Guest guest Posted June 9, 2005 Report Share Posted June 9, 2005 Hi All Things just keep getting more complicated over here. I had a few syncope episodes last week so metabolism got me in to see the cardiologist and it was an interesting visit. He looked at the results from the tilt table and echo and he said everything was normal and then he took my BP which was low lying down and inaudible standing up. He tried taking it by pumping up the cuff and feeling my pulse and nothing. He prescribed florinef and referred me to nephrology. The big problem is that the gastroparesis has been so bad that I'm sipping all day just to get in the fluids that I can. A port has been mentioned and also talk of " using my GI system " for hydration. It's all changing so fast, my head is spinning. In January I was working and now I can't walk and can't eat food. Everyone is thinking mito (due to DD's dx) and if the blood DNA testing comes back negative I will go to Atlanta for a fresh muscle biopsy. So in the course of 5 months I've gone from completely functional to a train wreck. Has it happened this fast for anyone else? Heidi www.caringbridge.org/ma/heather Quote Link to comment Share on other sites More sharing options...
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