Guest guest Posted June 4, 2005 Report Share Posted June 4, 2005 Hi RH, I agree, I don't know WHY they give this test either, the test came up normal for me both torturous times! Ugh! As for my dealings with docs, I always demand to know why and what-for whenever it comes to tests and Rx meds. In fact, all my regular doctors know that they are going to have to prove to me before I take anything and it drives them nuts. However, for this particular test/doc, that was not good enough. The neuro even gave me a flyer-both times, I read it and still was not prepared for the torture I experienced. I must say, I was unprepared about the neuro situation (I can go head-to-head with a gastro, pulunary, heart doc any day) but these neuros are in a leage of their own. NOW I know so much more, since I started to look into my mito dx and learn about the terms, tests, et. But I cannot tell you how many doctors in other specialities I have had to explain this disease to! THEY don't know what mitochondrial disease is! They have to 'look it up' and then they still are quite clueless. Many docs of other specialties have told me to my face, they are quite unfamiliar with the neuro tests and reading them. When it comes to our disease, they are even more clueless. When I went for the second, I complained of the horrible pain from the first time, and the tech lowered something on the machine to make the shock less 'powerful' but it was still too painful for me. No one ever suggested numbing agents, et. and I didn't know enough to ask. Strange thing is, I know one has to learn 'anatomy and physiology' (which teaches about mitochondria) in college to become a doc. We patients should not have to 'school' these doctors again. Unfortunately for me, back then, I was unprepared and had no internet, group or phone friends to inform me. I save these types of emails to archive in case I need to reffer when a doctor wants to run some kind of test, so I am prepared on other peoples' experiences and what questions to ask. In some situations, you can't always refuse a test or even an operation! If one is on disability, they risk the 'difficult patient' label and maybe loss of income, benefits and job. The rejections of tests, meds et. that are harmful or unnecessary has to be done very carefully. Ugh! Thanks again for your input RH. God bless, Hazelpone Re: spasms > Honestly, I'm not 100% sure why they do the test at all, as it > doesn't change treatment and there are many other tests that are more > specific for various neuromuscular conditions. > > As an example, I had one failed spinal tap, and they'll have to have > me under general anesthesia to do another. I also refused to have a > cerebral angiogram done, because of the risk of stroke (especially > with previous stroke-like episodes and high anticardiolipin > antibodies). > > You can always refuse a test, and at the very least, DEMAND to know > what will be gained by performing the test. > > Take care, > RH > > >> Hi all, >> >> Topical anesthetic, my tech (whatever) was a sadist! More info. I > need in >> case I ever am pressured to take the test again. They will have > hell to pay >> with me if they try, now that I know it does not have to be painful. >> >> God bless, >> Hazelpone >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2005 Report Share Posted June 4, 2005 I don't have to argue with the doctors as my Grandson, Jeff has my DPOA for healthcare and I send everyone to him. He had a bit of a time with Dr. Mumford (in Dr. Baker's group) when Dr. Baker was gone as he wanted to do a total knee on my right knee, I told him he would have to talk to Jeff so the next time Jeff was in surgery with him he stopped him later and mentioned a total knee to him, Jeff just flat told him " NO " , then he asked Jeff if he thought they should talk to me and Jeff told him, " NO, I have a piece of paper that says I can make important health decisions for my Grandmother and I just made one, she can talk to Dr. Baker when he gets back. " When Dr. Baker got back he said he owed Jeff a lunch, Dr. Mumford a talking to and physical therapy for me. Dolores Hpone00 hpone00@...> wrote: Hi RH, I agree, I don't know WHY they give this test either, the test came up normal for me both torturous times! Ugh! As for my dealings with docs, I always demand to know why and what-for whenever it comes to tests and Rx meds. In fact, all my regular doctors know that they are going to have to prove to me before I take anything and it drives them nuts. However, for this particular test/doc, that was not good enough. The neuro even gave me a flyer-both times, I read it and still was not prepared for the torture I experienced. I must say, I was unprepared about the neuro situation (I can go head-to-head with a gastro, pulunary, heart doc any day) but these neuros are in a leage of their own. NOW I know so much more, since I started to look into my mito dx and learn about the terms, tests, et. But I cannot tell you how many doctors in other specialities I have had to explain this disease to! THEY don't know what mitochondrial disease is! They have to 'look it up' and then they still are quite clueless. Many docs of other specialties have told me to my face, they are quite unfamiliar with the neuro tests and reading them. When it comes to our disease, they are even more clueless. When I went for the second, I complained of the horrible pain from the first time, and the tech lowered something on the machine to make the shock less 'powerful' but it was still too painful for me. No one ever suggested numbing agents, et. and I didn't know enough to ask. Strange thing is, I know one has to learn 'anatomy and physiology' (which teaches about mitochondria) in college to become a doc. We patients should not have to 'school' these doctors again. Unfortunately for me, back then, I was unprepared and had no internet, group or phone friends to inform me. I save these types of emails to archive in case I need to reffer when a doctor wants to run some kind of test, so I am prepared on other peoples' experiences and what questions to ask. In some situations, you can't always refuse a test or even an operation! If one is on disability, they risk the 'difficult patient' label and maybe loss of income, benefits and job. The rejections of tests, meds et. that are harmful or unnecessary has to be done very carefully. Ugh! Thanks again for your input RH. God bless, Hazelpone Re: spasms > Honestly, I'm not 100% sure why they do the test at all, as it > doesn't change treatment and there are many other tests that are more > specific for various neuromuscular conditions. > > As an example, I had one failed spinal tap, and they'll have to have > me under general anesthesia to do another. I also refused to have a > cerebral angiogram done, because of the risk of stroke (especially > with previous stroke-like episodes and high anticardiolipin > antibodies). > > You can always refuse a test, and at the very least, DEMAND to know > what will be gained by performing the test. > > Take care, > RH > > >> Hi all, >> >> Topical anesthetic, my tech (whatever) was a sadist! More info. I > need in >> case I ever am pressured to take the test again. They will have > hell to pay >> with me if they try, now that I know it does not have to be painful. >> >> God bless, >> Hazelpone >> Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2005 Report Share Posted June 5, 2005 Unfortunately, although I consider myself intelligent, I have short- term memory loss and confusion episodes. I'm a perfect example of someone who should make a list of questions to discuss with a doctor, but I never seem to find time to do it. And at the actual appointment, lately my son has shared my appointment so I get too focused on his issues. I'm sure I've had the " difficult patient " moniker for years, especially since when I ask questions, I sometimes have to ask them again for the answers to sink in. Take care, RH > >> Hi all, > >> > >> Topical anesthetic, my tech (whatever) was a sadist! More info. I > > need in > >> case I ever am pressured to take the test again. They will have > > hell to pay > >> with me if they try, now that I know it does not have to be painful. > >> > >> God bless, > >> Hazelpone > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2005 Report Share Posted June 5, 2005 One of these days when I hit the lottery, I am going to buy one of those small tape recorders to at least be able to record the doctors remarks/answers when I have an appointment. I have had the same problem as you when sharing doctor appointments with my daughter. I have started making separate appointments, even though it means more time off work and more travel. ohgminion wrote: >Unfortunately, although I consider myself intelligent, I have short- >term memory loss and confusion episodes. I'm a perfect example of >someone who should make a list of questions to discuss with a doctor, >but I never seem to find time to do it. And at the actual >appointment, lately my son has shared my appointment so I get too >focused on his issues. > >I'm sure I've had the " difficult patient " moniker for years, >especially since when I ask questions, I sometimes have to ask them >again for the answers to sink in. > >Take care, >RH > > >>> >>> >>>>Hi all, >>>> >>>>Topical anesthetic, my tech (whatever) was a sadist! More info. >>>> >>>> >I > > >>>need in >>> >>> >>>>case I ever am pressured to take the test again. They will have >>>> >>>> >>>hell to pay >>> >>> >>>>with me if they try, now that I know it does not have to be >>>> >>>> >painful. > > >>>>God bless, >>>>Hazelpone >>>> >>>> >>>> > > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2005 Report Share Posted June 5, 2005 Hi, I did tell my previous neurologist that I was going to start bringing a tape recorder as I never got the same answer twice from him. I was beginning to wonder about doctors until January when I sort of started over, my PCP is still one that I have a problem figuring out. Of course, I do realize that she is with Cotton-O'Neil and they only allow their doctors 15 minutes per patient for anywhere from $98.00 to $135.00?? You have to have one thought in case you get a sore throat, etc. I dread to go on Medicare in 2006 but EDS can't keep me on as a non-working employee the rest of my life just so I can afford my medications. I have got to start calling places to see who has a secondary to Medicare that includes prescriptions, probably no one? Dolores dgregori@...> wrote:One of these days when I hit the lottery, I am going to buy one of those small tape recorders to at least be able to record the doctors remarks/answers when I have an appointment. I have had the same problem as you when sharing doctor appointments with my daughter. I have started making separate appointments, even though it means more time off work and more travel. ohgminion wrote: >Unfortunately, although I consider myself intelligent, I have short- >term memory loss and confusion episodes. I'm a perfect example of >someone who should make a list of questions to discuss with a doctor, >but I never seem to find time to do it. And at the actual >appointment, lately my son has shared my appointment so I get too >focused on his issues. > >I'm sure I've had the " difficult patient " moniker for years, >especially since when I ask questions, I sometimes have to ask them >again for the answers to sink in. > >Take care, >RH > > >>> >>> >>>>Hi all, >>>> >>>>Topical anesthetic, my tech (whatever) was a sadist! More info. >>>> >>>> >I > > >>>need in >>> >>> >>>>case I ever am pressured to take the test again. They will have >>>> >>>> >>>hell to pay >>> >>> >>>>with me if they try, now that I know it does not have to be >>>> >>>> >painful. > > >>>>God bless, >>>>Hazelpone >>>> >>>> >>>> > > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2005 Report Share Posted June 5, 2005 Hi Dolores, Cotton-O'Neil Clinics sound familiar! Several of my doctors have been associated with them--my previous PCP was until he had to close his practice. I know they are under pressure from admin to limit visits to 15 minutes, but there are some who ignore that pressure and give patients time anyway. I hope you can find one. Dr. Solcher and Dr. Yockey are both very generous with time. Regarding insurance, doesn't AARP have a med-i-gap option that includes drug coverage? They used to anyway and I think they still do. Take care, Barbara _____ From: [mailto: ] On Behalf Of Dolores Sent: Sunday, June 05, 2005 2:06 PM To: Subject: Re: spasms-RH et. all Hi, I did tell my previous neurologist that I was going to start bringing a tape recorder as I never got the same answer twice from him. I was beginning to wonder about doctors until January when I sort of started over, my PCP is still one that I have a problem figuring out. Of course, I do realize that she is with Cotton-O'Neil and they only allow their doctors 15 minutes per patient for anywhere from $98.00 to $135.00?? You have to have one thought in case you get a sore throat, etc. I dread to go on Medicare in 2006 but EDS can't keep me on as a non-working employee the rest of my life just so I can afford my medications. I have got to start calling places to see who has a secondary to Medicare that includes prescriptions, probably no one? Dolores dgregori@...> wrote:One of these days when I hit the lottery, I am going to buy one of those small tape recorders to at least be able to record the doctors remarks/answers when I have an appointment. I have had the same problem as you when sharing doctor appointments with my daughter. I have started making separate appointments, even though it means more time off work and more travel. ohgminion wrote: >Unfortunately, although I consider myself intelligent, I have short- >term memory loss and confusion episodes. I'm a perfect example of >someone who should make a list of questions to discuss with a doctor, >but I never seem to find time to do it. And at the actual >appointment, lately my son has shared my appointment so I get too >focused on his issues. > >I'm sure I've had the " difficult patient " moniker for years, >especially since when I ask questions, I sometimes have to ask them >again for the answers to sink in. > >Take care, >RH > > >>> >>> >>>>Hi all, >>>> >>>>Topical anesthetic, my tech (whatever) was a sadist! More info. >>>> >>>> >I > > >>>need in >>> >>> >>>>case I ever am pressured to take the test again. They will have >>>> >>>> >>>hell to pay >>> >>> >>>>with me if they try, now that I know it does not have to be >>>> >>>> >painful. > > >>>>God bless, >>>>Hazelpone >>>> >>>> >>>> > > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2005 Report Share Posted June 5, 2005 Both of my neurologist's have been associated with Cotton-O'Neil, my previous neuro is still there but Dr. Welch took all of their " guff " as he could take and the last time they called him up on the carpet he handed them his resignation and has now opened his own practice. He said he told them that there isn't a neurologist that can treat a patient in 15 minutes and he didn't intend to start trying to. Dr. Cotton was a radiologist and Dr.O'Neil had treated me for my gastrointestinal problems until our family doctor sent me to Dr. Feagen when my ulcer perforated many years ago. I will check with AARP about what they have for a medi-gap plan as I know I have to do something. Were there severe storms in your area last night? We just had hard rain and wind. I lost power for a short time (don't laugh unless you need a good laugh today and if so go ahead) I told my cat Baby not to worry as I knew I could make it down the hall to the bedroom to get a flashlight, I made it alright after I bounced off two walls. Fortunately, there was no damage to me or the walls and I now have the flashlight in the table near the loveseat. My Grandson's power was off until 2:00 am and his phone was out also as he called me on his cellphone to see if all was OK here. Poor Baby will never trust what I say again! My son mentioned something about " tap lights " when he came to take out my trash and brought Miss Baby Cat her special food he has been getting her since she was so sick in December/January. My Aunt at Falls City, NE said they had wind and hard rain and as soon as my Uncle heard about the tornado at Hiawatha he had my cousin take him down there to see what/how much incurred as he knew the people that the tornado hit as he was worried about them not having a place to stay last night and Hiawatha is just 18 miles from Falls City. Thanks for the AARP suggestion, I will let you know the outcome. Dolores Barbara Seaman wheatchild@...> wrote: Hi Dolores, Cotton-O'Neil Clinics sound familiar! Several of my doctors have been associated with them--my previous PCP was until he had to close his practice. I know they are under pressure from admin to limit visits to 15 minutes, but there are some who ignore that pressure and give patients time anyway. I hope you can find one. Dr. Solcher and Dr. Yockey are both very generous with time. Regarding insurance, doesn't AARP have a med-i-gap option that includes drug coverage? They used to anyway and I think they still do. Take care, Barbara _____ From: [mailto: ] On Behalf Of Dolores Sent: Sunday, June 05, 2005 2:06 PM To: Subject: Re: spasms-RH et. all Hi, I did tell my previous neurologist that I was going to start bringing a tape recorder as I never got the same answer twice from him. I was beginning to wonder about doctors until January when I sort of started over, my PCP is still one that I have a problem figuring out. Of course, I do realize that she is with Cotton-O'Neil and they only allow their doctors 15 minutes per patient for anywhere from $98.00 to $135.00?? You have to have one thought in case you get a sore throat, etc. I dread to go on Medicare in 2006 but EDS can't keep me on as a non-working employee the rest of my life just so I can afford my medications. I have got to start calling places to see who has a secondary to Medicare that includes prescriptions, probably no one? Dolores dgregori@...> wrote:One of these days when I hit the lottery, I am going to buy one of those small tape recorders to at least be able to record the doctors remarks/answers when I have an appointment. I have had the same problem as you when sharing doctor appointments with my daughter. I have started making separate appointments, even though it means more time off work and more travel. ohgminion wrote: >Unfortunately, although I consider myself intelligent, I have short- >term memory loss and confusion episodes. I'm a perfect example of >someone who should make a list of questions to discuss with a doctor, >but I never seem to find time to do it. And at the actual >appointment, lately my son has shared my appointment so I get too >focused on his issues. > >I'm sure I've had the " difficult patient " moniker for years, >especially since when I ask questions, I sometimes have to ask them >again for the answers to sink in. > >Take care, >RH > > >>> >>> >>>>Hi all, >>>> >>>>Topical anesthetic, my tech (whatever) was a sadist! More info. >>>> >>>> >I > > >>>need in >>> >>> >>>>case I ever am pressured to take the test again. They will have >>>> >>>> >>>hell to pay >>> >>> >>>>with me if they try, now that I know it does not have to be >>>> >>>> >painful. > > >>>>God bless, >>>>Hazelpone >>>> >>>> >>>> > > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2005 Report Share Posted June 5, 2005 No, rain here but no big storm unless I slept through it all. Glad you got through it okay. Barbara _____ From: [mailto: ] On Behalf Of Dolores Sent: Sunday, June 05, 2005 5:45 PM To: Subject: RE: spasms-RH et. all Both of my neurologist's have been associated with Cotton-O'Neil, my previous neuro is still there but Dr. Welch took all of their " guff " as he could take and the last time they called him up on the carpet he handed them his resignation and has now opened his own practice. He said he told them that there isn't a neurologist that can treat a patient in 15 minutes and he didn't intend to start trying to. Dr. Cotton was a radiologist and Dr.O'Neil had treated me for my gastrointestinal problems until our family doctor sent me to Dr. Feagen when my ulcer perforated many years ago. I will check with AARP about what they have for a medi-gap plan as I know I have to do something. Were there severe storms in your area last night? We just had hard rain and wind. I lost power for a short time (don't laugh unless you need a good laugh today and if so go ahead) I told my cat Baby not to worry as I knew I could make it down the hall to the bedroom to get a flashlight, I made it alright after I bounced off two walls. Fortunately, there was no damage to me or the walls and I now have the flashlight in the table near the loveseat. My Grandson's power was off until 2:00 am and his phone was out also as he called me on his cellphone to see if all was OK here. Poor Baby will never trust what I say again! My son mentioned something about " tap lights " when he came to take out my trash and brought Miss Baby Cat her special food he has been getting her since she was so sick in December/January. My Aunt at Falls City, NE said they had wind and hard rain and as soon as my Uncle heard about the tornado at Hiawatha he had my cousin take him down there to see what/how much incurred as he knew the people that the tornado hit as he was worried about them not having a place to stay last night and Hiawatha is just 18 miles from Falls City. Thanks for the AARP suggestion, I will let you know the outcome. Dolores Barbara Seaman wheatchild@...> wrote: Hi Dolores, Cotton-O'Neil Clinics sound familiar! Several of my doctors have been associated with them--my previous PCP was until he had to close his practice. I know they are under pressure from admin to limit visits to 15 minutes, but there are some who ignore that pressure and give patients time anyway. I hope you can find one. Dr. Solcher and Dr. Yockey are both very generous with time. Regarding insurance, doesn't AARP have a med-i-gap option that includes drug coverage? They used to anyway and I think they still do. Take care, Barbara _____ From: [mailto: ] On Behalf Of Dolores Sent: Sunday, June 05, 2005 2:06 PM To: Subject: Re: spasms-RH et. all Hi, I did tell my previous neurologist that I was going to start bringing a tape recorder as I never got the same answer twice from him. I was beginning to wonder about doctors until January when I sort of started over, my PCP is still one that I have a problem figuring out. Of course, I do realize that she is with Cotton-O'Neil and they only allow their doctors 15 minutes per patient for anywhere from $98.00 to $135.00?? You have to have one thought in case you get a sore throat, etc. I dread to go on Medicare in 2006 but EDS can't keep me on as a non-working employee the rest of my life just so I can afford my medications. I have got to start calling places to see who has a secondary to Medicare that includes prescriptions, probably no one? Dolores dgregori@...> wrote:One of these days when I hit the lottery, I am going to buy one of those small tape recorders to at least be able to record the doctors remarks/answers when I have an appointment. I have had the same problem as you when sharing doctor appointments with my daughter. I have started making separate appointments, even though it means more time off work and more travel. ohgminion wrote: >Unfortunately, although I consider myself intelligent, I have short- >term memory loss and confusion episodes. I'm a perfect example of >someone who should make a list of questions to discuss with a doctor, >but I never seem to find time to do it. And at the actual >appointment, lately my son has shared my appointment so I get too >focused on his issues. > >I'm sure I've had the " difficult patient " moniker for years, >especially since when I ask questions, I sometimes have to ask them >again for the answers to sink in. > >Take care, >RH > > >>> >>> >>>>Hi all, >>>> >>>>Topical anesthetic, my tech (whatever) was a sadist! More info. >>>> >>>> >I > > >>>need in >>> >>> >>>>case I ever am pressured to take the test again. They will have >>>> >>>> >>>hell to pay >>> >>> >>>>with me if they try, now that I know it does not have to be >>>> >>>> >painful. > > >>>>God bless, >>>>Hazelpone >>>> >>>> >>>> > > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2005 Report Share Posted June 5, 2005 Me and the walls both. Thanks Dolores Barbara Seaman wheatchild@...> wrote:No, rain here but no big storm unless I slept through it all. Glad you got through it okay. Barbara _____ From: [mailto: ] On Behalf Of Dolores Sent: Sunday, June 05, 2005 5:45 PM To: Subject: RE: spasms-RH et. all Both of my neurologist's have been associated with Cotton-O'Neil, my previous neuro is still there but Dr. Welch took all of their " guff " as he could take and the last time they called him up on the carpet he handed them his resignation and has now opened his own practice. He said he told them that there isn't a neurologist that can treat a patient in 15 minutes and he didn't intend to start trying to. Dr. Cotton was a radiologist and Dr.O'Neil had treated me for my gastrointestinal problems until our family doctor sent me to Dr. Feagen when my ulcer perforated many years ago. I will check with AARP about what they have for a medi-gap plan as I know I have to do something. Were there severe storms in your area last night? We just had hard rain and wind. I lost power for a short time (don't laugh unless you need a good laugh today and if so go ahead) I told my cat Baby not to worry as I knew I could make it down the hall to the bedroom to get a flashlight, I made it alright after I bounced off two walls. Fortunately, there was no damage to me or the walls and I now have the flashlight in the table near the loveseat. My Grandson's power was off until 2:00 am and his phone was out also as he called me on his cellphone to see if all was OK here. Poor Baby will never trust what I say again! My son mentioned something about " tap lights " when he came to take out my trash and brought Miss Baby Cat her special food he has been getting her since she was so sick in December/January. My Aunt at Falls City, NE said they had wind and hard rain and as soon as my Uncle heard about the tornado at Hiawatha he had my cousin take him down there to see what/how much incurred as he knew the people that the tornado hit as he was worried about them not having a place to stay last night and Hiawatha is just 18 miles from Falls City. Thanks for the AARP suggestion, I will let you know the outcome. Dolores Barbara Seaman wheatchild@...> wrote: Hi Dolores, Cotton-O'Neil Clinics sound familiar! Several of my doctors have been associated with them--my previous PCP was until he had to close his practice. I know they are under pressure from admin to limit visits to 15 minutes, but there are some who ignore that pressure and give patients time anyway. I hope you can find one. Dr. Solcher and Dr. Yockey are both very generous with time. Regarding insurance, doesn't AARP have a med-i-gap option that includes drug coverage? They used to anyway and I think they still do. Take care, Barbara _____ From: [mailto: ] On Behalf Of Dolores Sent: Sunday, June 05, 2005 2:06 PM To: Subject: Re: spasms-RH et. all Hi, I did tell my previous neurologist that I was going to start bringing a tape recorder as I never got the same answer twice from him. I was beginning to wonder about doctors until January when I sort of started over, my PCP is still one that I have a problem figuring out. Of course, I do realize that she is with Cotton-O'Neil and they only allow their doctors 15 minutes per patient for anywhere from $98.00 to $135.00?? You have to have one thought in case you get a sore throat, etc. I dread to go on Medicare in 2006 but EDS can't keep me on as a non-working employee the rest of my life just so I can afford my medications. I have got to start calling places to see who has a secondary to Medicare that includes prescriptions, probably no one? Dolores dgregori@...> wrote:One of these days when I hit the lottery, I am going to buy one of those small tape recorders to at least be able to record the doctors remarks/answers when I have an appointment. I have had the same problem as you when sharing doctor appointments with my daughter. I have started making separate appointments, even though it means more time off work and more travel. ohgminion wrote: >Unfortunately, although I consider myself intelligent, I have short- >term memory loss and confusion episodes. I'm a perfect example of >someone who should make a list of questions to discuss with a doctor, >but I never seem to find time to do it. And at the actual >appointment, lately my son has shared my appointment so I get too >focused on his issues. > >I'm sure I've had the " difficult patient " moniker for years, >especially since when I ask questions, I sometimes have to ask them >again for the answers to sink in. > >Take care, >RH > > >>> >>> >>>>Hi all, >>>> >>>>Topical anesthetic, my tech (whatever) was a sadist! More info. >>>> >>>> >I > > >>>need in >>> >>> >>>>case I ever am pressured to take the test again. They will have >>>> >>>> >>>hell to pay >>> >>> >>>>with me if they try, now that I know it does not have to be >>>> >>>> >painful. > > >>>>God bless, >>>>Hazelpone >>>> >>>> >>>> > > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2005 Report Share Posted June 5, 2005 I've had visits with my MDA neuro that last 3 hours, usually a half hour with a nurse, an hour with a neuro resident, an hour with the doctor, and a half hour waiting here and there. It is ridiculous to think that a neuro can do anything in 15 minutes. My bills for the MDA clinic (before adjustment and insurance payment) run about $600 I believe (I think they make it an hour appointment for a follow-up, and two hours for an initial visit, although the total time is more). Has anyone had problems with short visits at MDA clinics? Take care, RH > >>> > >>> > >>>>Hi all, > >>>> > >>>>Topical anesthetic, my tech (whatever) was a sadist! More info. > >>>> > >>>> > >I > > > > > >>>need in > >>> > >>> > >>>>case I ever am pressured to take the test again. They will have > >>>> > >>>> > >>>hell to pay > >>> > >>> > >>>>with me if they try, now that I know it does not have to be > >>>> > >>>> > >painful. > > > > > >>>>God bless, > >>>>Hazelpone > >>>> > >>>> > >>>> > > > > > > > > > > > >Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail > is entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with > their physicians regarding changes in their own treatment. > > > >Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2005 Report Share Posted June 5, 2005 Another problem with Cotton-O'Neil is that for their 15 minutes they charge all the way from $98.00 to $135.00 for their " time " ? I am just glad that Dr. Welch pulled out as he is a very good neurologist. Dolores ohgminion rakshasis@...> wrote:I've had visits with my MDA neuro that last 3 hours, usually a half hour with a nurse, an hour with a neuro resident, an hour with the doctor, and a half hour waiting here and there. It is ridiculous to think that a neuro can do anything in 15 minutes. My bills for the MDA clinic (before adjustment and insurance payment) run about $600 I believe (I think they make it an hour appointment for a follow-up, and two hours for an initial visit, although the total time is more). Has anyone had problems with short visits at MDA clinics? Take care, RH > >>> > >>> > >>>>Hi all, > >>>> > >>>>Topical anesthetic, my tech (whatever) was a sadist! More info. > >>>> > >>>> > >I > > > > > >>>need in > >>> > >>> > >>>>case I ever am pressured to take the test again. They will have > >>>> > >>>> > >>>hell to pay > >>> > >>> > >>>>with me if they try, now that I know it does not have to be > >>>> > >>>> > >painful. > > > > > >>>>God bless, > >>>>Hazelpone > >>>> > >>>> > >>>> > > > > > > > > > > > >Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail > is entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with > their physicians regarding changes in their own treatment. > > > >Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > Quote Link to comment Share on other sites More sharing options...
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