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Re: Mestinon

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I was on it when they thought I had MG. I couldn't tolerate the time

release kind, but took the regular kind (tablets) every three hours to

avoid double vision and weakness. The Mestinon took an hour or more to

work for me, so I had to take it before I had symptoms.

I had GI side effects with the time release (180 mg?) version, but no

problems with the regular version. I stopped taking it once they

figured out I did not have MG.

YMMV, I'd discuss any side effects you are noticing with your doctor or

pharmacist.

Take care,

RH

>

> I just started taking mestinon for my dysautonomia and am wondering

if

> anyone here is on it as well. I am wondering what your experience is

> with it as far as side effects. Thanks!

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I also was on this when they thought I had MG. I took evey three hours also. it

peaks at two hours and then starts to delcine the next two hours. so every three

hour would create a build up of one dose while the other was coming down, making

a more even level at all times. If I had too much, wich occationally I didn't

seem to need as much, then I would get diarhea, and sometimes muscle twitches.

how empty the stomach is matters, bigger meal. less side effects, small meal, or

empty stomach maDE IT ABSORB VERY QUICKLY CREATING THE SIDE EFFECTS. HOPE THIS

HELPS.

ohgminion rakshasis@...> wrote:

I was on it when they thought I had MG. I couldn't tolerate the time

release kind, but took the regular kind (tablets) every three hours to

avoid double vision and weakness. The Mestinon took an hour or more to

work for me, so I had to take it before I had symptoms.

I had GI side effects with the time release (180 mg?) version, but no

problems with the regular version. I stopped taking it once they

figured out I did not have MG.

YMMV, I'd discuss any side effects you are noticing with your doctor or

pharmacist.

Take care,

RH

>

> I just started taking mestinon for my dysautonomia and am wondering

if

> anyone here is on it as well. I am wondering what your experience is

> with it as far as side effects. Thanks!

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