Are all CF kids poor sleepers?

November 8, 2004

Good luck to you! It is tough isn't it? I can't wait to wake up in the

morning and realize I've slept through the night! How wonderful it will

be!!

_____

From: Lori

Sent: Monday, November 08, 2004 1:02 PM

To: nosurgery4clubfoot

Subject: Re: Are all CF kids poor sleepers?

Oh my goodness, I feel your pain.

From the first cast at about 10 days until about 2 months ago, Elijah

was nursing every 1.5 - 2 hours. Drew was out to sea, I had ZERO

family around so I was an absolute zombie! He still in our room and

wakes up about 4 times a night. I think if he were in another room,

he'd wake up, fuss a little and go back to sleep but since I hear

every little noise Im already up and nursing him in our bed before I

realize what Im doing.

Im wrestling now w/ the idea of putting him in the room w/ his older

brother and just relying on the baby monitor. I havnt so far b/c if

he cries and wakes Ethan up, then I have TWO angry babies to deal

with and (go figure) Drew is out to sea again for another 2 months so

I dont have anyone to help.

As for nursing, Im hoping that moving him to the other room will take

care of the night nursing. I weaned my oldest at 1 yr. Ethan weaned

himself at 10 mon when I got pregant w/ Elijah and since he's the

caboose, Im sure I'll be nursing him well beyond a year.

Lori

Mom to 3 + Elijah 7 mon RCF (atypical) DBB 23/7

November 8, 2004

I keep telling myself the same thing. It is so frustrating isn't it? I

keep telling myself.. he is only this little once and enjoy this rocking

with him. It is a bit hard at 3 am. Lori

_____

From: Hundley

Sent: Monday, November 08, 2004 12:08 PM

To: nosurgery4clubfoot

Subject: Re: Are all CF kids poor sleepers?

Lori, I'm not sure one has to do with the other, but Aidan too likes to be

held (alot) and rocked to sleep. We were also given the same advice. Rock

them right up until he is dozing off then put him in his bed. Let him cry

it out until he falls asleep. I know easier said then done. I've only let

Aidan cry himself to sleep once and it was awful. You feel like he's been

through enough already.

Speaking of the devil, I've just rocked him to sleep and as soon as I lay

him down he's screaming his head off. Oh well, off to the rescue.

I just keep telling myself, this too shall pass! :-)

wbb_lr lori.webb@...> wrote:

Hi there,

We are new to the group. My son Weston is 7 weeks old and just

received his 5th and final cast this week. He is due to get his DBB

this Thursday. My question is... Are all infants going through this

as poor a sleeper as Weston? He has to be rocked to sleep for about

an hour every time he goes down and seems to fight sleep. He is a

very light sleeper and can be up for 6 hours at a time. Are any of

you parents going through this? Our orthopedic doctor told me

Weston has me " trained " and I need to let him cry it out. I just

can't do it.. especially since I believe his foot (unilateral) is

uncomfortable. Any insight would be helpful. Thank you!

November 8, 2004

Our doctor recommended the Ferber book.. I believe it is called " Solving

Your Child's Sleep Problems " . I have read it and think we will use it when

Weston gets older. It may be helpful. I don't know.. like I said I haven't

used it yet. Good luck!! Lori

_____

From: Marilouise Tozier

Sent: Monday, November 08, 2004 11:40 AM

To: nosurgery4clubfoot

Subject: Re: Are all CF kids poor sleepers?

Hi,

I haven't been on the board much lately so I am about 200 messages

behind I think.

Anyway, (almost 14 months, LCF) is a HORRIBLE night

sleeper. She does well at naps but nights are terrible. She still

wakes to nurse every 1.5 - 2 hours! I take full blame for her poor

sleeping since she is still sleeping in our room and I know the

mommy guilt of feeling like nursing is her one safe zone is a big

downfall of mine. I did the CIO when she was about 10.5 months and

it worked for a couple of weeks but then she started waking more

often again and my DH had a fit that he wasn't getting sleep,

(neither was I mind you but that's another story!) so I started

nursing her again and within 3 days she was back to waking every

1.5 -2 hours all night long. I've been " dealing " with it but have

gotten to the end of my rope. I was planning to post an OT about

night weaning and I came across your post first. Last night I

finally had enough and let her CIO. She cried from 10:45p until

12:30am (with comfoting pats, etc about every 15-20 minutes if she

was getting too worked up), then she woke and cried for about 10

minutes at 2:30a and again at 4:40a. I am hoping tonight will get

better. I really wnat to move her out of our room but I tried doing

the room switch and the weaning at the same time a couple of months

ago and it was heartwrenching. Too many changes at once.

Anyhow, this got a bit lengthy. Just wanted to share my experience.

Marilouise

9/9/03, LCF, DBB 12-16/24

Owen and 3/20/99

>

> Hi there,

> We are new to the group. My son Weston is 7 weeks old and just

> received his 5th and final cast this week. He is due to get his

DBB

> this Thursday. My question is... Are all infants going through

this

> as poor a sleeper as Weston? He has to be rocked to sleep for

about

> an hour every time he goes down and seems to fight sleep. He is a

> very light sleeper and can be up for 6 hours at a time. Are any

of

> you parents going through this? Our orthopedic doctor told me

> Weston has me " trained " and I need to let him cry it out. I just

> can't do it.. especially since I believe his foot (unilateral) is

> uncomfortable. Any insight would be helpful. Thank you!

November 8, 2004

Thank you! I looked at some posts that were done awhile back that look very

helpful. Glad there are nice people like yourself to share words of wisdom.

Lori

_____

From:

Sent: Monday, November 08, 2004 9:59 AM

To: nosurgery4clubfoot

Subject: Re: Are all CF kids poor sleepers?

> Weston is due for the DBB this Thursday. What should we expect?

Is it

> terrible???

The DBB isn't bad and most kids take to it pretty easily. It usually

takes a couple of days for them to become accustom to kicking their

feet at the same time. I think it takes longer for the parents to

adjust then the baby. It takes a little practice to get used to

putting it on. There is a tips and tricks message if you search back

that you might want to read though for some tips on getting it on

easier and right. If you have questions feel free to post away.

Tori 1/30/04 bilateral atypical cf

November 8, 2004

Thank you! I looked at some posts that were done awhile back that look very

helpful. Glad there are nice people like yourself to share words of wisdom.

Lori

_____

From:

Sent: Monday, November 08, 2004 9:59 AM

To: nosurgery4clubfoot

Subject: Re: Are all CF kids poor sleepers?

> Weston is due for the DBB this Thursday. What should we expect?

Is it

> terrible???

The DBB isn't bad and most kids take to it pretty easily. It usually

takes a couple of days for them to become accustom to kicking their

feet at the same time. I think it takes longer for the parents to

adjust then the baby. It takes a little practice to get used to

putting it on. There is a tips and tricks message if you search back

that you might want to read though for some tips on getting it on

easier and right. If you have questions feel free to post away.

Tori 1/30/04 bilateral atypical cf

November 8, 2004

Twins! I can only imagine. Thanks for your input.

_____

From:

Sent: Monday, November 08, 2004 2:03 AM

To: nosurgery4clubfoot

Subject: Re: Are all CF kids poor sleepers?

Hi Lori,

The most useful advice (for me anyway) I got on poor

sleeping was this: " It's only a problem if you think

it's a problem. " That means as long as you're happy

rocking Weston to sleep it's not really a problem.

And I personally wouldn't expect a 7 week old baby to

sleep " like a baby " . (I wonder where that

expression ever came from...).

For me it became a problem when my twins where about 3

months old I think and I still only got 3 hours sleep

a night, I just couldn't cope any more. That's when I

let them cry it out. It only took one heart-breaking

night (I stayed with them but didn't pick them up) and

they slept much better after that, still not through

the night but it stopped being a problem for me.

I don't think the casts caused him pain but I did

wonder if he found it more difficult to get rid of

trapped air etc because he couldn't pull his legs

up....

By the way, Alister who's wearing the DBB at night

sleeps much better than his twin .

Good luck,

with Alister and (*11 Sep 02)

--- wbb_lr lori.webb@...> wrote:

>

> Hi there,

> We are new to the group. My son Weston is 7 weeks

> old and just

> received his 5th and final cast this week. He is

> due to get his DBB

> this Thursday. My question is... Are all infants

> going through this

> as poor a sleeper as Weston? He has to be rocked to

> sleep for about

> an hour every time he goes down and seems to fight

> sleep. He is a

> very light sleeper and can be up for 6 hours at a

> time. Are any of

> you parents going through this? Our orthopedic

> doctor told me

> Weston has me " trained " and I need to let him cry it

> out. I just

> can't do it.. especially since I believe his foot

> (unilateral) is

> uncomfortable. Any insight would be helpful. Thank

> you!

>

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November 8, 2004

Yes, enjoy it now, it will pass. There does come a time though when for

their own good, and yours, they must be taught to fall asleep on their own.

The DBB is a very long term deal, so the earlier they learn to sleep happily

with it, the better. My dh was the worst for responding to every peep in the

night until he was run ragged. I kept telling him but it wasn't until he was so

exhausted and our baby was too from waking up all night long that dh finally got

a clue and began to ignore the peeps, thus baby learned his peeping got him

nothing and eventually he began to sleep well through the night. You can

recognize a necessary problem cry VS an I just want to be picked up cuz I'm

awake cry.

s.