Guest guest Posted September 30, 2000 Report Share Posted September 30, 2000 Hi, Ken, & all, > Bell & Streeten reports that some CFIDS patients have as low as ~ 50% >of the >red blood cell count as normal people... drawing blood will drop the >capacity >of the blood to carry oxygen more, perhaps just enough to take you to a >deeper >level of hypoxia.... the 2 week recovery may be the time it takes the body >to >rebuild that amount of red blood cells... I recall that the life expectancy >of >red blood cells is about 120 days thus the ability to restore is 1/120 per >day >or in 2 weeks, 14/120 = 10%. > Thus trying to build up red blood cell count BEFORE a draw may >reduce >the severity of the reaction -- that means LOTS of all of the ingrediants >needed >for red blood cell production... 120 days is average lifespan for RBCs, and they are replaced at the rate of 1/120 per day. But if there is a blood loss or other shortage of RBCs the marrow can put out a pulse of RBCs that will replace about 1/2 of the body's supply in 3 days or so. (This is at the expense of WBCs, since the precursor cells are all tied up making RBCs.) More important for the acute reaction I think is the volume issue. Since most PWCs are about 50% of normal blood volume, a small decrease life a blood draw can push them over (under?) the edge, and lead to shock-like symmptoms just based on blood volume and its effects on BP. That means it is more important to get lots of fluids and electrollytes (any sport drink will do, although some may be better and Gookinaid has been highly recommended on this list.) Jerry _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 : clinical study seems to support chelation? what is this substance - has anyone had any experiences with this? Cheers mary H The substance is allithiamine (ttft). My child was put on this by Dr. Lonsdale who conducted this study. The allithiamine he has my child on is Ecological Formulas. She takes 8 a day orally. Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 how is it going Michele, please share with us - the details, very interested Cheers H Re: [ ] Digest Number 1243 > : clinical study seems to support chelation? > > what is this substance - has anyone had any experiences with this? > Cheers mary H > The substance is allithiamine (ttft). My child was put on this by Dr. > Lonsdale who conducted this study. The allithiamine he has my child on is > Ecological Formulas. She takes 8 a day orally. > Michele > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2003 Report Share Posted September 20, 2003 In a message dated 9/20/03 7:37:18 AM Eastern Daylight Time, writes: > Interesting article. What herbs does it have in it? I have looked it > up and I can't find that info out. I am a little scared using > anything with herbs in it. I really don't know how they will affect > my medication.... > Thanks > > Lyprinol is not an herb.... it is made from a sea critter, a type of mussel. If arthritis is your concern, my son on Deapkote and Lamictal gets relief with glucosamine sulfate and MSM (another kind of sulfur that naturally occurs in your body). Hope this helps MJH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2003 Report Share Posted September 20, 2003 In a message dated 9/20/03 7:37:18 AM Eastern Daylight Time, writes: > Subject: Re: Re: AEDs & drug free seizure control-magnesium toxicity-Barb > > , > Alright, why. How much time is usually enough > Barb > [ ] Re: AEDs & drug free seizure control-magnesium > toxicity-Barb > > > > Make sure she doesn't mix the magnesium with the meds. > > > > I give my son 250 mg of Mg oxide three times a day along with his other supplements and Lamictal and Depakote. Been doing this supplemental Mg for over a year now and I've seen no cause for concer. But, that doesn't mean Mg SHOULD be given at the same time for everyone. And, he's only had ONE gran mal/status episode since Dec 2002! mjh MJH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2003 Report Share Posted September 20, 2003 I have read it in one of my support groups. I belive it can cause seizures. I myself have switched to another time of day just incase. > In a message dated 9/20/03 7:37:18 AM Eastern Daylight Time, > writes: > > > > Subject: Re: Re: AEDs & drug free seizure control-magnesium toxicity-Barb > > > > , > > Alright, why. How much time is usually enough > > Barb > > [ ] Re: AEDs & drug free seizure control- magnesium > > toxicity-Barb > > > > > > > Make sure she doesn't mix the magnesium with the meds. > > > > > > > > I give my son 250 mg of Mg oxide three times a day along with his other > supplements and Lamictal and Depakote. Been doing this supplemental Mg for over a > year now and I've seen no cause for concer. > > But, that doesn't mean Mg SHOULD be given at the same time for everyone. > > And, he's only had ONE gran mal/status episode since Dec 2002! > > mjh > > MJH > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2003 Report Share Posted September 20, 2003 YOU REALLY HAVE TO WATCH THE DEPAKOTE BACK IN THE 80'S A DR. PUT ME ON THE AND IN WAS DAMAGING MY LIVER SO WATCH OUT WITH DEPAKOTE OK foxhillers@... wrote:In a message dated 9/20/03 7:37:18 AM Eastern Daylight Time, writes: > Subject: Re: Re: AEDs & drug free seizure control-magnesium toxicity-Barb > > , > Alright, why. How much time is usually enough > Barb > [ ] Re: AEDs & drug free seizure control-magnesium > toxicity-Barb > > > > Make sure she doesn't mix the magnesium with the meds. > > > > I give my son 250 mg of Mg oxide three times a day along with his other supplements and Lamictal and Depakote. Been doing this supplemental Mg for over a year now and I've seen no cause for concer. But, that doesn't mean Mg SHOULD be given at the same time for everyone. And, he's only had ONE gran mal/status episode since Dec 2002! mjh MJH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2003 Report Share Posted September 20, 2003 MJH, You are an amazing wealth of knowledge!! Unfortunately my guess is that it came at a painful price, a road you would have never chosen but have had to walk. If this is true, I'm sorry you've had to endure it. My question: Is Magnesium Oxide the same as Magnesium Glycinate, if not what's the difference? She was getting loose stoole on about 35 mg 3 times per day. Thx, Barb [ ] Re: AEDs & drug free seizure control-magnesium > > toxicity-Barb > > > > > > > Make sure she doesn't mix the magnesium with the meds. > > > > > > > > I give my son 250 mg of Mg oxide three times a day along with his other > supplements and Lamictal and Depakote. Been doing this supplemental Mg for over a > year now and I've seen no cause for concer. > > But, that doesn't mean Mg SHOULD be given at the same time for everyone. > > And, he's only had ONE gran mal/status episode since Dec 2002! > > mjh > > MJH > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2003 Report Share Posted September 20, 2003 Thank you [ ] Re: AEDs & drug free seizure control- > magnesium > > > toxicity-Barb > > > > > > > > > > Make sure she doesn't mix the magnesium with the meds. > > > > > > > > > > > > I give my son 250 mg of Mg oxide three times a day along with his > other > > supplements and Lamictal and Depakote. Been doing this > supplemental Mg for over a > > year now and I've seen no cause for concer. > > > > But, that doesn't mean Mg SHOULD be given at the same time for > everyone. > > > > And, he's only had ONE gran mal/status episode since Dec 2002! > > > > mjh > > > > MJH > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2003 Report Share Posted September 20, 2003 Mark, Looks like you've been through a lot too. It's never easy. Thanks for always sharing so much info. Barb [ ] Re: AEDs & drug free seizure control-magnesium > > toxicity-Barb > > > > > > > Make sure she doesn't mix the magnesium with the meds. > > > > > > > > I give my son 250 mg of Mg oxide three times a day along with his other > supplements and Lamictal and Depakote. Been doing this supplemental Mg for over a > year now and I've seen no cause for concer. > > But, that doesn't mean Mg SHOULD be given at the same time for everyone. > > And, he's only had ONE gran mal/status episode since Dec 2002! > > mjh > > MJH > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2003 Report Share Posted September 21, 2003 You are absolutely right about Depakote and other AEDs as causing potential liver damage. That's why most docs order liver tests every so often. And, that's why I give my son Milk thistle and incorporate liver supporting foods in his diet. mjh In a message dated 9/20/03 7:37:18 AM Eastern Daylight Time, > writes: >> > I give my son 250 mg of Mg oxide three times a day along with his other > supplements and Lamictal and Depakote. Been doing this supplemental Mg for over a > year now and I've seen no cause for concer. > > But, that doesn't mean Mg SHOULD be given at the same time for everyone. > > And, he's only had ONE gran mal/status episode since Dec 2002! > > mjh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2003 Report Share Posted September 21, 2003 Like Zoe, my kid is a miracle of hope and perseverance. There are many forms of Magnesium, as you can see in any health food store. The side panel will also tell you the amount of available elemental Mg. So oxide and glycinate (from an amino acid) are just two types. Some dark leafy greens are rich food sources of Mg. I got this lesson big time a few years ago.... the lesson of finding an effective source..... Two docs told me to take Mg and for two years I tried many brands and types and none seemed to provide the expected results. Then, based on a chance finding of a twentyfive year old book by a psychiatrist and two infomercials..... all talked about increased availability of Mg in liquid form. So, I crushed some Mg citrate, added boiling water, let it cool and drank it. Amazing. I felt an effect within minutes that I never felt just taking the same thing in pill form. So, I graduated to Milk of Magnesia (Mg hydroxide) as my source. 1 teaspoon = 400 mg and my body needs about 1,200 mg per day. Charlie, on the other hand, finds effect with the cheap Mg oxide. So, that's what he gets. 250 mg two times a day. 500 mg daily and I will probably increase that again. And, keep in mind, too, that Mg needs to be in relationship with Ca some say 1/2 as much Mg as Ca, others say Mg and Ca in 1:1 relationship. Don't forget also, what comes through diet. Mg also requires B complex to work properly. I would suggest you lower the dose to 1/2 three times a day and slowly work up from there. And, consider different Mg sources. That way, your child's body will begin to gain more tolerance to it and will accept higher doses without loose stools (this is NOT diarrhea). > MJH, > > You are an amazing wealth of knowledge!! Unfortunately my guess is that it > came at a painful price, a road you would have never chosen but have had to > walk. If this is true, I'm sorry you've had to endure it. > > My question: Is Magnesium Oxide the same as Magnesium Glycinate, if not > what's the difference? She was getting loose stoole on about 35 mg 3 times > per day. > > Thx, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2003 Report Share Posted September 23, 2003 Thank you MJH. I'll give it a try and keep you posted. Barb [ ] Re: Digest Number 1243 > Like Zoe, my kid is a miracle of hope and perseverance. > > There are many forms of Magnesium, as you can see in any health food > store. The side panel will also tell you the amount of available > elemental Mg. So oxide and glycinate (from an amino acid) are just > two types. Some dark leafy greens are rich food sources of Mg. > > I got this lesson big time a few years ago.... the lesson of finding > an effective source..... > > Two docs told me to take Mg and for two years I tried many brands and > types and none seemed to provide the expected results. > > Then, based on a chance finding of a twentyfive year old book by a > psychiatrist and two infomercials..... all talked about increased > availability of Mg in liquid form. So, I crushed some Mg citrate, > added boiling water, let it cool and drank it. Amazing. I felt an > effect within minutes that I never felt just taking the same thing in > pill form. > > So, I graduated to Milk of Magnesia (Mg hydroxide) as my source. 1 > teaspoon = 400 mg and my body needs about 1,200 mg per day. > > Charlie, on the other hand, finds effect with the cheap Mg oxide. So, > that's what he gets. 250 mg two times a day. 500 mg daily and I will > probably increase that again. > > And, keep in mind, too, that Mg needs to be in relationship with Ca > some say 1/2 as much Mg as Ca, others say Mg and Ca in 1:1 > relationship. Don't forget also, what comes through diet. > > Mg also requires B complex to work properly. > > I would suggest you lower the dose to 1/2 three times a day and > slowly work up from there. And, consider different Mg sources. That > way, your child's body will begin to gain more tolerance to it and > will accept higher doses without loose stools (this is NOT diarrhea). > > > > > MJH, > > > > You are an amazing wealth of knowledge!! Unfortunately my guess is > that it > > came at a painful price, a road you would have never chosen but > have had to > > walk. If this is true, I'm sorry you've had to endure it. > > > > My question: Is Magnesium Oxide the same as Magnesium Glycinate, > if not > > what's the difference? She was getting loose stoole on about 35 mg > 3 times > > per day. > > > > Thx, Barb > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 From: " Shere Akery " <sakery@...> Subject: Fragrant oils in massage You can get skin safe FO (Fragrance Oils) at almost any candle/toiletry supplier. [ From: Ravenna [mailto:ravenna@...] Sent: Tuesday, January 13, 2004 10:20 PM The bottles of fragrance oil i seen said not to use on skin,but > someone said since they are used in small quantities they would be > ok.Will they mix OK with massage oils? Hello Shere...this is a mistake! I didn't send the message above that you sent as mine! I sent one in reply to the message saying that I wouldn't consider using fo's as they are chemical and have no healing properties. Eo's are used in massage oils to heal, rather than to smell good! Nerys On-line workshops:Bodycraft (toiletry making) Home Dispensary (herbal health care) For details go to: www.neryspurchon.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2005 Report Share Posted October 23, 2005 Hi Lois: My six year old son with HFA just started Abilify a week ago. It gave him insomnia the first nite we tried it, so now we are giving it to him in the morning. They put him on 5mg but I cut it back to 1/2 a dose. He was still getting tired in the afternoons so I cut back to 1/4 the dose. He sleeps 10 hrs at nite, crashing at 8:00 at the latest and waking at 6:00 ( I wish he slept later........). His focus has improved and hyperactivity decreased. The feedback I'm getting from his teacher is positive so far. He still likes to spin really fast. Is that sensory??? I swear, he looks like he's practicing for the ice capades! Ann inWPB Quote Link to comment Share on other sites More sharing options...
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