Guest guest Posted January 17, 2005 Report Share Posted January 17, 2005 Well, my trip to Mayo in Minn was sucessful. I was very impressed with Dr WHiteman. My medical records did not make it there, but i had copies of my biopsy results and a few other things. I never brought up that I think I have mito! He strongly suspects it based on my biopsy, symptoms and family history. He told me my biopsy was common with someone in the beginning stages of mito. Dr Whiteman talked about my CPT test and said that he is more lenient in diagnosing a CPT deficientcy. He goes up to 50%, where I am at, but says that does not explain all of my issues. He did more testing to follow up on this. I was unable to ask more about the report. He did a lot of talking and my head was spinning. He said that what I have is REAL and I am not crazy, but I may be told this, if I have not alredy encountered this. Validation!!! THis is what I have been thriving for. Finally!!!! Also, he is concerned about my children and may want to see them in the future. I had a skin biopsy, lots of blood work, EKG and echocardiogram. I will see him and neurology in a month. I go back Feb 16 and should know more then. I am already starting a list of questions to ask him. Dawn A Quote Link to comment Share on other sites More sharing options...
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