Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 In a message dated 1/27/2005 11:07:33 AM Eastern Standard Time, mom2colemankidz3@... writes: 's mito doc noticed lots of " quirky " thing s about my family's health and I had some blodwork done, and lo and behold, I have a carnitine deficiency like my daughter. I also found out I was diabetic and other tests 2 weeks ago showed I have esophageal dysmotility, aspiration pneumonia, reflux, hiatal hernia, etc. Hi Heidi, Welcome to the group. I hope you can get lots of support for yourself here. I know you are so busy taking care of that your own needs often come second, but I'm glad to hear that you're getting yourself checked out too. You're in good hands with Dr K's team and are lucky to have them watching out for you too. Hugs, Malisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 Heidi Welcome to the group. I'm glad you have come to find out how other mom's of sick kids cope when sick yourself. I can't help you out with this, but there are others who I am sure could. laurie > > Reply-To: > Date: Thu, 27 Jan 2005 12:44:28 -0000 > To: > Subject: Heidi introduction > > > > Hi, my name is Heidi and I found out about this group through the > general mito group. I'm mom to 3 beautiful children, including > , who is very involved. She has a very strong clinical > diagnosis based on the cluster of other diagnoses she has. We don't > have a specific diagnosis yet, and she isn't stable enough to go to > Atlanta for a fresh muscle biopsy. 's mito doc noticed lots > of " quirky " thing s about my family's health and I had some blodwork > done, and lo and behold, I have a carnitine deficiency like my > daughter. I also found out I was diabetic and other tests 2 weeks > ago showed I have esophageal dysmotility, aspiration pneumonia, > reflux, hiatal hernia, etc. Lots of things would make sense with a > mito diagnosis, but I'm really having a hard time thinking about it. > I'm also changing GP's because my doctor (who I've seen since I > stopped seeing a pediatrician, lol) suggested that 's illness > was too stressful on me and my family and that she should be in > hospice. Not OK. > > Hi to any other mommies from the mito list. If you don't mind, I'll > probably lurk for a while to find out how other people cope with sick > kiddos while you don't feel too hot yourselves. > > Take care > Heidi > www.caringbridge.org/ma/heather > > > > > > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail is > entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with their > physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > ---------------------------------------------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 Hi Heidi, I would also like to welcome you to the group you will find lots of support as I have . Donna K ---- Malilibear@... wrote: > > > In a message dated 1/27/2005 11:07:33 AM Eastern Standard Time, > mom2colemankidz3@... writes: > > 's mito doc noticed lots > of " quirky " thing s about my family's health and I had some blodwork > done, and lo and behold, I have a carnitine deficiency like my > daughter. I also found out I was diabetic and other tests 2 weeks > ago showed I have esophageal dysmotility, aspiration pneumonia, > reflux, hiatal hernia, etc. > > > > Hi Heidi, > Welcome to the group. I hope you can get lots of support for yourself here. > I know you are so busy taking care of that your own needs often come > second, but I'm glad to hear that you're getting yourself checked out too. > You're in good hands with Dr K's team and are lucky to have them watching out > for you too. > Hugs, Malisa > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 Heidi, welcome to the group. I have mito and so do all three of my kids. you will find this is a great and special group. Quote Link to comment Share on other sites More sharing options...
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