Re: in hospital - new symptoms (please explain them)

January 14, 2005

Dawn, Sending prayers and concern and sympathy.

I have stroke-like episodes that involve either slurred speech or thick,

labored speech during which I can manage to say single words but no one

understands. The speech problems coincide with mental confusion and extreme

weakness and sometimes my tongue turns numb. For me, most of these episodes

occurred during overnight fast or when my caloric intake was reduced Since

I've had J-tube feedings at night (July 2003) I have not had any abnormal

speech episodes or stroke-like episodes. But we are all different and this

may not be 's problem.

I would once again suggest looking at his new medications to see if any of

those are contributing to weakness. Muscle relaxants make my muscle weakness

much worse, including facial weakness, as can various other drugs. Some

antihistamines have also induced stroke-like episodes for me. Whenever my

symptoms take an unexpected turn for the worse, one of the first things we

consider is whether any of my medications may be contributing. We are

especially suspicious if new symptoms develop in the weeks following a new

drug. Mito patients may be more prone to adverse drug reactions, and that is

true for me.

Sorry I can't offer more. I certainly hope you will be able to get the help

you need.

Barbara

_____

From: aarondmccombs29

Sent: Friday, January 14, 2005 10:18 AM

To:

Subject: in hospital - new symptoms (please explain them)

Hello all -

has been having some quivering jaw/chattering teeth episodes

the last few weeks, the last week his teeth have chattered almost

constantly. He called me at work and told me that I needed to come

home. His speech was slurred and he was having trouble forming the

words to say to me. I called 911 and we took him to the hospital.

The Doctors here in Dayton are NOT familiar w/mito and ran several

tests to check to see if he had a stroke. I gave them Dr.

Simpson's number early this morning so they could call him and get

the answers that they are looking for and it took them all day to

call. Then, they just had his records faxed over (I am very very

angry over this). He has been in the hospital since yesterday and

they've run EKG's, bloodwork, corroderal (sorry of spelling) artery

ultrasound to check to see if he has a blood clot that is impairing

his speech. Although he has no memory or " brain " problems, he still

is having great difficulty forming words. The speech therapist said

she thinks the muscles in his face are weak(well DUH!!). then a

rehab DR came in and tested 's reflexes and he did a reflex

test on his foot he rolled his foot around in a circle and pushed it

back quickly and let go. 's foot involuntarily bounced back and

forth (much to our shock since we've never seen it do that before)

Rehab doc said it wasn't normal and it's call Clonis (sorry for

spelling). We are extremely worried that his speech won't return to

normal, we go to Dr. S. on the 18th and he goes for an MRI tomorrow

so please send me back some information if there is anyone who has

experienced these symptoms and can share some insight for me. I

would appreciate it greatly and so would . thanks for your

help.

Dawn McCombs

McCombs

1 5:9

Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail

is entirely responsible for its content. List members are reminded of their

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_____

January 14, 2005

>

> Reply-To:

> Date: Fri, 14 Jan 2005 16:17:38 -0000

> To:

> Subject: in hospital - new symptoms (please explain them)

>

> Hello all -

>

> has been having some quivering jaw/chattering teeth episodes

> the last few weeks, the last week his teeth have chattered almost

> constantly. He called me at work and told me that I needed to come

> home. His speech was slurred and he was having trouble forming the

> words to say to me. I called 911 and we took him to the hospital.

> The Doctors here in Dayton are NOT familiar w/mito and ran several

> tests to check to see if he had a stroke. I gave them Dr.

> Simpson's number early this morning so they could call him and get

> the answers that they are looking for and it took them all day to

> call. Then, they just had his records faxed over (I am very very

> angry over this). He has been in the hospital since yesterday and

> they've run EKG's, bloodwork, corroderal (sorry of spelling) artery

> ultrasound to check to see if he has a blood clot that is impairing

> his speech. Although he has no memory or " brain " problems, he still

> is having great difficulty forming words. The speech therapist said

> she thinks the muscles in his face are weak(well DUH!!). then a

> rehab DR came in and tested 's reflexes and he did a reflex

> test on his foot he rolled his foot around in a circle and pushed it

> back quickly and let go. 's foot involuntarily bounced back and

> forth (much to our shock since we've never seen it do that before)

> Rehab doc said it wasn't normal and it's call Clonis (sorry for

> spelling). We are extremely worried that his speech won't return to

> normal, we go to Dr. S. on the 18th and he goes for an MRI tomorrow

> so please send me back some information if there is anyone who has

> experienced these symptoms and can share some insight for me. I

> would appreciate it greatly and so would . thanks for your

> help.

>

> Dawn McCombs

> McCombs

> 1 5:9

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

> ----------------------------------------------------------------------------

>

January 14, 2005