Re: Back to square one w/ Livi's feet. Frustrated!!!

January 11, 2005

Oh sweetie! Hang in there. I am so sorry. Have you tried emailing

pictures to Dr. Ponseti? Is Dr. Schmale wanting to do casting as

opposed to surgery? Is either one of these doctors consulting with

Dr. Ponseti? I would get him into the picture as fast as possible,

before surgery is done.

When Dr. Mosca said her ankle was still very tight, did he mean Dr.

Schmale had done as good of a job as could be done without surgery?

Maybe that's how Dr. S thinks the correction is fine. My sons feet

are still very very tight, after two surgeries and a year in casts.

we are now at the point where, this is as good as they get until he

can start standing on them to force his feet down. I know it's not

the same, but his feet are tight too and Dr. ponseti casted as much as

he could to acheive the correction we have right now, but it's still

not fully corrected. We just need him to start walking on them to put

pressure on them and to stretch.

I don't know if this helps at all, but just know i am so sorry you are

going through this and I will keep you and your family in my prayers.

Lord bless you and fill you with His peace. Trust in the One who

created her.

atypical bl cf 10-09-03

>

> SO... Olivia saw Dr. Mosca last week as most of you know.. he

> concurred with Dr. Schmale that she will probably need some surgery.

> He said her ankle was still very tight. She has not been keeping

> her left foot in her shoe - it seems to be getting worse - we put it

> on at night, go in and check on her, and it is off again.

>

> So we called Dr. Schmale who we weren't supposed to see for another

> month. We don't get to talk to him, just his nurse. I explained the

> problem - and advised this is NOT an orthotic problem, it's

> correction problem. I wanted to see Schmale sooner to maybe get the

> ball rolling on the surgery if that's what she needs. Dr. Schmales

> response was, " It must be that her feet aren't big enough for the

> shoes yet. Bring her in for another set of casts. Dr. Mosca says her

> correction is just fine. "

>

> WHAT?!?!?! 1) THat's not really what Dr. Mosca said. He said three

> out of four parts of her correction were good. The heel was still

> tight. 2) She's been in the darn shoes for the last 6 months fairly

> successfully. She's even outgrown a pair. Her feet are NOT too

> small to fit in the shoes.

>

> I'm so frustrated at this point. I told this all to the nurse - but

> it's hard relaying messages back and forth. She said she would try

> to get us in this week to see him. I just can't believe he said

> that- as if she was 4 months old and just starting the shoes again.

>

> Sorry for being so long winded. It just made me want to scream!!!

>

> Darby

> Livi 3/15/04 bi cf dbb 12/7

> EDD #2 5/12/05

January 11, 2005

,

It's interesting you say that standing will stretch the feet? Livi

stands and cruises most of the time she is awake since about 3 months

ago... I wonder why that hasn't helped. She often is on her tip toe

on her tighter foot. From what I gathered, Mosca said that the

correction was as good as it was going to be without further surgical

intervention, because the achilles tendon was most likely not causing

the tightness - it's being caused by the " ankle capsule " whatever

that is.. I felt better about seeing Schmale after talking to Dr.

Mosca, but now I'm getting that old feeling that he still has no idea

who we are - and we've been seeing him for the last 10 months!!

I've been procrastinating getting pics to Dr. Ponseti - time to dig

out the digital camera and try my luck.

Thank you for your prayers.. I have been so stressed lately and this

on top of everything else- I've been getting kind of snippy w/ DH and

I don't mean to!

Darby

Livi 3/15/04 bi cf dbb 12/7

EDD # 2 5/12/05

> >

> > SO... Olivia saw Dr. Mosca last week as most of you know.. he

> > concurred with Dr. Schmale that she will probably need some

surgery.

> > He said her ankle was still very tight. She has not been keeping

> > her left foot in her shoe - it seems to be getting worse - we put

it

> > on at night, go in and check on her, and it is off again.

> >

> > So we called Dr. Schmale who we weren't supposed to see for

another

> > month. We don't get to talk to him, just his nurse. I explained

the

> > problem - and advised this is NOT an orthotic problem, it's

> > correction problem. I wanted to see Schmale sooner to maybe get

the

> > ball rolling on the surgery if that's what she needs. Dr.

Schmales

> > response was, " It must be that her feet aren't big enough for the

> > shoes yet. Bring her in for another set of casts. Dr. Mosca says

her

> > correction is just fine. "

> >

> > WHAT?!?!?! 1) THat's not really what Dr. Mosca said. He said

three

> > out of four parts of her correction were good. The heel was

still

> > tight. 2) She's been in the darn shoes for the last 6 months

fairly

> > successfully. She's even outgrown a pair. Her feet are NOT too

> > small to fit in the shoes.

> >

> > I'm so frustrated at this point. I told this all to the nurse -

but

> > it's hard relaying messages back and forth. She said she would

try

> > to get us in this week to see him. I just can't believe he said

> > that- as if she was 4 months old and just starting the shoes

again.

> >

> > Sorry for being so long winded. It just made me want to

scream!!!

> >

> > Darby

> > Livi 3/15/04 bi cf dbb 12/7

> > EDD #2 5/12/05

January 11, 2005

Darby,

Why don't you just have Dr. Mosca see her from now on? I think... when

anyone gets a weird feeling about a doc that it's time to change to one you

like if you can. I would also ask Dr. Ponseti about this ankle capsule

thing. you're the first here to mention it (I've been here nearly 2y now)

and I'm interested in this as well. What the heck is an ankle capsule

anyway?

Kori

At 02:51 PM 1/11/2005, you wrote:

>,

>

>It's interesting you say that standing will stretch the feet? Livi

>stands and cruises most of the time she is awake since about 3 months

>ago... I wonder why that hasn't helped. She often is on her tip toe

>on her tighter foot. From what I gathered, Mosca said that the

>correction was as good as it was going to be without further surgical

>intervention, because the achilles tendon was most likely not causing

>the tightness - it's being caused by the " ankle capsule " whatever

>that is.. I felt better about seeing Schmale after talking to Dr.

>Mosca, but now I'm getting that old feeling that he still has no idea

>who we are - and we've been seeing him for the last 10 months!!

>

>I've been procrastinating getting pics to Dr. Ponseti - time to dig

>out the digital camera and try my luck.

>

>Thank you for your prayers.. I have been so stressed lately and this

>on top of everything else- I've been getting kind of snippy w/ DH and

>I don't mean to!

>

>Darby

>Livi 3/15/04 bi cf dbb 12/7

>EDD # 2 5/12/05

>

> > >

> > > SO... Olivia saw Dr. Mosca last week as most of you know.. he

> > > concurred with Dr. Schmale that she will probably need some

>surgery.

> > > He said her ankle was still very tight. She has not been keeping

> > > her left foot in her shoe - it seems to be getting worse - we put

>it

> > > on at night, go in and check on her, and it is off again.

> > >

> > > So we called Dr. Schmale who we weren't supposed to see for

>another

> > > month. We don't get to talk to him, just his nurse. I explained

>the

> > > problem - and advised this is NOT an orthotic problem, it's

> > > correction problem. I wanted to see Schmale sooner to maybe get

>the

> > > ball rolling on the surgery if that's what she needs. Dr.

>Schmales

> > > response was, " It must be that her feet aren't big enough for the

> > > shoes yet. Bring her in for another set of casts. Dr. Mosca says

>her

> > > correction is just fine. "

> > >

> > > WHAT?!?!?! 1) THat's not really what Dr. Mosca said. He said

>three

> > > out of four parts of her correction were good. The heel was

>still

> > > tight. 2) She's been in the darn shoes for the last 6 months

>fairly

> > > successfully. She's even outgrown a pair. Her feet are NOT too

> > > small to fit in the shoes.

> > >

> > > I'm so frustrated at this point. I told this all to the nurse -

>but

> > > it's hard relaying messages back and forth. She said she would

>try

> > > to get us in this week to see him. I just can't believe he said

> > > that- as if she was 4 months old and just starting the shoes

>again.

> > >

> > > Sorry for being so long winded. It just made me want to

>scream!!!

> > >

> > > Darby

> > > Livi 3/15/04 bi cf dbb 12/7

> > > EDD #2 5/12/05

>

January 11, 2005

Darby,

went through that procedure too. I think it was the

capsulectomy, that and the posterior and tibular release I think they

said. That was the surgery Dr. Ponseti referred us for.

That's what dr. ponseti has said. needs to stretch his ankles

heels and souls of feet. He simply refuses to stand and when he does

he too does the tippy toe thing or he screams whenever I work with

him. It is so hard.

I would definitely get the pictures out. if there is a chance to fix

this without the surgery, Dr. ponseti will know. Has Schmale been

consulting with Dr. P at all?

Hang in there and Lord bless you,

> > >

> > > SO... Olivia saw Dr. Mosca last week as most of you know.. he

> > > concurred with Dr. Schmale that she will probably need some

> surgery.

> > > He said her ankle was still very tight. She has not been keeping

> > > her left foot in her shoe - it seems to be getting worse - we put

> it

> > > on at night, go in and check on her, and it is off again.

> > >

> > > So we called Dr. Schmale who we weren't supposed to see for

> another

> > > month. We don't get to talk to him, just his nurse. I explained

> the

> > > problem - and advised this is NOT an orthotic problem, it's

> > > correction problem. I wanted to see Schmale sooner to maybe get

> the

> > > ball rolling on the surgery if that's what she needs. Dr.

> Schmales

> > > response was, " It must be that her feet aren't big enough for the

> > > shoes yet. Bring her in for another set of casts. Dr. Mosca says

> her

> > > correction is just fine. "

> > >

> > > WHAT?!?!?! 1) THat's not really what Dr. Mosca said. He said

> three

> > > out of four parts of her correction were good. The heel was

> still

> > > tight. 2) She's been in the darn shoes for the last 6 months

> fairly

> > > successfully. She's even outgrown a pair. Her feet are NOT too

> > > small to fit in the shoes.

> > >

> > > I'm so frustrated at this point. I told this all to the nurse -

> but

> > > it's hard relaying messages back and forth. She said she would

> try

> > > to get us in this week to see him. I just can't believe he said

> > > that- as if she was 4 months old and just starting the shoes

> again.

> > >

> > > Sorry for being so long winded. It just made me want to

> scream!!!

> > >

> > > Darby

> > > Livi 3/15/04 bi cf dbb 12/7

> > > EDD #2 5/12/05

January 11, 2005

No, he hasn't been consulting with Ponseti - I'm sure he'll be

consulting at least with Dr. Mosca after my appointment on Thursday.

Dr. Mosca explained the capsulectomy and the reason behind it so

well - I really feel comfortable with having the procedure done. He

explained in detail how the Ponseti method works and why it has

almost, but not completely, fixed Livi's feet. I just don't feel

comfortable with Schmale making such an off base comment about her

feet being too small to wear the shoes - especially since she's been

in them for so long!

I hope it all gets straightened out on Thursday - I got the office to

squeeze us in for an appointment. I'm afraid that whatever he says,

she may come out of there with another set of casts

Darby

Livi 3/15/04 bi cf dbb 12/7

> > > >

> > > > SO... Olivia saw Dr. Mosca last week as most of you know.. he

> > > > concurred with Dr. Schmale that she will probably need some

> > surgery.

> > > > He said her ankle was still very tight. She has not been

keeping

> > > > her left foot in her shoe - it seems to be getting worse - we

put

> > it

> > > > on at night, go in and check on her, and it is off again.

> > > >

> > > > So we called Dr. Schmale who we weren't supposed to see for

> > another

> > > > month. We don't get to talk to him, just his nurse. I

explained

> > the

> > > > problem - and advised this is NOT an orthotic problem, it's

> > > > correction problem. I wanted to see Schmale sooner to maybe

get

> > the

> > > > ball rolling on the surgery if that's what she needs. Dr.

> > Schmales

> > > > response was, " It must be that her feet aren't big enough for

the

> > > > shoes yet. Bring her in for another set of casts. Dr. Mosca

says

> > her

> > > > correction is just fine. "

> > > >

> > > > WHAT?!?!?! 1) THat's not really what Dr. Mosca said. He said

> > three

> > > > out of four parts of her correction were good. The heel was

> > still

> > > > tight. 2) She's been in the darn shoes for the last 6 months

> > fairly

> > > > successfully. She's even outgrown a pair. Her feet are NOT

too

> > > > small to fit in the shoes.

> > > >

> > > > I'm so frustrated at this point. I told this all to the

nurse -

> > but

> > > > it's hard relaying messages back and forth. She said she

would

> > try

> > > > to get us in this week to see him. I just can't believe he

said

> > > > that- as if she was 4 months old and just starting the shoes

> > again.

> > > >

> > > > Sorry for being so long winded. It just made me want to

> > scream!!!

> > > >

> > > > Darby

> > > > Livi 3/15/04 bi cf dbb 12/7

> > > > EDD #2 5/12/05

January 11, 2005