Re: Help- Regulatory disorder

[Guest guest]

My answer to that is autism is an OBSERVATIONAL diagnosis. It is a label

based on the symptoms that are reported and what someone observes in a brief

interview.

My son has had several labels, autism, PDD-NOS, CAPD etc. Some of his

" secondary " labels have been ADHD, ADD, sensory integration disorder, etc.

I would be willing to bet if I took my son to the doctor who gave you

regulatory disorder as a dx and didn't say much about his past, they'd say

regulatory disorder, CAPD (central auditory processing disorder) and

specific nonverbal learning disorders.

Its all alphabet soup. If a child has regulatory disorder, what is throwing

his or her processing off? Ruling out gluten and casein is simple.

I'm glad you are interested in the diet despite the fact that the labels

don't match exactly.

alice

Help- Regulatory disorder

> Dear Listmates:

> I am asking for your help. I have a 5 year old daughter who is

diagnosed with regulatory disorder. Autism was ruled out but my gut level

is that regulatory disorder is connected to autism and that some of the same

interventions will work. I put my daughter on the diet last July and she

has made some fantastic changes.

> Here is my question. I ran into an old friend who is having lots of

trouble with her 5 year old. He was also diagnosed with regulatory

disorder. I am planning to meet with her this Wednesday to go over the GFCF

diet but I have no scientific evidence except a gut feeling that this diet

might help her son. He is a dairy fiend and a very picky eater.

> Is there anybody else out there with regulatory disorder who is on this

diet? Is there anyone who has a handle on the relationship between this

disorder and autism? I have tried to steer other friends to the diet whose

kids have other developmental delays but they have all resisted because

their child is not autistic.

> Any help would be greatly appreciated. I can tell my friend is at the

end of her rope.

> I suggested allergy testing but I am afraid that if he tests not allergic

to wheat or dairy that she will not " buy " the peptide issue. Thanks so

much.

> Kathy

>

>

>

[Guest guest]

Hi Kathy,

I haven't heard of the term regulatory disorder, but I did a quick search

and it sounds like sensory integration dysfunction. Am I correct? If the

two are at all similar, then I would say the diet is most definitely worth

it. I think sensory integration disorder is part of the whole spectrum of

autistic disorders. Some kids with sensory issues don't have autism, but

many kids with autism have sensory issues. (Again, I am assuming that

regulatory disorders are related to sensory integration dysfunction.) My

son received a tentative diagnosis of Aspergers last year, but before the

diagnosis, a friend with a lot of experience in all things autistic said

that my son's biggest issues were probably in sensory integration

dysfunction. I jumped into the diet before I was even sure if he was on the

spectrum, and it certainly was worth it. It is too bad that most people

don't want to consider the diet unless they are sure they are dealing with

full-blown autism.

Good luck convincing your friend--

[Guest guest]

---

I never heard of regulatory disorder either, many drs dont like to

put the label autism. My son is also pdd-nos, adhd, etc. Maybe the

child is so mild and they didnt want to commit to a firmer

diagnosis. Other ones also can be nld, semantic-pragmatic disorder,

which involves issue with orientation, body in space, hyperactivity.

As well as capd.

In GFCFKids@y..., Stein wrote:

>

> I haven't heard of the term regulatory disorder, but I did a quick

search

> and it sounds like sensory integration dysfunction. Am I correct?

If the

> two are at all similar, then I would say the diet is most

definitely worth

> it. I think sensory integration disorder is part of the whole

spectrum of

> autistic disorders. Some kids with sensory issues don't have

autism, but

> many kids with autism have sensory issues. (Again, I am assuming

that

> regulatory disorders are related to sensory integration

dysfunction.) My

> son received a tentative diagnosis of Aspergers last year, but

before the

> diagnosis, a friend with a lot of experience in all things autistic

said

> that my son's biggest issues were probably in sensory integration

> dysfunction. I jumped into the diet before I was even sure if he

was on the

> spectrum, and it certainly was worth it. It is too bad that most

people

> don't want to consider the diet unless they are sure they are

dealing with

> full-blown autism.

>

> Good luck convincing your friend--

>

>

[Guest guest]

---

I never heard of regulatory disorder either, many drs dont like to

put the label autism. My son is also pdd-nos, adhd, etc. Maybe the

child is so mild and they didnt want to commit to a firmer

diagnosis. Other ones also can be nld, semantic-pragmatic disorder,

which involves issue with orientation, body in space, hyperactivity.

As well as capd.

In GFCFKids@y..., Stein wrote:

>

> I haven't heard of the term regulatory disorder, but I did a quick

search

> and it sounds like sensory integration dysfunction. Am I correct?

If the

> two are at all similar, then I would say the diet is most

definitely worth

> it. I think sensory integration disorder is part of the whole

spectrum of

> autistic disorders. Some kids with sensory issues don't have

autism, but

> many kids with autism have sensory issues. (Again, I am assuming

that

> regulatory disorders are related to sensory integration

dysfunction.) My

> son received a tentative diagnosis of Aspergers last year, but

before the

> diagnosis, a friend with a lot of experience in all things autistic

said

> that my son's biggest issues were probably in sensory integration

> dysfunction. I jumped into the diet before I was even sure if he

was on the

> spectrum, and it certainly was worth it. It is too bad that most

people

> don't want to consider the diet unless they are sure they are

dealing with

> full-blown autism.

>

> Good luck convincing your friend--

>

>