Management of multiple doctors

[Guest guest]

I called a local genetics/metabolics clinic, to see if I could get to

see them sooner than Dr. K, and this local doctor's office person was

grilling me about if I " only wanted to see what they thought, but

wouldn't listen to them " . It seems since they aren't at a " big

hospital " , people see them because it is convenient, but go against

their advice to follow specialists from around the country (U.S. in

this case) or even around the world.

I was straight with them, in that I told them I wanted to find out if

I have a urea cycle disorder (in addition to mitochondrial disease),

and that was my main goal. My MDA neuro is my " main doctor " , and I

have about five others that are specialists in other areas.

Most of my doctors are conservative, so they aren't " interfering "

with each others specialities too much. But I find it frustrating

that a doctor's office would say " I don't want to be your doctor if

you have a lot of doctors already " (I don't have a metabolics doctor

yet, but am visiting Dr. K later this year). Are a lot of people in

this situation?

Perhaps many of you are like me, that you're afraid if there are no

local doctors familiar with your case, there'll be big trouble if you

go to the ER. Even so, this " local doctor " is 45 minutes away, so

I'd have to notify people that I'd want to go to that hospital if I

have a problem. I am 50 miles away from Phila. and NYC, so don't

have big reputable medical centers available at the drop of a hat.

Thanks,

RH