Re: I have questions and need lots of help!!

January 5, 2005

Is she in mitchells? If so, Ihave a few suggestions, wear a thicker

sock, punch some more holes in the strap, get a bigger width if none

of the above work. but if you are not wearing mitchells...I have no

idea, but i know a lot of others will have some ideas.

>

> My 4 month old just got her DBB last week and is wearing it 23/7.

> She is slowly adjusting to having them on. Now everytime she throws

> her feet down one foot keeps sliding out. The shoe is as tight as it

> can go. So what can I do to keep that foot in the shoe? She is also

> having problems sleeping at night. She screams every 20 minutes or

> so from 10 P.M. to about 1 A.M. I can't seem to get her to sleep for

> longer than 20 minutes and I can't keep getting up until that late.

> What can I do to help her sleep through the night. Please help.

>

> Carol

>

> Kayla 4 months Bilateral CF DBB 23/7

January 5, 2005

Carol,

This same thing happened with my daughter. She would scream all night and

the shoes never stayed on. It turned out her feet were not fully

corrected and that is what caused her pain and her feet to slip out.

First, are the shoes set at 70 degree rotation? Did you save her last

casts? Check to see if the last cast also had a 70 degree rotation. You

can use a protractor, or if the shoes are set at 70 degrees, you can hold

them up to the casts and compare. (it is hard to describe).

The last set of casts should be 70 degrees as the DBB. This is one way of

checking the correction. If the feet were not rotated out to 70 degrees

before she went into the DBB and the DBB is set at 70, this will cause

extreme pain!!! Are there any blisters on her feet? Do you know how to

check the dorsiflexion? That is hard to explain, but that is another

factor that can cause the slipping.

If all of the above is okay, maybe the bar length is incorrect. The bar

should be equal to shoulder width.

Lastly, you are the mommy and can sense if something is wrong. Do you

think she is in pain, or is she just whining for attention. The cries

would be different as we all know.

Hang in there! We can help.

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

fax

January 5, 2005

She had shoes put on last month but they would always come out.

Every time we put one foot in and got it sercured and tried putting

the other foot in to secure that one then the foot we just put in

would come out. We found out that her left foot was not all the way

corrected so they did the tendon release again and now both feet are

at the 70 degree rotation. I just looked at the shoes and both are

set as close to 70 as they are. We just changed the bar too because

the other one was really small. Her dorsiflexion seems really good

now that she had that second tendon release. Could her problem be

that the shoes she is currently in are too big for her feet? She is

barely a zero shoe size but they put her in a size 1 so that she had

more room to grow than in a size zero. As for her crying I'm

thinking she is just doing it to look for comfort and not because

she's in pain. She goes all day long with no crying while her legs

fly all over the place. Infact she just learned to roll over from

back to front with the brace and shoes on so I know she's not in any

pain. I'm just hoping that she gets used to these so that she can

start sleeping through the night. She isn't wearing the mitchell

brace just the gold bar that is not adjustable.

Thanks for all your help.

Carol

January 5, 2005