Re: Back to square one w/ Livi's feet. Frustrated!!!

[Guest guest]

It's funny - Schamle did tell us to have her wear it night and nap

time, but he didn't give us a number of hours. Unfortunately, she is

not a very good napper and so we don't put it on during the day - we

never know when we put her down for a nap if she'll scream for an

hour or she'll be happy in her crib. Even if she did wear it for

naps, she would only have it on for about 13-14 hours per day.

So maybe thats part of the reason her feet are having issues....

hmm. She sleeps about 12 hours at night, and we used to have her

keep her bar on until about 10 or 11am (she wakes up about 7am), but

now that her foot has always slipped out of the shoe when she wakes

up, we haven't been putting it back on.

Our babies are only about 3 weeks apart - that's so cool!

Darby

>

> Darby,

>

> I noticed the the doctors have Livi in the FAB 12 hour/day. I have

> had issues with what my doctor prescribes as brace time, so after

our

> last two appts have written to Dr. P on the issue. Zoe is a few

> weeks older than Livi and started with the FAB at 2 months after 5

> casts and a tenotomy. Dr. P has advised us to keep her in it for

16

> hour/day until she walks and then down to 12-14 hours/day.

>

> Quote

> October 18, 2004

>

> I would recommend Zoe wear the brace at night and naptime for a

total

> of at least 16 hours a day.

>

> I don't know if I mentioned to you but on the web site www.global-

> help.org you can click on " Publications " and download a free copy

of

> the booklet " Clubfoot: Ponseti Management " which contains good

> information.

>

> I.V.Ponseti, M.D.

> Unquote

>

> I see that Livi is cruising etc., but wonder if they have reduced

her

> time to soon.

>

> Let us know how your appt goes. If her feet were fully corrected

> before and she did well with the FAB hopefully you can get back to

> that point again quickly!

>

> Louisa

> 6-27-99

> Zoe 2-22-04 RCF FAB 16/7

>

>

>