Laurie Thank you all BP medications in Mito.

[Guest guest]

Thats okay Laurie-It didn't take long for me to translate...I will

tell Dr that your neuro and nephrologist suggest that

Accupril protests the kidneys..I just really feel that my doc is

trying his utmost to help me and my mito...unlike some of the

consultants..the Atenolol stuff I do know has him really worried

because of this Q10 stuff, I already take Lipitor so I think I

follow his reasoning..

Gillian

-- In , Laurie Fitzgerald

wrote:

> Gillian

>

> I'm sorry about your having to look the meds up. I could have given

> you the generic names. The docs wanted me off the altenerol, but I

had

> some heart problems (chest heaviness) so I went back on it at a low

> dose - 25 mg twice a day. My neuro and nephologist both say that

the

> quinapril is the best thing - it protects the kidneys and only has

to

> be taken once a day, although they are open to splitting the dose

if I

> get better control with that. I have been on the same dose of the

meds

> for several years.

>

> lauriel

>

>

> > Thanks all,

> > have spent a while getting the US names translated to

UK

> > names via google..Accupril is our Quinapril an ACE1..Vasotec is

> > Enapril an ACE1 which I developed an allergic reaction to after

> > being on it for a couple of years no -one could explian

> > why.....Norvase is Amlopidine which sent me into heart failure

mito

> > related possibly electrolyte trouble..this is most interesting

as I

> > see that no-one is taking ARB's ..it was ARBs Candesarten,

Losarten

> > and Irbesarten which the nephrologists said were safe but all

caused

> > me to be hospitalised...

> > Tenormin is our Atenolol which the GP is avoiding as it depletes

Q10

> > according to the info. he has found !!!Maybe that could explian

the

> > fatigue I don't know I'm only a patient..

> > My Gp tried to explian to me and my husband that as the mito is

> > cellular it will affect the way I use meds..seemed logical..then

he

> > said that when drug trials are done anyone with any other

condition

> > even basic things are excluded so it is trial and error even with

> > non-mito patients..and he knows that I have renal problems so he

is

> > trying to find something that will work without sending my

kidneys

> > wrong again get lost in his modes of actions of drugs,

blah,

> > blah..

> > Sunny I understand what you mean about maybe small doses of

drugs..I

> > was having real problems with the Irbesarten, GP wrote to

Consultant

> > and Consultant ignored GP concerns and increased the

dose..result 16

> > days in hospital on potassium drips..GP furious..me 'good

patient'

> > doing as Consultant ordered and Consultant still saying the med

> > could not have done that...but I have MITO so it can this

is

> > why GP is now going to take charge himslf of BP..He has taken

note

> > of my comments on how awful I feel on diuretics and withdrawn

> > them..Our system is that Thiazides are always the first med given

> > for BP followed by Enapril, There are'NHS prescribing protocols'

> > they follow cynics say money-saving so he wil be stepping outside

> > the box with this..Its only consultants that can order some BP

meds

> > in theory..

> > So thanks again all will phone later and tell him which ones you

> > seem to be succeeding with and let him take over

> >

> > Gillian

> >

> >

> >

> >

> > >

> > > > My GP has suggested I ask you all as PATIENTS with MITO. if

any

> > of you

> > > > take BP meds for high blood pressure and if so what have you

> > found to

> > > > work without causing problems re. your mito.

> > > > Yes I seem to react badly to some of

them..lose

> > > > potassium for some unknown reason,

> > > > I have tried diuretics and they were horrendous..

> > > > This is not medical advice he/I are seeking just patients

> > opinions as

> > > > it may help him to give me something that may be commonly

used

> > on this

> > > > list that WORKS without major problems..

> > > >

> > > > Thanks

> > > > Gillian

> > > >

> > > >

> > > >

> > > >

> > > > Medical advice, information, opinions, data and statements

> > contained

> > > > herein are not necessarily those of the list moderators. The

> > author of

> > > > this e mail is entirely responsible for its content. List

> > members are

> > > > reminded of their responsibility to evaluate the content of

the

> > > > postings and consult with their physicians regarding changes

in

> > their

> > > > own treatment.

> > > >

> > > > Personal attacks are not permitted on the list and anyone

who

> > sends

> > > > one is automatically moderated or removed depending on the

> > severity of

> > > > the attack.

> > > >

> > > >

> > > >

> > > >