Prescriptions Re: Depakote bad for mito

[Guest guest]

We do have to remember that each of us are different cases, even to

some extent in the same families. I think as long as we are aware of

possible issues, and are being followed up for them, that's the best

we can do.

My neuro has mentioned prescription drugs that she " wouldn't

prescribe YET " , although I was having symptoms. One of them causes

chronic diarrhea, and now that I'm on the medication, I realize why

she was hesitant to prescribe it (I ended up going to a GI doctor who

prescribed it for me after my tests were still abnormal). Difficult

to have a normal life when you have that " hanging over your head " .

And Depends just wouldn't hack it for that job...

Another drug was prescribed by my neuro, and my family doctor

said " the only people who get this are near death " which I wasn't at

the time, but had a lot of unmaneageable symptoms. That one I

decided not to take (luckily didn't drop off prescription to be

filled).

My current meds are kind of weird - they are always out of stock at

the pharmacy, and I try to tell them, " Look, I'll need this

prescription every month from now on " , and they just don't get it.

So now I call when I have more than a week's worth left, and it takes

them at least as much time to sort it out.

BTW, my liver enzymes are all perfect, yet my ammonia level is high

if I'm not on lactulose. I don't know if it's a related thing, but

it struck the GI doctor as extremely strange.

Take care,

RH

> Steve,

> thank you for the post and link, When the neuro and I started the

Depakote

> we were aware of the risk however we both decided to go for it as

my seizures

> have not stopped and I have been on every drug out there. Before

starting

> the depakote we ran my liver enzyme levels and ammonia. Both were

very low.

> Ammonia was zero. so we decided if anyone can tolerate it it

would be me.

> I have been on it now for about 6 months and we run my liver and

ammonia

> every three months and still way below normal.

> I appreciate your concern and post as without friends like you out

there we

> wouldnt have the information and knowledge that is helping all of

us so much.

> thank you

>

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