Re: Anyone dwelt with broken bones?

April 2, 2005

,

Thanks for your quick response. They did do some testing on her which

showed that her Kidneys were taking out too much phosphate and warned us that

she

may deal with brittle bone syndrome, which is why I was so surprised at the

Orthos response to her last night. We have been pumping in extra calcium since

we found this out. I am more worried about the circulation to her hand right

now. Her fingers are almost black in color and still look like balloons and

then the index being cold and all. Ughhhhh maybe I am worrying too much about

this one. LOL

Hugs

O (Kira, , Krisalynn Mito Myopathy- MIDS)

April 2, 2005

I just called the doctor again so I am going to take her back in

Thanks! Ughhhhh!

O.

April 2, 2005

I had a few broken bones when I was a kid, but I don't recall having any

problems with healing. Of course I really wasn't symtomatic at the time

either. I hope things start healing for her soon. Does she get enough

calcium?

mitooggo@... wrote:

>Hi everyone,

> Has anyone dwelt with broken bones at all? Our youngest compound broke

>both bones in her left arm going on three weeks ago now. Of course I

>contacted DR Boles right away. He told us not to worry too much because bone

>requires very little energy to grow so we have sat back a bit on this. Well,

last

>night her index finger was ice cold with the rest of her fingers being warm, so

>I took her back in. The ortho treated me like I was an idiot, I was so

>frustrated. It has been three weeks and she has no sign of any new bone growth

at

>all, he originally told us she would be in a cast for only 5 weeks. He accused

>her of doing too much with her arm. Trust me she has not been doing too much

>because it has been very painful. She sits with it propped up most of the

>time, much to her siblings dismay because they are having to help with her

>chores! LOL Anyway I was curious if anyone has had to deal with broken bones

in

>any of their Mito kids and if they had bone growth/regeneration problems at

all.

>

>Thanks,

>

> O

>

April 2, 2005

,

Get her to a doctor NOW, you don't want her to lose the hand.

mitooggo@... wrote:

>,

>

> Thanks for your quick response. They did do some testing on her which

>showed that her Kidneys were taking out too much phosphate and warned us that

she

>may deal with brittle bone syndrome, which is why I was so surprised at the

>Orthos response to her last night. We have been pumping in extra calcium since

>we found this out. I am more worried about the circulation to her hand right

>now. Her fingers are almost black in color and still look like balloons and

>then the index being cold and all. Ughhhhh maybe I am worrying too much about

>this one. LOL

>

>Hugs

> O (Kira, , Krisalynn Mito Myopathy- MIDS)

>

April 2, 2005

,

I would take her to the doctor ASAP. That doesn't sound right

with the fingers being almost black and ballooning up. Keep us updated

when you can!

Hugs,

a

>,

>

> Thanks for your quick response. They did do some testing on her

which

>showed that her Kidneys were taking out too much phosphate and warned us

that she

>may deal with brittle bone syndrome, which is why I was so surprised at

the

>Orthos response to her last night. We have been pumping in extra calcium

since

>we found this out. I am more worried about the circulation to her hand

right

>now. Her fingers are almost black in color and still look like balloons

and

>then the index being cold and all. Ughhhhh maybe I am worrying too much

about

>this one. LOL

>

>Hugs

> O (Kira, , Krisalynn Mito Myopathy- MIDS)

>

April 2, 2005

As others said, I'd take her ASAP to the doctor and/or hospital

(i.e., today, not Monday), and go to a university or other large

center where they might have some good pediatric specialists if

possible. If you are overworried and it's nothing, at least you'll

know, and if there's something to be done, better today than two days

from now.

It really torques me off when a doctor, let alone a specialist, poo-

poos a parent's concerns. She sounds like she needs an MRI or CAT

scan or something to figure out what is going on.

I've only had one broken bone (collarbone), and my parents didn't

think it was broken, so I went 6 weeks without treatment and no

sleep. I was 12 at the time, and was always told I was a

hypochondriac, so I didn't push the " constant pain " issue. Then I

found a big bump on my collarbone, and they finally took me for an

Xray and found a complete collarbone break.

Take care,

RH

> I just called the doctor again so I am going to take her

back in

> Thanks! Ughhhhh!

> O.

>

April 2, 2005

Hi ,

When I hear the word " Black " associated with a break or injury the first thing I

think of is " Necrosis " which means the " death of cells in a tissue or organ

caused by disease or injury.

This is dangerous and you should get her back to the ER immediately. You

certainly don't want her to lose her finger or worse her hand and time is not on

your side.

If you don't like what the ER doctor or Ortho tells you when you go back DEMAND

another doctor for a second opinion. And don't worry about pissing them off, it

is your daughter's finger not the doctor's child that is in trouble.