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Re: Mito trigger

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This is an asthma/Advair follow-up. I went on Advair for a week, and

just felt terrible on it - jumpy, nervous, anxious. Now I am on

albuterol and Pulmocort. The latter has a similar ingredient to

Advair (an inhaled steroid), but the powder is MUCH finer, and I

don't feel like I'm just eating the powder instead of inhaling it.

I am a weird case in that my PFT's are still pretty good (over 80%

for the most part), but they had been over 100% so they are

concerned.

On my experience as a patient, I certainly recommend that everyone

with mito get baseline PFT's, even if they aren't having breathing

problems right now, it was important that I had the baseline levels

so the doctor knows that 80% function is bad for me.

Take care,

RH

> > > > >>

> > > > >>

> > > > >>>I have long believed that my mito (no diagnosis as of yet)

> > > > >>>is 'triggered' by events in my life. It usually gets

worse

> > > after

> > > > >>>

> > > > >>>

> > > > >I

> > > > >

> > > > >

> > > > >>>have had problems with my pacer. I have experienced so

> many

> > > > >>>episodes of hypoxia, I am sure that has something to do

> with

> > > it.

> > > > >>>Before this last big crash which has lasted over 2 years.

> I

> > > went

> > > > >>>

> > > > >>>

> > > > >in

> > > > >

> > > > >

> > > > >>>to my cardiologist and told him that I thought that I had

a

> > > crack

> > > > >>>

> > > > >>>

> > > > >in

> > > > >

> > > > >

> > > > >>>one of my leads.

> > > > >>>

> > > > >>>

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >Medical advice, information, opinions, data and statements

> > > contained herein are not necessarily those of the list

> moderators.

> > > The author of this e mail is entirely responsible for its

> content.

> > > List members are reminded of their responsibility to evaluate

> the

> > > content of the postings and consult with their physicians

> regarding

> > > changes in their own treatment.

> > > > >

> > > > >Personal attacks are not permitted on the list and anyone

who

> > > sends one is automatically moderated or removed depending on

the

> > > severity of the attack.

> > > > >

> > > > >

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Guest guest

My " old folks " and their " stories " (National Enquirer and similar

rags) have been up on using dark chocolate to stop coughs. I don't

know if it just the cocoa butter as a lubricant, or some chemical in

it, but they swear by it. Supposedly a square or two (one or two

ounces, 25 - 50 g for you guys north or east of the U.S.).

I like dark chocolate anyway, so I try it even if I'm not coughing :)

Another note is that my friend's sister had a recurrent cough, and

the only thing that would soothe it was brandy (yes, doctor-

prescribed!). She was drinking a tablespoon full of it at night in

order to stop coughing so she could sleep. YMMV :)

Take care,

RH

> > > > > > > >>

> > > > > > > >>

> > > > > > > >>>I have long believed that my mito (no diagnosis as

of yet)

> > > > > > > >>>is 'triggered' by events in my life. It usually gets

> > > worse

> > > > > > after

> > > > > > > >>>

> > > > > > > >>>

> > > > > > > >I

> > > > > > > >

> > > > > > > >

> > > > > > > >>>have had problems with my pacer. I have experienced

so

> > > > many

> > > > > > > >>>episodes of hypoxia, I am sure that has something to

do

> > > > with

> > > > > > it.

> > > > > > > >>>Before this last big crash which has lasted over 2

years.

> > > > I

> > > > > > went

> > > > > > > >>>

> > > > > > > >>>

> > > > > > > >in

> > > > > > > >

> > > > > > > >

> > > > > > > >>>to my cardiologist and told him that I thought that

I had

> > > a

> > > > > > crack

> > > > > > > >>>

> > > > > > > >>>

> > > > > > > >in

> > > > > > > >

> > > > > > > >

> > > > > > > >>>one of my leads.

> > > > > > > >>>

> > > > > > > >>>

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >Medical advice, information, opinions, data and

statements

> > > > > > contained herein are not necessarily those of the list

> > > > moderators.

> > > > > > The author of this e mail is entirely responsible for its

> > > > content.

> > > > > > List members are reminded of their responsibility to

evaluate

> > > > the

> > > > > > content of the postings and consult with their physicians

> > > > regarding

> > > > > > changes in their own treatment.

> > > > > > > >

> > > > > > > >Personal attacks are not permitted on the list and

anyone

> > > who

> > > > > > sends one is automatically moderated or removed depending

on

> > > the

> > > > > > severity of the attack.

> > > > > > > >

> > > > > > > >

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