SV: diet cheating

[Guest guest]

The GFCF diet survey should, in time, be able to help us compare success rates

between groups of patients who are totally GFCF and those that have only

" reduced intake " . However, from this point of view, it's almost a " problem "

that 98% of the responders report " perfect elimination " . The " reduced " group is

so small that we can't make meaningful comparisons.

Some remarks about this:

* One cased in the " reduced " group does, in fact, have outstandingly positive

results from the diet. The rest seem to do less well than the average figures.

* Individual sensitivity to diet slip-ups seems to vary a lot, both between

patients and in the same patient from time to time. I'm sure that the diet

infringement survey will give us valuable data about this, but for the time

being, our only advice is: Be careful, and keep an open mind about the

interpretation of your results. Long term and short term evidence is, for

instance, often contradictory.

* Most long-timers on the diet will advise you to be very strict, as

sensitivity appears to increase over time (habituation / un-habituation). Seen

in retrospect, it's quite clear to us that an intake of 5 grams of gluten per

week was not enough to block our son's progress, but it caused a lot of setbacks

that were difficult to link to anything at all. When we removed the last source

of gluten, he became much more stable at his best level. He also stopped

bed-wetting.

Yours

n Klaveness

www.advimoss.no/GFCF_results.htm

-----Opprinnelig melding-----

Fra: Karlajoy@... Karlajoy@...>

Til: GFCFKids GFCFKids >

Dato: 6. mars 2001 20:03

Emne: diet cheating

>I had posted the other day wanting to know how to get in touch with

>Beck. I was unsuccessful but my reason for wanting to contact her is because

>I remember from her book she " limited " gluten and casein from her child's

>diet. It did not appear she totally implement a gluten/casein regime. And

>yet she felt like there were some good results.

>Is there anyone else like that on this list? Cause I'm one of those people.

>I don't use a separate toaster for my son's gf/cf bread and if unknowing Aunt

>Suzie happens to slip him one ritz cracker I don't go into orbit . . . and

>neither does he. It doesn't seem to affect him occasionally " cheating. "

>The diet really has improved our son's behavior and eating habits - even with

>the little bit of cheating that is involved so much so we'd never " go back " .

>

>Am I making sense to anybody who has found this to be true in your own

>situation? Or am I going to get in trouble here with some of you. thanks.

>

>