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Steve

Still thinking of you and your wife. Life is not always fair.

laurie

>

> A huge thank you to everyone who responded (and others who I know are also

> sympathetic) to my long rant about screwed up mito blood test. I kind of

> knew I'd get that response, or else I wouldn't have been able to write it.

>

> It's not easy to pick up the pieces and keep going. My loving wife is SO

> supportive, it just amazes me sometimes, and I really question whether I

> could do so much if the situation were reversed.

>

> Not only is this SSDI thing perpetually in process, but I am also trying to

> prove to a court that I am disabled. My ex-wife had been OK with my

> discontinuing alimony and child support payments, when I became totally

> unable to work five years ago, although I did pay her for some time, from

> my

> dwindling savings (this after she already had much more than half of " my "

> savings, but I won't get into that now). It's a long story, but basically I

> was too tired and frazzled to pursue every angle, in my disintegrating

> life,

> and I never got a modification from the court. Anyway, " our " house that she

> lived in was finally sold two years ago when the kids went out into the

> world (and I, rather than my ex-wife, carry the giant loans for college),

> and our settlement defined how the proceeds should be split. However, now

> she raised the issue of all this supposed back payments that were never

> paid, and hence my measly share of the proceeds (about 1/5 of the net) is

> in

> escrow. My lawyer (funds to pay for this have run out too) needs to show

> that I really was disabled, so the SSDI finding will probably drive all the

> rest of this as well. There have been many court hearings and

> continuations,

> but now it looks like the Waterloo is going down. Hence my dismay, at the

> latest blood test delay.

>

> To highlight the magnitude of the above, let me note that my payment to her

> was $660 per WEEK. More than a third of my long-ago income went to her,

> another third to taxes, and I lived on the remainder. It's incredible to

> me,

> that total lack of any income at all is NO EXCUSE in the eyes of the court,

> for not paying this gigantic amount every week (the meter is technically

> STILL running!). Seems the court thinks some high-income people are FAKING

> inability to earn, and coasting on savings or something. That certainly

> isn't me, as I drained all my savings paying my ex-wife, long ago.

>

> Just BTW, I have no health insurance at all. All attempts to date have been

> denied because I still can't really prove I'm disabled (and of course the

> medical detail is supposedly inconclusive). Pursuing THIS too is on my

> list,

> with about a hundred other desperately urgent things, like finding an

> advocate that will be patient with my extreme exercise intolerance. Thanks

> again to all in this list who keep boosting me along a little further.

>

> Steve D.

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail

> is entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with

> their physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

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My son went thru that also with SSDI. He couldn't prove anything as no one had

any idea as to what was wrong with him. He drug himself in every day (until

about the last six weeks) climbed ladders, got onto the roof, fixed the problem,

then climbed back down the ladder. The girl he worked for said she felt so

sorry for him, she felt like crying. He went as long as he could and the his

sight started to fail him and so that was it, not more working. Walking wasn't

his best thing either at the last. I had no idea he was that ill until my

Grandson called and told me that they had just brought his Uncle Dave in by

ambulance and it didn't look very good to him. He said he didn't want to leave

him so did I think I could find anyone from my church to bring me. I called

fast and my friend came right down and she also contacted our Pastor. I never

left him only once and that was just to come home to change my clothes and take

my medications.

They took him to ICU, but the next morning they brought him to a room on the

floor for him to die in peace. It broke my heart as the doctors couldn't really

come up with a diagnosis that filled the bill. His kidney's and liver were

starting to fail him and they used kidney failure as the cause of death. His

wife called me the other day and said that his SSDI came thru and so she would

be able to get the hospital bill paid by Medicaid. Heck of a note, unless you

are a drunk (like a cousin of mine) you have to die to get SSDI. I guess now we

have both vented and I am going to try to get my times straight, so I can log in

tonight at an appropriate time. I am sure that since Kansas is on CT that we

are one hour earlier that ET, so if the CHAT opens at 8:45 ET, then I should get

ready to login at 7:45 CT, I think? At any rate I'm going to give that a try,

old ladies have problems with the different time zones and since I just turned

69 March 2nd, I feel I am now an old lady? Hope

to talk to all of you tonight, unless my Grandson comes

by to see if I need anything. Dolores

Steve micro_choice@...> wrote:

A huge thank you to everyone who responded (and others who I know are also

sympathetic) to my long rant about screwed up mito blood test. I kind of

knew I'd get that response, or else I wouldn't have been able to write it.

It's not easy to pick up the pieces and keep going. My loving wife is SO

supportive, it just amazes me sometimes, and I really question whether I

could do so much if the situation were reversed.

Not only is this SSDI thing perpetually in process, but I am also trying to

prove to a court that I am disabled. My ex-wife had been OK with my

discontinuing alimony and child support payments, when I became totally

unable to work five years ago, although I did pay her for some time, from my

dwindling savings (this after she already had much more than half of " my "

savings, but I won't get into that now). It's a long story, but basically I

was too tired and frazzled to pursue every angle, in my disintegrating life,

and I never got a modification from the court. Anyway, " our " house that she

lived in was finally sold two years ago when the kids went out into the

world (and I, rather than my ex-wife, carry the giant loans for college),

and our settlement defined how the proceeds should be split. However, now

she raised the issue of all this supposed back payments that were never

paid, and hence my measly share of the proceeds (about 1/5 of the net) is in

escrow. My lawyer (funds to pay for this have run out too) needs to show

that I really was disabled, so the SSDI finding will probably drive all the

rest of this as well. There have been many court hearings and continuations,

but now it looks like the Waterloo is going down. Hence my dismay, at the

latest blood test delay.

To highlight the magnitude of the above, let me note that my payment to her

was $660 per WEEK. More than a third of my long-ago income went to her,

another third to taxes, and I lived on the remainder. It's incredible to me,

that total lack of any income at all is NO EXCUSE in the eyes of the court,

for not paying this gigantic amount every week (the meter is technically

STILL running!). Seems the court thinks some high-income people are FAKING

inability to earn, and coasting on savings or something. That certainly

isn't me, as I drained all my savings paying my ex-wife, long ago.

Just BTW, I have no health insurance at all. All attempts to date have been

denied because I still can't really prove I'm disabled (and of course the

medical detail is supposedly inconclusive). Pursuing THIS too is on my list,

with about a hundred other desperately urgent things, like finding an

advocate that will be patient with my extreme exercise intolerance. Thanks

again to all in this list who keep boosting me along a little further.

Steve D.

Medical advice, information, opinions, data and statements contained herein are

not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

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