Re: Help PLease. Lost, what do I do now?

[Guest guest]

Hi ,

I just wanted to say, if Dr. Ponseti says not to do surgery, by all

means PLEASE PLEASE PLEASE don't do it!! Dr. Ponseti knows what he's

talking about. Atypical does exist, my son has it pretty severe. It

was said that dr. p says 9 castings are needed for the severe ones, we

had 12 continuous castings by dr. ponseti every five days and they

still are not corrected because of the surgery we had.

Please, if dr. ponseti thinks he can fix it without surgery, drop this

other doctor and do whatever you can to get to dr. p. Please! I am

passionate about this only to save you the heartache of struggling

with a child that has had numerous surgeries and still will not put

his feet down. If dr. p gets to the point where he thinks surgery is

necessary then it really is...please don't go through it until then!

hang in there and I'll be praying for you,

>

> Please someone give me an opinion. I do not know what to do for

> Grace. I emailed Dr Frick yesterday with my concerns/questions

> regarding the surgery he recommended for Grace. He forwarded me the

> letter he wrote to Dr Ponseti and Dr Herzenberg regarding Grace. I

> have read all 3 of the Drs responses and they are all suggesting

> different things. Dr Frick mentioned posterior release and

> probably " ankle capsule " which is called capsulectomy or something

> like that surgery. He never mentioned trying casting first. Also I

> did not mention this before but Dr Frick more or less told me he

> doesn't believe " all the new rage " that atypical clubfeet exist. I

> had asked is it possible that this is Graces problem but that it was

> never diagnosed because she began treatment way before the first

> case was acknowledged? He laughed and said he doesn't necessarily

> believe atypical clubfeet exist. If I knew how I would paste all 3

> emails on here so you could see the different opinions on what each

> person suggests doing. Dr Frick told me he prefers to operate on

> children with rockerbottom whereas Dr Ponseti says not to. But then

> in Dr Ponseti's emails he tells Dr Frick that he has recently

> treated several of Dr Fricks operation patients for relapses because

> they HAD atypical clubfoot... he mentions the names in my email and

> I believe that they are parents on this list. Grrrr. I just don't

> know what to do. I am to make another appointment with Dr Frick. I

> believe he will do what Dr Ponseti suggested which is to first try a

> couple walking casts. Also Dr P. mentioned trying Illizarov ( I

> know I spelled that wrong) casts. If anyone knows how to paste an

> email onto this site let me know and I will forward you the 3

> different replies I received and then you can post them on here for

> me. I really would like everyone to be able to give me a

> suggestion. If all else fails I will be taking my income tax return

> and going to Iowa. Thanks, Disgruntled!!!!