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I agree, and that was one of my favorite books!!!!!!! Another that compliments

it is Tuesdays with Maury. I think that book shows it's not about why but what

you do with what you have while you're here. God has a plan for it's just

not the one you expected. I guess instead of being a professional baseball

player you're just going to have to settle for Rocket Scientist!!! :-)

My OBG son's is two years old. He contracted Meningites (sp) and had to have

both legs and an arm amputated. They are fighting to save his last arm. The

amazing thing is she says he's doing great with his prothetics and is a

brilliant child. She and her husband both are doctors you talk about people

asking why and how they didn't catch it sooner.. Crazy story huh..

Number23 number23@...> wrote:

To me it's not a question about IF God can work a miracle - He can...... The

question is more like, why doesn't He do it more often (or in your particular

case when you ask him to). I try not to get tangled up in the Why's of it all,

Why He allowed something, etc. Anyone on here read the book A Prayer For Owen

Meaney? It's not a religious story, actually it'll have you laughing your head

off, then bawling yoru eyes out but great story - the point being Owen wasn't

expected to live past birth and did, and in the end, died saving a room full of

children. Was that a God thing? Did God put Own here to save those children?

IN that case, why didn't God just do away with the guy who threw the bomb

-before he threw the boms - , instead? Or was it just that Owen was in the

right place at the right time (or wrong time depending on how you look at it)

with no connection to God's Plan for him to save the children.

With my oldest son having bcf, I think there was a lot of God involved. I won't

elaborate but simply say I could feel it - and still feel it in that child.

And when Everett was born, we knew about Dr. Ponseti (due to ) so we went

there. Now we could spend a life time pondering the signficances of it all, or

the lack of significance. Did God put through torture treatment so we'd

know and appreciat Ponseti in time to save Everett for some divine purpose? Or

was allowed to suffer for some divine purpose we may or may not discover

in our own life? Will his messed up feet prevent him from some great tragidy

later on - say he can't be drafted in to a war because of them? Did Everett's

feet need fixed perfectly for some mission God plans to send him on later in

life, thus paved the path for him? Or is it that one or the other of my

boys is destined to save some other cf baby in the future with their personal

experience and knowledge of the subject?

Or could it just be......... a biological genetic blunder with no hand of God

involved whatsoever?

It's a comfort to me to not know the answeres to these questions. I ponder

them, but I don't beg for an answer nor obcess about any undo unfairness our

family suffers from cf. Can prayer work, of course - but in the process of

praying we can't forget that sometimes, God's answer is simply No, and when we

ask why, it's simply " Because I said so. "

s.

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He's lost both legs AND an arm? OMG! Not sure what meningites is, heard the

name before....wow. Well it's so true in any event, I believe anyway, that God

doesn't take with out giving. Rocket Scientist isn't far off base with ;

I even told him what God took from his feet He put in his head. I love that

Tuesday's book, too, excellent story.

s.

Re: Here's One For Ya'll! / ee

I agree, and that was one of my favorite books!!!!!!! Another that compliments

it is Tuesdays with Maury. I think that book shows it's not about why but what

you do with what you have while you're here. God has a plan for it's just

not the one you expected. I guess instead of being a professional baseball

player you're just going to have to settle for Rocket Scientist!!! :-)

My OBG son's is two years old. He contracted Meningites (sp) and had to have

both legs and an arm amputated. They are fighting to save his last arm. The

amazing thing is she says he's doing great with his prothetics and is a

brilliant child. She and her husband both are doctors you talk about people

asking why and how they didn't catch it sooner.. Crazy story huh..

Number23 number23@...> wrote:

To me it's not a question about IF God can work a miracle - He can...... The

question is more like, why doesn't He do it more often (or in your particular

case when you ask him to). I try not to get tangled up in the Why's of it all,

Why He allowed something, etc. Anyone on here read the book A Prayer For Owen

Meaney? It's not a religious story, actually it'll have you laughing your head

off, then bawling yoru eyes out but great story - the point being Owen wasn't

expected to live past birth and did, and in the end, died saving a room full of

children. Was that a God thing? Did God put Own here to save those children?

IN that case, why didn't God just do away with the guy who threw the bomb

-before he threw the boms - , instead? Or was it just that Owen was in the

right place at the right time (or wrong time depending on how you look at it)

with no connection to God's Plan for him to save the children.

With my oldest son having bcf, I think there was a lot of God involved. I won't

elaborate but simply say I could feel it - and still feel it in that child.

And when Everett was born, we knew about Dr. Ponseti (due to ) so we went

there. Now we could spend a life time pondering the signficances of it all, or

the lack of significance. Did God put through torture treatment so we'd

know and appreciat Ponseti in time to save Everett for some divine purpose? Or

was allowed to suffer for some divine purpose we may or may not discover

in our own life? Will his messed up feet prevent him from some great tragidy

later on - say he can't be drafted in to a war because of them? Did Everett's

feet need fixed perfectly for some mission God plans to send him on later in

life, thus paved the path for him? Or is it that one or the other of my

boys is destined to save some other cf baby in the future with their personal

experience and knowledge of the subject?

Or could it just be......... a biological genetic blunder with no hand of God

involved whatsoever?

It's a comfort to me to not know the answeres to these questions. I ponder

them, but I don't beg for an answer nor obcess about any undo unfairness our

family suffers from cf. Can prayer work, of course - but in the process of

praying we can't forget that sometimes, God's answer is simply No, and when we

ask why, it's simply " Because I said so. "

s.

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> To me it's not a question about IF God can work a miracle - He

can...... The question is more like, why doesn't He do it more

often (or in your particular case when you ask him to). I try not

to get tangled up in the Why's of it all, Why He allowed something,

etc. Anyone on here read the book A Prayer For Owen Meaney? It's

not a religious story, actually it'll have you laughing your head

off, then bawling yoru eyes out but great story - the point being

Owen wasn't expected to live past birth and did, and in the end,

died saving a room full of children. Was that a God thing? Did God

put Own here to save those children? IN that case, why didn't God

just do away with the guy who threw the bomb -before he threw the

boms - , instead? Or was it just that Owen was in the right place

at the right time (or wrong time depending on how you look at it)

with no connection to God's Plan for him to save the children.

>

> With my oldest son having bcf, I think there was a lot of God

involved. I won't elaborate but simply say I could feel it - and

still feel it in that child. And when Everett was born, we knew

about Dr. Ponseti (due to ) so we went there. Now we could

spend a life time pondering the signficances of it all, or the lack

of significance. Did God put through torture treatment so

we'd know and appreciat Ponseti in time to save Everett for some

divine purpose? Or was allowed to suffer for some divine

purpose we may or may not discover in our own life? Will his messed

up feet prevent him from some great tragidy later on - say he can't

be drafted in to a war because of them? Did Everett's feet need

fixed perfectly for some mission God plans to send him on later in

life, thus paved the path for him? Or is it that one or the

other of my boys is destined to save some other cf baby in the

future with their personal experience and knowledge of the subject?

>

> Or could it just be......... a biological genetic blunder with no

hand of God involved whatsoever?

>

> It's a comfort to me to not know the answeres to these questions.

I ponder them, but I don't beg for an answer nor obcess about any

undo unfairness our family suffers from cf. Can prayer work, of

course - but in the process of praying we can't forget that

sometimes, God's answer is simply No, and when we ask why, it's

simply " Because I said so. "

>

> s.

>

>

>

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Share on other sites

I noticed during all those months wore casts, it went like this: When he

was in casts, his mental development sky rocketed. He's learn things hand over

fist. Before a year old he knew his shapes and colors, no kidding. But when he

was free of casts, his learning went out the window, all he wanted to do was

MOVE! Back in casts, he rewrote the law of gravity (j/k haha)....out of casts

again, wild child didn't want to learn a thing, just move move move! And when

ever a major mile stone approached, he would turn in to a monster! Wow, what a

mood! A week or so of total grouch, then suddenly one day he gets up and does

this thing he'd been thinking about so hard. I mean like at 10 months old he

was spoon feeding himself, just one day he decided he could, and did. Raising

him from a baby was facinating to watch.

Everett on the other hand is so " Normal " - it's a pleasure in the other

direction to just see him be a baby.

s.

Good way of putting it! Grace sure can't walk well but has been

tested for so many problems and before turning 3 tested at a 5 year

old level cognitively. The tester said she had never gotten so far

in the test books with such a little one! She was doing analogies

most kindergarteners cant do.... Ive always been thankful that she

has the trouble she does and not something affecting her brain.

Just thought I could brag a moment!........hmmm maybe she can tell

the Dr how to fix her feet!!

> He's lost both legs AND an arm? OMG! Not sure what meningites

is, heard the name before....wow. Well it's so true in any event, I

believe anyway, that God doesn't take with out giving. Rocket

Scientist isn't far off base with ; I even told him what God

took from his feet He put in his head. I love that Tuesday's book,

too, excellent story.

> s.

>

> Re: Here's One For Ya'll! / ee

>

>

>

> I agree, and that was one of my favorite books!!!!!!! Another

that compliments it is Tuesdays with Maury. I think that book shows

it's not about why but what you do with what you have while you're

here. God has a plan for it's just not the one you expected.

I guess instead of being a professional baseball player you're just

going to have to settle for Rocket Scientist!!! :-)

>

> My OBG son's is two years old. He contracted Meningites (sp) and

had to have both legs and an arm amputated. They are fighting to

save his last arm. The amazing thing is she says he's doing great

with his prothetics and is a brilliant child. She and her husband

both are doctors you talk about people asking why and how they

didn't catch it sooner.. Crazy story huh..

>

> Number23 wrote:

> To me it's not a question about IF God can work a miracle - He

can...... The question is more like, why doesn't He do it more

often (or in your particular case when you ask him to). I try not

to get tangled up in the Why's of it all, Why He allowed something,

etc. Anyone on here read the book A Prayer For Owen Meaney? It's

not a religious story, actually it'll have you laughing your head

off, then bawling yoru eyes out but great story - the point being

Owen wasn't expected to live past birth and did, and in the end,

died saving a room full of children. Was that a God thing? Did God

put Own here to save those children? IN that case, why didn't God

just do away with the guy who threw the bomb -before he threw the

boms - , instead? Or was it just that Owen was in the right place

at the right time (or wrong time depending on how you look at it)

with no connection to God's Plan for him to save the children.

>

> With my oldest son having bcf, I think there was a lot of God

involved. I won't elaborate but simply say I could feel it - and

still feel it in that child. And when Everett was born, we knew

about Dr. Ponseti (due to ) so we went there. Now we could

spend a life time pondering the signficances of it all, or the lack

of significance. Did God put through torture treatment so

we'd know and appreciat Ponseti in time to save Everett for some

divine purpose? Or was allowed to suffer for some divine

purpose we may or may not discover in our own life? Will his messed

up feet prevent him from some great tragidy later on - say he can't

be drafted in to a war because of them? Did Everett's feet need

fixed perfectly for some mission God plans to send him on later in

life, thus paved the path for him? Or is it that one or the

other of my boys is destined to save some other cf baby in the

future with their personal experience and knowledge of the subject?

>

> Or could it just be......... a biological genetic blunder with no

hand of God involved whatsoever?

>

> It's a comfort to me to not know the answeres to these questions.

I ponder them, but I don't beg for an answer nor obcess about any

undo unfairness our family suffers from cf. Can prayer work, of

course - but in the process of praying we can't forget that

sometimes, God's answer is simply No, and when we ask why, it's

simply " Because I said so. "

>

> s.

>

>

>

Link to comment
Share on other sites

I noticed during all those months wore casts, it went like this: When he

was in casts, his mental development sky rocketed. He's learn things hand over

fist. Before a year old he knew his shapes and colors, no kidding. But when he

was free of casts, his learning went out the window, all he wanted to do was

MOVE! Back in casts, he rewrote the law of gravity (j/k haha)....out of casts

again, wild child didn't want to learn a thing, just move move move! And when

ever a major mile stone approached, he would turn in to a monster! Wow, what a

mood! A week or so of total grouch, then suddenly one day he gets up and does

this thing he'd been thinking about so hard. I mean like at 10 months old he

was spoon feeding himself, just one day he decided he could, and did. Raising

him from a baby was facinating to watch.

Everett on the other hand is so " Normal " - it's a pleasure in the other

direction to just see him be a baby.

s.

Good way of putting it! Grace sure can't walk well but has been

tested for so many problems and before turning 3 tested at a 5 year

old level cognitively. The tester said she had never gotten so far

in the test books with such a little one! She was doing analogies

most kindergarteners cant do.... Ive always been thankful that she

has the trouble she does and not something affecting her brain.

Just thought I could brag a moment!........hmmm maybe she can tell

the Dr how to fix her feet!!

> He's lost both legs AND an arm? OMG! Not sure what meningites

is, heard the name before....wow. Well it's so true in any event, I

believe anyway, that God doesn't take with out giving. Rocket

Scientist isn't far off base with ; I even told him what God

took from his feet He put in his head. I love that Tuesday's book,

too, excellent story.

> s.

>

> Re: Here's One For Ya'll! / ee

>

>

>

> I agree, and that was one of my favorite books!!!!!!! Another

that compliments it is Tuesdays with Maury. I think that book shows

it's not about why but what you do with what you have while you're

here. God has a plan for it's just not the one you expected.

I guess instead of being a professional baseball player you're just

going to have to settle for Rocket Scientist!!! :-)

>

> My OBG son's is two years old. He contracted Meningites (sp) and

had to have both legs and an arm amputated. They are fighting to

save his last arm. The amazing thing is she says he's doing great

with his prothetics and is a brilliant child. She and her husband

both are doctors you talk about people asking why and how they

didn't catch it sooner.. Crazy story huh..

>

> Number23 wrote:

> To me it's not a question about IF God can work a miracle - He

can...... The question is more like, why doesn't He do it more

often (or in your particular case when you ask him to). I try not

to get tangled up in the Why's of it all, Why He allowed something,

etc. Anyone on here read the book A Prayer For Owen Meaney? It's

not a religious story, actually it'll have you laughing your head

off, then bawling yoru eyes out but great story - the point being

Owen wasn't expected to live past birth and did, and in the end,

died saving a room full of children. Was that a God thing? Did God

put Own here to save those children? IN that case, why didn't God

just do away with the guy who threw the bomb -before he threw the

boms - , instead? Or was it just that Owen was in the right place

at the right time (or wrong time depending on how you look at it)

with no connection to God's Plan for him to save the children.

>

> With my oldest son having bcf, I think there was a lot of God

involved. I won't elaborate but simply say I could feel it - and

still feel it in that child. And when Everett was born, we knew

about Dr. Ponseti (due to ) so we went there. Now we could

spend a life time pondering the signficances of it all, or the lack

of significance. Did God put through torture treatment so

we'd know and appreciat Ponseti in time to save Everett for some

divine purpose? Or was allowed to suffer for some divine

purpose we may or may not discover in our own life? Will his messed

up feet prevent him from some great tragidy later on - say he can't

be drafted in to a war because of them? Did Everett's feet need

fixed perfectly for some mission God plans to send him on later in

life, thus paved the path for him? Or is it that one or the

other of my boys is destined to save some other cf baby in the

future with their personal experience and knowledge of the subject?

>

> Or could it just be......... a biological genetic blunder with no

hand of God involved whatsoever?

>

> It's a comfort to me to not know the answeres to these questions.

I ponder them, but I don't beg for an answer nor obcess about any

undo unfairness our family suffers from cf. Can prayer work, of

course - but in the process of praying we can't forget that

sometimes, God's answer is simply No, and when we ask why, it's

simply " Because I said so. "

>

> s.

>

>

>

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