Guest guest Posted April 11, 2005 Report Share Posted April 11, 2005 Most meds used for general anesthesia work through the mitochondria and damage them in the process, so...... if you already have damaged ones to begin with, these will increase the number of damaged ones and bring on symptoms with a bang in a lot of people that have been living with soft symptoms their entire life, but the stress of surgery both on the body itself and the anesthesia problems tend to bring things out in a manner that you KNOW something isn't right. Mito is a metabolic problem and steroid impact the bodies metabolism, so that can become an issue with some people too. whoewe2002 wrote: >Sorry (for the first blank post - my hand slipped!) > >Just wanted to add that my original symptoms were sudden onset within >a couple of weeks of taking a medication w/steroid. I also underwent >a surgery within those same couple of weeks (so it complicated the >picture). But within a those couple of weeks I went from being normal >to having the most bizarre pains - everywhere. Diagnosis.. FMS. > >I used a corticosteroid medication more recently and within a few days >of starting that I suddenly had respiratory problems. (I may be slow - > but I think I'm starting to learn what to stay away from). > > >Maggie > > > >> >> >>>I have long believed that my mito (no diagnosis as of yet) >>>is 'triggered' by events in my life. It usually gets worse after >>> >>> >I > > >>>have had problems with my pacer. I have experienced so many >>>episodes of hypoxia, I am sure that has something to do with it. >>>Before this last big crash which has lasted over 2 years. I went >>> >>> >in > > >>>to my cardiologist and told him that I thought that I had a crack >>> >>> >in > > >>>one of my leads. >>> >>> > > > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2005 Report Share Posted April 11, 2005 Thank you all who replied to the question of triggers. I am still digesting the information. The reason I ask this, of course, is to see if we can try to avoid some of these triggers, because I think they can not only make the disease obvious, but also make it worse for us as we go along. I am especially concerned about meds. If we have choices about some of them, then it is good to have as much information as possible. Again, thank you all. Sunny > > Kim, > > Here's some info on Advair: > > http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a699063.html > > http://www.advair.com/ > > There seem to be a lot of potential side effects - it's hard for us > with mito to figure out if we're getting a side effect from a drug, > or just worsening symptoms. > > Did they try you on albuterol first? My son is tentatively diagnosed > with activity-induced asthma, and he just has albuterol right now. > But he is also on antibiotics, and his peak air flow went up 50% > after being on the antibiotics for two weeks (he is still on them > now, will be four weeks total at least). Only used the albuterol > inhaler about three times total. They really don't think he has > asthma, just an underlying infection that was missed by several > doctors over the past few months. Interestingly, he had > bronchiolitis as a baby. I think the doctors are figuring out that > my family can have bacterial infections and no fever (for example, > the baby had bacterial pneumonia and no fever). > > Take care, > RH > > > > > > >> > > > >> > > > >>>I have long believed that my mito (no diagnosis as of yet) > > > >>>is 'triggered' by events in my life. It usually gets worse > > after > > > >>> > > > >>> > > > >I > > > > > > > > > > > >>>have had problems with my pacer. I have experienced so many > > > >>>episodes of hypoxia, I am sure that has something to do with > > it. > > > >>>Before this last big crash which has lasted over 2 years. I > > went > > > >>> > > > >>> > > > >in > > > > > > > > > > > >>>to my cardiologist and told him that I thought that I had a > > crack > > > >>> > > > >>> > > > >in > > > > > > > > > > > >>>one of my leads. > > > >>> > > > >>> > > > > > > > > > > > > > > > > > > > > > > > > > > > >Medical advice, information, opinions, data and statements > > contained herein are not necessarily those of the list moderators. > > The author of this e mail is entirely responsible for its content. > > List members are reminded of their responsibility to evaluate the > > content of the postings and consult with their physicians regarding > > changes in their own treatment. > > > > > > > >Personal attacks are not permitted on the list and anyone who > > sends one is automatically moderated or removed depending on the > > severity of the attack. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2005 Report Share Posted April 11, 2005 Thank you all who replied to the question of triggers. I am still digesting the information. The reason I ask this, of course, is to see if we can try to avoid some of these triggers, because I think they can not only make the disease obvious, but also make it worse for us as we go along. I am especially concerned about meds. If we have choices about some of them, then it is good to have as much information as possible. Again, thank you all. Sunny > > Kim, > > Here's some info on Advair: > > http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a699063.html > > http://www.advair.com/ > > There seem to be a lot of potential side effects - it's hard for us > with mito to figure out if we're getting a side effect from a drug, > or just worsening symptoms. > > Did they try you on albuterol first? My son is tentatively diagnosed > with activity-induced asthma, and he just has albuterol right now. > But he is also on antibiotics, and his peak air flow went up 50% > after being on the antibiotics for two weeks (he is still on them > now, will be four weeks total at least). Only used the albuterol > inhaler about three times total. They really don't think he has > asthma, just an underlying infection that was missed by several > doctors over the past few months. Interestingly, he had > bronchiolitis as a baby. I think the doctors are figuring out that > my family can have bacterial infections and no fever (for example, > the baby had bacterial pneumonia and no fever). > > Take care, > RH > > > > > > >> > > > >> > > > >>>I have long believed that my mito (no diagnosis as of yet) > > > >>>is 'triggered' by events in my life. It usually gets worse > > after > > > >>> > > > >>> > > > >I > > > > > > > > > > > >>>have had problems with my pacer. I have experienced so many > > > >>>episodes of hypoxia, I am sure that has something to do with > > it. > > > >>>Before this last big crash which has lasted over 2 years. I > > went > > > >>> > > > >>> > > > >in > > > > > > > > > > > >>>to my cardiologist and told him that I thought that I had a > > crack > > > >>> > > > >>> > > > >in > > > > > > > > > > > >>>one of my leads. > > > >>> > > > >>> > > > > > > > > > > > > > > > > > > > > > > > > > > > >Medical advice, information, opinions, data and statements > > contained herein are not necessarily those of the list moderators. > > The author of this e mail is entirely responsible for its content. > > List members are reminded of their responsibility to evaluate the > > content of the postings and consult with their physicians regarding > > changes in their own treatment. > > > > > > > >Personal attacks are not permitted on the list and anyone who > > sends one is automatically moderated or removed depending on the > > severity of the attack. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2005 Report Share Posted June 7, 2005 Hi, I'm wondering if your asthma/advair inhaler is similar to my spirvia handi/haler for my COPD? I put a greenish capsule into the handi/haler, then push a button to poke holes in the capsule then inhale the contents of the powder in the capsule. It has to be very expensive as my Cigna co-pay is $32.00 and I'm not all that impressed with as it at times a short time after inhaling the powder I start coughing very hard?? Who knows?? I use my albuterol inhaler four times daily also. Dolores ohgminion rakshasis@...> wrote:This is an asthma/Advair follow-up. I went on Advair for a week, and just felt terrible on it - jumpy, nervous, anxious. Now I am on albuterol and Pulmocort. The latter has a similar ingredient to Advair (an inhaled steroid), but the powder is MUCH finer, and I don't feel like I'm just eating the powder instead of inhaling it. I am a weird case in that my PFT's are still pretty good (over 80% for the most part), but they had been over 100% so they are concerned. On my experience as a patient, I certainly recommend that everyone with mito get baseline PFT's, even if they aren't having breathing problems right now, it was important that I had the baseline levels so the doctor knows that 80% function is bad for me. Take care, RH > > > > >> > > > > >> > > > > >>>I have long believed that my mito (no diagnosis as of yet) > > > > >>>is 'triggered' by events in my life. It usually gets worse > > > after > > > > >>> > > > > >>> > > > > >I > > > > > > > > > > > > > > >>>have had problems with my pacer. I have experienced so > many > > > > >>>episodes of hypoxia, I am sure that has something to do > with > > > it. > > > > >>>Before this last big crash which has lasted over 2 years. > I > > > went > > > > >>> > > > > >>> > > > > >in > > > > > > > > > > > > > > >>>to my cardiologist and told him that I thought that I had a > > > crack > > > > >>> > > > > >>> > > > > >in > > > > > > > > > > > > > > >>>one of my leads. > > > > >>> > > > > >>> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Medical advice, information, opinions, data and statements > > > contained herein are not necessarily those of the list > moderators. > > > The author of this e mail is entirely responsible for its > content. > > > List members are reminded of their responsibility to evaluate > the > > > content of the postings and consult with their physicians > regarding > > > changes in their own treatment. > > > > > > > > > >Personal attacks are not permitted on the list and anyone who > > > sends one is automatically moderated or removed depending on the > > > severity of the attack. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2005 Report Share Posted June 7, 2005 Hi, I'm wondering if your asthma/advair inhaler is similar to my spirvia handi/haler for my COPD? I put a greenish capsule into the handi/haler, then push a button to poke holes in the capsule then inhale the contents of the powder in the capsule. It has to be very expensive as my Cigna co-pay is $32.00 and I'm not all that impressed with as it at times a short time after inhaling the powder I start coughing very hard?? Who knows?? I use my albuterol inhaler four times daily also. Dolores ohgminion rakshasis@...> wrote:This is an asthma/Advair follow-up. I went on Advair for a week, and just felt terrible on it - jumpy, nervous, anxious. Now I am on albuterol and Pulmocort. The latter has a similar ingredient to Advair (an inhaled steroid), but the powder is MUCH finer, and I don't feel like I'm just eating the powder instead of inhaling it. I am a weird case in that my PFT's are still pretty good (over 80% for the most part), but they had been over 100% so they are concerned. On my experience as a patient, I certainly recommend that everyone with mito get baseline PFT's, even if they aren't having breathing problems right now, it was important that I had the baseline levels so the doctor knows that 80% function is bad for me. Take care, RH > > > > >> > > > > >> > > > > >>>I have long believed that my mito (no diagnosis as of yet) > > > > >>>is 'triggered' by events in my life. It usually gets worse > > > after > > > > >>> > > > > >>> > > > > >I > > > > > > > > > > > > > > >>>have had problems with my pacer. I have experienced so > many > > > > >>>episodes of hypoxia, I am sure that has something to do > with > > > it. > > > > >>>Before this last big crash which has lasted over 2 years. > I > > > went > > > > >>> > > > > >>> > > > > >in > > > > > > > > > > > > > > >>>to my cardiologist and told him that I thought that I had a > > > crack > > > > >>> > > > > >>> > > > > >in > > > > > > > > > > > > > > >>>one of my leads. > > > > >>> > > > > >>> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Medical advice, information, opinions, data and statements > > > contained herein are not necessarily those of the list > moderators. > > > The author of this e mail is entirely responsible for its > content. > > > List members are reminded of their responsibility to evaluate > the > > > content of the postings and consult with their physicians > regarding > > > changes in their own treatment. > > > > > > > > > >Personal attacks are not permitted on the list and anyone who > > > sends one is automatically moderated or removed depending on the > > > severity of the attack. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Dolores That sounds like what my son use to take (Intal was the brand). It is meant to coat the mast cells which cause the antibody response to allergens. It is a preventative that has to be taken on a regular basis to do any good. It is not intended as a rescue inhaler like the albuteral and does sometimes cause coughing - at least it did for him. I'm not sure how it would work for COPD if it is the same. I do know that the Intal came out in a form to be used with a nebulizing machine and it was much better for him and didn't cause the coughing. laurie > Hi, I'm wondering if your asthma/advair inhaler is similar to my spirvia handi/haler for my COPD? I put a greenish capsule into the handi/haler, then push a button to poke holes in the capsule then inhale the contents of the powder in the capsule. It has to be very expensive as my Cigna co-pay is $32.00 and I'm not all that impressed with as it at times a short time after inhaling the powder I start coughing very hard?? Who knows?? I use my albuterol inhaler four times daily also. Dolores > > ohgminion rakshasis@...> wrote:This is an asthma/Advair follow-up. I went on Advair for a week, and > just felt terrible on it - jumpy, nervous, anxious. Now I am on > albuterol and Pulmocort. The latter has a similar ingredient to > Advair (an inhaled steroid), but the powder is MUCH finer, and I > don't feel like I'm just eating the powder instead of inhaling it. > > I am a weird case in that my PFT's are still pretty good (over 80% > for the most part), but they had been over 100% so they are > concerned. > > On my experience as a patient, I certainly recommend that everyone > with mito get baseline PFT's, even if they aren't having breathing > problems right now, it was important that I had the baseline levels > so the doctor knows that 80% function is bad for me. > > Take care, > RH > > > > > > > > >> > > > > > >> > > > > > >>>I have long believed that my mito (no diagnosis as of yet) > > > > > >>>is 'triggered' by events in my life. It usually gets > worse > > > > after > > > > > >>> > > > > > >>> > > > > > >I > > > > > > > > > > > > > > > > > >>>have had problems with my pacer. I have experienced so > > many > > > > > >>>episodes of hypoxia, I am sure that has something to do > > with > > > > it. > > > > > >>>Before this last big crash which has lasted over 2 years. > > I > > > > went > > > > > >>> > > > > > >>> > > > > > >in > > > > > > > > > > > > > > > > > >>>to my cardiologist and told him that I thought that I had > a > > > > crack > > > > > >>> > > > > > >>> > > > > > >in > > > > > > > > > > > > > > > > > >>>one of my leads. > > > > > >>> > > > > > >>> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Medical advice, information, opinions, data and statements > > > > contained herein are not necessarily those of the list > > moderators. > > > > The author of this e mail is entirely responsible for its > > content. > > > > List members are reminded of their responsibility to evaluate > > the > > > > content of the postings and consult with their physicians > > regarding > > > > changes in their own treatment. > > > > > > > > > > > >Personal attacks are not permitted on the list and anyone > who > > > > sends one is automatically moderated or removed depending on > the > > > > severity of the attack. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Oops, I hit the wrong key it's $62.00 not $32.00. My Grandson nearly had a spell when he gave Osco drug my check for $62.00 and I only had one prescription. Usually they deliver to me but this one didn't get the refill OK's so he got it for me. I had the empty disk thing laying on my coffee table and he wanted to know what I was going to do with it and when I told him just throw it away. He promptly got two pieces of printer paper from me and wrote a note on one piece and taped the empty inhaler to the other one his note read: " If anyone has one of these in your office that you don't have a patient that needs it, please bring it to Jeff as his Grandmother uses this kind and also Albuterol " . He got three Sprivia Handi-halers and one Albuterol inhaler, he said that the drug reps just leave samples for no reason at all?? I will have Cigna thru 2004 and then it's Medicare?? Dolores ohgminion rakshasis@...> wrote: Spirvia is tiotropium, a long-acting bronchodilator, and Advair is fluticasone and salmetrol. The first drug in Advair is a corticosteroid; the second drug in Advair is a long-acting bronchodilator. I've seen posting about people taking both of them. Pulmocort has a corticosteroid as well, but no bronchodilator. At this point the Pulmocort and albuterol are working well for me. Yes, the Advair made me cough a lot after taking it as well. The Advair is in a " Diskus " format - it's a half-inch thick circle that has the number of charges left, and a dial to rotate to pierce each medication pocket. It sounds like pretty much the same way to take it. You're lucky you have only a $32 copay - I have some medications that are hundreds of dollars per month, the copay is limited to $100 luckily. I'm running about $300 per month on prescriptions alone at this point. Unfortunately our benefit bank is set lower than we need, we'll correct that next year as we'll easily meet $5,000 of medical and prescription charges. Take care, RH > > > > > >> > > > > > >> > > > > > >>>I have long believed that my mito (no diagnosis as of yet) > > > > > >>>is 'triggered' by events in my life. It usually gets > worse > > > > after > > > > > >>> > > > > > >>> > > > > > >I > > > > > > > > > > > > > > > > > >>>have had problems with my pacer. I have experienced so > > many > > > > > >>>episodes of hypoxia, I am sure that has something to do > > with > > > > it. > > > > > >>>Before this last big crash which has lasted over 2 years. > > I > > > > went > > > > > >>> > > > > > >>> > > > > > >in > > > > > > > > > > > > > > > > > >>>to my cardiologist and told him that I thought that I had > a > > > > crack > > > > > >>> > > > > > >>> > > > > > >in > > > > > > > > > > > > > > > > > >>>one of my leads. > > > > > >>> > > > > > >>> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Medical advice, information, opinions, data and statements > > > > contained herein are not necessarily those of the list > > moderators. > > > > The author of this e mail is entirely responsible for its > > content. > > > > List members are reminded of their responsibility to evaluate > > the > > > > content of the postings and consult with their physicians > > regarding > > > > changes in their own treatment. > > > > > > > > > > > >Personal attacks are not permitted on the list and anyone > who > > > > sends one is automatically moderated or removed depending on > the > > > > severity of the attack. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 I use the Spiriva Handi-haler at betime, the albuterol inhaler four times daily, 400mg Humidid Expectorant (OTC) twice daily and the Zicam Spray Mist (OTC) that my Grandson got for me if I have very bad coughing spells. One of the Verizon Programmers from India I worked with when Blue Cross was the Fiscal Agent for Kansas Medicaid Account from 1996 thru 2002 had a great way of stopping my coughing, he would press on something on the back of my neck. It was handy working across the aisle from him for six years. It sounds like Kansas is under a tornado watch, June 8th is the anniversary of out major, major tornado. Dolores Laurie Fitzgerald laurie.fitzgerald@...> wrote:Dolores That sounds like what my son use to take (Intal was the brand). It is meant to coat the mast cells which cause the antibody response to allergens. It is a preventative that has to be taken on a regular basis to do any good. It is not intended as a rescue inhaler like the albuteral and does sometimes cause coughing - at least it did for him. I'm not sure how it would work for COPD if it is the same. I do know that the Intal came out in a form to be used with a nebulizing machine and it was much better for him and didn't cause the coughing. laurie > Hi, I'm wondering if your asthma/advair inhaler is similar to my spirvia handi/haler for my COPD? I put a greenish capsule into the handi/haler, then push a button to poke holes in the capsule then inhale the contents of the powder in the capsule. It has to be very expensive as my Cigna co-pay is $32.00 and I'm not all that impressed with as it at times a short time after inhaling the powder I start coughing very hard?? Who knows?? I use my albuterol inhaler four times daily also. Dolores > > ohgminion rakshasis@...> wrote:This is an asthma/Advair follow-up. I went on Advair for a week, and > just felt terrible on it - jumpy, nervous, anxious. Now I am on > albuterol and Pulmocort. The latter has a similar ingredient to > Advair (an inhaled steroid), but the powder is MUCH finer, and I > don't feel like I'm just eating the powder instead of inhaling it. > > I am a weird case in that my PFT's are still pretty good (over 80% > for the most part), but they had been over 100% so they are > concerned. > > On my experience as a patient, I certainly recommend that everyone > with mito get baseline PFT's, even if they aren't having breathing > problems right now, it was important that I had the baseline levels > so the doctor knows that 80% function is bad for me. > > Take care, > RH > > > > > > > > >> > > > > > >> > > > > > >>>I have long believed that my mito (no diagnosis as of yet) > > > > > >>>is 'triggered' by events in my life. It usually gets > worse > > > > after > > > > > >>> > > > > > >>> > > > > > >I > > > > > > > > > > > > > > > > > >>>have had problems with my pacer. I have experienced so > > many > > > > > >>>episodes of hypoxia, I am sure that has something to do > > with > > > > it. > > > > > >>>Before this last big crash which has lasted over 2 years. > > I > > > > went > > > > > >>> > > > > > >>> > > > > > >in > > > > > > > > > > > > > > > > > >>>to my cardiologist and told him that I thought that I had > a > > > > crack > > > > > >>> > > > > > >>> > > > > > >in > > > > > > > > > > > > > > > > > >>>one of my leads. > > > > > >>> > > > > > >>> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Medical advice, information, opinions, data and statements > > > > contained herein are not necessarily those of the list > > moderators. > > > > The author of this e mail is entirely responsible for its > > content. > > > > List members are reminded of their responsibility to evaluate > > the > > > > content of the postings and consult with their physicians > > regarding > > > > changes in their own treatment. > > > > > > > > > > > >Personal attacks are not permitted on the list and anyone > who > > > > sends one is automatically moderated or removed depending on > the > > > > severity of the attack. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 I use the Spiriva Handi-haler at betime, the albuterol inhaler four times daily, 400mg Humidid Expectorant (OTC) twice daily and the Zicam Spray Mist (OTC) that my Grandson got for me if I have very bad coughing spells. One of the Verizon Programmers from India I worked with when Blue Cross was the Fiscal Agent for Kansas Medicaid Account from 1996 thru 2002 had a great way of stopping my coughing, he would press on something on the back of my neck. It was handy working across the aisle from him for six years. It sounds like Kansas is under a tornado watch, June 8th is the anniversary of out major, major tornado. Dolores Laurie Fitzgerald laurie.fitzgerald@...> wrote:Dolores That sounds like what my son use to take (Intal was the brand). It is meant to coat the mast cells which cause the antibody response to allergens. It is a preventative that has to be taken on a regular basis to do any good. It is not intended as a rescue inhaler like the albuteral and does sometimes cause coughing - at least it did for him. I'm not sure how it would work for COPD if it is the same. I do know that the Intal came out in a form to be used with a nebulizing machine and it was much better for him and didn't cause the coughing. laurie > Hi, I'm wondering if your asthma/advair inhaler is similar to my spirvia handi/haler for my COPD? I put a greenish capsule into the handi/haler, then push a button to poke holes in the capsule then inhale the contents of the powder in the capsule. It has to be very expensive as my Cigna co-pay is $32.00 and I'm not all that impressed with as it at times a short time after inhaling the powder I start coughing very hard?? Who knows?? I use my albuterol inhaler four times daily also. Dolores > > ohgminion rakshasis@...> wrote:This is an asthma/Advair follow-up. I went on Advair for a week, and > just felt terrible on it - jumpy, nervous, anxious. Now I am on > albuterol and Pulmocort. The latter has a similar ingredient to > Advair (an inhaled steroid), but the powder is MUCH finer, and I > don't feel like I'm just eating the powder instead of inhaling it. > > I am a weird case in that my PFT's are still pretty good (over 80% > for the most part), but they had been over 100% so they are > concerned. > > On my experience as a patient, I certainly recommend that everyone > with mito get baseline PFT's, even if they aren't having breathing > problems right now, it was important that I had the baseline levels > so the doctor knows that 80% function is bad for me. > > Take care, > RH > > > > > > > > >> > > > > > >> > > > > > >>>I have long believed that my mito (no diagnosis as of yet) > > > > > >>>is 'triggered' by events in my life. It usually gets > worse > > > > after > > > > > >>> > > > > > >>> > > > > > >I > > > > > > > > > > > > > > > > > >>>have had problems with my pacer. I have experienced so > > many > > > > > >>>episodes of hypoxia, I am sure that has something to do > > with > > > > it. > > > > > >>>Before this last big crash which has lasted over 2 years. > > I > > > > went > > > > > >>> > > > > > >>> > > > > > >in > > > > > > > > > > > > > > > > > >>>to my cardiologist and told him that I thought that I had > a > > > > crack > > > > > >>> > > > > > >>> > > > > > >in > > > > > > > > > > > > > > > > > >>>one of my leads. > > > > > >>> > > > > > >>> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Medical advice, information, opinions, data and statements > > > > contained herein are not necessarily those of the list > > moderators. > > > > The author of this e mail is entirely responsible for its > > content. > > > > List members are reminded of their responsibility to evaluate > > the > > > > content of the postings and consult with their physicians > > regarding > > > > changes in their own treatment. > > > > > > > > > > > >Personal attacks are not permitted on the list and anyone > who > > > > sends one is automatically moderated or removed depending on > the > > > > severity of the attack. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Dolores Have you tried drinking warm water when starting to cough. It is the first step to take in an asthma attack and might work for you. I use hot tap water. laurie > I use the Spiriva Handi-haler at betime, the albuterol inhaler four times daily, 400mg Humidid Expectorant (OTC) twice daily and the Zicam Spray Mist (OTC) that my Grandson got for me if I have very bad coughing spells. One of the Verizon Programmers from India I worked with when Blue Cross was the Fiscal Agent for Kansas Medicaid Account from 1996 thru 2002 had a great way of stopping my coughing, he would press on something on the back of my neck. It was handy working across the aisle from him for six years. It sounds like Kansas is under a tornado watch, June 8th is the anniversary of out major, major tornado. Dolores > > Laurie Fitzgerald laurie.fitzgerald@...> wrote:Dolores > > That sounds like what my son use to take (Intal was the brand). It is > meant to coat the mast cells which cause the antibody response to > allergens. It is a preventative that has to be taken on a regular > basis to do any good. It is not intended as a rescue inhaler like the > albuteral and does sometimes cause coughing - at least it did for him. > I'm not sure how it would work for COPD if it is the same. I do know > that the Intal came out in a form to be used with a nebulizing machine > and it was much better for him and didn't cause the coughing. > > laurie > > > > Hi, I'm wondering if your asthma/advair inhaler is similar to my spirvia handi/haler for my COPD? I put a greenish capsule into the handi/haler, then push a button to poke holes in the capsule then inhale the contents of the powder in the capsule. It has to be very expensive as my Cigna co-pay is $32.00 and I'm not all that impressed with as it at times a short time after inhaling the powder I start coughing very hard?? Who knows?? I use my albuterol inhaler four times daily also. Dolores > > > > ohgminion rakshasis@...> wrote:This is an asthma/Advair follow-up. I went on Advair for a week, and > > just felt terrible on it - jumpy, nervous, anxious. Now I am on > > albuterol and Pulmocort. The latter has a similar ingredient to > > Advair (an inhaled steroid), but the powder is MUCH finer, and I > > don't feel like I'm just eating the powder instead of inhaling it. > > > > I am a weird case in that my PFT's are still pretty good (over 80% > > for the most part), but they had been over 100% so they are > > concerned. > > > > On my experience as a patient, I certainly recommend that everyone > > with mito get baseline PFT's, even if they aren't having breathing > > problems right now, it was important that I had the baseline levels > > so the doctor knows that 80% function is bad for me. > > > > Take care, > > RH > > > > > > > > > > > > >> > > > > > > >> > > > > > > >>>I have long believed that my mito (no diagnosis as of yet) > > > > > > >>>is 'triggered' by events in my life. It usually gets > > worse > > > > > after > > > > > > >>> > > > > > > >>> > > > > > > >I > > > > > > > > > > > > > > > > > > > > >>>have had problems with my pacer. I have experienced so > > > many > > > > > > >>>episodes of hypoxia, I am sure that has something to do > > > with > > > > > it. > > > > > > >>>Before this last big crash which has lasted over 2 years. > > > I > > > > > went > > > > > > >>> > > > > > > >>> > > > > > > >in > > > > > > > > > > > > > > > > > > > > >>>to my cardiologist and told him that I thought that I had > > a > > > > > crack > > > > > > >>> > > > > > > >>> > > > > > > >in > > > > > > > > > > > > > > > > > > > > >>>one of my leads. > > > > > > >>> > > > > > > >>> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Medical advice, information, opinions, data and statements > > > > > contained herein are not necessarily those of the list > > > moderators. > > > > > The author of this e mail is entirely responsible for its > > > content. > > > > > List members are reminded of their responsibility to evaluate > > > the > > > > > content of the postings and consult with their physicians > > > regarding > > > > > changes in their own treatment. > > > > > > > > > > > > > >Personal attacks are not permitted on the list and anyone > > who > > > > > sends one is automatically moderated or removed depending on > > the > > > > > severity of the attack. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Dolores Have you tried drinking warm water when starting to cough. It is the first step to take in an asthma attack and might work for you. I use hot tap water. laurie > I use the Spiriva Handi-haler at betime, the albuterol inhaler four times daily, 400mg Humidid Expectorant (OTC) twice daily and the Zicam Spray Mist (OTC) that my Grandson got for me if I have very bad coughing spells. One of the Verizon Programmers from India I worked with when Blue Cross was the Fiscal Agent for Kansas Medicaid Account from 1996 thru 2002 had a great way of stopping my coughing, he would press on something on the back of my neck. It was handy working across the aisle from him for six years. It sounds like Kansas is under a tornado watch, June 8th is the anniversary of out major, major tornado. Dolores > > Laurie Fitzgerald laurie.fitzgerald@...> wrote:Dolores > > That sounds like what my son use to take (Intal was the brand). It is > meant to coat the mast cells which cause the antibody response to > allergens. It is a preventative that has to be taken on a regular > basis to do any good. It is not intended as a rescue inhaler like the > albuteral and does sometimes cause coughing - at least it did for him. > I'm not sure how it would work for COPD if it is the same. I do know > that the Intal came out in a form to be used with a nebulizing machine > and it was much better for him and didn't cause the coughing. > > laurie > > > > Hi, I'm wondering if your asthma/advair inhaler is similar to my spirvia handi/haler for my COPD? I put a greenish capsule into the handi/haler, then push a button to poke holes in the capsule then inhale the contents of the powder in the capsule. It has to be very expensive as my Cigna co-pay is $32.00 and I'm not all that impressed with as it at times a short time after inhaling the powder I start coughing very hard?? Who knows?? I use my albuterol inhaler four times daily also. Dolores > > > > ohgminion rakshasis@...> wrote:This is an asthma/Advair follow-up. I went on Advair for a week, and > > just felt terrible on it - jumpy, nervous, anxious. Now I am on > > albuterol and Pulmocort. The latter has a similar ingredient to > > Advair (an inhaled steroid), but the powder is MUCH finer, and I > > don't feel like I'm just eating the powder instead of inhaling it. > > > > I am a weird case in that my PFT's are still pretty good (over 80% > > for the most part), but they had been over 100% so they are > > concerned. > > > > On my experience as a patient, I certainly recommend that everyone > > with mito get baseline PFT's, even if they aren't having breathing > > problems right now, it was important that I had the baseline levels > > so the doctor knows that 80% function is bad for me. > > > > Take care, > > RH > > > > > > > > > > > > >> > > > > > > >> > > > > > > >>>I have long believed that my mito (no diagnosis as of yet) > > > > > > >>>is 'triggered' by events in my life. It usually gets > > worse > > > > > after > > > > > > >>> > > > > > > >>> > > > > > > >I > > > > > > > > > > > > > > > > > > > > >>>have had problems with my pacer. I have experienced so > > > many > > > > > > >>>episodes of hypoxia, I am sure that has something to do > > > with > > > > > it. > > > > > > >>>Before this last big crash which has lasted over 2 years. > > > I > > > > > went > > > > > > >>> > > > > > > >>> > > > > > > >in > > > > > > > > > > > > > > > > > > > > >>>to my cardiologist and told him that I thought that I had > > a > > > > > crack > > > > > > >>> > > > > > > >>> > > > > > > >in > > > > > > > > > > > > > > > > > > > > >>>one of my leads. > > > > > > >>> > > > > > > >>> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Medical advice, information, opinions, data and statements > > > > > contained herein are not necessarily those of the list > > > moderators. > > > > > The author of this e mail is entirely responsible for its > > > content. > > > > > List members are reminded of their responsibility to evaluate > > > the > > > > > content of the postings and consult with their physicians > > > regarding > > > > > changes in their own treatment. > > > > > > > > > > > > > >Personal attacks are not permitted on the list and anyone > > who > > > > > sends one is automatically moderated or removed depending on > > the > > > > > severity of the attack. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 I'll remember that as when I cough I really cough hard. Thanks, Laurie Fitzgerald laurie.fitzgerald@...> wrote:Dolores Have you tried drinking warm water when starting to cough. It is the first step to take in an asthma attack and might work for you. I use hot tap water. laurie > I use the Spiriva Handi-haler at betime, the albuterol inhaler four times daily, 400mg Humidid Expectorant (OTC) twice daily and the Zicam Spray Mist (OTC) that my Grandson got for me if I have very bad coughing spells. One of the Verizon Programmers from India I worked with when Blue Cross was the Fiscal Agent for Kansas Medicaid Account from 1996 thru 2002 had a great way of stopping my coughing, he would press on something on the back of my neck. It was handy working across the aisle from him for six years. It sounds like Kansas is under a tornado watch, June 8th is the anniversary of out major, major tornado. Dolores > > Laurie Fitzgerald laurie.fitzgerald@...> wrote:Dolores > > That sounds like what my son use to take (Intal was the brand). It is > meant to coat the mast cells which cause the antibody response to > allergens. It is a preventative that has to be taken on a regular > basis to do any good. It is not intended as a rescue inhaler like the > albuteral and does sometimes cause coughing - at least it did for him. > I'm not sure how it would work for COPD if it is the same. I do know > that the Intal came out in a form to be used with a nebulizing machine > and it was much better for him and didn't cause the coughing. > > laurie > > > > Hi, I'm wondering if your asthma/advair inhaler is similar to my spirvia handi/haler for my COPD? I put a greenish capsule into the handi/haler, then push a button to poke holes in the capsule then inhale the contents of the powder in the capsule. It has to be very expensive as my Cigna co-pay is $32.00 and I'm not all that impressed with as it at times a short time after inhaling the powder I start coughing very hard?? Who knows?? I use my albuterol inhaler four times daily also. Dolores > > > > ohgminion rakshasis@...> wrote:This is an asthma/Advair follow-up. I went on Advair for a week, and > > just felt terrible on it - jumpy, nervous, anxious. Now I am on > > albuterol and Pulmocort. The latter has a similar ingredient to > > Advair (an inhaled steroid), but the powder is MUCH finer, and I > > don't feel like I'm just eating the powder instead of inhaling it. > > > > I am a weird case in that my PFT's are still pretty good (over 80% > > for the most part), but they had been over 100% so they are > > concerned. > > > > On my experience as a patient, I certainly recommend that everyone > > with mito get baseline PFT's, even if they aren't having breathing > > problems right now, it was important that I had the baseline levels > > so the doctor knows that 80% function is bad for me. > > > > Take care, > > RH > > > > > > > > > > > > >> > > > > > > >> > > > > > > >>>I have long believed that my mito (no diagnosis as of yet) > > > > > > >>>is 'triggered' by events in my life. It usually gets > > worse > > > > > after > > > > > > >>> > > > > > > >>> > > > > > > >I > > > > > > > > > > > > > > > > > > > > >>>have had problems with my pacer. I have experienced so > > > many > > > > > > >>>episodes of hypoxia, I am sure that has something to do > > > with > > > > > it. > > > > > > >>>Before this last big crash which has lasted over 2 years. > > > I > > > > > went > > > > > > >>> > > > > > > >>> > > > > > > >in > > > > > > > > > > > > > > > > > > > > >>>to my cardiologist and told him that I thought that I had > > a > > > > > crack > > > > > > >>> > > > > > > >>> > > > > > > >in > > > > > > > > > > > > > > > > > > > > >>>one of my leads. > > > > > > >>> > > > > > > >>> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Medical advice, information, opinions, data and statements > > > > > contained herein are not necessarily those of the list > > > moderators. > > > > > The author of this e mail is entirely responsible for its > > > content. > > > > > List members are reminded of their responsibility to evaluate > > > the > > > > > content of the postings and consult with their physicians > > > regarding > > > > > changes in their own treatment. > > > > > > > > > > > > > >Personal attacks are not permitted on the list and anyone > > who > > > > > sends one is automatically moderated or removed depending on > > the > > > > > severity of the attack. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 I'll remember that as when I cough I really cough hard. Thanks, Laurie Fitzgerald laurie.fitzgerald@...> wrote:Dolores Have you tried drinking warm water when starting to cough. It is the first step to take in an asthma attack and might work for you. I use hot tap water. laurie > I use the Spiriva Handi-haler at betime, the albuterol inhaler four times daily, 400mg Humidid Expectorant (OTC) twice daily and the Zicam Spray Mist (OTC) that my Grandson got for me if I have very bad coughing spells. One of the Verizon Programmers from India I worked with when Blue Cross was the Fiscal Agent for Kansas Medicaid Account from 1996 thru 2002 had a great way of stopping my coughing, he would press on something on the back of my neck. It was handy working across the aisle from him for six years. It sounds like Kansas is under a tornado watch, June 8th is the anniversary of out major, major tornado. Dolores > > Laurie Fitzgerald laurie.fitzgerald@...> wrote:Dolores > > That sounds like what my son use to take (Intal was the brand). It is > meant to coat the mast cells which cause the antibody response to > allergens. It is a preventative that has to be taken on a regular > basis to do any good. It is not intended as a rescue inhaler like the > albuteral and does sometimes cause coughing - at least it did for him. > I'm not sure how it would work for COPD if it is the same. I do know > that the Intal came out in a form to be used with a nebulizing machine > and it was much better for him and didn't cause the coughing. > > laurie > > > > Hi, I'm wondering if your asthma/advair inhaler is similar to my spirvia handi/haler for my COPD? I put a greenish capsule into the handi/haler, then push a button to poke holes in the capsule then inhale the contents of the powder in the capsule. It has to be very expensive as my Cigna co-pay is $32.00 and I'm not all that impressed with as it at times a short time after inhaling the powder I start coughing very hard?? Who knows?? I use my albuterol inhaler four times daily also. Dolores > > > > ohgminion rakshasis@...> wrote:This is an asthma/Advair follow-up. I went on Advair for a week, and > > just felt terrible on it - jumpy, nervous, anxious. Now I am on > > albuterol and Pulmocort. The latter has a similar ingredient to > > Advair (an inhaled steroid), but the powder is MUCH finer, and I > > don't feel like I'm just eating the powder instead of inhaling it. > > > > I am a weird case in that my PFT's are still pretty good (over 80% > > for the most part), but they had been over 100% so they are > > concerned. > > > > On my experience as a patient, I certainly recommend that everyone > > with mito get baseline PFT's, even if they aren't having breathing > > problems right now, it was important that I had the baseline levels > > so the doctor knows that 80% function is bad for me. > > > > Take care, > > RH > > > > > > > > > > > > >> > > > > > > >> > > > > > > >>>I have long believed that my mito (no diagnosis as of yet) > > > > > > >>>is 'triggered' by events in my life. It usually gets > > worse > > > > > after > > > > > > >>> > > > > > > >>> > > > > > > >I > > > > > > > > > > > > > > > > > > > > >>>have had problems with my pacer. I have experienced so > > > many > > > > > > >>>episodes of hypoxia, I am sure that has something to do > > > with > > > > > it. > > > > > > >>>Before this last big crash which has lasted over 2 years. > > > I > > > > > went > > > > > > >>> > > > > > > >>> > > > > > > >in > > > > > > > > > > > > > > > > > > > > >>>to my cardiologist and told him that I thought that I had > > a > > > > > crack > > > > > > >>> > > > > > > >>> > > > > > > >in > > > > > > > > > > > > > > > > > > > > >>>one of my leads. > > > > > > >>> > > > > > > >>> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Medical advice, information, opinions, data and statements > > > > > contained herein are not necessarily those of the list > > > moderators. > > > > > The author of this e mail is entirely responsible for its > > > content. > > > > > List members are reminded of their responsibility to evaluate > > > the > > > > > content of the postings and consult with their physicians > > > regarding > > > > > changes in their own treatment. > > > > > > > > > > > > > >Personal attacks are not permitted on the list and anyone > > who > > > > > sends one is automatically moderated or removed depending on > > the > > > > > severity of the attack. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 I'll remember that as when I cough I really cough hard. Thanks, Laurie Fitzgerald laurie.fitzgerald@...> wrote:Dolores Have you tried drinking warm water when starting to cough. It is the first step to take in an asthma attack and might work for you. I use hot tap water. laurie > I use the Spiriva Handi-haler at betime, the albuterol inhaler four times daily, 400mg Humidid Expectorant (OTC) twice daily and the Zicam Spray Mist (OTC) that my Grandson got for me if I have very bad coughing spells. One of the Verizon Programmers from India I worked with when Blue Cross was the Fiscal Agent for Kansas Medicaid Account from 1996 thru 2002 had a great way of stopping my coughing, he would press on something on the back of my neck. It was handy working across the aisle from him for six years. It sounds like Kansas is under a tornado watch, June 8th is the anniversary of out major, major tornado. Dolores > > Laurie Fitzgerald laurie.fitzgerald@...> wrote:Dolores > > That sounds like what my son use to take (Intal was the brand). It is > meant to coat the mast cells which cause the antibody response to > allergens. It is a preventative that has to be taken on a regular > basis to do any good. It is not intended as a rescue inhaler like the > albuteral and does sometimes cause coughing - at least it did for him. > I'm not sure how it would work for COPD if it is the same. I do know > that the Intal came out in a form to be used with a nebulizing machine > and it was much better for him and didn't cause the coughing. > > laurie > > > > Hi, I'm wondering if your asthma/advair inhaler is similar to my spirvia handi/haler for my COPD? I put a greenish capsule into the handi/haler, then push a button to poke holes in the capsule then inhale the contents of the powder in the capsule. It has to be very expensive as my Cigna co-pay is $32.00 and I'm not all that impressed with as it at times a short time after inhaling the powder I start coughing very hard?? Who knows?? I use my albuterol inhaler four times daily also. Dolores > > > > ohgminion rakshasis@...> wrote:This is an asthma/Advair follow-up. I went on Advair for a week, and > > just felt terrible on it - jumpy, nervous, anxious. Now I am on > > albuterol and Pulmocort. The latter has a similar ingredient to > > Advair (an inhaled steroid), but the powder is MUCH finer, and I > > don't feel like I'm just eating the powder instead of inhaling it. > > > > I am a weird case in that my PFT's are still pretty good (over 80% > > for the most part), but they had been over 100% so they are > > concerned. > > > > On my experience as a patient, I certainly recommend that everyone > > with mito get baseline PFT's, even if they aren't having breathing > > problems right now, it was important that I had the baseline levels > > so the doctor knows that 80% function is bad for me. > > > > Take care, > > RH > > > > > > > > > > > > >> > > > > > > >> > > > > > > >>>I have long believed that my mito (no diagnosis as of yet) > > > > > > >>>is 'triggered' by events in my life. It usually gets > > worse > > > > > after > > > > > > >>> > > > > > > >>> > > > > > > >I > > > > > > > > > > > > > > > > > > > > >>>have had problems with my pacer. I have experienced so > > > many > > > > > > >>>episodes of hypoxia, I am sure that has something to do > > > with > > > > > it. > > > > > > >>>Before this last big crash which has lasted over 2 years. > > > I > > > > > went > > > > > > >>> > > > > > > >>> > > > > > > >in > > > > > > > > > > > > > > > > > > > > >>>to my cardiologist and told him that I thought that I had > > a > > > > > crack > > > > > > >>> > > > > > > >>> > > > > > > >in > > > > > > > > > > > > > > > > > > > > >>>one of my leads. > > > > > > >>> > > > > > > >>> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Medical advice, information, opinions, data and statements > > > > > contained herein are not necessarily those of the list > > > moderators. > > > > > The author of this e mail is entirely responsible for its > > > content. > > > > > List members are reminded of their responsibility to evaluate > > > the > > > > > content of the postings and consult with their physicians > > > regarding > > > > > changes in their own treatment. > > > > > > > > > > > > > >Personal attacks are not permitted on the list and anyone > > who > > > > > sends one is automatically moderated or removed depending on > > the > > > > > severity of the attack. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Dolores, My daughter used the Intal inhaler when she was younger too, but stopped using it when singulair came out as a pill as it was much easier than trying to make sure the inhaler was just properly. The properties of the two drugs are very similar. She just changed from the kids chewable dose to the adult dose of the singulair last year. The Intal is most likely much cheaper, but if the medicine isn't getting into the lungs, it isn't worth much of anything in my book. Laurie Fitzgerald wrote: >Dolores > >That sounds like what my son use to take (Intal was the brand). It is >meant to coat the mast cells which cause the antibody response to >allergens. It is a preventative that has to be taken on a regular >basis to do any good. It is not intended as a rescue inhaler like the >albuteral and does sometimes cause coughing - at least it did for him. >I'm not sure how it would work for COPD if it is the same. I do know >that the Intal came out in a form to be used with a nebulizing machine >and it was much better for him and didn't cause the coughing. > >laurie > > > > >>Hi, I'm wondering if your asthma/advair inhaler is similar to my spirvia handi/haler for my COPD? I put a greenish capsule into the handi/haler, then push a button to poke holes in the capsule then inhale the contents of the powder in the capsule. It has to be very expensive as my Cigna co-pay is $32.00 and I'm not all that impressed with as it at times a short time after inhaling the powder I start coughing very hard?? Who knows?? I use my albuterol inhaler four times daily also. Dolores >> >>ohgminion rakshasis@...> wrote:This is an asthma/Advair follow-up. I went on Advair for a week, and >>just felt terrible on it - jumpy, nervous, anxious. Now I am on >>albuterol and Pulmocort. The latter has a similar ingredient to >>Advair (an inhaled steroid), but the powder is MUCH finer, and I >>don't feel like I'm just eating the powder instead of inhaling it. >> >>I am a weird case in that my PFT's are still pretty good (over 80% >>for the most part), but they had been over 100% so they are >>concerned. >> >>On my experience as a patient, I certainly recommend that everyone >>with mito get baseline PFT's, even if they aren't having breathing >>problems right now, it was important that I had the baseline levels >>so the doctor knows that 80% function is bad for me. >> >>Take care, >>RH >> >> >> >>>>>>>> >>>>>>>> >>>>>>>> >>>>>>>> >>>>>>>>>I have long believed that my mito (no diagnosis as of yet) >>>>>>>>>is 'triggered' by events in my life. It usually gets >>>>>>>>> >>>>>>>>> >>worse >> >> >>>>>after >>>>> >>>>> >>>>>>>>> >>>>>>>>> >>>>>>>I >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>have had problems with my pacer. I have experienced so >>>>>>>>> >>>>>>>>> >>>many >>> >>> >>>>>>>>>episodes of hypoxia, I am sure that has something to do >>>>>>>>> >>>>>>>>> >>>with >>> >>> >>>>>it. >>>>> >>>>> >>>>>>>>>Before this last big crash which has lasted over 2 years. >>>>>>>>> >>>>>>>>> >>>I >>> >>> >>>>>went >>>>> >>>>> >>>>>>>>> >>>>>>>>> >>>>>>>in >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>to my cardiologist and told him that I thought that I had >>>>>>>>> >>>>>>>>> >>a >> >> >>>>>crack >>>>> >>>>> >>>>>>>>> >>>>>>>>> >>>>>>>in >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>one of my leads. >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>Medical advice, information, opinions, data and statements >>>>>>> >>>>>>> >>>>>contained herein are not necessarily those of the list >>>>> >>>>> >>>moderators. >>> >>> >>>>>The author of this e mail is entirely responsible for its >>>>> >>>>> >>>content. >>> >>> >>>>>List members are reminded of their responsibility to evaluate >>>>> >>>>> >>>the >>> >>> >>>>>content of the postings and consult with their physicians >>>>> >>>>> >>>regarding >>> >>> >>>>>changes in their own treatment. >>>>> >>>>> >>>>>>>Personal attacks are not permitted on the list and anyone >>>>>>> >>>>>>> >>who >> >> >>>>>sends one is automatically moderated or removed depending on >>>>> >>>>> >>the >> >> >>>>>severity of the attack. >>>>> >>>>> >>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Dolores, My daughter used the Intal inhaler when she was younger too, but stopped using it when singulair came out as a pill as it was much easier than trying to make sure the inhaler was just properly. The properties of the two drugs are very similar. She just changed from the kids chewable dose to the adult dose of the singulair last year. The Intal is most likely much cheaper, but if the medicine isn't getting into the lungs, it isn't worth much of anything in my book. Laurie Fitzgerald wrote: >Dolores > >That sounds like what my son use to take (Intal was the brand). It is >meant to coat the mast cells which cause the antibody response to >allergens. It is a preventative that has to be taken on a regular >basis to do any good. It is not intended as a rescue inhaler like the >albuteral and does sometimes cause coughing - at least it did for him. >I'm not sure how it would work for COPD if it is the same. I do know >that the Intal came out in a form to be used with a nebulizing machine >and it was much better for him and didn't cause the coughing. > >laurie > > > > >>Hi, I'm wondering if your asthma/advair inhaler is similar to my spirvia handi/haler for my COPD? I put a greenish capsule into the handi/haler, then push a button to poke holes in the capsule then inhale the contents of the powder in the capsule. It has to be very expensive as my Cigna co-pay is $32.00 and I'm not all that impressed with as it at times a short time after inhaling the powder I start coughing very hard?? Who knows?? I use my albuterol inhaler four times daily also. Dolores >> >>ohgminion rakshasis@...> wrote:This is an asthma/Advair follow-up. I went on Advair for a week, and >>just felt terrible on it - jumpy, nervous, anxious. Now I am on >>albuterol and Pulmocort. The latter has a similar ingredient to >>Advair (an inhaled steroid), but the powder is MUCH finer, and I >>don't feel like I'm just eating the powder instead of inhaling it. >> >>I am a weird case in that my PFT's are still pretty good (over 80% >>for the most part), but they had been over 100% so they are >>concerned. >> >>On my experience as a patient, I certainly recommend that everyone >>with mito get baseline PFT's, even if they aren't having breathing >>problems right now, it was important that I had the baseline levels >>so the doctor knows that 80% function is bad for me. >> >>Take care, >>RH >> >> >> >>>>>>>> >>>>>>>> >>>>>>>> >>>>>>>> >>>>>>>>>I have long believed that my mito (no diagnosis as of yet) >>>>>>>>>is 'triggered' by events in my life. It usually gets >>>>>>>>> >>>>>>>>> >>worse >> >> >>>>>after >>>>> >>>>> >>>>>>>>> >>>>>>>>> >>>>>>>I >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>have had problems with my pacer. I have experienced so >>>>>>>>> >>>>>>>>> >>>many >>> >>> >>>>>>>>>episodes of hypoxia, I am sure that has something to do >>>>>>>>> >>>>>>>>> >>>with >>> >>> >>>>>it. >>>>> >>>>> >>>>>>>>>Before this last big crash which has lasted over 2 years. >>>>>>>>> >>>>>>>>> >>>I >>> >>> >>>>>went >>>>> >>>>> >>>>>>>>> >>>>>>>>> >>>>>>>in >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>to my cardiologist and told him that I thought that I had >>>>>>>>> >>>>>>>>> >>a >> >> >>>>>crack >>>>> >>>>> >>>>>>>>> >>>>>>>>> >>>>>>>in >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>one of my leads. >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>Medical advice, information, opinions, data and statements >>>>>>> >>>>>>> >>>>>contained herein are not necessarily those of the list >>>>> >>>>> >>>moderators. >>> >>> >>>>>The author of this e mail is entirely responsible for its >>>>> >>>>> >>>content. >>> >>> >>>>>List members are reminded of their responsibility to evaluate >>>>> >>>>> >>>the >>> >>> >>>>>content of the postings and consult with their physicians >>>>> >>>>> >>>regarding >>> >>> >>>>>changes in their own treatment. >>>>> >>>>> >>>>>>>Personal attacks are not permitted on the list and anyone >>>>>>> >>>>>>> >>who >> >> >>>>>sends one is automatically moderated or removed depending on >>>>> >>>>> >>the >> >> >>>>>severity of the attack. >>>>> >>>>> >>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Great point. When we didn't have insurance for a while, my daughter's allergist and my husband's primary doc were great about giving samples to us, as much as they had. ohgminion wrote: >Actually, that's an excellent point. Make doctor's offices aware of >what you need, and that you're a bit strapped, and they might get you >some samples. Although the doctors I go to tend to say that they >don't have much control over what samples they get - the more >popular, the more likely they are to have a sample. > >Any time one changes drugs, it's good to get samples, or a short >prescription (a week instead of 30 or 90 days), then you can try it >without having to pay the full amount. > >The drug that's about $5 a pill for me is only given in samples of >one at a time, so I can't very well ask for 120 free samples... > >Take care, >RH > > > >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>>I have long believed that my mito (no diagnosis as of >>>>>>>>>> >>>>>>>>>> >>yet) >> >> >>>>>>>>>>is 'triggered' by events in my life. It usually gets >>>>>>>>>> >>>>>>>>>> >>>worse >>> >>> >>>>>>after >>>>>> >>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>I >>>>>>>> >>>>>>>> >>>>>>>> >>>>>>>> >>>>>>>>>>have had problems with my pacer. I have experienced >>>>>>>>>> >>>>>>>>>> >so > > >>>>many >>>> >>>> >>>>>>>>>>episodes of hypoxia, I am sure that has something to >>>>>>>>>> >>>>>>>>>> >do > > >>>>with >>>> >>>> >>>>>>it. >>>>>> >>>>>> >>>>>>>>>>Before this last big crash which has lasted over 2 >>>>>>>>>> >>>>>>>>>> >>years. >> >> >>>>I >>>> >>>> >>>>>>went >>>>>> >>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>in >>>>>>>> >>>>>>>> >>>>>>>> >>>>>>>> >>>>>>>>>>to my cardiologist and told him that I thought that I >>>>>>>>>> >>>>>>>>>> >>had >> >> >>>a >>> >>> >>>>>>crack >>>>>> >>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>in >>>>>>>> >>>>>>>> >>>>>>>> >>>>>>>> >>>>>>>>>>one of my leads. >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>> >>>>>>>> >>>>>>>> >>>>>>>> >>>>>>>>Medical advice, information, opinions, data and >>>>>>>> >>>>>>>> >statements > > >>>>>>contained herein are not necessarily those of the list >>>>>> >>>>>> >>>>moderators. >>>> >>>> >>>>>>The author of this e mail is entirely responsible for its >>>>>> >>>>>> >>>>content. >>>> >>>> >>>>>>List members are reminded of their responsibility to >>>>>> >>>>>> >evaluate > > >>>>the >>>> >>>> >>>>>>content of the postings and consult with their physicians >>>>>> >>>>>> >>>>regarding >>>> >>>> >>>>>>changes in their own treatment. >>>>>> >>>>>> >>>>>>>>Personal attacks are not permitted on the list and >>>>>>>> >>>>>>>> >anyone > > >>>who >>> >>> >>>>>>sends one is automatically moderated or removed depending >>>>>> >>>>>> >on > > >>>the >>> >>> >>>>>>severity of the attack. >>>>>> >>>>>> >>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 Ginger altoids take care of my coughs of all strange things. ohgminion wrote: >My " old folks " and their " stories " (National Enquirer and similar >rags) have been up on using dark chocolate to stop coughs. I don't >know if it just the cocoa butter as a lubricant, or some chemical in >it, but they swear by it. Supposedly a square or two (one or two >ounces, 25 - 50 g for you guys north or east of the U.S.). > >I like dark chocolate anyway, so I try it even if I'm not coughing > >Another note is that my friend's sister had a recurrent cough, and >the only thing that would soothe it was brandy (yes, doctor- >prescribed!). She was drinking a tablespoon full of it at night in >order to stop coughing so she could sleep. YMMV > >Take care, >RH > > > >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>>>I have long believed that my mito (no diagnosis as >>>>>>>>>>> >>>>>>>>>>> >of yet) > > >>>>>>>>>>>is 'triggered' by events in my life. It usually gets >>>>>>>>>>> >>>>>>>>>>> >>>>worse >>>> >>>> >>>>>>>after >>>>>>> >>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>I >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>>>have had problems with my pacer. I have experienced >>>>>>>>>>> >>>>>>>>>>> >so > > >>>>>many >>>>> >>>>> >>>>>>>>>>>episodes of hypoxia, I am sure that has something to >>>>>>>>>>> >>>>>>>>>>> >do > > >>>>>with >>>>> >>>>> >>>>>>>it. >>>>>>> >>>>>>> >>>>>>>>>>>Before this last big crash which has lasted over 2 >>>>>>>>>>> >>>>>>>>>>> >years. > > >>>>>I >>>>> >>>>> >>>>>>>went >>>>>>> >>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>in >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>>>to my cardiologist and told him that I thought that >>>>>>>>>>> >>>>>>>>>>> >I had > > >>>>a >>>> >>>> >>>>>>>crack >>>>>>> >>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>in >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>>>one of my leads. >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>Medical advice, information, opinions, data and >>>>>>>>> >>>>>>>>> >statements > > >>>>>>>contained herein are not necessarily those of the list >>>>>>> >>>>>>> >>>>>moderators. >>>>> >>>>> >>>>>>>The author of this e mail is entirely responsible for its >>>>>>> >>>>>>> >>>>>content. >>>>> >>>>> >>>>>>>List members are reminded of their responsibility to >>>>>>> >>>>>>> >evaluate > > >>>>>the >>>>> >>>>> >>>>>>>content of the postings and consult with their physicians >>>>>>> >>>>>>> >>>>>regarding >>>>> >>>>> >>>>>>>changes in their own treatment. >>>>>>> >>>>>>> >>>>>>>>>Personal attacks are not permitted on the list and >>>>>>>>> >>>>>>>>> >anyone > > >>>>who >>>> >>>> >>>>>>>sends one is automatically moderated or removed depending >>>>>>> >>>>>>> >on > > >>>>the >>>> >>>> >>>>>>>severity of the attack. >>>>>>> >>>>>>> >>>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 I use the ginger for upset tummy too. I just recently found out it also helps my cough too. ohgminion wrote: >I've heard crystallized ginger helps stomach upset. Ginger may help >with the postnasal drip aspect of things (that worsens my cough). > >Take care, >RH > > >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>>>I have long believed that my mito (no diagnosis as >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>of yet) >>> >>> >>> >>> >>>>>>>>>>>>>is 'triggered' by events in my life. It usually gets >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>worse >>>>>> >>>>>> >>>>>> >>>>>> >>>>>>>>>after >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>I >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>>>>have had problems with my pacer. I have experienced >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>so >>> >>> >>> >>> >>>>>>>many >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>>>>>episodes of hypoxia, I am sure that has something to >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>do >>> >>> >>> >>> >>>>>>>with >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>it. >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>>>>>Before this last big crash which has lasted over 2 >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>years. >>> >>> >>> >>> >>>>>>>I >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>went >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>in >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>>>>to my cardiologist and told him that I thought that >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>I had >>> >>> >>> >>> >>>>>>a >>>>>> >>>>>> >>>>>> >>>>>> >>>>>>>>>crack >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>in >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>>>>one of my leads. >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>>Medical advice, information, opinions, data and >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>statements >>> >>> >>> >>> >>>>>>>>>contained herein are not necessarily those of the list >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>moderators. >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>The author of this e mail is entirely responsible for its >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>content. >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>List members are reminded of their responsibility to >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>evaluate >>> >>> >>> >>> >>>>>>>the >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>content of the postings and consult with their physicians >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>regarding >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>changes in their own treatment. >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>>>Personal attacks are not permitted on the list and >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>anyone >>> >>> >>> >>> >>>>>>who >>>>>> >>>>>> >>>>>> >>>>>> >>>>>>>>>sends one is automatically moderated or removed depending >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>on >>> >>> >>> >>> >>>>>>the >>>>>> >>>>>> >>>>>> >>>>>> >>>>>>>>>severity of the attack. >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 I use the ginger for upset tummy too. I just recently found out it also helps my cough too. ohgminion wrote: >I've heard crystallized ginger helps stomach upset. Ginger may help >with the postnasal drip aspect of things (that worsens my cough). > >Take care, >RH > > >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>>>I have long believed that my mito (no diagnosis as >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>of yet) >>> >>> >>> >>> >>>>>>>>>>>>>is 'triggered' by events in my life. It usually gets >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>worse >>>>>> >>>>>> >>>>>> >>>>>> >>>>>>>>>after >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>I >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>>>>have had problems with my pacer. I have experienced >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>so >>> >>> >>> >>> >>>>>>>many >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>>>>>episodes of hypoxia, I am sure that has something to >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>do >>> >>> >>> >>> >>>>>>>with >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>it. >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>>>>>Before this last big crash which has lasted over 2 >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>years. >>> >>> >>> >>> >>>>>>>I >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>went >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>in >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>>>>to my cardiologist and told him that I thought that >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>I had >>> >>> >>> >>> >>>>>>a >>>>>> >>>>>> >>>>>> >>>>>> >>>>>>>>>crack >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>in >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>>>>one of my leads. >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>>Medical advice, information, opinions, data and >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>statements >>> >>> >>> >>> >>>>>>>>>contained herein are not necessarily those of the list >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>moderators. >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>The author of this e mail is entirely responsible for its >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>content. >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>List members are reminded of their responsibility to >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>evaluate >>> >>> >>> >>> >>>>>>>the >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>content of the postings and consult with their physicians >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>regarding >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>changes in their own treatment. >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>>>Personal attacks are not permitted on the list and >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>anyone >>> >>> >>> >>> >>>>>>who >>>>>> >>>>>> >>>>>> >>>>>> >>>>>>>>>sends one is automatically moderated or removed depending >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>on >>> >>> >>> >>> >>>>>>the >>>>>> >>>>>> >>>>>> >>>>>> >>>>>>>>>severity of the attack. >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 OOPS!! Another Boo Boo, I'm going to have to start proofreading my e-mails as I said December 2004 instad of 2005. Who else caught that?? I did hear just this afternoon from my case manager at Dept of Aging that someone from Social Security had been there last week and said ther will be a Medicare D as of January 1, 2006 and the toll free number is 1- and that Blue Cross (at least of Kansas) will have what is called " Script Save Premium " as a Medi-Gap plan. I don't know if this will be of interest to anyone but just in case I thought I would pass it along. Dolores ohgminion rakshasis@...> wrote:Actually, that's an excellent point. Make doctor's offices aware of what you need, and that you're a bit strapped, and they might get you some samples. Although the doctors I go to tend to say that they don't have much control over what samples they get - the more popular, the more likely they are to have a sample. Any time one changes drugs, it's good to get samples, or a short prescription (a week instead of 30 or 90 days), then you can try it without having to pay the full amount. The drug that's about $5 a pill for me is only given in samples of one at a time, so I can't very well ask for 120 free samples... Take care, RH > > > > > > >> > > > > > > >> > > > > > > >>>I have long believed that my mito (no diagnosis as of > yet) > > > > > > >>>is 'triggered' by events in my life. It usually gets > > worse > > > > > after > > > > > > >>> > > > > > > >>> > > > > > > >I > > > > > > > > > > > > > > > > > > > > >>>have had problems with my pacer. I have experienced so > > > many > > > > > > >>>episodes of hypoxia, I am sure that has something to do > > > with > > > > > it. > > > > > > >>>Before this last big crash which has lasted over 2 > years. > > > I > > > > > went > > > > > > >>> > > > > > > >>> > > > > > > >in > > > > > > > > > > > > > > > > > > > > >>>to my cardiologist and told him that I thought that I > had > > a > > > > > crack > > > > > > >>> > > > > > > >>> > > > > > > >in > > > > > > > > > > > > > > > > > > > > >>>one of my leads. > > > > > > >>> > > > > > > >>> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >Medical advice, information, opinions, data and statements > > > > > contained herein are not necessarily those of the list > > > moderators. > > > > > The author of this e mail is entirely responsible for its > > > content. > > > > > List members are reminded of their responsibility to evaluate > > > the > > > > > content of the postings and consult with their physicians > > > regarding > > > > > changes in their own treatment. > > > > > > > > > > > > > >Personal attacks are not permitted on the list and anyone > > who > > > > > sends one is automatically moderated or removed depending on > > the > > > > > severity of the attack. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 I didn't know about cough but my Grandmother used to give me Ginger Root for Nausea and buy a herbal supplement of 550 mg capsules of Ginger Root that also contains " Essential Oil " . I had never seen that on anything before but it jumped right out at me when I was reading the label just now. It says it may help contain a Calm Stomach. Dolores dgregori@...> wrote:I use the ginger for upset tummy too. I just recently found out it also helps my cough too. ohgminion wrote: >I've heard crystallized ginger helps stomach upset. Ginger may help >with the postnasal drip aspect of things (that worsens my cough). > >Take care, >RH > > >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>> >>>>>>>>>>>>>I have long believed that my mito (no diagnosis as >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>of yet) >>> >>> >>> >>> >>>>>>>>>>>>>is 'triggered' by events in my life. It usually gets >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>worse >>>>>> >>>>>> >>>>>> >>>>>> >>>>>>>>>after >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>I >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>>>>have had problems with my pacer. I have experienced >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>so >>> >>> >>> >>> >>>>>>>many >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>>>>>episodes of hypoxia, I am sure that has something to >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>do >>> >>> >>> >>> >>>>>>>with >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>it. >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>>>>>Before this last big crash which has lasted over 2 >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>years. >>> >>> >>> >>> >>>>>>>I >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>went >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>in >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>>>>to my cardiologist and told him that I thought that >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>I had >>> >>> >>> >>> >>>>>>a >>>>>> >>>>>> >>>>>> >>>>>> >>>>>>>>>crack >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>in >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>>>>one of my leads. >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>>Medical advice, information, opinions, data and >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>statements >>> >>> >>> >>> >>>>>>>>>contained herein are not necessarily those of the list >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>moderators. >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>The author of this e mail is entirely responsible for its >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>content. >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>List members are reminded of their responsibility to >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>evaluate >>> >>> >>> >>> >>>>>>>the >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>content of the postings and consult with their physicians >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>regarding >>>>>>> >>>>>>> >>>>>>> >>>>>>> >>>>>>>>>changes in their own treatment. >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>>>Personal attacks are not permitted on the list and >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>>>>>>>>> >>>anyone >>> >>> >>> >>> >>>>>>who >>>>>> >>>>>> >>>>>> >>>>>> >>>>>>>>>sends one is automatically moderated or removed depending >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>on >>> >>> >>> >>> >>>>>>the >>>>>> >>>>>> >>>>>> >>>>>> >>>>>>>>>severity of the attack. >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>> >>>>>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2005 Report Share Posted June 8, 2005 My Granddad used to try to pour " hot toddies " down me, yuk! Dolores ohgminion rakshasis@...> wrote:I've heard crystallized ginger helps stomach upset. Ginger may help with the postnasal drip aspect of things (that worsens my cough). Take care, RH > >>>>>>>>>> > >>>>>>>>>> > >>>>>>>>>> > >>>>>>>>>> > >>>>>>>>>>>I have long believed that my mito (no diagnosis as > >>>>>>>>>>> > >>>>>>>>>>> > >of yet) > > > > > >>>>>>>>>>>is 'triggered' by events in my life. It usually gets > >>>>>>>>>>> > >>>>>>>>>>> > >>>>worse > >>>> > >>>> > >>>>>>>after > >>>>>>> > >>>>>>> > >>>>>>>>>>> > >>>>>>>>>>> > >>>>>>>>>I > >>>>>>>>> > >>>>>>>>> > >>>>>>>>> > >>>>>>>>> > >>>>>>>>>>>have had problems with my pacer. I have experienced > >>>>>>>>>>> > >>>>>>>>>>> > >so > > > > > >>>>>many > >>>>> > >>>>> > >>>>>>>>>>>episodes of hypoxia, I am sure that has something to > >>>>>>>>>>> > >>>>>>>>>>> > >do > > > > > >>>>>with > >>>>> > >>>>> > >>>>>>>it. > >>>>>>> > >>>>>>> > >>>>>>>>>>>Before this last big crash which has lasted over 2 > >>>>>>>>>>> > >>>>>>>>>>> > >years. > > > > > >>>>>I > >>>>> > >>>>> > >>>>>>>went > >>>>>>> > >>>>>>> > >>>>>>>>>>> > >>>>>>>>>>> > >>>>>>>>>in > >>>>>>>>> > >>>>>>>>> > >>>>>>>>> > >>>>>>>>> > >>>>>>>>>>>to my cardiologist and told him that I thought that > >>>>>>>>>>> > >>>>>>>>>>> > >I had > > > > > >>>>a > >>>> > >>>> > >>>>>>>crack > >>>>>>> > >>>>>>> > >>>>>>>>>>> > >>>>>>>>>>> > >>>>>>>>>in > >>>>>>>>> > >>>>>>>>> > >>>>>>>>> > >>>>>>>>> > >>>>>>>>>>>one of my leads. > >>>>>>>>>>> > >>>>>>>>>>> > >>>>>>>>>>> > >>>>>>>>>>> > >>>>>>>>> > >>>>>>>>> > >>>>>>>>> > >>>>>>>>> > >>>>>>>>>Medical advice, information, opinions, data and > >>>>>>>>> > >>>>>>>>> > >statements > > > > > >>>>>>>contained herein are not necessarily those of the list > >>>>>>> > >>>>>>> > >>>>>moderators. > >>>>> > >>>>> > >>>>>>>The author of this e mail is entirely responsible for its > >>>>>>> > >>>>>>> > >>>>>content. > >>>>> > >>>>> > >>>>>>>List members are reminded of their responsibility to > >>>>>>> > >>>>>>> > >evaluate > > > > > >>>>>the > >>>>> > >>>>> > >>>>>>>content of the postings and consult with their physicians > >>>>>>> > >>>>>>> > >>>>>regarding > >>>>> > >>>>> > >>>>>>>changes in their own treatment. > >>>>>>> > >>>>>>> > >>>>>>>>>Personal attacks are not permitted on the list and > >>>>>>>>> > >>>>>>>>> > >anyone > > > > > >>>>who > >>>> > >>>> > >>>>>>>sends one is automatically moderated or removed depending > >>>>>>> > >>>>>>> > >on > > > > > >>>>the > >>>> > >>>> > >>>>>>>severity of the attack. > >>>>>>> > >>>>>>> > >>>>>>>>> Quote Link to comment Share on other sites More sharing options...
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