Guest guest Posted February 3, 2005 Report Share Posted February 3, 2005 My sons C reactive was quite high for a little guy also. 2.5 But he has vasculitis of the cerebral arteries..when it flares his levels go high Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2005 Report Share Posted February 3, 2005 CRP is a blood test that measures inflammation in the body. It is similar to a sedimentation rate but more sensitive. Inflammation anywhere in the body can cause the C-reactive protein to elevate. Mine elevates with certain groups of symptoms and for several years we were tracking it regularly. In our lab, anything below .8 is considered normal. Mine goes up to 2.5 or 3.0 which is considered significant. In recent years, they have discovered that an elevated CRP may be associated with an increased risk of heart attack. But in general, elevated CRP is a non-specific finding that can be associated with many different conditions, even a respiratory infection or sore throat. B _____ From: Young Sent: Thursday, February 03, 2005 6:42 PM To: Mitoldies Subject: C-reactive protein I just found out that my blood shows that I do have a positive C-Reactive protein. I was already at a high risk of heart attack:( Does any one else have a positive to this blood test? what has been your experience? They did my carotid arteries today and it does show atheroclerosis but he said it is minimial but there was another section that was occluded (sp?) but that it was not as important as the main arteries. I would appreciate anyone who has lived with this C-Reactive protein diagnosis for awhile to let me know what they have found. Thanks. Blessings, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2005 Report Share Posted February 3, 2005 Wow you are fast!!!!) I have said for years that I feel like I have an infection that I am fighting all the time. But it hasn't been found if there is one. Obviously there is:) Or like you said, it can be from other things. I did read it is also associated with R.A. lupus, and other autoimmune disease's. I just feel so incredibly sick all the time. Of course there are few on this list that don't , right?? ha My heart attack chance is very high, as I have high BP and my lipids are on the higher side, but not horrible. But the family history is just deadly, and you can't do a thing about that! My brother had a massive coronary at 51, on his birthday no less. We had just finished celebrating the year before because he made it past 50, we thought the family curse was broke. ha Most of the Lee side dies by 50. But on his 51 birthday this happens:( He pulled through, only to have 2 more. Not as severe as the first one which they said they have no idea how he lived through it. so what group of symptoms does yours elevate with? Do you mind sharing? Also, do you have any heart problems or do they figure you are at high risk for it? Smiles, C-reactive protein > > > > I just found out that my blood shows that I do have a positive C-Reactive > protein. I was already at a high risk of heart attack:( Does any one else > have a positive to this blood test? what has been your experience? They did > my carotid arteries today and it does show atheroclerosis but he said it is > minimial but there was another section that was occluded (sp?) but that it > was not as important as the main arteries. I would appreciate anyone who > has lived with this C-Reactive protein diagnosis for awhile to let me know > what they have found. Thanks. > > Blessings, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2005 Report Share Posted February 3, 2005 Bless your heart, I've been very tortoise-like today, so it's nice to be fast at something! There is a cluster of symptoms: attack of severe abdominal pain, fluid accumulation in abdomen (feels like my middle is literally going to explode, much worse than gas or GI bloating), severe kidney pain, nausea, vascular rash over trunk, upper arms, upper legs, scant urine. This cluster always appears together. I recognize them as easily as I recognize my mother. Onset is always within 24 hours following an attack of muscle breakdown. Engine and caboose, two clusters always in sequence. Once the abdominal/kidney pain starts, the C-reactive protein elevates. It does not elevate with the muscle attacks. It's only the more severe muscle attacks that are followed by the second abdominal/kidney attack. Milder ones don't do it. Still, I've had well over a hundred of these abdominal/kidney attacks starting in 1980. For years they had me keeping a log, but we quit counting quite a while back. Yes, I do have some heart problems, been hospitalized several times for that reason, but I haven't asked anyone to calculate my risks of heart attack. I know they are much higher than the general population, but not sure what number they would come up with. B _____ From: Young Sent: Thursday, February 03, 2005 7:13 PM To: Subject: Re: C-reactive protein * Wow you are fast!!!!) so what group of symptoms does yours elevate with? Do you mind sharing? Also, do you have any heart problems or do they figure you are at high risk for it? Smiles, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2005 Report Share Posted February 3, 2005 Yeah, that would do it all right. Sorry to hear he's got this problem. Not fun. B _____ From: MitomomX3@... Sent: Thursday, February 03, 2005 7:57 PM To: Subject: Re: C-reactive protein My sons C reactive was quite high for a little guy also. 2.5 But he has vasculitis of the cerebral arteries..when it flares his levels go high Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2005 Report Share Posted February 3, 2005 Wow, thank you Barb. I appreciate your willingness to share with me. these things really are the Pits!! heh? It is no wonder we have such fine folks with strong character on here. Trials do tend to build character, that is for sure. smiles to you my friend, Re: C-reactive protein > > > > * Wow you are fast!!!!) > > > so what group of symptoms does yours elevate with? Do you mind sharing? > Also, do you have any heart problems or do they figure you are at high risk > for it? > > Smiles, > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2005 Report Share Posted February 4, 2005 Great answer, Barbara! Point is, it's a sign of inflammation that can be due to heart issues, but many other things as well. I really don't know if there is a heart risk if the cause of the high CRP is due to " something else " - a sore throat, etc. It may be, as I know periodontal disease has been linked to heart problems, among other things. Take care, RH > CRP is a blood test that measures inflammation in the body. It is similar to > a sedimentation rate but more sensitive. Inflammation anywhere in the body > can cause the C-reactive protein to elevate. Mine elevates with certain > groups of symptoms and for several years we were tracking it regularly. In > our lab, anything below .8 is considered normal. Mine goes up to 2.5 or 3.0 > which is considered significant. In recent years, they have discovered that > an elevated CRP may be associated with an increased risk of heart attack. > But in general, elevated CRP is a non-specific finding that can be > associated with many different conditions, even a respiratory infection or > sore throat. > > > > B > > > > _____ > > From: Young [mailto:jlyoung@a...] > Sent: Thursday, February 03, 2005 6:42 PM > To: Mitoldies > Subject: C-reactive protein > > > > I just found out that my blood shows that I do have a positive C- Reactive > protein. I was already at a high risk of heart attack:( Does any one else > have a positive to this blood test? what has been your experience? They did > my carotid arteries today and it does show atheroclerosis but he said it is > minimial but there was another section that was occluded (sp?) but that it > was not as important as the main arteries. I would appreciate anyone who > has lived with this C-Reactive protein diagnosis for awhile to let me know > what they have found. Thanks. > > Blessings, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2005 Report Share Posted February 4, 2005 Regarding your son's dx of vasculitis, did he have a cerebral angiogram? I've been " supposed to have one " for years, to confirm or deny the same diagnosis, but the local hospital just started doing them when I first got the prescription, and I heard the procedure has a significant (well, 5% or more) risk of stroke if one already has stroke-like episodes. Does he have a mito dx as well? Do they know if the inflammation is causing the mito disease? My muscle biopsy showed a lot of inflammation and dead muscle, so I wonder " chicken and egg " , which caused which? Sorry for all the questions, but they keep throwing that dx as a possibility at me. Take care, RH > My sons C reactive was quite high for a little guy also. 2.5 > But he has vasculitis of the cerebral arteries..when it flares his levels go > high > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2005 Report Share Posted February 4, 2005 You're right, RH. I think it is a chronically elevated CRP associated with circulatory disease that increases risk of heart disease. Certainly not a sore throat. B _____ From: ohgminion Sent: Friday, February 04, 2005 4:48 PM To: Subject: Re: C-reactive protein Great answer, Barbara! Point is, it's a sign of inflammation that can be due to heart issues, but many other things as well. I really don't know if there is a heart risk if the cause of the high CRP is due to " something else " - a sore throat, etc. It may be, as I know periodontal disease has been linked to heart problems, among other things. Take care, RH > CRP is a blood test that measures inflammation in the body. It is similar to > a sedimentation rate but more sensitive. Inflammation anywhere in the body > can cause the C-reactive protein to elevate. Mine elevates with certain > groups of symptoms and for several years we were tracking it regularly. In > our lab, anything below .8 is considered normal. Mine goes up to 2.5 or 3.0 > which is considered significant. In recent years, they have discovered that > an elevated CRP may be associated with an increased risk of heart attack. > But in general, elevated CRP is a non-specific finding that can be > associated with many different conditions, even a respiratory infection or > sore throat. > > > > B > > > > _____ > > From: Young [mailto:jlyoung@a...] > Sent: Thursday, February 03, 2005 6:42 PM > To: Mitoldies > Subject: C-reactive protein > > > > I just found out that my blood shows that I do have a positive C- Reactive > protein. I was already at a high risk of heart attack:( Does any one else > have a positive to this blood test? what has been your experience? They did > my carotid arteries today and it does show atheroclerosis but he said it is > minimial but there was another section that was occluded (sp?) but that it > was not as important as the main arteries. I would appreciate anyone who > has lived with this C-Reactive protein diagnosis for awhile to let me know > what they have found. Thanks. > > Blessings, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2005 Report Share Posted February 5, 2005 RH, My sons mito came first. No doubt about that and he does have a definitive mito. His vasculitis came along when he was three. He does have a confirmed Vasculitis by MRA. He is on coumadin and asparin due to clotting disorders and cannot undergo angiogram. If he did he would either stroke off the coumadin (as he has had multiple SLE's and 4 pulmonary embolisms) or bleed out on coumadin and you cannot stop a brain bleed. either way the docs said they would probally loose him on the table. He has had a MRA every year and his films show the occlsions clearly and they have moved all about his brain every MRA as is typical with vasculitis and the films have been read by neurologists, radiologists and sent to other states to be read by neuroradiloggists and even pediatric neuro radiologists. every one has said vasculitis so basically the angiogram would only confirm what we already know and provide no further treatment options.. Is your vasculitis CNS also? did you have a MRA? The docs all said the vasculitis is due to the mito as the arteries are smooth muscle and therefore subject to mito. I read this also in one of cohens articles, I believe it was Cohen..... I sure hope you are not severly affected by this vasculitis , it can be nasty...are tehy giving you anything for it? My son is immunedeficient so htey dont feel comfortable with long term prednisone only short courses with IVIG... Quote Link to comment Share on other sites More sharing options...
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