Re: March of Dimes Clubfoot Fact Sheet!?!?!

[Guest guest]

Joanne,

Over the past 4 years or so I have written 2 letters and made couple

of phone calls to the March of Dimes. I have sent them information,

backup from studies, etc. just asking them to include information

about the Ponseti method in addition to the surgical route so that

any parents reading their web site would be able to know the Ponseti

method existed. At that time, they weren't really very receptive to

the idea. Hopefully they may be more responsive now.

> Hi All,

>

> If you have a chance, check out the March of Dimes Clubfoot Fact

Sheet:

> http://search.marchofdimes.com/cgi-bin/MsmGo.exe?

grab_id=354&page_id=5964032&query=clubfoot&hiword=clubfoot+

>

> (since the link is so long, you may have to copy and paste it into

a new

> browser window)

>

> Unfortunately, the March of Dimes is educating people that surgery

as the

> only option!!

>

> I was directed to contact the March of Dimes by the local hospital

where

> I've been trying to start a support group. As you can imagine, I'll

be

> calling my local chapter today!!

>

> In addition, I will be writing a letter to the national

organization. I hope

> you will join me in educating the March of Dimes about the

existence of the

> Ponseti method! Perhaps we should also ask our doctors to write a

letter as

> well?

>

> Best, Joanne W. mom to Zoe, 3-25-01, right clubfoot