Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Hi Karyn, I wanted to thank you for your post as it was so clear and precise. Such well expressed thoughts are to be applauded. No, we don't like the condition the symptoms or the problems. But, it's so good to know the true situation from an overall perspective. We live our lives for the best, we live from day to day trying to appreciate the positive aspects of our daily living. Your post was not a " wake-up " call but just the warp and woof that we shall tie our threads to minute by minute. The information is there and the conclusion is and will be whatever we make of it. And to that end I give my.... Very Best Wishes to all - Poncho -GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Hi Karyn, I wanted to thank you for your post as it was so clear and precise. Such well expressed thoughts are to be applauded. No, we don't like the condition the symptoms or the problems. But, it's so good to know the true situation from an overall perspective. We live our lives for the best, we live from day to day trying to appreciate the positive aspects of our daily living. Your post was not a " wake-up " call but just the warp and woof that we shall tie our threads to minute by minute. The information is there and the conclusion is and will be whatever we make of it. And to that end I give my.... Very Best Wishes to all - Poncho -GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Karyn, I did did not mean to demean the seriousness of being diabetic, I just meant to say its not the end of the world, and you can deal with it. It can be over whelming at first, but once you get into a good routine its not only managable but " SURVIVABLE " Thanks Eddie Kline > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Karyn, I did did not mean to demean the seriousness of being diabetic, I just meant to say its not the end of the world, and you can deal with it. It can be over whelming at first, but once you get into a good routine its not only managable but " SURVIVABLE " Thanks Eddie Kline > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Karyn, I did did not mean to demean the seriousness of being diabetic, I just meant to say its not the end of the world, and you can deal with it. It can be over whelming at first, but once you get into a good routine its not only managable but " SURVIVABLE " Thanks Eddie Kline > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2003 Report Share Posted March 6, 2003 Dear Karyn: The information you presented is so important, and so difficult to absorb. I've printed it out and will share it with the naturopath who has helped me understand this disease so much more than the conventional medical personnel I've been dealing with. I'd like to share it with my PCP as well, but I don't know if she'll take the time to read it. I'll probably need to read and re-read it myself as well as discuss it with the naturopath before I understand all of it. It is scary. But thank you for sharing your knowledge and your experience. Aloha, Chris > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2003 Report Share Posted March 6, 2003 Dear Karyn: The information you presented is so important, and so difficult to absorb. I've printed it out and will share it with the naturopath who has helped me understand this disease so much more than the conventional medical personnel I've been dealing with. I'd like to share it with my PCP as well, but I don't know if she'll take the time to read it. I'll probably need to read and re-read it myself as well as discuss it with the naturopath before I understand all of it. It is scary. But thank you for sharing your knowledge and your experience. Aloha, Chris > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 Hey Eddie....can you send me the url for where you got this information....would love to post it on my site at www.top5plus5.com Thanks I hope this finds you and yours well Mark Diabetes > > Hi Group, > Those of us with diabetes may find this interesting, > This made the news recently. > Eddie > > Fluorescent cells > > The researchers genetically modified bone marrow cells from male mice > to produce a protein which gives cells a fluorescent glow when they > are near activated insulin genes. > > These were then transplanted into female mice whose bone marrow had > been destroyed by radiation. > > Researchers examined the mice four to six weeks later, and found a > small number of the glowing green cells in the pancreatic islets of > Langerhans. > > They were the cells which had come from the bone marrow and they were > behaving in exactly the same way as beta cells, producing insulin in > response to glucose. > > These cells all contained the Y chromosome, which could only have > come from the male mice. > > The researchers say more research is needed, despite the promising > results from this study. > > Only a small proportion of beta cells in the female mice - at most > 3% - came from transformed bone-marrow stem cells. > > The scientists say they also need to know more about how the bone > marrow cells become beta cells. > > 'Unlimited quantities' > > However, the research suggests it could eventually be possible to > harvest bone marrow cells from people with diabetes, genetically > modify them, and transplant them back without fear of rejection by > their immune system. > > Although the researchers, from the New York University School of > Medicine, say their findings cannot help diabetics immediately, they > say it may one day be possible to produce unlimited quantities of > insulin-producing cells culled from bone marrow. > > Finding a source of replacement cells is a key aim of diabetes > research. > > Doctors have carried out successful islet transplants, but there is a > limited supply, and patients need to take strong immunosuppression > drugs to make sure their bodies do not reject the transplants. > > > > > PANCREATITIS Association, Intl. > Online e-mail group > > To reply to this message hit & quot;reply & quot; or send an e-mail to: Pancreatitis (AT) Yahoo > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 Hey Eddie....can you send me the url for where you got this information....would love to post it on my site at www.top5plus5.com Thanks I hope this finds you and yours well Mark Diabetes > > Hi Group, > Those of us with diabetes may find this interesting, > This made the news recently. > Eddie > > Fluorescent cells > > The researchers genetically modified bone marrow cells from male mice > to produce a protein which gives cells a fluorescent glow when they > are near activated insulin genes. > > These were then transplanted into female mice whose bone marrow had > been destroyed by radiation. > > Researchers examined the mice four to six weeks later, and found a > small number of the glowing green cells in the pancreatic islets of > Langerhans. > > They were the cells which had come from the bone marrow and they were > behaving in exactly the same way as beta cells, producing insulin in > response to glucose. > > These cells all contained the Y chromosome, which could only have > come from the male mice. > > The researchers say more research is needed, despite the promising > results from this study. > > Only a small proportion of beta cells in the female mice - at most > 3% - came from transformed bone-marrow stem cells. > > The scientists say they also need to know more about how the bone > marrow cells become beta cells. > > 'Unlimited quantities' > > However, the research suggests it could eventually be possible to > harvest bone marrow cells from people with diabetes, genetically > modify them, and transplant them back without fear of rejection by > their immune system. > > Although the researchers, from the New York University School of > Medicine, say their findings cannot help diabetics immediately, they > say it may one day be possible to produce unlimited quantities of > insulin-producing cells culled from bone marrow. > > Finding a source of replacement cells is a key aim of diabetes > research. > > Doctors have carried out successful islet transplants, but there is a > limited supply, and patients need to take strong immunosuppression > drugs to make sure their bodies do not reject the transplants. > > > > > PANCREATITIS Association, Intl. > Online e-mail group > > To reply to this message hit & quot;reply & quot; or send an e-mail to: Pancreatitis (AT) Yahoo > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 Hey Eddie....can you send me the url for where you got this information....would love to post it on my site at www.top5plus5.com Thanks I hope this finds you and yours well Mark Diabetes > > Hi Group, > Those of us with diabetes may find this interesting, > This made the news recently. > Eddie > > Fluorescent cells > > The researchers genetically modified bone marrow cells from male mice > to produce a protein which gives cells a fluorescent glow when they > are near activated insulin genes. > > These were then transplanted into female mice whose bone marrow had > been destroyed by radiation. > > Researchers examined the mice four to six weeks later, and found a > small number of the glowing green cells in the pancreatic islets of > Langerhans. > > They were the cells which had come from the bone marrow and they were > behaving in exactly the same way as beta cells, producing insulin in > response to glucose. > > These cells all contained the Y chromosome, which could only have > come from the male mice. > > The researchers say more research is needed, despite the promising > results from this study. > > Only a small proportion of beta cells in the female mice - at most > 3% - came from transformed bone-marrow stem cells. > > The scientists say they also need to know more about how the bone > marrow cells become beta cells. > > 'Unlimited quantities' > > However, the research suggests it could eventually be possible to > harvest bone marrow cells from people with diabetes, genetically > modify them, and transplant them back without fear of rejection by > their immune system. > > Although the researchers, from the New York University School of > Medicine, say their findings cannot help diabetics immediately, they > say it may one day be possible to produce unlimited quantities of > insulin-producing cells culled from bone marrow. > > Finding a source of replacement cells is a key aim of diabetes > research. > > Doctors have carried out successful islet transplants, but there is a > limited supply, and patients need to take strong immunosuppression > drugs to make sure their bodies do not reject the transplants. > > > > > PANCREATITIS Association, Intl. > Online e-mail group > > To reply to this message hit & quot;reply & quot; or send an e-mail to: Pancreatitis (AT) Yahoo > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2003 Report Share Posted March 30, 2003 Karyn and all, As you may remember, I have not been diagnosed with chronic pancreatitis at this time, even though the three surgeons I've seen in the last year say it is CP. My GI says my pancreas is perfectly healthy and I have recurring acute panc, not CP. I found out in January that I have autoimmune liver disease in addition to lupus and the recurring acute panc. My panc attacks returned in Jul 02 after about 18 months of having no major problems. In October, after an episode of becoming cold, clammy, dizzy, and shaky - my mom recognized the symptoms as possibly being caused by a drop in blood sugar. Sure enough, when we checked my blood sugar, it was dropping down to the low 50's if I went more than two hours without eating. My pcp said he thought it was just because of all my body had been through since July. He felt that the blood sugar problems would go away once I had surgery to remove adhesions around the panc and/or bile duct that my GI was so sure were there and the cause for the acute panc. In the beginning, my blood sugar was only dropping low, not going high. Over the next few weeks, my blood sugar began going both too high and too low. The highest high creeped up over time until it hit the highest (so far) at 324 in December. This was shortly after I had surgery to repair a hernia and also for the surgeon to look for (and remove if found) adhesions around the panc and bile duct. There were no adhesions at all. We don't have any real answers for the acute panc, but it became pretty obvious that the blood sugar problems weren't going to go away. Once I met with a nutritionist and began following his suggestions on how I needed to eat, my blood sugar problems improved but it still went up to around 190-250 on a regular basis. I saw an endocrinologist on Jan 21st and he told me that I have diabetes. He told me that he felt pretty sure that adding exercise and sticking with eating as the nutritionist told me would keep my diabetes in control. He is hesitant to add meds as the oral diabetes meds are hard on the liver. Most of my doctors believe the diabetes has been caused because all the acute attacks on my panc have done enough damage to the pancreas that it can no longer function totally as it should. Ironically, I had lost 100 lbs and was no longer at all overweight when the blood sugar problems began in October (3 months after the acute panc returned). It is possible that developing diabetes at that time was simply coincidence. My mom is a diabetic (type 2) and she is not overweight at all. Her diabetes didn't began until she was about 50. I'm 42 at this time but I could have just been lucky enough to inherit diabetes and develop it at a younger age than my mom. However, I really can't help but believe that it was the acute panc that has caused enough damage to my pancreas to cause diabetes. So, my whole point to this is that I totally agree that anyone with CP should watch for signs of diabetes and monitor their blood sugar a few times a week. Also, I wanted to say that my blood sugar is always perfect when I get up in the morning other than being low maybe two times. Also, it is typically okay at bedtime. It is typically somewhere from mid morning to mid evening that mine will go too high or too low. I'm telling you this so others might check their blood sugar at different times - not just upon waking and at bedtime. Perhaps before a meal and then two hours after a meal. Also, even those with a diagnosis of recurring acute panc (rather than CP) should also consider keeping a check on blood sugar. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2003 Report Share Posted March 30, 2003 Karyn and all, As you may remember, I have not been diagnosed with chronic pancreatitis at this time, even though the three surgeons I've seen in the last year say it is CP. My GI says my pancreas is perfectly healthy and I have recurring acute panc, not CP. I found out in January that I have autoimmune liver disease in addition to lupus and the recurring acute panc. My panc attacks returned in Jul 02 after about 18 months of having no major problems. In October, after an episode of becoming cold, clammy, dizzy, and shaky - my mom recognized the symptoms as possibly being caused by a drop in blood sugar. Sure enough, when we checked my blood sugar, it was dropping down to the low 50's if I went more than two hours without eating. My pcp said he thought it was just because of all my body had been through since July. He felt that the blood sugar problems would go away once I had surgery to remove adhesions around the panc and/or bile duct that my GI was so sure were there and the cause for the acute panc. In the beginning, my blood sugar was only dropping low, not going high. Over the next few weeks, my blood sugar began going both too high and too low. The highest high creeped up over time until it hit the highest (so far) at 324 in December. This was shortly after I had surgery to repair a hernia and also for the surgeon to look for (and remove if found) adhesions around the panc and bile duct. There were no adhesions at all. We don't have any real answers for the acute panc, but it became pretty obvious that the blood sugar problems weren't going to go away. Once I met with a nutritionist and began following his suggestions on how I needed to eat, my blood sugar problems improved but it still went up to around 190-250 on a regular basis. I saw an endocrinologist on Jan 21st and he told me that I have diabetes. He told me that he felt pretty sure that adding exercise and sticking with eating as the nutritionist told me would keep my diabetes in control. He is hesitant to add meds as the oral diabetes meds are hard on the liver. Most of my doctors believe the diabetes has been caused because all the acute attacks on my panc have done enough damage to the pancreas that it can no longer function totally as it should. Ironically, I had lost 100 lbs and was no longer at all overweight when the blood sugar problems began in October (3 months after the acute panc returned). It is possible that developing diabetes at that time was simply coincidence. My mom is a diabetic (type 2) and she is not overweight at all. Her diabetes didn't began until she was about 50. I'm 42 at this time but I could have just been lucky enough to inherit diabetes and develop it at a younger age than my mom. However, I really can't help but believe that it was the acute panc that has caused enough damage to my pancreas to cause diabetes. So, my whole point to this is that I totally agree that anyone with CP should watch for signs of diabetes and monitor their blood sugar a few times a week. Also, I wanted to say that my blood sugar is always perfect when I get up in the morning other than being low maybe two times. Also, it is typically okay at bedtime. It is typically somewhere from mid morning to mid evening that mine will go too high or too low. I'm telling you this so others might check their blood sugar at different times - not just upon waking and at bedtime. Perhaps before a meal and then two hours after a meal. Also, even those with a diagnosis of recurring acute panc (rather than CP) should also consider keeping a check on blood sugar. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2003 Report Share Posted March 30, 2003 Karyn and all, As you may remember, I have not been diagnosed with chronic pancreatitis at this time, even though the three surgeons I've seen in the last year say it is CP. My GI says my pancreas is perfectly healthy and I have recurring acute panc, not CP. I found out in January that I have autoimmune liver disease in addition to lupus and the recurring acute panc. My panc attacks returned in Jul 02 after about 18 months of having no major problems. In October, after an episode of becoming cold, clammy, dizzy, and shaky - my mom recognized the symptoms as possibly being caused by a drop in blood sugar. Sure enough, when we checked my blood sugar, it was dropping down to the low 50's if I went more than two hours without eating. My pcp said he thought it was just because of all my body had been through since July. He felt that the blood sugar problems would go away once I had surgery to remove adhesions around the panc and/or bile duct that my GI was so sure were there and the cause for the acute panc. In the beginning, my blood sugar was only dropping low, not going high. Over the next few weeks, my blood sugar began going both too high and too low. The highest high creeped up over time until it hit the highest (so far) at 324 in December. This was shortly after I had surgery to repair a hernia and also for the surgeon to look for (and remove if found) adhesions around the panc and bile duct. There were no adhesions at all. We don't have any real answers for the acute panc, but it became pretty obvious that the blood sugar problems weren't going to go away. Once I met with a nutritionist and began following his suggestions on how I needed to eat, my blood sugar problems improved but it still went up to around 190-250 on a regular basis. I saw an endocrinologist on Jan 21st and he told me that I have diabetes. He told me that he felt pretty sure that adding exercise and sticking with eating as the nutritionist told me would keep my diabetes in control. He is hesitant to add meds as the oral diabetes meds are hard on the liver. Most of my doctors believe the diabetes has been caused because all the acute attacks on my panc have done enough damage to the pancreas that it can no longer function totally as it should. Ironically, I had lost 100 lbs and was no longer at all overweight when the blood sugar problems began in October (3 months after the acute panc returned). It is possible that developing diabetes at that time was simply coincidence. My mom is a diabetic (type 2) and she is not overweight at all. Her diabetes didn't began until she was about 50. I'm 42 at this time but I could have just been lucky enough to inherit diabetes and develop it at a younger age than my mom. However, I really can't help but believe that it was the acute panc that has caused enough damage to my pancreas to cause diabetes. So, my whole point to this is that I totally agree that anyone with CP should watch for signs of diabetes and monitor their blood sugar a few times a week. Also, I wanted to say that my blood sugar is always perfect when I get up in the morning other than being low maybe two times. Also, it is typically okay at bedtime. It is typically somewhere from mid morning to mid evening that mine will go too high or too low. I'm telling you this so others might check their blood sugar at different times - not just upon waking and at bedtime. Perhaps before a meal and then two hours after a meal. Also, even those with a diagnosis of recurring acute panc (rather than CP) should also consider keeping a check on blood sugar. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 I am never hungry on the Atkins Diet, maybe they should switch. If I start getting hungry, I know that's a sign I'm not counting my carbs well, and I try for two strict days of absolutely, positively, not more than 20 carbs (and those from salad or cheese) for two days. That gets me back into the low appetite zone. You've got more willpower than me if you can eat a 37 carb item, and still make 50 for the whole day! Sometimes I take what I want to eat, and cut or break it in half. Then I eat half and see if the other half is " really worth it " . Salad still has carbs, and some dressings do, that's why I like the Atkins diet, it considers all carbs as having a potential for changing metabolism and causing weight gain, so all carbs need to be limited. I think the South Beach diet is too complicated for me - good vs. bad and all. But I do try for no trans fats and eat chicken and turkey much more than beef, as much as possible. I've found if I go off the high protein, low carb (40 or less per day), high fat diet, I have a major increase in symptoms, so I can't go above that without having a lot of bad effects. But when I'm reasonably careful, I feel the best I've felt since I first got symptoms 10 years ago... Have you tried to stick to 20 or less carbs (induction phase of Atkins) for a week or more? That really helped me - it was the first time in 10 years I could walk around in the mall without getting tired after 50 steps. That was before I actually had weight loss. Take care, RH > > > I forgot to mention that before the insulin pump my blood > sugars > > were often in the 400 and sometimes 500 range after exercising. > > > > > > The pump is actually about the size of a pager and can be worn > with > > a belt clip or you can get a strap to strap it to your body. > > > Diabetes > > > > > > > > > > > > Hi, I was wondering how many folks who have mito are also > > diabetic. > > > I was just diagnosed Monday and I was put on glucophage and > > glipizide > > > (pills). I had a bad reaction to the glucophage (severe > muscle > > > cramps, vomiting, dizziness and mixed up speech, low BP) and > now > > I'm > > > on insulin. The covering endo wanted me inpatient but I > managed > > to > > > talk him out of it. (Who would take care of ?) Now > I'm > > > feeling better but all my underlying symptoms are much worse > > > (weakness, vision problems, concentration and memory, cold > white > > > fingers, splitting headache) > > > > > > Dr. Korson hasn't gotten back to me about how much carnitine > to > > take > > > and it's driving me nuts. Blood sugar is back down to the > 200's > > (it > > > had been 400's with large ketones) so I think things are > better > > > overall, but I find myself wishing I could have a saline > bolus. > > We > > > give them to and I wonder if I'd feel better. I just > know > > I'm > > > probably dry from the high sugars. Crazy. > > > > > > It's been quite a week. The endo thinks that the diabetes I > have > > may > > > be type 1 (but he wanted to test my response to sulfonyureas > > before > > > insulin) and he wants to do genetic testing to isolate the > gene > > > defect. He also thinks it's a dominant trait. Ugh. There > goes > > the > > > gene pool. It's also been a rough week for news about the > other > > > kids: Nick probably has a mild presentation of whatever > > > has, > > > and Dr. K wants to see in the clinic. Now I can't even > > console > > > myself with chocolate. > > > > > > Heidi > > > > > > > > > > > > > > > > > > > > > > > > Medical advice, information, opinions, data and statements > > contained herein are not necessarily those of the list > moderators. > > The author of this e mail is entirely responsible for its > content. > > List members are reminded of their responsibility to evaluate the > > content of the postings and consult with their physicians > regarding > > changes in their own treatment. > > > > > > Personal attacks are not permitted on the list and anyone who > > sends one is automatically moderated or removed depending on the > > severity of the attack. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2005 Report Share Posted February 23, 2005 I am never hungry on the Atkins Diet, maybe they should switch. If I start getting hungry, I know that's a sign I'm not counting my carbs well, and I try for two strict days of absolutely, positively, not more than 20 carbs (and those from salad or cheese) for two days. That gets me back into the low appetite zone. You've got more willpower than me if you can eat a 37 carb item, and still make 50 for the whole day! Sometimes I take what I want to eat, and cut or break it in half. Then I eat half and see if the other half is " really worth it " . Salad still has carbs, and some dressings do, that's why I like the Atkins diet, it considers all carbs as having a potential for changing metabolism and causing weight gain, so all carbs need to be limited. I think the South Beach diet is too complicated for me - good vs. bad and all. But I do try for no trans fats and eat chicken and turkey much more than beef, as much as possible. I've found if I go off the high protein, low carb (40 or less per day), high fat diet, I have a major increase in symptoms, so I can't go above that without having a lot of bad effects. But when I'm reasonably careful, I feel the best I've felt since I first got symptoms 10 years ago... Have you tried to stick to 20 or less carbs (induction phase of Atkins) for a week or more? That really helped me - it was the first time in 10 years I could walk around in the mall without getting tired after 50 steps. That was before I actually had weight loss. Take care, RH > > > I forgot to mention that before the insulin pump my blood > sugars > > were often in the 400 and sometimes 500 range after exercising. > > > > > > The pump is actually about the size of a pager and can be worn > with > > a belt clip or you can get a strap to strap it to your body. > > > Diabetes > > > > > > > > > > > > Hi, I was wondering how many folks who have mito are also > > diabetic. > > > I was just diagnosed Monday and I was put on glucophage and > > glipizide > > > (pills). I had a bad reaction to the glucophage (severe > muscle > > > cramps, vomiting, dizziness and mixed up speech, low BP) and > now > > I'm > > > on insulin. The covering endo wanted me inpatient but I > managed > > to > > > talk him out of it. (Who would take care of ?) Now > I'm > > > feeling better but all my underlying symptoms are much worse > > > (weakness, vision problems, concentration and memory, cold > white > > > fingers, splitting headache) > > > > > > Dr. Korson hasn't gotten back to me about how much carnitine > to > > take > > > and it's driving me nuts. Blood sugar is back down to the > 200's > > (it > > > had been 400's with large ketones) so I think things are > better > > > overall, but I find myself wishing I could have a saline > bolus. > > We > > > give them to and I wonder if I'd feel better. I just > know > > I'm > > > probably dry from the high sugars. Crazy. > > > > > > It's been quite a week. The endo thinks that the diabetes I > have > > may > > > be type 1 (but he wanted to test my response to sulfonyureas > > before > > > insulin) and he wants to do genetic testing to isolate the > gene > > > defect. He also thinks it's a dominant trait. Ugh. There > goes > > the > > > gene pool. It's also been a rough week for news about the > other > > > kids: Nick probably has a mild presentation of whatever > > > has, > > > and Dr. K wants to see in the clinic. Now I can't even > > console > > > myself with chocolate. > > > > > > Heidi > > > > > > > > > > > > > > > > > > > > > > > > Medical advice, information, opinions, data and statements > > contained herein are not necessarily those of the list > moderators. > > The author of this e mail is entirely responsible for its > content. > > List members are reminded of their responsibility to evaluate the > > content of the postings and consult with their physicians > regarding > > changes in their own treatment. > > > > > > Personal attacks are not permitted on the list and anyone who > > sends one is automatically moderated or removed depending on the > > severity of the attack. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2005 Report Share Posted February 24, 2005 Actually, you sound a bit light on calories, sometimes I end up going into " starvation mode " , and not losing weight because my metabolism slows greatly because I'm not getting enough calories. Have you noticed if the milk give you an increase in blood sugar? Unless you are using Lactose free milk, the lactose level can bother some people. My kids are currently on lactose free milk, have been back and forth on and off it, but now I think they need it. I used to be an EXCESSIVE milk drinker, but the Atkins diet made that go away. Amazing what not buying something will do for your consumption (we only have lactose free milk in the house now). Take care, RH > > > > I forgot to mention that before the insulin pump my blood > > sugars > > > were often in the 400 and sometimes 500 range after > exercising. > > > > > > > > The pump is actually about the size of a pager and can be > worn > > with > > > a belt clip or you can get a strap to strap it to your body. > > > > Diabetes > > > > > > > > > > > > > > > > Hi, I was wondering how many folks who have mito are also > > > diabetic. > > > > I was just diagnosed Monday and I was put on glucophage > and > > > glipizide > > > > (pills). I had a bad reaction to the glucophage (severe > > muscle > > > > cramps, vomiting, dizziness and mixed up speech, low BP) > and > > now > > > I'm > > > > on insulin. The covering endo wanted me inpatient but I > > managed > > > to > > > > talk him out of it. (Who would take care of ?) > Now > > I'm > > > > feeling better but all my underlying symptoms are much > worse > > > > (weakness, vision problems, concentration and memory, > cold > > white > > > > fingers, splitting headache) > > > > > > > > Dr. Korson hasn't gotten back to me about how much > carnitine > > to > > > take > > > > and it's driving me nuts. Blood sugar is back down to > the > > 200's > > > (it > > > > had been 400's with large ketones) so I think things are > > better > > > > overall, but I find myself wishing I could have a saline > > bolus. > > > We > > > > give them to and I wonder if I'd feel better. I > just > > know > > > I'm > > > > probably dry from the high sugars. Crazy. > > > > > > > > It's been quite a week. The endo thinks that the > diabetes I > > have > > > may > > > > be type 1 (but he wanted to test my response to > sulfonyureas > > > before > > > > insulin) and he wants to do genetic testing to isolate > the > > gene > > > > defect. He also thinks it's a dominant trait. Ugh. > There > > goes > > > the > > > > gene pool. It's also been a rough week for news about > the > > other > > > > kids: Nick probably has a mild presentation of whatever > > > > > has, > > > > and Dr. K wants to see in the clinic. Now I can't > even > > > console > > > > myself with chocolate. > > > > > > > > Heidi > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Medical advice, information, opinions, data and > statements > > > contained herein are not necessarily those of the list > > moderators. > > > The author of this e mail is entirely responsible for its > > content. > > > List members are reminded of their responsibility to evaluate > the > > > content of the postings and consult with their physicians > > regarding > > > changes in their own treatment. > > > > > > > > Personal attacks are not permitted on the list and anyone > who > > > sends one is automatically moderated or removed depending on > the > > > severity of the attack. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2005 Report Share Posted April 14, 2005 That's another point. If someone doesn't have diabetes, does that mean they don't have mito? Kim > > I was told by my doctor that my particular triglyceride problem is > > hereditary and has nothing to do with diet or even exercise. > Given the fact > > that the mito is the hereditary factor in our family and that my > maternal > > grandmother's death certificate read that she died of heart > failure, I > > expect that this is a Mito factor for us. I have heard before > that high > > triglycerides is indeed an issue for Mito patients as well but > don't have > > any resources to back this up. > > > > > > > > Here again – as medically recommended – we are fighting the > effects of the > > disease by treating the symptoms. I am taking Omega 3 as well but > this is > > something I added myself. I'm also trying to add more fish to my > diet. I > > can't add much in the way of carbs because they do a number on my > BS > > readings. I get my carbs from fruit and vegetables during the day > but these > > are complex carbs. I've actually started a diet program that is > giving me > > hope. I've been on it for a week and in that week, my BS readings > have > > leveled off to normal except for 1 day when I drank tonic water > with > > quinine. It's too bad that I didn't read the label before I drank > it > > because it was high in carbs and my sugar jumped over 200 within ½ > hour. It > > never normally goes over 200. I poured the rest of the bottle out > and went > > back to mostly water and my sugar readings are back to normal. > This morning > > when I got up, which is the worst time of the day for me normally, > my > > reading was 99. > > > > > > > > I go for blood work again next month and will know in June if we > have found > > the answer to dropping those dangerous T readings. I don't feel > too bad > > about mine though as I have a friend who has had triglyceride > readings in > > the 3000 range. I do have a feeling that she has something going > on that > > may be the reason for this as she is quite symptomatic including > deafness > > but right now – they are working to resolve the very severe > cholesterol > > problems. > > > > > > > > Alice > > > > > > > > > > -- > > No virus found in this incoming message. > > Checked by AVG Anti-Virus. > > Version: 7.0.308 / Virus Database: 266.9.8 - Release Date: > 4/13/2005 > > > > > > > > -- > > No virus found in this outgoing message. > > Checked by AVG Anti-Virus. > > Version: 7.0.308 / Virus Database: 266.9.8 - Release Date: > 4/13/2005 > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2005 Report Share Posted April 14, 2005 No, diabetes is common in mito patients, but is just one of many associated conditions. I'm not aware of any studies of the percentage of mito patients who have diabetes, but there may be some estimates in the literature. Anyone know? The UMDF conference (June, St Louis) is offering one session called, " Diabetes and the Mitochondrial Adult Patient " by Procaccio, MD, PhD. Maybe those who attend can post a report. Barbara _____ From: klaga5 Sent: Thursday, April 14, 2005 10:55 AM To: Subject: Diabetes That's another point. If someone doesn't have diabetes, does that mean they don't have mito? Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2005 Report Share Posted April 14, 2005 I added two links to the " Links " section of the site. One is on diabetes in general (I saw that there is a link to detailed diabetes info already), and the other is on autoimmune diseases. Note that diabetes and rheumatoid arthritis are mentioned as autoimmune diseases. I remember from a while back that several of us were lamenting not having an " autoimmunologist " to find out what if any antibodies are impacting our mito symptoms. Take care, RH > No, diabetes is common in mito patients, but is just one of many associated > conditions. I'm not aware of any studies of the percentage of mito patients > who have diabetes, but there may be some estimates in the literature. Anyone > know? The UMDF conference (June, St Louis) is offering one session called, > " Diabetes and the Mitochondrial Adult Patient " by Procaccio, MD, > PhD. Maybe those who attend can post a report. > > > > Barbara > > > > _____ > > From: klaga5 [mailto:klaga5@y...] > Sent: Thursday, April 14, 2005 10:55 AM > To: > Subject: Diabetes > > > > > That's another point. If someone doesn't have diabetes, does that > mean they don't have mito? > Kim > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2005 Report Share Posted April 14, 2005 I added two links to the " Links " section of the site. One is on diabetes in general (I saw that there is a link to detailed diabetes info already), and the other is on autoimmune diseases. Note that diabetes and rheumatoid arthritis are mentioned as autoimmune diseases. I remember from a while back that several of us were lamenting not having an " autoimmunologist " to find out what if any antibodies are impacting our mito symptoms. Take care, RH > No, diabetes is common in mito patients, but is just one of many associated > conditions. I'm not aware of any studies of the percentage of mito patients > who have diabetes, but there may be some estimates in the literature. Anyone > know? The UMDF conference (June, St Louis) is offering one session called, > " Diabetes and the Mitochondrial Adult Patient " by Procaccio, MD, > PhD. Maybe those who attend can post a report. > > > > Barbara > > > > _____ > > From: klaga5 [mailto:klaga5@y...] > Sent: Thursday, April 14, 2005 10:55 AM > To: > Subject: Diabetes > > > > > That's another point. If someone doesn't have diabetes, does that > mean they don't have mito? > Kim > > > > > > Quote Link to comment Share on other sites More sharing options...
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