Re: PDD NOS

[Guest guest]

> Hi my name is alice and I have a son who is almost 3 yrs. old he

was

> diagnosed with pdd nos about 1 yr ago by a ped neurologist.

Alice,

My son just turned 3, so we're about in the same ballpark. My son

was MISdiagnosed (by a DAN doctor,yet) about a year ago. My husband

and I finally diagnosed his autism by reading DSM-IV, which was the

best description of our son we had ever read! Once we figured out

that he was, in fact, on the autistic spectrum, we started treating

him as if he had full-blown autism. That is my best advice for you:

Don't worry about the PDD vs. autism label. Anything that works for

autistic kids is worth a try.

We have Brett taking cod liver oil (vitamin A) supplements, DMG, and

Super Nu-Thera powder, all of which have improved his ablility to

focus, learn, and attempt to be verbal. We started the GFCF diet 6

weeks ago and have seen even more progress. However, the thing that

is REALLY helping him is our home ABA program, which he does for 26

hours a week. In ABA, he has learned everything from understanding

the labels " Mommy " and " Daddy " , to pointing, to dressing, to his

ABC's. In fact, we are looking for another ABA tutor so that we can

increase his hours even further. He is also in a typical preschool

10 hours each week with a full-time facilitator, who is there to make

sure he participates, especially with peer interactions.

My guess is that the 3 part-time days your son has therapy are still

leaving him with a lot of down time when he withdraws and his brain

is not being properly stimulated. I could give you hours of praise

for Brett's facilitator and ABA program, and would be happy to pass

along any more information about his supplements and diet.

Please let me know if you'd like more info, and best of luck to you!

Sue

[Guest guest]

> Hi my name is alice and I have a son who is almost 3 yrs. old he

was

> diagnosed with pdd nos about 1 yr ago by a ped neurologist. I am

just

> starting to hear about special diets and things I had no clue

about.

Hi- My daughter is 3.5 years old and was diagnosed PDD-NOS a year

ago. Luckily, I heard about the GFCF diet immediately and put her on

it. Today, after a little speech/OT therapy, a modified in home ABA

program (me and our nanny) and a year on th ediet, she is a normal

kid with a slight speech delay. A year ago she new 29 single words.

Now she puts 8-10 word sentences togather and has conversations. Her

progress has amazed everyone and the diet has been the key factor.

If you'd like to talk more you can e-mail me privately

(jfill7crux@...). Good luck!!! -