Are all CF kids poor sleepers?

[Guest guest]

My son was a poor sleeper in the beginning but he also suffered from Acid

Reflux. I don't think your son has you " trained " yet because I have read in

several articles that babies cannot be spoiled until they are at least 6

months of age. When we got the reflux under control I felt more comfortable

letting him cry a little at night before bed (not hysterical... just

whinny). Is there any other reason why Weston would be uncomfortable such

as tummy ache, etc.?

Mommy to (12-17-98) and

Christian (1-30-04) LCF - DBB 23/7

_____

From: wbb_lr

Sent: Friday, November 05, 2004 9:00 PM

To: nosurgery4clubfoot

Subject: Are all CF kids poor sleepers?

Hi there,

We are new to the group. My son Weston is 7 weeks old and just

received his 5th and final cast this week. He is due to get his DBB

this Thursday. My question is... Are all infants going through this

as poor a sleeper as Weston? He has to be rocked to sleep for about

an hour every time he goes down and seems to fight sleep. He is a

very light sleeper and can be up for 6 hours at a time. Are any of

you parents going through this? Our orthopedic doctor told me

Weston has me " trained " and I need to let him cry it out. I just

can't do it.. especially since I believe his foot (unilateral) is

uncomfortable. Any insight would be helpful. Thank you!

[Guest guest]

Lori, welcome to the group! Is Weston receiving the Ponseti Method

of treatment? Where are you located and what doctor are you seeing?

I think that it's safe to say that not all babies have problems or

discomfort with the casting treatment. Most of those that have

experienced difficulty have reported that the problems started after

the FAB was introduced. We have found that to be somewhat normal as

there is usually an 'adjustment' period with transitioning from casts

to brace.

Did Weston need to have a tenotomy? Usually, with the Ponseti

method, the final cast is applied after the tenotomy procedure and is

kept on for a period of 3 weeks. I'm not sure how long the final

cast is usually kept on if there was no tenotomy required.

Has Weston seemed uncomfortable with all of his casts or just this

one in particular?

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/24

>

>

> Hi there,

> We are new to the group. My son Weston is 7 weeks old and just

> received his 5th and final cast this week. He is due to get his

DBB

> this Thursday. My question is... Are all infants going through

this

> as poor a sleeper as Weston? He has to be rocked to sleep for

about

> an hour every time he goes down and seems to fight sleep. He is a

> very light sleeper and can be up for 6 hours at a time. Are any of

> you parents going through this? Our orthopedic doctor told me

> Weston has me " trained " and I need to let him cry it out. I just

> can't do it.. especially since I believe his foot (unilateral) is

> uncomfortable. Any insight would be helpful. Thank you!

[Guest guest]

OMG - an orthopaedic doctor presumes to tell you how to parent your

child? I would have told this guy off big time. A 7w old child that needs

to be rocked or held to sleep? Good Lord, I still nurse my 19 month old to

sleep. Forget what this idiot told you, he's not a sleep or pediatric

expert. Heck, he's not even a parenting expert. He deals in bones for

chrissakes...

Hold that child as much as you want, he needs you. He is not manipulating

you, he's too freaking young to even THINK about doing that. EVERY one of

my children, CF and non CF woke many times a night till they were over a

year old or older (near 2). Granted, I nurse them at night and don't mind

a bit (we co-sleep, which makes night nursing a breeze) but at 7w... he

needs you and does not need to be left alone to cry it out. Don't do that

to him, it'll hurt both of you. Poor little guy has casts on his legs and

is going to NEED your comfort when he gets the DBB. Not to be left alone

to CIO.

OK - sorry, I'm in a mood this morning but this comment from this Dr.

really ticked me off because it makes you think your child is a poor

sleeper when he's totally normal. Go hold your baby and enjoy it all you

want.

Kori & Darbi

At 05:59 PM 11/5/2004, you wrote:

>Hi there,

>We are new to the group. My son Weston is 7 weeks old and just

>received his 5th and final cast this week. He is due to get his DBB

>this Thursday. My question is... Are all infants going through this

>as poor a sleeper as Weston? He has to be rocked to sleep for about

>an hour every time he goes down and seems to fight sleep. He is a

>very light sleeper and can be up for 6 hours at a time. Are any of

>you parents going through this? Our orthopedic doctor told me

>Weston has me " trained " and I need to let him cry it out. I just

>can't do it.. especially since I believe his foot (unilateral) is

>uncomfortable. Any insight would be helpful. Thank you!

>

>

>

>

>

>

>

>

>

>

[Guest guest]

My son is a poor sleeper too. Not sure if its due to CF but he IS my

only CF baby out of 4 and hes the worst sleeper. Due to having 3

other kids, Elijah still sleeps in the room w/ us in his own crib

which makes crying it out a little harder. When my husband isnt out

to sea, we sleep on the sofa bed and we do let him cry it out.

Lori

and Elijah 7 months RCF (atypical) DBB 23/7

[Guest guest]

but did you let him CIO at 7w??

Kori

At 10:45 AM 11/6/2004, you wrote:

>My son is a poor sleeper too. Not sure if its due to CF but he IS my

>only CF baby out of 4 and hes the worst sleeper. Due to having 3

>other kids, Elijah still sleeps in the room w/ us in his own crib

>which makes crying it out a little harder. When my husband isnt out

>to sea, we sleep on the sofa bed and we do let him cry it out.

>

>Lori

>and Elijah 7 months RCF (atypical) DBB 23/7

>

>

>

>

>

>

>

[Guest guest]

I have to admit that I cave into Elijah more than I did w/ the

others. It could be partially due to CF.... the other part due to him

being my last baby. I agree w/ Kori, follow your gut on this one and

if you think he needs to be held, do it.

I let Elijah cry it out after all the holding, rocking, singing,

dancing, swinging etc etc etc didnt work and I was about to lose my @)

*##@( mind.

Speaking of 'professionals' getting in your business as a mother... I

had a lady at WIC tell me this week " SHAME ON YOU " b/c I still put a

little cereal in a bottle for Elijah before lying him down to sleep.

I was LIVID!!!

Do what you can to tune these people out or learn to enjoy going off

on them like I have, LOL~~~

[Guest guest]

Hi,

Welcome to the group.

My clubfoot kid slept a lot better than my non-clubfoot kid! My

daughter underwent treatment- casts, AFOs, more casts and finally the

DBB for the first 8 months of her life and we had no issues with her

being a good sleeper at any time.

My son had issues with reflux early on and was a terrible sleeper for

many months.....

We had a nephew that was just about the same age as . I

remember that we used to just be able to go lay her in the crib and

she would go to sleep and they had a *very* long and drawn out

nightly routine that they had to go through- including staying in the

room until he fell asleep. Kids really can " train " you with their

expectations. You'll just have to go with your mommy instincts to

figure out whether he is in any physical discomfort or if he's just a

tough cookie when it comes to going to sleep on his own- too bad each

kid doesn't come with an instruction manual!

This is just our experience!

GOOD LUCK TO YOU!!!!!!!

& (3-16-00)

left clubfoot, switched to Ponseti method at 4 mo. old

[Guest guest]

no.. @ 7w he was having his 1st release done, 3w cast that he slipped

out of and then his first *failed* attempt at wearing the shoes. I

held him and bounced him on my legs while watching tv until he went

to sleep. Most nights during that time, since he's breastfed, he was

getting up every hour to hour and a half for 'comfort' nursing so I

just kept him in the bed w/ me.

I cant remember how old he was when I let him cry it out.*maybe

around 3-4 months old* And even then it was after Id exhausted ALL

other efforts and he was still screaming.

At 7 mo, he sleeps 'okay' now. The most he'll sleep at a time is 5-6

hours. My 2 yo was sleeping 12 hours, thru the night, at 10 wks.

Elijah still wakes up a couple to three times a night to be nursed

back to sleep and will go to sleep w/out crying once he's laid down

in the crib. Its not nearly the fight that it once was.

Lori

and Elijah 7 mo atypical RCF DBB 23/7

[Guest guest]

no.. @ 7w he was having his 1st release done, 3w cast that he slipped

out of and then his first *failed* attempt at wearing the shoes. I

held him and bounced him on my legs while watching tv until he went

to sleep. Most nights during that time, since he's breastfed, he was

getting up every hour to hour and a half for 'comfort' nursing so I

just kept him in the bed w/ me.

I cant remember how old he was when I let him cry it out.*maybe

around 3-4 months old* And even then it was after Id exhausted ALL

other efforts and he was still screaming.

At 7 mo, he sleeps 'okay' now. The most he'll sleep at a time is 5-6

hours. My 2 yo was sleeping 12 hours, thru the night, at 10 wks.

Elijah still wakes up a couple to three times a night to be nursed

back to sleep and will go to sleep w/out crying once he's laid down

in the crib. Its not nearly the fight that it once was.

Lori

and Elijah 7 mo atypical RCF DBB 23/7

[Guest guest]

No we aren't letting him cry it out. I feel he is much too young at 7

weeks. Our orthopedic doctor has suggested we use the Ferber approach. I

would like to avoid this until he is at least 6 months of age.

_____

From: frogabog

Sent: Saturday, November 06, 2004 10:51 AM

To: nosurgery4clubfoot

Subject: Re: Re: Are all CF kids poor sleepers?

but did you let him CIO at 7w??

Kori

At 10:45 AM 11/6/2004, you wrote:

>My son is a poor sleeper too. Not sure if its due to CF but he IS my

>only CF baby out of 4 and hes the worst sleeper. Due to having 3

>other kids, Elijah still sleeps in the room w/ us in his own crib

>which makes crying it out a little harder. When my husband isnt out

>to sea, we sleep on the sofa bed and we do let him cry it out.

>

>Lori

>and Elijah 7 months RCF (atypical) DBB 23/7

>

>

>

>

>

>

>

[Guest guest]

THANK YOU! I am still burning about what this doctor said to me. I was so

upset about it. My thoughts exactly.. he needs to be held and I am his

mother.. this is my job to comfort him regardless. I called our regular

pediatrician who is wonderful.. he said our orthopedic doctor was a nazi and

said to disregard all the crazy advice. I am also nursing Weston to sleep

which really seems to comfort him.

Weston is due for the DBB this Thursday. What should we expect? Is it

terrible???

_____

From: frogabog

Sent: Saturday, November 06, 2004 9:32 AM

To: nosurgery4clubfoot

Subject: Re: Are all CF kids poor sleepers?

OMG - an orthopaedic doctor presumes to tell you how to parent your

child? I would have told this guy off big time. A 7w old child that needs

to be rocked or held to sleep? Good Lord, I still nurse my 19 month old to

sleep. Forget what this idiot told you, he's not a sleep or pediatric

expert. Heck, he's not even a parenting expert. He deals in bones for

chrissakes...

Hold that child as much as you want, he needs you. He is not manipulating

you, he's too freaking young to even THINK about doing that. EVERY one of

my children, CF and non CF woke many times a night till they were over a

year old or older (near 2). Granted, I nurse them at night and don't mind

a bit (we co-sleep, which makes night nursing a breeze) but at 7w... he

needs you and does not need to be left alone to cry it out. Don't do that

to him, it'll hurt both of you. Poor little guy has casts on his legs and

is going to NEED your comfort when he gets the DBB. Not to be left alone

to CIO.

OK - sorry, I'm in a mood this morning but this comment from this Dr.

really ticked me off because it makes you think your child is a poor

sleeper when he's totally normal. Go hold your baby and enjoy it all you

want.

Kori & Darbi

At 05:59 PM 11/5/2004, you wrote:

>Hi there,

>We are new to the group. My son Weston is 7 weeks old and just

>received his 5th and final cast this week. He is due to get his DBB

>this Thursday. My question is... Are all infants going through this

>as poor a sleeper as Weston? He has to be rocked to sleep for about

>an hour every time he goes down and seems to fight sleep. He is a

>very light sleeper and can be up for 6 hours at a time. Are any of

>you parents going through this? Our orthopedic doctor told me

>Weston has me " trained " and I need to let him cry it out. I just

>can't do it.. especially since I believe his foot (unilateral) is

>uncomfortable. Any insight would be helpful. Thank you!

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Daiga, Thanks for your email! Yes, Weston is receiving the Ponseti Method

and he will not need a tenotomy as of now. He is in his last cast and due

for the DBB this Thursday. He showed some significant discomfort with the

first 2 casts and this last one. His foot looks like it is practically on

backwards the poor kid!! What can we expect with the DBB transition?

_____

From: Daiga Grady

Sent: Saturday, November 06, 2004 6:28 AM

To: nosurgery4clubfoot

Subject: Re: Are all CF kids poor sleepers?

Lori, welcome to the group! Is Weston receiving the Ponseti Method

of treatment? Where are you located and what doctor are you seeing?

I think that it's safe to say that not all babies have problems or

discomfort with the casting treatment. Most of those that have

experienced difficulty have reported that the problems started after

the FAB was introduced. We have found that to be somewhat normal as

there is usually an 'adjustment' period with transitioning from casts

to brace.

Did Weston need to have a tenotomy? Usually, with the Ponseti

method, the final cast is applied after the tenotomy procedure and is

kept on for a period of 3 weeks. I'm not sure how long the final

cast is usually kept on if there was no tenotomy required.

Has Weston seemed uncomfortable with all of his casts or just this

one in particular?

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/24

>

>

> Hi there,

> We are new to the group. My son Weston is 7 weeks old and just

> received his 5th and final cast this week. He is due to get his

DBB

> this Thursday. My question is... Are all infants going through

this

> as poor a sleeper as Weston? He has to be rocked to sleep for

about

> an hour every time he goes down and seems to fight sleep. He is a

> very light sleeper and can be up for 6 hours at a time. Are any of

> you parents going through this? Our orthopedic doctor told me

> Weston has me " trained " and I need to let him cry it out. I just

> can't do it.. especially since I believe his foot (unilateral) is

> uncomfortable. Any insight would be helpful. Thank you!

[Guest guest]

Thanks for your reply.. Yes, I have also read that 6 months is the minimum

age of letting a child cry it out. He doesn't scream at night. He is just

unable to be put down unless he is completely asleep. He will wake up and

cry if I try any sooner. Maybe this is normal?? This is my first so am

learning a lot. I thought it could be due to the casts but maybe not.

_____

From: Gerace

Sent: Saturday, November 06, 2004 4:47 AM

To: nosurgery4clubfoot

Subject: RE: Are all CF kids poor sleepers?

My son was a poor sleeper in the beginning but he also suffered from Acid

Reflux. I don't think your son has you " trained " yet because I have read in

several articles that babies cannot be spoiled until they are at least 6

months of age. When we got the reflux under control I felt more comfortable

letting him cry a little at night before bed (not hysterical... just

whinny). Is there any other reason why Weston would be uncomfortable such

as tummy ache, etc.?

Mommy to (12-17-98) and

Christian (1-30-04) LCF - DBB 23/7

_____

From: wbb_lr

Sent: Friday, November 05, 2004 9:00 PM

To: nosurgery4clubfoot

Subject: Are all CF kids poor sleepers?

Hi there,

We are new to the group. My son Weston is 7 weeks old and just

received his 5th and final cast this week. He is due to get his DBB

this Thursday. My question is... Are all infants going through this

as poor a sleeper as Weston? He has to be rocked to sleep for about

an hour every time he goes down and seems to fight sleep. He is a

very light sleeper and can be up for 6 hours at a time. Are any of

you parents going through this? Our orthopedic doctor told me

Weston has me " trained " and I need to let him cry it out. I just

can't do it.. especially since I believe his foot (unilateral) is

uncomfortable. Any insight would be helpful. Thank you!

[Guest guest]

No, all three of my kids, 1 cf 2 not, slept through

the night at 6-7 weeks. I breastfed and held them a

lot but did not rock them to sleep. I put them down

when they were relaxed but not asleep. The first few

nights they did cry it out, not over 1/2 hour. If I

needed to I would go in every 5-10 minutes at first

and talk to them without picking them up. I gradually

increased the time. My youngest (non cf)got fussier

if I tried to hold him while he was sleepy, he

actually did better just laying him down and letting

him fuss. You can tell the difference between the

tired cry and inconsulable hurting cry. I have to say

that this has been the best parenting advice I have

ever gotten. Everyone has their own style, but my

kids all go to sleep at 8:00 pm. We have our routine,

they know it and will do it even if we have a sitter.

They all sleep through the night in their own beds.

Alaya is able to roll over on her own with her brace

on. She sleeps on her belly with her butt in the air

and her brace under her.

Good luck, I know it's not easy having a baby that

doesn't sleep well.

Joanne

[Guest guest]

I personally do not let my children sleep in bed with me, but I do

visit their room with a rockin chair just in case they wake up at

night. I would NEVER let a 7 week old CIO. I love the night time, I

always feed (whether bf or bottle) by babies and let them fall asleep

on me...Just at night, during nap times I do just lay them down. If

they do wake up in the middle of the night no matter what age, I will

just go in their room and rock them back to sleep I just love the

time together with them, the rest of the house is quiet. My first one

had terrible ear infections and would wake up frequently. Ava with CF

sleeps great!!

KK

>

>

> >My son is a poor sleeper too. Not sure if its due to CF but he IS

my

> >only CF baby out of 4 and hes the worst sleeper. Due to having 3

> >other kids, Elijah still sleeps in the room w/ us in his own crib

> >which makes crying it out a little harder. When my husband isnt out

> >to sea, we sleep on the sofa bed and we do let him cry it out.

> >

> >Lori

> >and Elijah 7 months RCF (atypical) DBB 23/7

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I agree he's too young to just put him to his own devices but you can start to

sort of track his pattern and work it. That's been my approach with Everett

(13 mo. now) who was, and remains, a " bad sleeper " . I noticed certain times of

the day he became drowsey and started planning on that to be his nap time; after

a few day (?) he started getting used to that routine and going down easier.

This will change as they grow and you need to remain aware of their changing

patterns and work with them - but routine is very key I think. Now days

Everett remains a very light sleeper, but a very predicable sleeper. Thus, my

life is less chaotic.

early on he slept only in his swing, 4 whole months of that - it's the only

place he would sleep besides me holding him. I often kept my breast pump

plugged in running beside him - the noise and vibration lulled him to sleep but

Heaven help us if I turned it off! LOL! I gradually weaned him in to a certain

CD called Motzart for Mothers. I am on my 3rd copy of this CD having used it

also for my other child previously. It is the most relaxing, beautiful music.

Both my boys are " trained " to it. I turn it on when it becomes sleepy-time,

rather loud to drown out all other house noise and voices. He knows now when

that starts it's time to lay down, and goes down with otu a fight. I alway use

the same blankets with him, too - I keep everything very " The same " for him all

the time. At night now too, he knows soon as his DBB goes on it's time to lay

down. He's reacted very well to the routine - maybe such things could help you

too, if you ease in to your own predicable routine that your baby can learn to

rely on and live by.

s.

[Guest guest]

You raise a good point Lori - there might very well come a time when the crying

is to the point the mother is at the end of her rope and in that event I highly

recommend you place the baby in a safe place and get yourself out of ear shot

for a few minutes. I used to go turn on my washing machine and dryer (for

the noise) and sit on those and cry in our early months from Hell because

Everett's screaming was soooooooooooooooooooooooooooooooooooooooooooooooo

non-stop I became afraid of myself once in a while. Those wre very dark times I

thank God for pulling us through.

s.

I have to admit that I cave into Elijah more than I did w/ the

others. It could be partially due to CF.... the other part due to him

being my last baby. I agree w/ Kori, follow your gut on this one and

if you think he needs to be held, do it.

I let Elijah cry it out after all the holding, rocking, singing,

dancing, swinging etc etc etc didnt work and I was about to lose my @)

*##@( mind.

Speaking of 'professionals' getting in your business as a mother... I

had a lady at WIC tell me this week " SHAME ON YOU " b/c I still put a

little cereal in a bottle for Elijah before lying him down to sleep.

I was LIVID!!!

Do what you can to tune these people out or learn to enjoy going off

on them like I have, LOL~~~

[Guest guest]

Hi Lori,

The most useful advice (for me anyway) I got on poor

sleeping was this: " It's only a problem if you think

it's a problem. " That means as long as you're happy

rocking Weston to sleep it's not really a problem.

And I personally wouldn't expect a 7 week old baby to

sleep " like a baby " . (I wonder where that

expression ever came from...).

For me it became a problem when my twins where about 3

months old I think and I still only got 3 hours sleep

a night, I just couldn't cope any more. That's when I

let them cry it out. It only took one heart-breaking

night (I stayed with them but didn't pick them up) and

they slept much better after that, still not through

the night but it stopped being a problem for me.

I don't think the casts caused him pain but I did

wonder if he found it more difficult to get rid of

trapped air etc because he couldn't pull his legs

up....

By the way, Alister who's wearing the DBB at night

sleeps much better than his twin .

Good luck,

with Alister and (*11 Sep 02)

--- wbb_lr lori.webb@...> wrote:

>

>

> Hi there,

> We are new to the group. My son Weston is 7 weeks

> old and just

> received his 5th and final cast this week. He is

> due to get his DBB

> this Thursday. My question is... Are all infants

> going through this

> as poor a sleeper as Weston? He has to be rocked to

> sleep for about

> an hour every time he goes down and seems to fight

> sleep. He is a

> very light sleeper and can be up for 6 hours at a

> time. Are any of

> you parents going through this? Our orthopedic

> doctor told me

> Weston has me " trained " and I need to let him cry it

> out. I just

> can't do it.. especially since I believe his foot

> (unilateral) is

> uncomfortable. Any insight would be helpful. Thank

> you!

>

>

>

>

>

>

>

___________________________________________________________ALL-NEW Yahoo!

Messenger - all new features - even more fun! http://uk.messenger.yahoo.com

[Guest guest]

Im glad to hear that Im not the only one that had those 'end of my

rope' times!

Lori

> You raise a good point Lori - there might very well come a time

when the crying is to the point the mother is at the end of her rope

and in that event I highly recommend you place the baby in a safe

place and get yourself out of ear shot for a few minutes. I used

to go turn on my washing machine and dryer (for the noise) and sit

on those and cry in our early months from Hell because Everett's

screaming was soooooooooooooooooooooooooooooooooooooooooooooooo non-

stop I became afraid of myself once in a while. Those wre very dark

times I thank God for pulling us through.

> s.

>

>

>

[Guest guest]

Hi,

I haven't been on the board much lately so I am about 200 messages

behind I think.

Anyway, (almost 14 months, LCF) is a HORRIBLE night

sleeper. She does well at naps but nights are terrible. She still

wakes to nurse every 1.5 - 2 hours! I take full blame for her poor

sleeping since she is still sleeping in our room and I know the

mommy guilt of feeling like nursing is her one safe zone is a big

downfall of mine. I did the CIO when she was about 10.5 months and

it worked for a couple of weeks but then she started waking more

often again and my DH had a fit that he wasn't getting sleep,

(neither was I mind you but that's another story!) so I started

nursing her again and within 3 days she was back to waking every

1.5 -2 hours all night long. I've been " dealing " with it but have

gotten to the end of my rope. I was planning to post an OT about

night weaning and I came across your post first. Last night I

finally had enough and let her CIO. She cried from 10:45p until

12:30am (with comfoting pats, etc about every 15-20 minutes if she

was getting too worked up), then she woke and cried for about 10

minutes at 2:30a and again at 4:40a. I am hoping tonight will get

better. I really wnat to move her out of our room but I tried doing

the room switch and the weaning at the same time a couple of months

ago and it was heartwrenching. Too many changes at once.

Anyhow, this got a bit lengthy. Just wanted to share my experience.

Marilouise

9/9/03, LCF, DBB 12-16/24

Owen and 3/20/99

>

>

> Hi there,

> We are new to the group. My son Weston is 7 weeks old and just

> received his 5th and final cast this week. He is due to get his

DBB

> this Thursday. My question is... Are all infants going through

this

> as poor a sleeper as Weston? He has to be rocked to sleep for

about

> an hour every time he goes down and seems to fight sleep. He is a

> very light sleeper and can be up for 6 hours at a time. Are any

of

> you parents going through this? Our orthopedic doctor told me

> Weston has me " trained " and I need to let him cry it out. I just

> can't do it.. especially since I believe his foot (unilateral) is

> uncomfortable. Any insight would be helpful. Thank you!

[Guest guest]

Lori, I'm not sure one has to do with the other, but Aidan too likes to be held

(alot) and rocked to sleep. We were also given the same advice. Rock them

right up until he is dozing off then put him in his bed. Let him cry it out

until he falls asleep. I know easier said then done. I've only let Aidan cry

himself to sleep once and it was awful. You feel like he's been through enough

already.

Speaking of the devil, I've just rocked him to sleep and as soon as I lay him

down he's screaming his head off. Oh well, off to the rescue.

I just keep telling myself, this too shall pass! :-)

wbb_lr lori.webb@...> wrote:

Hi there,

We are new to the group. My son Weston is 7 weeks old and just

received his 5th and final cast this week. He is due to get his DBB

this Thursday. My question is... Are all infants going through this

as poor a sleeper as Weston? He has to be rocked to sleep for about

an hour every time he goes down and seems to fight sleep. He is a

very light sleeper and can be up for 6 hours at a time. Are any of

you parents going through this? Our orthopedic doctor told me

Weston has me " trained " and I need to let him cry it out. I just

can't do it.. especially since I believe his foot (unilateral) is

uncomfortable. Any insight would be helpful. Thank you!

[Guest guest]

Oh my goodness, I feel your pain.

From the first cast at about 10 days until about 2 months ago, Elijah

was nursing every 1.5 - 2 hours. Drew was out to sea, I had ZERO

family around so I was an absolute zombie! He still in our room and

wakes up about 4 times a night. I think if he were in another room,

he'd wake up, fuss a little and go back to sleep but since I hear

every little noise Im already up and nursing him in our bed before I

realize what Im doing.

Im wrestling now w/ the idea of putting him in the room w/ his older

brother and just relying on the baby monitor. I havnt so far b/c if

he cries and wakes Ethan up, then I have TWO angry babies to deal

with and (go figure) Drew is out to sea again for another 2 months so

I dont have anyone to help.

As for nursing, Im hoping that moving him to the other room will take

care of the night nursing. I weaned my oldest at 1 yr. Ethan weaned

himself at 10 mon when I got pregant w/ Elijah and since he's the

caboose, Im sure I'll be nursing him well beyond a year.

Lori

Mom to 3 + Elijah 7 mon RCF (atypical) DBB 23/7

[Guest guest]

Oh my goodness, I feel your pain.

From the first cast at about 10 days until about 2 months ago, Elijah

was nursing every 1.5 - 2 hours. Drew was out to sea, I had ZERO

family around so I was an absolute zombie! He still in our room and

wakes up about 4 times a night. I think if he were in another room,

he'd wake up, fuss a little and go back to sleep but since I hear

every little noise Im already up and nursing him in our bed before I

realize what Im doing.

Im wrestling now w/ the idea of putting him in the room w/ his older

brother and just relying on the baby monitor. I havnt so far b/c if

he cries and wakes Ethan up, then I have TWO angry babies to deal

with and (go figure) Drew is out to sea again for another 2 months so

I dont have anyone to help.

As for nursing, Im hoping that moving him to the other room will take

care of the night nursing. I weaned my oldest at 1 yr. Ethan weaned

himself at 10 mon when I got pregant w/ Elijah and since he's the

caboose, Im sure I'll be nursing him well beyond a year.

Lori

Mom to 3 + Elijah 7 mon RCF (atypical) DBB 23/7

[Guest guest]

Lori,

I am quite sure you have hear this over and over, I have not gotten through all

the e-mails. I know how hard it is , my son is 3 1/2 months now. I went through

the same thing with my son, and we still have our days/nights! Things get a

little easier as they get older. It's hard adjusting to this world and having to

go theought the casting. As I was told, they don't know what's going on. We just

feel soooo sorry for them. In the begining I would alway's sooth him, but i had

to get to tghe point that my rest was important as well. Once you have fed them,

changed them, and played with them, you have to just let them cry it out, or you

will have no control. I have been to the point that I was crying, because at

times I felt this was all my fault. My son now takes one good nap during the

day, nut every evening between 5-8 he is crying on and off. I have just adjusted

to his pattern, and learned his ways. Start paying attention to the cries. This

stage is almost over! Good luck.

Liana mom to

Jaren 10/97

Jamia 4/99

n 7/04 RCF,DBB 23/7

Hundley jenhundley@...> wrote:

Lori, I'm not sure one has to do with the other, but Aidan too likes to be held

(alot) and rocked to sleep. We were also given the same advice. Rock them

right up until he is dozing off then put him in his bed. Let him cry it out

until he falls asleep. I know easier said then done. I've only let Aidan cry

himself to sleep once and it was awful. You feel like he's been through enough

already.

Speaking of the devil, I've just rocked him to sleep and as soon as I lay him

down he's screaming his head off. Oh well, off to the rescue.

I just keep telling myself, this too shall pass! :-)

wbb_lr lori.webb@...> wrote:

Hi there,

We are new to the group. My son Weston is 7 weeks old and just

received his 5th and final cast this week. He is due to get his DBB

this Thursday. My question is... Are all infants going through this

as poor a sleeper as Weston? He has to be rocked to sleep for about

an hour every time he goes down and seems to fight sleep. He is a

very light sleeper and can be up for 6 hours at a time. Are any of

you parents going through this? Our orthopedic doctor told me

Weston has me " trained " and I need to let him cry it out. I just

can't do it.. especially since I believe his foot (unilateral) is

uncomfortable. Any insight would be helpful. Thank you!

[Guest guest]

Good luck to you! It is tough isn't it? I can't wait to wake up in the

morning and realize I've slept through the night! How wonderful it will

be!!

_____

From: Lori

Sent: Monday, November 08, 2004 1:02 PM

To: nosurgery4clubfoot

Subject: Re: Are all CF kids poor sleepers?

Oh my goodness, I feel your pain.

From the first cast at about 10 days until about 2 months ago, Elijah

was nursing every 1.5 - 2 hours. Drew was out to sea, I had ZERO

family around so I was an absolute zombie! He still in our room and

wakes up about 4 times a night. I think if he were in another room,

he'd wake up, fuss a little and go back to sleep but since I hear

every little noise Im already up and nursing him in our bed before I

realize what Im doing.

Im wrestling now w/ the idea of putting him in the room w/ his older

brother and just relying on the baby monitor. I havnt so far b/c if

he cries and wakes Ethan up, then I have TWO angry babies to deal

with and (go figure) Drew is out to sea again for another 2 months so

I dont have anyone to help.

As for nursing, Im hoping that moving him to the other room will take

care of the night nursing. I weaned my oldest at 1 yr. Ethan weaned

himself at 10 mon when I got pregant w/ Elijah and since he's the

caboose, Im sure I'll be nursing him well beyond a year.

Lori

Mom to 3 + Elijah 7 mon RCF (atypical) DBB 23/7