Re: Re: Adult Mito/meta doctors/ Kim

[Guest guest]

and if you do plan on changing doctors don't forget to make sure that you have

copies of ALL your medical records from that doctor.

I can't stress this enough. Before letting them know that you are thinking of

changing docs, ask them to please make you copies of your file. Tell them that

you want to make sure that YOUR Medical File at home is complete and not missing

any important information.

This way if you do change docs you have all your medical records and copies of

all your tests so that you don't have to have those tests done again...It will

save you time and aggrevation...

I get a copy of everything that I have done at the time of the testing or when

the results come back for that test, bloodwork, etc... This way I know that my

medical is up to date.

Hugs,

Ann-Marie

Re: Adult Mito/meta doctors/ Kim

As I mentioned earlier, I went to three other MDA clinics before I

found a MDA doctor who wasn't satisfied with my " probably " diagnosis

of myasthenia gravis. It's unfortunate that you have to deal with

this doctor, but like in any relationship, maybe it's time to let him

go...

But, like when leaving any relationship, it's best to have a back-up

waiting in the wings

Take care,

RH

> >

> > I've been going to an MDA doc since last fall. He's found some

> > stuff, but no diagnosis yet. He said to me, " what difference

does

> > it make which mitochondrial or metabolic disease it is, none of

> them

> > are treatable " . That additude doesn't make me very comfortable.

> > There are things that can be tried to help, and avoided to not

> cause

> > more damage, if you know which one. Hopefully if my second

biopsy

> > results don't give a specific diagnosis, he'll keep looking.

> > Kim

> >

> >

> > ----------

> >

> > No virus found in this outgoing message.

> > Checked by AVG Anti-Virus.

> > Version: 7.0.308 / Virus Database: 266.9.6 - Release Date:

> 4/11/2005

> >

> >

> >

[Guest guest]

Amen, Ann-Marie!

There are so many reasons to do that. Getting a copy at the time of

the test and then keeping them organized at home is a very good idea.

It has happened to me more than once that when I arrived at the doc's

office to find out about the results of a test that they didn't have my

file there that day. I now get them ahead of the doc's visit as often

as I can. Lab work can be sent directly to the patient in my state.

The doc just needs to write " copy to patient " on the order. The film

stuff I usually need to go back to them and pick up personally once the

report is written, but that also is worth doing for me. When I see the

results in advance I can formulate and direct my questions better, and

the doc does not have to waste time explaining what I already know, or

to read me a lot of stuff and say " normal " over and over. Some docs

are not comfortable with this yet, but I have found the ones that I

need and like are usually the more opened-minded ones who will accept

this. Anyone who really gives me grief I usually, but not always, just

don't return to. There is always the possibility of a doc overlooking

something as well, and the patient seeing the reports protect from that

also.

hmmm

I guess that is a hot topic with me. Whipped that out in a flash, when

I was intending to go to sleep. lol

Regards everyone

Sunny

> and if you do plan on changing doctors don't forget to make sure that

> you have copies of ALL your medical records from that doctor.

>

> I can't stress this enough. Before letting them know that you are

> thinking of changing docs, ask them to please make you copies of your

> file. Tell them that you want to make sure that YOUR Medical File at

> home is complete and not missing any important information.

>

> This way if you do change docs you have all your medical records and

> copies of all your tests so that you don't have to have those tests

> done again...It will save you time and aggrevation...

>

> I get a copy of everything that I have done at the time of the

> testing or when the results come back for that test, bloodwork, etc...

> This way I know that my medical is up to date.

>

> Hugs,

> Ann-Marie

>

>

>   Re: Adult Mito/meta doctors/ Kim

>

>

>

>   As I mentioned earlier, I went to three other MDA clinics before I

>   found a MDA doctor who wasn't satisfied with my " probably " diagnosis

>   of myasthenia gravis.  It's unfortunate that you have to deal with

>   this doctor, but like in any relationship, maybe it's time to let

> him

>   go...

>

>   But, like when leaving any relationship, it's best to have a back-up

>   waiting in the wings

>

>   Take care,

>   RH 

>

>  

>   > >

>   > > I've been going to an MDA doc since last fall.  He's found some

>   > > stuff, but no diagnosis yet.  He said to me, " what difference

>   does

>   > > it make which mitochondrial or metabolic disease it is, none of

>   > them

>   > > are treatable " .  That additude doesn't make me very

> comfortable. 

>   > > There are things that can be tried to help, and avoided to not

>   > cause

>   > > more damage, if you know which one.  Hopefully if my second

>   biopsy

>   > > results don't give a specific diagnosis, he'll keep looking.

>   > > Kim

>   > >   

>   > >

>   > >   ----------

>   > >

>   > > No virus found in this outgoing message.

>   > > Checked by AVG Anti-Virus.

>   > > Version: 7.0.308 / Virus Database: 266.9.6 - Release Date:

>   > 4/11/2005

>   > >

>   > >

>   > >