Re: Intro (whoops, it got long)

[Guest guest]

Jeannie,

Thank you for sharing your story. So many parents are afraid to try

the diet because it sounds too hard and I find that extremely

frustrating. The first couple of months are hard and you are bound

to make mistakes in the beginning, but it gets easier. We've been on

the diet for only 3 months and it has been awhile since we made a

mistake. (The last slip-up was when we let our son play with Play-

doh. It has wheat in it.) With each slip-up my son has a 9 day

regression (days 3-7 being the worst). Over the three months we've

seen a lot of improvement. There is no more repetitive speech, he is

much more responsive, has better eye contact and most importantly, he

has begun to learn again.

You may already be doing this, but just in case you aren't, I would

advise you to keep daily diet journal and track everything from eye

contact to bowel movements. I always write down the supplements he

gets and how much, his mood, etc.. This really helps, particularly

when you start adding supplements, or think you may have had a slip-

up.

Hang in there and good luck.

Michele in land

Mother to 3 1/2 HFA

and 8 mos.

> Hello everyone,

> My name is Jeannie. I'm the mother of three young boys, one of

whom was

> diagnosed at 33 months old with high functioning Autism/PDD.

> It has almost been a year since his diagnosis. We started the GFCF

diet

> two weeks ago, as soon as I read about it. Wow! After one day

> started showing signs of improvement. Then I read somewhere

(celiac.com

> I believe) that studies were showing that oats were okay for

celiac's.

> I must have read the info wrong. I made oatmeal pancakes that

night and

> pigged out on them. The next morning he came in and woke his

dad

> and me up. The first thing I said was " sure is spacey. "

Then I

> got up and made him oatmeal for breakfast. After breakfast I KNEW

the

> mistake I made. was messed up. Oh, it was horrible! He was

> dopier than he's ever been before in his life plus he had a host of

> other symptoms that I'd never even seen in him before. He didn't

> improve and I had the irrational fear that I'd done him in. He

would

> never be the same again. He did improve, but only slightly. Then a

day

> or two later I poisioned him again with Chocolate Almond milk.

When I

> got to the place in my book about phenols I got on the computer and

> found out exactly what they were. I again realized what I had done

to

> my boy. Never have I felt so awful.

> It's now been a total of 16 days trying to get this diet straight.

> started showing improvement again yesterday. Today he is

talking

> up a storm. Following me around the house, getting right in my face

> when I'm not paying enough attention to him. He is looking me

right in

> the eye whenever I talk to him. And to my amazement he is stronger

> today than he's been in a long time.

> He still has a way to go but the knowledge that my hands aren't

tied,

> that there is something I can do to aide in my sons recovery... well

> there aren't any words for how that feels.

>

> I look forward to talking with you all,

> Jeannie