Looking for Vitamin and Mineral experts out there!!!!

[Guest guest]

Laurie, go to www.kirkmanlabs.com They have supplements for our kids and

they tell you what the supplements to at their web site. They will also

help you over the phone.

Betty

Looking for Vitamin and Mineral experts out there!!!!

> I am wondering if anyone is a pro at vitamins and minerals and the GF/CF

> diet! I would like to know what else I should be getting into my son

besides

> what he was given from his doctor. I believe there must be many more!

Thanks

> for any help! Laurie Renke

[Guest guest]

Laurie, go to www.kirkmanlabs.com They have supplements for our kids and

they tell you what the supplements to at their web site. They will also

help you over the phone.

Betty

Looking for Vitamin and Mineral experts out there!!!!

> I am wondering if anyone is a pro at vitamins and minerals and the GF/CF

> diet! I would like to know what else I should be getting into my son

besides

> what he was given from his doctor. I believe there must be many more!

Thanks

> for any help! Laurie Renke

[Guest guest]

Laurie, go to www.kirkmanlabs.com They have supplements for our kids and

they tell you what the supplements to at their web site. They will also

help you over the phone.

Betty

Looking for Vitamin and Mineral experts out there!!!!

> I am wondering if anyone is a pro at vitamins and minerals and the GF/CF

> diet! I would like to know what else I should be getting into my son

besides

> what he was given from his doctor. I believe there must be many more!

Thanks

> for any help! Laurie Renke

[Guest guest]

Laurie,

I could recommend a wonderful person who knows

everything about nutrition, vitamins, minerals, the

diet and all this linked to autism (through his own

son and educational background). The only problem

could be the distance; e-mail me privately if you are

interested.

Regards,

Kati

kati_marttinen@...

>

> To: GFCFKids >

> Sent: Sunday, February 11, 2001 7:14 AM

> Subject: Looking for Vitamin and Mineral

> experts out there!!!!

>

>

> > I am wondering if anyone is a pro at vitamins and

> minerals and the GF/CF

> > diet! I would like to know what else I should be

> getting into my son

> besides

> > what he was given from his doctor. I believe there

> must be many more!

> Thanks

> > for any help! Laurie Renke

>

__________________________________________________

[Guest guest]

Laurie,

I could recommend a wonderful person who knows

everything about nutrition, vitamins, minerals, the

diet and all this linked to autism (through his own

son and educational background). The only problem

could be the distance; e-mail me privately if you are

interested.

Regards,

Kati

kati_marttinen@...

>

> To: GFCFKids >

> Sent: Sunday, February 11, 2001 7:14 AM

> Subject: Looking for Vitamin and Mineral

> experts out there!!!!

>

>

> > I am wondering if anyone is a pro at vitamins and

> minerals and the GF/CF

> > diet! I would like to know what else I should be

> getting into my son

> besides

> > what he was given from his doctor. I believe there

> must be many more!

> Thanks

> > for any help! Laurie Renke

>

__________________________________________________

[Guest guest]

Dorfman has a great reputation at in MD. So does Nadine

Gilder in NJ and NuHealth Vision (Maureen Durkin, RN)

or durkin@... (in Atlanta).

Jay

[Guest guest]

Dorfman has a great reputation at in MD. So does Nadine

Gilder in NJ and NuHealth Vision (Maureen Durkin, RN)

or durkin@... (in Atlanta).

Jay

[Guest guest]

When I posted about supplements I had absolutely no idea that some of you

(all of you???) give your children that many supplements????????????

Is this last post the norm??? I am totally blown away, last I counted 12

different things????? How do you get a 6year old to take that many????

How do you know what is working and what isn't 'IF' you have them take so

many??

I am not trying to be fresh, just absolutely out of my element! And that

takes a lot for me.

Please let me know what are the general supplements that the " AVERAGE " (HA!)

child on a GF/CF diet takes.

Thanks.

Laurie Renke

[Guest guest]

Laurie,

Breathe... It is pretty overwhelming...kinda sur-real actually. For us,

our list is 14+ supps. My daughter is 2.6 years and has been gfcf+ for 4

months (we only began to suspect something was really wrong 5 months ago).

We did all the testing at once and our doc helped us interpret the results

and made the supplement schedule. The order of introduction is based on her

needs. It has been a journey with the supps. We started in November and

she had soooo many problems. One regression after another...now we've got

it. Many thanks to the gang on the list and especially and .

They know their stuff!!

We learned along the way that Gillian had more sensitivities than just

GFCF. We are soy, corn, yeast, dyes, artificial free. We do low sugar,

avoid salycilates and phenols at all costs. Most of the reactions she was

having were to corn and dyes and flavorings in the supps. Now that we've

got that figured out, she's doing great. Keep in mind we take anywhere from

1 - 2 weeks to introduce a new supp, so it is a long journey. I anticipate

to be up to " full throttle " mid March. I always start on a wed (if she has

a reaction it will show by friday and it won't interfere with her therapy

schedule for the week. I figured her pattern out after I spent many therapy

sessions frustrating her, the therapists, etc) I start the first 2 days with

a sprinkle and then build up to full dosage gradually a day at a time. If I

notice she's a little wiggy or her stools change, I back off or lower a

dosage. Here's our list: (most all are Kirkman's hypo line): PS - we do

Nystatin for yeast too.

Nuthera w/p5p

Probiogold

Vit c

zinc

DMG

Co Q10

4 diff aminos

cod liver oil

flax seed

Vit e

calcium (had a prob wth this one a few weeks ago)

and I know I'm missing something...

I'm thinking about colostum too. Heard great things about it.

Her test results were so scarey to me. To know how bad her insides were

brought me to tears. She has responded great so far (now we're on a roll).

Increased eye contact and interaction. She putting a few words together.

She has started pulling me around to show me stuff and has even pointed at a

thing or 2. She's much more focused, tuned in and happy. She looks better.

No circles, better color. She sleep through the night (3weeks straight so

far). She is healthier.

It's all part of the puzzle. Keep at it a day at a time and it will all

begin to make sense and eventually you'll begin to wonder how you ever ate

before!

Hope this helps. Just remember to keep breathing.

in Chicago

..

l Message-----

To: GFCFKids ' GFCFKids >

Date: Tuesday, February 13, 2001 9:51 PM

Subject: Looking for Vitamin and Mineral experts out there!!!!

>

>When I posted about supplements I had absolutely no idea that some of you

>(all of you???) give your children that many supplements????????????

>

>Is this last post the norm??? I am totally blown away, last I counted 12

>different things????? How do you get a 6year old to take that many????

>

>How do you know what is working and what isn't 'IF' you have them take so

>many??

>I am not trying to be fresh, just absolutely out of my element! And that

>takes a lot for me.

>

>Please let me know what are the general supplements that the " AVERAGE " (HA!)

>child on a GF/CF diet takes.

>

>Thanks.

>

>Laurie Renke

>

>

>

[Guest guest]

Laurie,

Breathe... It is pretty overwhelming...kinda sur-real actually. For us,

our list is 14+ supps. My daughter is 2.6 years and has been gfcf+ for 4

months (we only began to suspect something was really wrong 5 months ago).

We did all the testing at once and our doc helped us interpret the results

and made the supplement schedule. The order of introduction is based on her

needs. It has been a journey with the supps. We started in November and

she had soooo many problems. One regression after another...now we've got

it. Many thanks to the gang on the list and especially and .

They know their stuff!!

We learned along the way that Gillian had more sensitivities than just

GFCF. We are soy, corn, yeast, dyes, artificial free. We do low sugar,

avoid salycilates and phenols at all costs. Most of the reactions she was

having were to corn and dyes and flavorings in the supps. Now that we've

got that figured out, she's doing great. Keep in mind we take anywhere from

1 - 2 weeks to introduce a new supp, so it is a long journey. I anticipate

to be up to " full throttle " mid March. I always start on a wed (if she has

a reaction it will show by friday and it won't interfere with her therapy

schedule for the week. I figured her pattern out after I spent many therapy

sessions frustrating her, the therapists, etc) I start the first 2 days with

a sprinkle and then build up to full dosage gradually a day at a time. If I

notice she's a little wiggy or her stools change, I back off or lower a

dosage. Here's our list: (most all are Kirkman's hypo line): PS - we do

Nystatin for yeast too.

Nuthera w/p5p

Probiogold

Vit c

zinc

DMG

Co Q10

4 diff aminos

cod liver oil

flax seed

Vit e

calcium (had a prob wth this one a few weeks ago)

and I know I'm missing something...

I'm thinking about colostum too. Heard great things about it.

Her test results were so scarey to me. To know how bad her insides were

brought me to tears. She has responded great so far (now we're on a roll).

Increased eye contact and interaction. She putting a few words together.

She has started pulling me around to show me stuff and has even pointed at a

thing or 2. She's much more focused, tuned in and happy. She looks better.

No circles, better color. She sleep through the night (3weeks straight so

far). She is healthier.

It's all part of the puzzle. Keep at it a day at a time and it will all

begin to make sense and eventually you'll begin to wonder how you ever ate

before!

Hope this helps. Just remember to keep breathing.

in Chicago

..

l Message-----

To: GFCFKids ' GFCFKids >

Date: Tuesday, February 13, 2001 9:51 PM

Subject: Looking for Vitamin and Mineral experts out there!!!!

>

>When I posted about supplements I had absolutely no idea that some of you

>(all of you???) give your children that many supplements????????????

>

>Is this last post the norm??? I am totally blown away, last I counted 12

>different things????? How do you get a 6year old to take that many????

>

>How do you know what is working and what isn't 'IF' you have them take so

>many??

>I am not trying to be fresh, just absolutely out of my element! And that

>takes a lot for me.

>

>Please let me know what are the general supplements that the " AVERAGE " (HA!)

>child on a GF/CF diet takes.

>

>Thanks.

>

>Laurie Renke

>

>

>

[Guest guest]

Sorry to overwhelm you. The norm, if there is such a thing among

such a diverse group of kids, is to start with a high B6 formula with

magnesium. The common ones include SuperNuThera, Special Needs

Formula, or Danplex. A common second choice would be DMG, and then

perhaps flax oil or Cod Liver Oil. With CLO, you need to limit vit A

from other sources, so that's where it begins to get complicated. We

never add or change things less than 14 days apart. You watch for

improvements or regressions, and go from there. We saw an

improvement in eye contact and general attentiveness with

SuperNuThera in less than a week, and we saw language improvements

with DMG within 3 days. I think these 2 supplements are good places

to start because they do seem to be helpful for a large proportion of

our kids and the results are often clear and quick, making it easier

for relatively inexperienced supplementers (ie parents) to see the

effects. Plus they don't taste awful like some of the later ones. I

highly recommend that you go to the Kirkman's website and do a lot of

browsing and reading. It's very educational on the topic of

supplements. www.kirkmanlabs.com

>

> When I posted about supplements I had absolutely no idea that some

of you

> (all of you???) give your children that many supplements????????????

>

> Is this last post the norm??? I am totally blown away, last I

counted 12

> different things????? How do you get a 6year old to take that

many????

>

> How do you know what is working and what isn't 'IF' you have them

take so

> many??

> I am not trying to be fresh, just absolutely out of my element! And

that

> takes a lot for me.

>

> Please let me know what are the general supplements that

the " AVERAGE " (HA!)

> child on a GF/CF diet takes.

>

> Thanks.

>

> Laurie Renke

>

>

>

[Guest guest]

Sorry to overwhelm you. The norm, if there is such a thing among

such a diverse group of kids, is to start with a high B6 formula with

magnesium. The common ones include SuperNuThera, Special Needs

Formula, or Danplex. A common second choice would be DMG, and then

perhaps flax oil or Cod Liver Oil. With CLO, you need to limit vit A

from other sources, so that's where it begins to get complicated. We

never add or change things less than 14 days apart. You watch for

improvements or regressions, and go from there. We saw an

improvement in eye contact and general attentiveness with

SuperNuThera in less than a week, and we saw language improvements

with DMG within 3 days. I think these 2 supplements are good places

to start because they do seem to be helpful for a large proportion of

our kids and the results are often clear and quick, making it easier

for relatively inexperienced supplementers (ie parents) to see the

effects. Plus they don't taste awful like some of the later ones. I

highly recommend that you go to the Kirkman's website and do a lot of

browsing and reading. It's very educational on the topic of

supplements. www.kirkmanlabs.com

>

> When I posted about supplements I had absolutely no idea that some

of you

> (all of you???) give your children that many supplements????????????

>

> Is this last post the norm??? I am totally blown away, last I

counted 12

> different things????? How do you get a 6year old to take that

many????

>

> How do you know what is working and what isn't 'IF' you have them

take so

> many??

> I am not trying to be fresh, just absolutely out of my element! And

that

> takes a lot for me.

>

> Please let me know what are the general supplements that

the " AVERAGE " (HA!)

> child on a GF/CF diet takes.

>

> Thanks.

>

> Laurie Renke

>

>

>