Re: Back from Mayo Clinic!!

[Guest guest]

Dawn, Hurrah for Dr. Whiteman! What a relief this must be to have someone

who listens, understands and is doing everything he can to give you answers.

I have to say I am pleased to hear he is 'lenient' on CPT issues too. All

around A+!

Cheers!

Barbara

_____

From: dawnanich

Sent: Monday, January 17, 2005 3:56 PM

To:

Subject: Back from Mayo clinic!!

Well, my trip to Mayo in Minn was sucessful. I was very impressed

with Dr WHiteman. My medical records did not make it there, but i

had copies of my biopsy results and a few other things. I never

brought up that I think I have mito! He strongly suspects it based

on my biopsy, symptoms and family history. He told me my biopsy was

common with someone in the beginning stages of mito.

Dr Whiteman talked about my CPT test and said that he is more

lenient in diagnosing a CPT deficientcy. He goes up to 50%, where I

am at, but says that does not explain all of my issues. He did more

testing to follow up on this. I was unable to ask more about the

report. He did a lot of talking and my head was spinning.

He said that what I have is REAL and I am not crazy, but I may be

told this, if I have not alredy encountered this. Validation!!! THis

is what I have been thriving for. Finally!!!! Also, he is concerned

about my children and may want to see them in the future.

I had a skin biopsy, lots of blood work, EKG and echocardiogram. I

will see him and neurology in a month. I go back Feb 16 and should

know more then. I am already starting a list of questions to ask him.

Dawn A

Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail

is entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with

their physicians regarding changes in their own treatment.

Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

_____

[Guest guest]

Dawn

Isn't it a relief to have a doc say it is real. I can still remember the day

I was told that.

I'm glad things went well and you have found someone to work with you.

laurie

>

> Reply-To:

> Date: Mon, 17 Jan 2005 21:55:45 -0000

> To:

> Subject: Back from Mayo clinic!!

>

>

> Well, my trip to Mayo in Minn was sucessful. I was very impressed

> with Dr WHiteman. My medical records did not make it there, but i

> had copies of my biopsy results and a few other things. I never

> brought up that I think I have mito! He strongly suspects it based

> on my biopsy, symptoms and family history. He told me my biopsy was

> common with someone in the beginning stages of mito.

>

> Dr Whiteman talked about my CPT test and said that he is more

> lenient in diagnosing a CPT deficientcy. He goes up to 50%, where I

> am at, but says that does not explain all of my issues. He did more

> testing to follow up on this. I was unable to ask more about the

> report. He did a lot of talking and my head was spinning.

>

> He said that what I have is REAL and I am not crazy, but I may be

> told this, if I have not alredy encountered this. Validation!!! THis

> is what I have been thriving for. Finally!!!! Also, he is concerned

> about my children and may want to see them in the future.

>

> I had a skin biopsy, lots of blood work, EKG and echocardiogram. I

> will see him and neurology in a month. I go back Feb 16 and should

> know more then. I am already starting a list of questions to ask him.

>

> Dawn A

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

> ----------------------------------------------------------------------------

>

>

[Guest guest]

Good for you, Dawn. I too found the greatest relief from my doc when I

was told the same. It just lifts such a burden off our shoulders. Then

finding this site, with others who share some of my

experiences/symptoms has been the next help. It really does make a huge

difference.

Regards

Sunny

>

> Well, my trip to Mayo in Minn was sucessful. I was very impressed

> with Dr WHiteman. My medical records did not make it there, but i

> had copies of my biopsy results and a few other things. I never

> brought up that I think I have mito! He strongly suspects it based

> on my biopsy, symptoms and family history. He told me my biopsy was

> common with someone in the beginning stages of mito.

>

> Dr Whiteman talked about my CPT test and said that he is more

> lenient in diagnosing a CPT deficientcy. He goes up to 50%, where I

> am at, but says that does not explain all of my issues. He did more

> testing to follow up on this. I was unable to ask more about the

> report. He did a lot of talking and my head was spinning.

>

> He said that what I have is REAL and I am not crazy, but I may be

> told this, if I have not alredy encountered this. Validation!!! THis

> is what I have been thriving for. Finally!!!! Also, he is concerned

> about my children and may want to see them in the future.

>

> I had a skin biopsy, lots of blood work, EKG and echocardiogram. I

> will see him and neurology in a month. I go back Feb 16 and should

> know more then. I am already starting a list of questions to ask him.

>

> Dawn A

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained

> herein are not necessarily those of the list moderators. The author of

> this e mail is entirely responsible for its content. List members are

> reminded of their responsibility to evaluate the content of the

> postings and consult with their physicians regarding changes in their

> own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends

> one is automatically moderated or removed depending on the severity of

> the attack.

>

>

>

>

>

[Guest guest]

Dawn,

I am glad you had a favorable experience and hope you find out even more

on your next trip.

dawnanich wrote:

>Well, my trip to Mayo in Minn was sucessful. I was very impressed

>with Dr WHiteman. My medical records did not make it there, but i

>had copies of my biopsy results and a few other things. I never

>brought up that I think I have mito! He strongly suspects it based

>on my biopsy, symptoms and family history. He told me my biopsy was

>common with someone in the beginning stages of mito.

>

>Dr Whiteman talked about my CPT test and said that he is more

>lenient in diagnosing a CPT deficientcy. He goes up to 50%, where I

>am at, but says that does not explain all of my issues. He did more

>testing to follow up on this. I was unable to ask more about the

>report. He did a lot of talking and my head was spinning.

>

>He said that what I have is REAL and I am not crazy, but I may be

>told this, if I have not alredy encountered this. Validation!!! THis

>is what I have been thriving for. Finally!!!! Also, he is concerned

>about my children and may want to see them in the future.

>

>I had a skin biopsy, lots of blood work, EKG and echocardiogram. I

>will see him and neurology in a month. I go back Feb 16 and should

>know more then. I am already starting a list of questions to ask him.

>

>Dawn A

>

>

>

>

>

>

>Medical advice, information, opinions, data and statements contained herein are

not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

>Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>

[Guest guest]

Dawn,

I am so glad you had good luck with Dr. Whiteman and that he validated

you. That feeling is so important! I am glad you have found a doctor who

is willing to work with you.

Smiles,

a

On Mon, 17 Jan 2005 21:55:45 -0000 " dawnanich " manich@...>

writes:

Well, my trip to Mayo in Minn was sucessful. I was very impressed

with Dr WHiteman. My medical records did not make it there, but i

had copies of my biopsy results and a few other things. I never

brought up that I think I have mito! He strongly suspects it based

on my biopsy, symptoms and family history. He told me my biopsy was

common with someone in the beginning stages of mito.

He said that what I have is REAL and I am not crazy, but I may be

told this, if I have not alredy encountered this. Validation!!! THis

is what I have been thriving for. Finally!!!! Also, he is concerned

about my children and may want to see them in the future.

Dawn A

[Guest guest]

Dawn,

I am so happy for you that your trip was helpful. Most importantly

feeling validated and " not nuts " can be such a positive thing; both

mentally and physically. When I attended the UMDF Symp. in Pitts I

was lucky enough to sit Dr Whiteman at lunch for 2 days in a row. He

was absolutely one of the nicest down to earth docs I have met. We

were able to " pick his brain " on several topics and he was very

willing to help answer anything he could.

Once again, glad your trip was successful.

> Dawn,

> I am so glad you had good luck with Dr. Whiteman and that he

validated

> you. That feeling is so important! I am glad you have found a

doctor who

> is willing to work with you.

> Smiles,

> a

>

> On Mon, 17 Jan 2005 21:55:45 -0000 " dawnanich "

> writes:

>

> Well, my trip to Mayo in Minn was sucessful. I was very impressed

> with Dr WHiteman. My medical records did not make it there, but i

> had copies of my biopsy results and a few other things. I never

> brought up that I think I have mito! He strongly suspects it based

> on my biopsy, symptoms and family history. He told me my biopsy was

> common with someone in the beginning stages of mito.

> He said that what I have is REAL and I am not crazy, but I may be

> told this, if I have not alredy encountered this. Validation!!!

THis

> is what I have been thriving for. Finally!!!! Also, he is concerned

> about my children and may want to see them in the future.

>

> Dawn A

>

>

[Guest guest]

Dawn,

I am so happy for you that your trip was helpful. Most importantly

feeling validated and " not nuts " can be such a positive thing; both

mentally and physically. When I attended the UMDF Symp. in Pitts I

was lucky enough to sit Dr Whiteman at lunch for 2 days in a row. He

was absolutely one of the nicest down to earth docs I have met. We

were able to " pick his brain " on several topics and he was very

willing to help answer anything he could.

Once again, glad your trip was successful.

> Dawn,

> I am so glad you had good luck with Dr. Whiteman and that he

validated

> you. That feeling is so important! I am glad you have found a

doctor who

> is willing to work with you.

> Smiles,

> a

>

> On Mon, 17 Jan 2005 21:55:45 -0000 " dawnanich "

> writes:

>

> Well, my trip to Mayo in Minn was sucessful. I was very impressed

> with Dr WHiteman. My medical records did not make it there, but i

> had copies of my biopsy results and a few other things. I never

> brought up that I think I have mito! He strongly suspects it based

> on my biopsy, symptoms and family history. He told me my biopsy was

> common with someone in the beginning stages of mito.

> He said that what I have is REAL and I am not crazy, but I may be

> told this, if I have not alredy encountered this. Validation!!!

THis

> is what I have been thriving for. Finally!!!! Also, he is concerned

> about my children and may want to see them in the future.

>

> Dawn A

>

>

[Guest guest]

Dawn,

Great to see you may be getting some answers. I am glad that trip provided

some results. From talking to some people Mayo has not been very good for them.

Janet S

Back from Mayo clinic!!

Well, my trip to Mayo in Minn was sucessful. I was very impressed

with Dr WHiteman. My medical records did not make it there, but i

had copies of my biopsy results and a few other things. I never

brought up that I think I have mito! He strongly suspects it based

on my biopsy, symptoms and family history. He told me my biopsy was

common with someone in the beginning stages of mito.

Dr Whiteman talked about my CPT test and said that he is more

lenient in diagnosing a CPT deficientcy. He goes up to 50%, where I

am at, but says that does not explain all of my issues. He did more

testing to follow up on this. I was unable to ask more about the

report. He did a lot of talking and my head was spinning.

He said that what I have is REAL and I am not crazy, but I may be

told this, if I have not alredy encountered this. Validation!!! THis

is what I have been thriving for. Finally!!!! Also, he is concerned

about my children and may want to see them in the future.

I had a skin biopsy, lots of blood work, EKG and echocardiogram. I

will see him and neurology in a month. I go back Feb 16 and should

know more then. I am already starting a list of questions to ask him.

Dawn A

Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

------------------------------------------------------------------------------

[Guest guest]

Hi Dawn,

I am so happy for you. Finally you have been validated. I know that you " Knew "

that something was wrong with your body and that it most likely was Mito, but it

must be a huge relief to hear it from a well known Doctor.

I hope that the blood work and other testing that you had done will provide you

with even more answers to your many questions.

Good Luck!!

Hugs, Ann-Marie

Dawn wrote:

Well, my trip to Mayo in Minn was sucessful. I was very impressed

with Dr WHiteman. My medical records did not make it there, but i

had copies of my biopsy results and a few other things. I never

brought up that I think I have mito! He strongly suspects it based

on my biopsy, symptoms and family history. He told me my biopsy was

common with someone in the beginning stages of mito.

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