I am not sure what to think!!!!

[Guest guest]

I was just informed by a Dr at Mayo that he does not htink I have

Mito. The neurologist up there does not think I have a neurological

disease. Every neurologist I have seen has a different

opinion...cervical stenosis, mylenopathy, degenerative neurological

disoder, metabolic disorder, conversion disorder....Here are all of

my for sure diagnosis...

Autonomic neuropathy, POTS, GERD, mild myopathy, asthma,

gastroparesis and allergies

I have CFS/FM type symptoms. My gait is abnormal and gets worse with

exertion...myastania like. The more that I do the worse my muscle

control is and I become weak and tremor. I also become SOB and

nautious. My muscle aches and pains have increased.

I ahve been told that I have mitochondrial dysfunction which is

probably secondary to another disease process..which noone has been

able to figure out.

My mito labs are all normal, but not done fasting or during a

crisis. My frozen muscle biopsy shows mild myopathy, microfiber

degeneration and some acummulation of mitochodria and lipids.

WHat was interesting is all of my vitamins were very high showing

good nutrition however I have low Co Q 10, creatine and thiamin

which all have to do with energy metablism.

My ANA is 5.4 and I will be going to a rheumatiod Dr. At first I

felt this is good. I have an autoimmune disease which is causing my

mitochodrial problem. But as I though about it more I am not

convinced that the opposite is true. I still feel this could be mito

with a secondary autoimmune disease. I have research autoimmune

diseases and I do not fit any of the criteria. I haveno evidence of

muscle inflammation either!!!

I look at family history and the health problem of my children and I

am not convinced it is not mito. I wish I was.

What do others think? Any input would be appreciated!!!!!

Thank you,

Dawn Anich