OT celiac/autism connection

[Guest guest]

Hi

I can't say for certain, but there's definitely a ? by DD's name. Also mine.

No definite diagnosis on either, but DD started growing like a weed when we

removed all gluten from her diet. Two pounds and almost two inches in the

first

two months. Another couple of pounds and probably another inch in the

next two. She's still small, but no longer looks as though a puff of wind

would

blow her over! She also started sleeping at night the DAY I removed wheat

bread from her diet.

As for me, I suspect I've had a couple of gluten attacks. Runs, dreadful gas,

cramps, headaches after eating bread or pasta. The first thing I notice when

I stop eating gluten is my brain no longer feels fogged; I feel much more

alive.

Margaret

[Guest guest]

I think www.celiac.com has something about the possible connection being

suspected. I know I've seen it on at least one celiac site and it was

mentioned at my last celiac support group meeting, and from personal

experience, I don't need expert opinions, I'm convinced that celiac is

related to autism, ADHD, schizophrenia, and one of the celiac lists is

currently discussing the possibility of the child involved in the recent

school shooting being an undiagnosed celiac because the boy is small and

irrational rages seem to be associated. Celiac disease is really not rare

at all and for some reason this is understood in Europe but not in the US.

In Italy, all children are tested for it before starting school and here

most doctors will look at you like you have 2 heads if you mention the

possibility. I wonder if it's because the pharmaceutical companies control

what doctors are trained to recognize and there's no profit in telling

someone to change their diet. I know that sounds cynical, but why are

doctors so ignorant?

[Guest guest]

JJ is celiac and autism. is celiac and ADHD. These children are not

relatd in anyway. Even more curious is is Korean-very small % of

Asians have Celiac.

& Garry, parents of (10 ds), (9 ds), JJ (7

ds/autism/celiac), (6 ds/ADHD/Celiac), and Esther (4 ds). All adopted.

[Guest guest]

> Okay, this is just killing me...I am just too curious. Has anyone

ever looked at a possible connection between celiac and autism? It

seems to me that a whole bunch of us in this autism boat also have

celiac family members or are celiac ourselves.... "

I've surfed the web for months in pursuit of this issue. Wheat

(and/or any gluten) seems to be a huge, mostly unrecognized,

problem. Apparently, people with Downs Syndrome and autism have very

high rates of CD (one source reported as high as 70%). Mild,

undiagnosed CD may cause behavior symptoms only, such as ADD in kids,

chronic depression in adults. (In fact, a friend w/depression was

just recently dx'd with CD. She was plump, no bowel problems, just

depressed and tired all the time.) A recent FEAT newsletter reported

on a doctor in GB who found that the majority of his patients with

migraines were wheat intolerant and had good recoveries if they were

willing to eliminate it. Another article commented on gluten-related

CFS/FMS.

My son's dad recently tested positive for wheat allergy (RAST test).

(Unfortunately, his doctor didn't pursue the gluten issue, and the

guy still eats rye, oats, etc.) My son (Asp/NLD) isn't allergic to

wheat, but his IgG was extremely high to wheat & most glutinous

grains, plus he had gluten opioids. I (CFS/FMS) thought I didn't

have a problem until I became GFCF and went through a very cranky

withdrawal. Now gluten makes me sick for a day or two - like the flu

w/o a fever. I don't cheat any more!

[Guest guest]

I'm really excited to hear about the growth of these kids once gluten has

been removed. My DS has been on this diet about three weeks now ( though he

was getting spelt, didn't know better, so actually a little over a week

without any gluten). He's been eating about six small meals a day, much

more than he used to. He was always hungry before, but would only eat a

bite or two when fed, now he's eating complete meals. Did anyone notice

this pattern with their children?

I'm really hoping this will lead to growth, he's so small. Also did anyone

else notice an off color with their kids before the diet? I can't find any

information about the coloring, dr suggested that DS was limiting the type

of food he was eating (and this might cause the coloring), but he didn't.

His bone cramps, stomach aches and sore throat are gone, unless he gets a

bite of something he shouldn't, (like last night, took a french fry from a

sibling).

I'd appreciate any comments you can offer me, as I'm struggling with

working this diet and helping my DS.

Thanks,

Lolita