Re: high blood ammonia/Kim

[Guest guest]

Lactulose is over the counter(UK) also free on prescription in the

UK but I checked with my Doctor first before taking it..

Gillian

> > >

> > > Things just keep popping up...

> > > I found out that my blood ammonia level has been consistently

in

> > the

> > > 80's. My liver function tests are normal and my cardiac

profile

> > > (triglycerides and lipids) is low normal, and renal tests are

> > > excellent. I was told that ammonia can be high with metabolic

> > > disorders. Any thoughts? Also, magnesium is on the low side

> but

> > > urine Mg is normal so I'm not losing it that way.Potassium is

a

> > touch

> > > low too. High ammonia and high lactate levels in my labs

> haven't

> > > seemed to be linked in any way so far. The metabolics NP

asked

> if

> > I

> > > had a hard time with protein in my diet and I said that I do

> fine

> > > when I'm eating normally but that I started vomiting after 2

> days

> > on

> > > Atkins.

> > >

> > > It's kind of funny, I've talked to other parents about how we

> know

> > > that our kids are having a crisis and it seems like some kids

> get

> > lab

> > > changes and some kids can be really sick and have labs that

look

> > > perfect. is a " funky lab " kid and I guess I am too.

> > There's

> > > got to be some correlation between our labs, but my lab

changes

> are

> > > not the same as hers.

> > >

> > > We're heading into Boston this morning and is having

her

> > > broviac replaced. It's wiggling out of her chest. She's

> staying

> > > overnight and hopefully will be home Saturday some time. My

> > husband

> > > will update her site: www.caringbridge.org/ma/heather

> > >

> > > Thanks!

> > > Heidi

[Guest guest]

Thanks, I'll look for it.

Kim

> > > >

> > > > Things just keep popping up...

> > > > I found out that my blood ammonia level has been

consistently

> in

> > > the

> > > > 80's. My liver function tests are normal and my cardiac

> profile

> > > > (triglycerides and lipids) is low normal, and renal tests

are

> > > > excellent. I was told that ammonia can be high with

metabolic

> > > > disorders. Any thoughts? Also, magnesium is on the low

side

> > but

> > > > urine Mg is normal so I'm not losing it that way.Potassium

is

> a

> > > touch

> > > > low too. High ammonia and high lactate levels in my labs

> > haven't

> > > > seemed to be linked in any way so far. The metabolics NP

> asked

> > if

> > > I

> > > > had a hard time with protein in my diet and I said that I do

> > fine

> > > > when I'm eating normally but that I started vomiting after 2

> > days

> > > on

> > > > Atkins.

> > > >

> > > > It's kind of funny, I've talked to other parents about how

we

> > know

> > > > that our kids are having a crisis and it seems like some

kids

> > get

> > > lab

> > > > changes and some kids can be really sick and have labs that

> look

> > > > perfect. is a " funky lab " kid and I guess I am too.

> > > There's

> > > > got to be some correlation between our labs, but my lab

> changes

> > are

> > > > not the same as hers.

> > > >

> > > > We're heading into Boston this morning and is having

> her

> > > > broviac replaced. It's wiggling out of her chest. She's

> > staying

> > > > overnight and hopefully will be home Saturday some time. My

> > > husband

> > > > will update her site: www.caringbridge.org/ma/heather

> > > >

> > > > Thanks!

> > > > Heidi

[Guest guest]

I went surfing as all naughty patients do...

I had to have loads of tests, an MRA/DMSA/MAG3/KUB (just copied that

lot from my file)24 hour urine things potassium sodium etc,

specialist protein analysis sent to a reasearch lab.,serum uric acid

and citrate plus an erythropoietin level and a early morning spot

urine for pH, osmolality creatine and citrate..and I

don't understand a word of it..

All I know is that they found problems which they monitor...Don't

forget Kim I am in the UK where maybe testing for mito. involvement

may be different..

Gillian

> > > >

> > > > Things just keep popping up...

> > > > I found out that my blood ammonia level has been

consistently

> in

> > > the

> > > > 80's. My liver function tests are normal and my cardiac

> profile

> > > > (triglycerides and lipids) is low normal, and renal tests

are

> > > > excellent. I was told that ammonia can be high with

metabolic

> > > > disorders. Any thoughts? Also, magnesium is on the low

side

> > but

> > > > urine Mg is normal so I'm not losing it that way.Potassium

is

> a

> > > touch

> > > > low too. High ammonia and high lactate levels in my labs

> > haven't

> > > > seemed to be linked in any way so far. The metabolics NP

> asked

> > if

> > > I

> > > > had a hard time with protein in my diet and I said that I do

> > fine

> > > > when I'm eating normally but that I started vomiting after 2

> > days

> > > on

> > > > Atkins.

> > > >

> > > > It's kind of funny, I've talked to other parents about how

we

> > know

> > > > that our kids are having a crisis and it seems like some

kids

> > get

> > > lab

> > > > changes and some kids can be really sick and have labs that

> look

> > > > perfect. is a " funky lab " kid and I guess I am too.

> > > There's

> > > > got to be some correlation between our labs, but my lab

> changes

> > are

> > > > not the same as hers.

> > > >

> > > > We're heading into Boston this morning and is having

> her

> > > > broviac replaced. It's wiggling out of her chest. She's

> > staying

> > > > overnight and hopefully will be home Saturday some time. My

> > > husband

> > > > will update her site: www.caringbridge.org/ma/heather

> > > >

> > > > Thanks!

> > > > Heidi

[Guest guest]

I guess I got it reversed, both lactitol and lactulose are non-

prescription in Europe I guess. They are both used mostly as

laxatives, but also " scrub " ammonia from the blood.

Take care,

RH

> > > >

> > > > Things just keep popping up...

> > > > I found out that my blood ammonia level has been consistently

> in

> > > the

> > > > 80's. My liver function tests are normal and my cardiac

> profile

> > > > (triglycerides and lipids) is low normal, and renal tests are

> > > > excellent. I was told that ammonia can be high with

metabolic

> > > > disorders. Any thoughts? Also, magnesium is on the low side

> > but

> > > > urine Mg is normal so I'm not losing it that way.Potassium is

> a

> > > touch

> > > > low too. High ammonia and high lactate levels in my labs

> > haven't

> > > > seemed to be linked in any way so far. The metabolics NP

> asked

> > if

> > > I

> > > > had a hard time with protein in my diet and I said that I do

> > fine

> > > > when I'm eating normally but that I started vomiting after 2

> > days

> > > on

> > > > Atkins.

> > > >

> > > > It's kind of funny, I've talked to other parents about how we

> > know

> > > > that our kids are having a crisis and it seems like some kids

> > get

> > > lab

> > > > changes and some kids can be really sick and have labs that

> look

> > > > perfect. is a " funky lab " kid and I guess I am too.

> > > There's

> > > > got to be some correlation between our labs, but my lab

> changes

> > are

> > > > not the same as hers.

> > > >

> > > > We're heading into Boston this morning and is having

> her

> > > > broviac replaced. It's wiggling out of her chest. She's

> > staying

> > > > overnight and hopefully will be home Saturday some time. My

> > > husband

> > > > will update her site: www.caringbridge.org/ma/heather

> > > >

> > > > Thanks!

> > > > Heidi