Guest guest Posted January 31, 2005 Report Share Posted January 31, 2005 Hi , Dewayne was on methadone and that didn't stop the pain either. We are not worried about addiction either....only the depressed respiratory problems. DW also takes 4500 mg of neurontin a day along with a bunch of other stuff. His neurologist talked about a pain clinic but he is trying stuff with us and the pulmonary doc for the central apnea. The two of them are scared that the pain clinic wouldn't monitor his breathing enough. I just wish I could take the pain for him....at least allow him some peace. He is not a complainer but this constant toothache-like pain in all of his muscles gets too much for him. He said the other day he understood why people ended their lives....that worried me but he then followed that with....I still don't want to leave you all. Thanks for your help. Lynda R. Morphine/peeling feet > > Hi You'll, > Dewayne has been put on Avinza (time released morphine). Anyone have any experience with it? He is having quite a bit of breakthrough pain....Has anyone used the duragesic patches? We are at a tough place....too much narcotics and central apnea....it is quite a fine line there. Also our little son who is showing many signs just had the bottom of his feet peel off....he has cried about them itching so bad and one day I looked and found the entire bottoms of both feet peeling.....sound familiar to anyone? Thanks and have a good week ahead. > Lynda R. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2005 Report Share Posted January 31, 2005 Hi , Dewayne was on methadone and that didn't stop the pain either. We are not worried about addiction either....only the depressed respiratory problems. DW also takes 4500 mg of neurontin a day along with a bunch of other stuff. His neurologist talked about a pain clinic but he is trying stuff with us and the pulmonary doc for the central apnea. The two of them are scared that the pain clinic wouldn't monitor his breathing enough. I just wish I could take the pain for him....at least allow him some peace. He is not a complainer but this constant toothache-like pain in all of his muscles gets too much for him. He said the other day he understood why people ended their lives....that worried me but he then followed that with....I still don't want to leave you all. Thanks for your help. Lynda R. Morphine/peeling feet > > Hi You'll, > Dewayne has been put on Avinza (time released morphine). Anyone have any experience with it? He is having quite a bit of breakthrough pain....Has anyone used the duragesic patches? We are at a tough place....too much narcotics and central apnea....it is quite a fine line there. Also our little son who is showing many signs just had the bottom of his feet peel off....he has cried about them itching so bad and one day I looked and found the entire bottoms of both feet peeling.....sound familiar to anyone? Thanks and have a good week ahead. > Lynda R. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2005 Report Share Posted February 1, 2005 Have they thought of TENS, TM, acupuncture, or other alternative methods for pain control? The pain sounds like lactic acid buildup to me, that is, when I get that type of pain, I generally feel it's similar to what I feel after a lot of exercise. Is that a lot of neurontin, my uncle was on that, but switched to Pamilor (sp?) because the Neurontin wasn't helping him. Neurontin is in my doctor's " wait and see, but maybe later " list for meds for me. I'm not sure if the Pamilor ended up being better, to be honest with you. I have residual neuropathy on one side, and intermittent full body neuropathy. It's funny (well, not really) to have one's lip and side of face fall asleep (so far it's waken up again). Take care, RH > Hi , > Dewayne was on methadone and that didn't stop the pain either. We are not worried about addiction either....only the depressed respiratory problems. DW also takes 4500 mg of neurontin a day along with a bunch of other stuff. His neurologist talked about a pain clinic but he is trying stuff with us and the pulmonary doc for the central apnea. The two of them are scared that the pain clinic wouldn't monitor his breathing enough. I just wish I could take the pain for him....at least allow him some peace. He is not a complainer but this constant toothache-like pain in all of his muscles gets too much for him. He said the other day he understood why people ended their lives....that worried me but he then followed that with....I still don't want to leave you all. Thanks for your help. > Lynda R. > Morphine/peeling feet > > > > > > Hi You'll, > > Dewayne has been put on Avinza (time released morphine). Anyone have any > experience with it? He is having quite a bit of breakthrough pain....Has > anyone used the duragesic patches? We are at a tough place....too much > narcotics and central apnea....it is quite a fine line there. Also our > little son who is showing many signs just had the bottom of his feet peel > off....he has cried about them itching so bad and one day I looked and found > the entire bottoms of both feet peeling.....sound familiar to anyone? > Thanks and have a good week ahead. > > Lynda R. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2005 Report Share Posted February 1, 2005 We've been told that it is toward the upper limits for Neurontin. Is the TENS the pain machine like Jerry has? I have a brain lock going on and can't think of what he called it....duh a pain machine:))) Does the side of your face stay asleep long? That must feel so weird for you. Bye now. Lynda R. Morphine/peeling feet > > > > > > Hi You'll, > > Dewayne has been put on Avinza (time released morphine). Anyone have any > experience with it? He is having quite a bit of breakthrough pain....Has > anyone used the duragesic patches? We are at a tough place....too much > narcotics and central apnea....it is quite a fine line there. Also our > little son who is showing many signs just had the bottom of his feet peel > off....he has cried about them itching so bad and one day I looked and found > the entire bottoms of both feet peeling.....sound familiar to anyone? > Thanks and have a good week ahead. > > Lynda R. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2005 Report Share Posted February 2, 2005 > > Hi , > > Dewayne was on methadone and that didn't stop the pain either. We > are not worried about addiction either....only the depressed > respiratory problems. DW also takes 4500 mg of neurontin a day along > with a bunch of other stuff. His neurologist talked about a pain > clinic but he is trying stuff with us and the pulmonary doc for the > central apnea. The two of them are scared that the pain clinic > wouldn't monitor his breathing enough. I just wish I could take the > pain for him....at least allow him some peace. He is not a > complainer but this constant toothache-like pain in all of his > muscles gets too much for him. He said the other day he understood > why people ended their lives....that worried me but he then followed > that with....I still don't want to leave you all. Thanks for your > help. > > Lynda R. > > Morphine/peeling feet > > > > > > > > > > Hi You'll, > > > Dewayne has been put on Avinza (time released morphine). > Anyone have any > > experience with it? He is having quite a bit of breakthrough > pain....Has > > anyone used the duragesic patches? We are at a tough > place....too much > > narcotics and central apnea....it is quite a fine line there. > Also our > > little son who is showing many signs just had the bottom of his > feet peel > > off....he has cried about them itching so bad and one day I > looked and found > > the entire bottoms of both feet peeling.....sound familiar to > anyone? > > Thanks and have a good week ahead. > > > Lynda R. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2005 Report Share Posted February 2, 2005 I used a TENS (transdermal Electrical Nerve Stimulation) unit after my hysterectomy. They did a test setting before the surgery and applied the two plates on either side of the incision under the dressing. I had a small box to adjust the settings. I could increase them if I was going to walk or use the restroom. The principal is that the brain gets tired of listening to the stimulation and reduces that portion of the body's pain receptors. It was a winner in my book. My hospital stay was shortened to about half what was anticipated. laurie > > Reply-To: > Date: Thu, 03 Feb 2005 00:03:43 -0000 > To: > Subject: Re: Morphine/peeling feet > > > >>> Hi , >>> Dewayne was on methadone and that didn't stop the pain either. > We >> are not worried about addiction either....only the depressed >> respiratory problems. DW also takes 4500 mg of neurontin a day > along >> with a bunch of other stuff. His neurologist talked about a pain >> clinic but he is trying stuff with us and the pulmonary doc for > the >> central apnea. The two of them are scared that the pain clinic >> wouldn't monitor his breathing enough. I just wish I could take > the >> pain for him....at least allow him some peace. He is not a >> complainer but this constant toothache-like pain in all of his >> muscles gets too much for him. He said the other day he > understood >> why people ended their lives....that worried me but he then > followed >> that with....I still don't want to leave you all. Thanks for > your >> help. >>> Lynda R. >>> Morphine/peeling feet >>> >>> >>>> >>>> Hi You'll, >>>> Dewayne has been put on Avinza (time released morphine). >> Anyone have any >>> experience with it? He is having quite a bit of breakthrough >> pain....Has >>> anyone used the duragesic patches? We are at a tough >> place....too much >>> narcotics and central apnea....it is quite a fine line > there. >> Also our >>> little son who is showing many signs just had the bottom of > his >> feet peel >>> off....he has cried about them itching so bad and one day I >> looked and found >>> the entire bottoms of both feet peeling.....sound familiar to >> anyone? >>> Thanks and have a good week ahead. >>>> Lynda R. >>>> >>>> >>>> Quote Link to comment Share on other sites More sharing options...
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