Re: Re: Joint and Muscle Pain

[Guest guest]

Donna-

My take on this, and I have lots of joint pain, is that first of all,

we can get what anyone else gets, but when you add in weak muscles,

there is more wear and tear on joints and arthritis developes.

laurie

> I was wondering if in additon to the muscle pain and weakness does joint pain

also go with mito? Does anyone have both? I my son, daughter and mom all have

been diagnosed with mito. My son is the most severe as he also has severe cyclic

vomiting and severe dysautonomia. My daughter has dysautonomia to a moderate

degree, is lactose intolerant and has migraines. I just had a tilt table done

and

> have dysautonomia had cyclic vomiting for 5-6 years as a teenager, I also have

been told I have rheumatory arthritis and arthritis in my eyes. This joint and

muscle pain is really bothering me it seems to get worse in the evening I can

barley walk at times my feet sides of my feet just ache my hands, fingers elbows

and hips. I was recommended to a rhemuatologist at the cleveland clinic thanks

bug I will try to make an appointment next week. Thanks.

> Donna K

>

>

>

> Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

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[Guest guest]

Laurie,

Thanks that really makes a lot of sense at first I thought is was from the

weather but it has been going on for 2 maybe 3 weeks now I guess it is time to

go see a specialist thanks again.

Hugs,

Donna K

---- Laurie Fitzgerald laurie.fitzgerald@...> wrote:

> Donna-

>

> My take on this, and I have lots of joint pain, is that first of all,

> we can get what anyone else gets, but when you add in weak muscles,

> there is more wear and tear on joints and arthritis developes.

>

> laurie

>

>

> > I was wondering if in additon to the muscle pain and weakness does joint

pain also go with mito? Does anyone have both? I my son, daughter and mom all

have been diagnosed with mito. My son is the most severe as he also has severe

cyclic vomiting and severe dysautonomia. My daughter has dysautonomia to a

moderate degree, is lactose intolerant and has migraines. I just had a tilt

table done and

> > have dysautonomia had cyclic vomiting for 5-6 years as a teenager, I also

have been told I have rheumatory arthritis and arthritis in my eyes. This joint

and muscle pain is really bothering me it seems to get worse in the evening I

can barley walk at times my feet sides of my feet just ache my hands, fingers

elbows and hips. I was recommended to a rhemuatologist at the cleveland clinic

thanks bug I will try to make an appointment next week. Thanks.

> > Donna K

> >

> >

> >

> > Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

> >

> > Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

> >

> >

[Guest guest]

Yes, Laurie, when the muscles can't do their job right, the joints as

well as the muscles get more stress. I believe this can lead to a

variety of pain, inflamation, and or joint damage. I believe a lot of

my wrongly diagnosed " rheumatoid arthritis " pain was due to that. I

was on heavy duty meds for RA for 6 years. I started to titrate them

down myself, and finally stopped them all together, and had no

increased symptoms. ( I did this with full knowledge of the

rheumatologist, and under his careful observation, but against his

recommendation, I want to add - I just insisted on the " experiment " ,

and he was kind enough to let me try it.) When I watched my body

mechanics - and this took years to learn to do - I got some relief.

The most annoying " residue " of the symptoms I still have is

intermittent extreme stiffness. Luckily, I also learned early on that

movement will help that. There was a time that I set the alarm in the

middle of the night, just to move around a little bit, because I was

afraid that if I didn't I would not be able to get myself out of bed in

the morning. Walking down the stairs backwards in the morning was the

only way I could manage it. I still feel a need to move, frequently.

Not a lot, just to move/walk a little. Strange, what live with.

Regards,

Sunny

> Donna-

>

> My take on this, and I have lots of joint pain, is that first of all,

> we can get what anyone else gets, but when you add in weak muscles,

> there is more wear and tear on joints and arthritis developes.

>

> laurie

>

>

> > I was wondering if in additon to the muscle pain and weakness does

> joint pain also go with mito? Does anyone have both? I my son,

> daughter and mom all have been diagnosed with mito. My son is the most

> severe as he also has severe cyclic vomiting and severe dysautonomia.

> My daughter has dysautonomia to a moderate degree, is lactose

> intolerant and has migraines. I just had a tilt table done and

> > have dysautonomia had cyclic vomiting for 5-6 years as a teenager,

> I also have been told I have rheumatory arthritis and arthritis in my

> eyes. This joint and muscle pain is really bothering me it seems to

> get worse in the evening I can barley walk at times my feet sides of

> my feet just ache my hands, fingers elbows and hips. I was recommended

> to a rhemuatologist at the cleveland clinic thanks bug I will try to

> make an appointment next week. Thanks.

> > Donna K

> >

> >

> >

> > Medical advice, information, opinions, data and statements

> contained herein are not necessarily those of the list moderators. The

> author of this e mail is entirely responsible for its content. List

> members are reminded of their responsibility to evaluate the content

> of the postings and consult with their physicians regarding changes in

> their own treatment.

> >

> > Personal attacks are not permitted on the list and anyone who sends

> one is automatically moderated or removed depending on the severity of

> the attack.

> >

> >

[Guest guest]

Hi Donna,

I need to ask a question and although it may sound dumb or stupid. I have

noticed that you have written a few times about you having arthritis in

your eyes, and every time I read it I sit here at my computer and can't

figure out how that can be, unless of course you are speaking about the

bone structure that the eyeball itself sits in. Our eyes are made up of

tissues, muscles, veins, fluid, etc...

Arthritis is a disease of the bone. So I don't quite understand what you

are saying. Can you explain this to me?? Thanks!!

I believe that you can have both Mito and Rheumatoid arthritis. Have you

ever been tested for RA? And if so were your results positive? Do you have

any swelling in your hands, fingers, etc...? Do you have pain and or

difficulty when you first get out of bed in the morning? I heard that

morning achyness and stiffness is common in people with RA. I have spoken

to so many Mito people who have painful hips and painful thighs. I don't

know if the painful hips and thighs are related to the RA or to the Mito,

or both of them.

I think that it is a great idea that you are going to make an appointment

with a Rheumatologist at CC. Hopefully they will be able to give you some

answers and lessen your pain. Good Luck.

Hugs,

Ann-Marie

At 09:15 PM 6/3/2005, you wrote:

>I also have been told I have rheumatory arthritis and arthritis in my

>eyes. This joint and muscle pain is really bothering me it seems to get

>worse in the evening I can barley walk at times my feet sides of my feet

>just ache my hands, fingers elbows and hips. I was recommended to a

>rhemuatologist at the cleveland clinic thanks bug I will try to make an

>appointment next week. Thanks.

>Donna K

[Guest guest]

Hi Donna,

I need to ask a question and although it may sound dumb or stupid. I have

noticed that you have written a few times about you having arthritis in

your eyes, and every time I read it I sit here at my computer and can't

figure out how that can be, unless of course you are speaking about the

bone structure that the eyeball itself sits in. Our eyes are made up of

tissues, muscles, veins, fluid, etc...

Arthritis is a disease of the bone. So I don't quite understand what you

are saying. Can you explain this to me?? Thanks!!

I believe that you can have both Mito and Rheumatoid arthritis. Have you

ever been tested for RA? And if so were your results positive? Do you have

any swelling in your hands, fingers, etc...? Do you have pain and or

difficulty when you first get out of bed in the morning? I heard that

morning achyness and stiffness is common in people with RA. I have spoken

to so many Mito people who have painful hips and painful thighs. I don't

know if the painful hips and thighs are related to the RA or to the Mito,

or both of them.

I think that it is a great idea that you are going to make an appointment

with a Rheumatologist at CC. Hopefully they will be able to give you some

answers and lessen your pain. Good Luck.

Hugs,

Ann-Marie

At 09:15 PM 6/3/2005, you wrote:

>I also have been told I have rheumatory arthritis and arthritis in my

>eyes. This joint and muscle pain is really bothering me it seems to get

>worse in the evening I can barley walk at times my feet sides of my feet

>just ache my hands, fingers elbows and hips. I was recommended to a

>rhemuatologist at the cleveland clinic thanks bug I will try to make an

>appointment next week. Thanks.

>Donna K

[Guest guest]

I have been treated for osteoarthritis for 32 years as well as degenerative

scoliosis in the mid-portion of the right lumbar spine Dr. Baker has treated me

for this duration and he recently told me that he needed to start me on physical

therapy on my right knee to get my knee to bend. He said that I since have

severe neuromuscular damage to my right leg that can never be corrected and that

my arthritis will only get worse due to the way I (attempt to) walk as I have

somewhat of a cogwheeling-like action of my right lower extremity. The physical

therapy has helped as I can now slightly bend my knee but it still won't

straighten out? He is the one that first diagnosed my periphal neuropathy and

tried to tell this to my former neurologist for quite some time. I have learned

to be thankful for what works and not complain about what didn't.

Dolores

Laurie Fitzgerald laurie.fitzgerald@...> wrote:

Donna-

My take on this, and I have lots of joint pain, is that first of all,

we can get what anyone else gets, but when you add in weak muscles,

there is more wear and tear on joints and arthritis developes.

laurie

> I was wondering if in additon to the muscle pain and weakness does joint pain

also go with mito? Does anyone have both? I my son, daughter and mom all have

been diagnosed with mito. My son is the most severe as he also has severe cyclic

vomiting and severe dysautonomia. My daughter has dysautonomia to a moderate

degree, is lactose intolerant and has migraines. I just had a tilt table done

and

> have dysautonomia had cyclic vomiting for 5-6 years as a teenager, I also have

been told I have rheumatory arthritis and arthritis in my eyes. This joint and

muscle pain is really bothering me it seems to get worse in the evening I can

barley walk at times my feet sides of my feet just ache my hands, fingers elbows

and hips. I was recommended to a rhemuatologist at the cleveland clinic thanks

bug I will try to make an appointment next week. Thanks.

> Donna K

>

>

>

> Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>