Prescriptions Re: Depakote bad for mito

[Guest guest]

RH

Strange seems to be the only consistency between us.

laurie

>

> Reply-To:

> Date: Tue, 04 Jan 2005 18:35:08 -0000

> To:

> Subject: Prescriptions Re: Depakote bad for mito

>

>

> We do have to remember that each of us are different cases, even to

> some extent in the same families. I think as long as we are aware of

> possible issues, and are being followed up for them, that's the best

> we can do.

>

> My neuro has mentioned prescription drugs that she " wouldn't

> prescribe YET " , although I was having symptoms. One of them causes

> chronic diarrhea, and now that I'm on the medication, I realize why

> she was hesitant to prescribe it (I ended up going to a GI doctor who

> prescribed it for me after my tests were still abnormal). Difficult

> to have a normal life when you have that " hanging over your head " .

> And Depends just wouldn't hack it for that job...

>

> Another drug was prescribed by my neuro, and my family doctor

> said " the only people who get this are near death " which I wasn't at

> the time, but had a lot of unmaneageable symptoms. That one I

> decided not to take (luckily didn't drop off prescription to be

> filled).

>

> My current meds are kind of weird - they are always out of stock at

> the pharmacy, and I try to tell them, " Look, I'll need this

> prescription every month from now on " , and they just don't get it.

> So now I call when I have more than a week's worth left, and it takes

> them at least as much time to sort it out.

>

> BTW, my liver enzymes are all perfect, yet my ammonia level is high

> if I'm not on lactulose. I don't know if it's a related thing, but

> it struck the GI doctor as extremely strange.

>

> Take care,

> RH

>

>

>

>> Steve,

>> thank you for the post and link, When the neuro and I started the

> Depakote

>> we were aware of the risk however we both decided to go for it as

> my seizures

>> have not stopped and I have been on every drug out there. Before

> starting

>> the depakote we ran my liver enzyme levels and ammonia. Both were

> very low.

>> Ammonia was zero. so we decided if anyone can tolerate it it

> would be me.

>> I have been on it now for about 6 months and we run my liver and

> ammonia

>> every three months and still way below normal.

>> I appreciate your concern and post as without friends like you out

> there we

>> wouldnt have the information and knowledge that is helping all of

> us so much.

>> thank you

>>

>>

>>

>>

[Guest guest]

I think I was about 8, hanging around with my 10 years older cousins,

and I said " People are strange " and they thought it was the funniest

thing, because of the Doors song and all (which I hadn't heard of

yet).

Take care,

RH

> >> Steve,

> >> thank you for the post and link, When the neuro and I started

the

> > Depakote

> >> we were aware of the risk however we both decided to go for it as

> > my seizures

> >> have not stopped and I have been on every drug out there.

Before

> > starting

> >> the depakote we ran my liver enzyme levels and ammonia. Both

were

> > very low.

> >> Ammonia was zero. so we decided if anyone can tolerate it it

> > would be me.

> >> I have been on it now for about 6 months and we run my liver and

> > ammonia

> >> every three months and still way below normal.

> >> I appreciate your concern and post as without friends like you

out

> > there we

> >> wouldnt have the information and knowledge that is helping all of

> > us so much.

> >> thank you

> >>

> >>

> >>

> >>