Re: Appt with PT and Doc today

[Guest guest]

I hope you fight off the crash by resting.

laurie

>

> Reply-To:

> Date: Mon, 17 Jan 2005 23:01:05 -0000

> To:

> Subject: Appt with PT and Doc today

>

>

> I saw my PT this am and the doc this afternoon. Daryl, my PT is

> feeling very frustrated that he " can't fix me " . I can totally

> understand that when you are a perfectionist, like he is , a Mito

> Patient may make you question your abilities and all the education

> you spent years studying. I am used to be the " odd ball patient " he

> is NOT used to taking care of " odd ball patients " , LOL! He spoke with

> the doc after I saw him on Firday. I saw the doc this afternoon and

> discussed the problems with the muscle movement and the neck issues.

> He put me back on Quinine and told me let him know how I was doing in

> a few weeks. There is a new med for RLS that is used by Parkinsons

> Patients. It is a form of L-Dopa. This is the same type of Dopamine

> that Parkinsons Patients take to replace the dopa that is defiecient

> in their brain. RLS and certain movement disorders are caused by lack

> of dopamine in the muscles. RLS/ Certain Mito Problems/ Friedrich's

> Atxia to name a few.

>

> If the Quinine brings no relief than he will try the L-Dopa. I also

> brought him the UMDF Newsletter from the Winter 2004 addition. The

> cover article is about Diet/Nutrition/Excersice. I just went looking

> thru the file folders I have been keeping over the years and found

> this issue today while trying to answer some of my own questions. In

> lew of all the conversation about Carbs and Lactic Acid, this maybe

> valuable rereading for some of us.

>

> All in all, doc hopes that the muscles calm down so I can get them

> to " rest and stop moving continously " . Perfect problem for patients

> who are already fatigued and have trouble sleeping.LOL!

>

> To answer Laurie's question, I am currently taking Lamictal 250 mg

> twice daily.

>

> I hope to see some changes with the Quinine, but if I don't then

> let's hope the L-Dopa does the trick.

>

> Thanks for all the help and replies, Sorry if I this is jumbled, but

> I am fighting a crash and one of the signs for me besides muscle

> fatigue is mental confusion and typing a zillion typos. Hand and

> brain are out of synch. It will take me twice as long to type a post

> when I am " going south as doc like to call it " than when I am stable.

>

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