers. She is a wonderful friend to us all here in Mitoldies. Her strength and grace are an inspiration to us all. Barbara Seaman wrote: >The dime-sized kidney stone which the urologist said was too large to ever >escape my kidney did just that. I was notified of this event about 4:30 pm >on Palm Sunday afternoon by sudden pain which I suspected was related to >kidney/bladder. An hour later a major mito crash occurred--the worst in over >a year--and within a few minutes I could not get up from a chair or walk. >This piggyback event told me the pain was " significant " , but I was so weak >that it would have been difficult to get to a doctor and go through tests. I >opted to wait and rest. All during Easter week, the stone inched its way >down and by Saturday night was causing intense pain. When I tried to get up >Easter Sunday morning, a second major mito crash occurred, this time >accompanied by a stroke-like event, during which my speech garbles and I >have difficulty thinking. The combination of kidney stone pain and >stroke-like event was a bit overwhelming. Le could not get me to ER himself >and called 911. Three paramedics took me to ER where Dr. Hunt did x-rays, >trying to locate the stone. It didn't show up on their x-rays, which we now >know is common. They gave me a pain shot and we opted to go home and call >Dr. Stuever Monday. The rest of Sunday we ran J-tube feedings continuously >to try to normalize my speech and offset the stroke-like event. But the tube >feedings put additional pressure on the kidney and worsened the pain. We >finally had to shut it off about midnight and I sipped formula the rest of >the night. When we saw Dr. Stuever Monday, he said I had a fever and needed >to be hospitalized until they figured out what was wrong. He sent us >directly to the hospital from his office. They ran J-tube tests all >afternoon but did not see any leaks. Tuesday morning a CT scan located the >stone lodged in the ureter near the bladder. It was too large to get any >further, and how it got that far is a mystery. We spent Tuesday afternoon >and all of Wednesday working through the anesthesia and feeding problems >inherent in surgery--which finally took place Thursday via spinal >anesthesia. A second stone was also removed from the right kidney. A stent >was placed to prevent swelling and will be removed in two weeks. I am home >but quite weak, walking short distances with my walker on wheels, eating and >sleeping in my office downstairs on my daybed. I finally got my hair washed >this afternoon after two weeks. The next goal is to read my own email. For >now Le reads it to me every evening. After that I hope to get back to using >my voice-activated software. This will take time, as I had not recovered >from the gamma knife when the kidney saga began. We had wonderful help from >seven different doctors who all talked to each other and worked like a team. >We are profoundly grateful for their help. As always, we appreciate all the >support and concern. We are positive and hopeful. Clearly God is at work in >our lives and that makes all the difference. > >Le (scribe) and Barbara > > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2005 Report Share Posted April 3, 2005 Please give Barbara a gentle hug from me and let her know she is in my prayers. She is a wonderful friend to us all here in Mitoldies. Her strength and grace are an inspiration to us all. Barbara Seaman wrote: >The dime-sized kidney stone which the urologist said was too large to ever >escape my kidney did just that. I was notified of this event about 4:30 pm >on Palm Sunday afternoon by sudden pain which I suspected was related to >kidney/bladder. An hour later a major mito crash occurred--the worst in over >a year--and within a few minutes I could not get up from a chair or walk. >This piggyback event told me the pain was " significant " , but I was so weak >that it would have been difficult to get to a doctor and go through tests. I >opted to wait and rest. All during Easter week, the stone inched its way >down and by Saturday night was causing intense pain. When I tried to get up >Easter Sunday morning, a second major mito crash occurred, this time >accompanied by a stroke-like event, during which my speech garbles and I >have difficulty thinking. The combination of kidney stone pain and >stroke-like event was a bit overwhelming. Le could not get me to ER himself >and called 911. Three paramedics took me to ER where Dr. Hunt did x-rays, >trying to locate the stone. It didn't show up on their x-rays, which we now >know is common. They gave me a pain shot and we opted to go home and call >Dr. Stuever Monday. The rest of Sunday we ran J-tube feedings continuously >to try to normalize my speech and offset the stroke-like event. But the tube >feedings put additional pressure on the kidney and worsened the pain. We >finally had to shut it off about midnight and I sipped formula the rest of >the night. When we saw Dr. Stuever Monday, he said I had a fever and needed >to be hospitalized until they figured out what was wrong. He sent us >directly to the hospital from his office. They ran J-tube tests all >afternoon but did not see any leaks. Tuesday morning a CT scan located the >stone lodged in the ureter near the bladder. It was too large to get any >further, and how it got that far is a mystery. We spent Tuesday afternoon >and all of Wednesday working through the anesthesia and feeding problems >inherent in surgery--which finally took place Thursday via spinal >anesthesia. A second stone was also removed from the right kidney. A stent >was placed to prevent swelling and will be removed in two weeks. I am home >but quite weak, walking short distances with my walker on wheels, eating and >sleeping in my office downstairs on my daybed. I finally got my hair washed >this afternoon after two weeks. The next goal is to read my own email. For >now Le reads it to me every evening. After that I hope to get back to using >my voice-activated software. This will take time, as I had not recovered >from the gamma knife when the kidney saga began. We had wonderful help from >seven different doctors who all talked to each other and worked like a team. >We are profoundly grateful for their help. As always, we appreciate all the >support and concern. We are positive and hopeful. Clearly God is at work in >our lives and that makes all the difference. > >Le (scribe) and Barbara > > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2005 Report Share Posted April 3, 2005 Please give Barbara a gentle hug from me and let her know she is in my prayers. She is a wonderful friend to us all here in Mitoldies. Her strength and grace are an inspiration to us all. Barbara Seaman wrote: >The dime-sized kidney stone which the urologist said was too large to ever >escape my kidney did just that. I was notified of this event about 4:30 pm >on Palm Sunday afternoon by sudden pain which I suspected was related to >kidney/bladder. An hour later a major mito crash occurred--the worst in over >a year--and within a few minutes I could not get up from a chair or walk. >This piggyback event told me the pain was " significant " , but I was so weak >that it would have been difficult to get to a doctor and go through tests. I >opted to wait and rest. All during Easter week, the stone inched its way >down and by Saturday night was causing intense pain. When I tried to get up >Easter Sunday morning, a second major mito crash occurred, this time >accompanied by a stroke-like event, during which my speech garbles and I >have difficulty thinking. The combination of kidney stone pain and >stroke-like event was a bit overwhelming. Le could not get me to ER himself >and called 911. Three paramedics took me to ER where Dr. Hunt did x-rays, >trying to locate the stone. It didn't show up on their x-rays, which we now >know is common. They gave me a pain shot and we opted to go home and call >Dr. Stuever Monday. The rest of Sunday we ran J-tube feedings continuously >to try to normalize my speech and offset the stroke-like event. But the tube >feedings put additional pressure on the kidney and worsened the pain. We >finally had to shut it off about midnight and I sipped formula the rest of >the night. When we saw Dr. Stuever Monday, he said I had a fever and needed >to be hospitalized until they figured out what was wrong. He sent us >directly to the hospital from his office. They ran J-tube tests all >afternoon but did not see any leaks. Tuesday morning a CT scan located the >stone lodged in the ureter near the bladder. It was too large to get any >further, and how it got that far is a mystery. We spent Tuesday afternoon >and all of Wednesday working through the anesthesia and feeding problems >inherent in surgery--which finally took place Thursday via spinal >anesthesia. A second stone was also removed from the right kidney. A stent >was placed to prevent swelling and will be removed in two weeks. I am home >but quite weak, walking short distances with my walker on wheels, eating and >sleeping in my office downstairs on my daybed. I finally got my hair washed >this afternoon after two weeks. The next goal is to read my own email. For >now Le reads it to me every evening. After that I hope to get back to using >my voice-activated software. This will take time, as I had not recovered >from the gamma knife when the kidney saga began. We had wonderful help from >seven different doctors who all talked to each other and worked like a team. >We are profoundly grateful for their help. As always, we appreciate all the >support and concern. We are positive and hopeful. Clearly God is at work in >our lives and that makes all the difference. > >Le (scribe) and Barbara > > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2005 Report Share Posted April 3, 2005 Barbara I am so sorry that you have had such a terrible time this past week. Rest well. I will keep you in my thoughts and prayers. laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2005 Report Share Posted April 4, 2005 Barbara, Very gentle cyber (((hugs))), hope you feel much better soon... Gillian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2005 Report Share Posted April 4, 2005 Barbara, Very gentle cyber (((hugs))), hope you feel much better soon... Gillian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2005 Report Share Posted April 4, 2005 Barbara, I'm so sorry you had to go thru so much. Kidney stones in themselves are very painful but to make matters worse, you were fighting Mito too and that is a very difficult combination. Please rest and get well. I'm glad this is all behind you now but you certainly must need some very valuable recovery time. Rest sounds like it's in order for you now. Hugs! Alice Quote Link to comment Share on other sites More sharing options...
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