Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 From: Karlajoy@... even with > the little bit of cheating that is involved so much so we'd never " go back " . am I going to get in trouble here with some of you. thanks. " I would hope no one would condemn. All kids are different and if that seems to work for your child, then great! We are really all involved in a lot of trial and error after all. I was wondering how long you've been on diet. For us at 3 wks on, an infraction (big time) Saturday was horrible. Curious whether it eases up the longer you are on it? Laurie in AZ (who has learned this cut/paste thing now) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 In a message dated 3/6/01 4:13:45 PM Central Standard Time, GFCFKids writes: << > I WISH AUTISM WOULD GO AWAY!!!!!!!!!!!!!!!!!!!!!!!!!! >> As long as it doesn't take the kids with it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 In a message dated 3/6/01 4:13:45 PM Central Standard Time, GFCFKids writes: << Does anyone know if they ever found the 6 yr. old autistic boy in South Carolina who wandered off early Sat morning? It bothers me when I hear about stuff like that and theres no update. I guess there's nothing to report either. That may be the case. I just wonder if he has been found. It's so cold in SC right now and all he had on was a shirt and shorts. Any news? >> I keep checking the websights of ton, SC -newspapers, news etc. and they are still looking as of this morning. I did read that there is a LOT of water in the area- and that has me up at night. I know there are people who say " Well at least Autism in not fatal " but the fact is- sometimes it is and if this boy dies as a direct result of his autistic behavior I think we need to get a Nationwide campaign going even stronger than what we have to PUSH PUSH PUSH for more reseach, more funding more EVERYTHING involved with finding a cure and getting better intervention for Autism. This could be ANY of our own children! PEG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 In a message dated 3/6/01 4:13:45 PM Central Standard Time, GFCFKids writes: << Any insurance company you know of have better coverage for medical, OT, speech, ABA.... etc.... >> I know that many families qualify for Medicaid and don't know it. The HMO'S through medicaid cover everything and sometimes there is a copay involved but it is slight. If you have private insurance and still qualify they will pay the deductibles, cover anything the private insurance does not pay (the 20%) and pay the premiums also. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 We've been on it for a year now and the last time my son ate something taboo he was off the wall. He wrote on the doors with black markers and poured hot wax from a candle all over the sink in the bathroom ( which is not anywhere near his usual behavior) was laughing at me and acting like he was very drunk. It was sad to see him like that cuz that's the way he used to be all the time. I could tell that he didn't understand why he was doing those things either. For us we go 100% because even a little bit seems to do big things for him. P.S. It took a week before the behaviors came out. I thought maybe he was cured until that happened. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 The reactions either got worse for us the longer we are on the diet, or she has just gotten so much better that it makes them that more noticeable. So for us, and she has been casein free for 5 years and gluten free for almost 1, they have not gotten any easier. > From: Karlajoy@... > even with > > the little bit of cheating that is involved so much so we'd never " go > back " . > am I going to get in trouble here with some of you. thanks. " > I would hope no one would condemn. All kids are different and if that seems > to work for your child, then great! We are really all involved in a lot of > trial and error after all. I was wondering how long you've been on diet. For > us at 3 wks on, an infraction (big time) Saturday was horrible. Curious > whether it eases up the longer you are on it? > Laurie in AZ (who has learned this cut/paste thing now) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 > >> > through medicaid cover everything and sometimes there is a copay involved but > it is slight. If you have private insurance and still qualify they will pay > the deductibles, cover anything the private insurance does not pay (the 20%) > and pay the premiums also. Medicaid will also cover the copays of your private insurance. We kept both on our dd. But if your child qualifies for Medicaid make sure that you get it qualified on disability and not all income based. Our dd qualifies for SSI and Medicaid but the Medicaid was thru the SSI and was income based. If she lost SSI because of our income she would also lose the Medicaid. If the Medicaid is disability based then the child would still have the insurance. Believe me, I know! Still trying to get it all straightened out! ElaineF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 > >> > through medicaid cover everything and sometimes there is a copay involved but > it is slight. If you have private insurance and still qualify they will pay > the deductibles, cover anything the private insurance does not pay (the 20%) > and pay the premiums also. Medicaid will also cover the copays of your private insurance. We kept both on our dd. But if your child qualifies for Medicaid make sure that you get it qualified on disability and not all income based. Our dd qualifies for SSI and Medicaid but the Medicaid was thru the SSI and was income based. If she lost SSI because of our income she would also lose the Medicaid. If the Medicaid is disability based then the child would still have the insurance. Believe me, I know! Still trying to get it all straightened out! ElaineF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2001 Report Share Posted March 7, 2001 In a message dated 3/6/01 5:48:47 PM Central Standard Time, renee1dat@... writes: > So for us, and she has been casein free for 5 years and anyone else who would like to respond: My son has been gfcf for a couple of weeks now, being off of casein for nearly 3 weeks. How long was your daughter off casein before you noticed improvement? The only change I've seen in my son so far is crankiness from what I believe to be hunger. He has a lot of sensory issues that prevent him from eating food that is unfamiliar. Right before we started the diet, my son complained whenever I gave him milk because he wanted juice instead. He was refusing it either because he just liked juice better or because of how it made him feel. I don't know which. No bm trouble. Actually, since starting the diet, his regular once-a-day bm has turned into once every 2 - 3 days. Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2001 Report Share Posted March 7, 2001 We saw improvements within days. I'm not sure how old your son is, keep in mind was 28 months when we removed casein. At the time she had daily screaming fits that lasted hours upon hours, had no speech what so ever, spent most of her time breaking stuff or hurting herself, ran away constantly, and felt no pain at all. We realized this when she broke some glass, cut her fingers all up trying to put it back together like a puzzle, and was oblivious to the fact she was bleeding everywhere. On her second birthday she spent the evening in the hospital for picking up, and dropping a 19 in T.V. on her leg. It swelled to twice its size (her leg), and she never flinched. When we took her to the hospital she running around the waiting area like someone on drugs. This is when the Dr.'s began listening to us! She went from this bad to verbal, although no one understood her but me for quite some time, and her screaming fits were down to less than an hour within 10 days of removing casein. Unfortunately she was still diagnosed autistic at age 3, and we did not remove gluten until age 6. That was almost a year ago and they are removing the label of autism- Today she no longer meets the criteria unless we have a food infringement. So for us there is no doubting the opioid theory, and we are anal about what she eats. Around here we do lose it if she gets ahold of the wrong foods. We are to the best of our knowledge 100%, and not planning any challenges. I have heard others, especially those with older children, not get the same results we did, or the results take more time to appear. I don't know if the diet works for every autistic child, but I do know that for ours it will not work at 95%. > > and anyone else who would like to respond: > My son has been gfcf for a couple of weeks now, being off of casein for > nearly 3 weeks. How long was your daughter off casein before you noticed > improvement? The only change I've seen in my son so far is crankiness from > what I believe to be hunger. He has a lot of sensory issues that prevent him > from eating food that is unfamiliar. Right before we started the diet, my > son complained whenever I gave him milk because he wanted juice instead. He > was refusing it either because he just liked juice better or because of how > it made him feel. I don't know which. No bm trouble. Actually, since > starting the diet, his regular once-a-day bm has turned into once every 2 - 3 > days. > Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2001 Report Share Posted March 7, 2001 After going casien free my daughter became constipated for a few weeks--not uncommon. Kids also begin to be less sensitive to new foods once on this diet--not ALWAYS but often makes them more open to a broader range of foods. It can take some time to notice improvements . Gotta get all out of his system. And then gluten eventually too will help you see more improvement as well. Good luck with diet. Gets easier w/ time, Re: Digest Number 2807 > In a message dated 3/6/01 5:48:47 PM Central Standard Time, > renee1dat@... writes: > > > > So for us, and she has been casein free for 5 years > > and anyone else who would like to respond: > My son has been gfcf for a couple of weeks now, being off of casein for > nearly 3 weeks. How long was your daughter off casein before you noticed > improvement? The only change I've seen in my son so far is crankiness from > what I believe to be hunger. He has a lot of sensory issues that prevent him > from eating food that is unfamiliar. Right before we started the diet, my > son complained whenever I gave him milk because he wanted juice instead. He > was refusing it either because he just liked juice better or because of how > it made him feel. I don't know which. No bm trouble. Actually, since > starting the diet, his regular once-a-day bm has turned into once every 2 - 3 > days. > Kim > > > Quote Link to comment Share on other sites More sharing options...
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