Mito trigger

[Guest guest]

I have long believed that my mito (no diagnosis as of yet)

is 'triggered' by events in my life. It usually gets worse after I

have had problems with my pacer. I have experienced so many

episodes of hypoxia, I am sure that has something to do with it.

Before this last big crash which has lasted over 2 years. I went in

to my cardiologist and told him that I thought that I had a crack in

one of my leads. It had happened before and I recognized how it

made me feel. Of course he didn't listen. 6 months later they

found that both my leads were cracked. Since I am 100% dependant on

my pacer, that meant that whenever the leads moved so that no

electrical current was getting through, my heart would not be

paced. No heart beat is not a good thing. Finally my heart went

crazy and went into Atrial Fibrillation. I guess it had to do

something just to keep me alive. They tried to blame it on a lot of

other things, but I have not had one episode of A-fib since my new

leads were placed. And my pacer keeps a record of every beat of my

heart. They also placed me on Amiodarone to control the a-fib. The

dr in the emergency room said the only complication might be a

little constipation. I went home and looked up amiodarone and was

appalled. Some of the 'insignificant' side effects were muscle

weakness, lung scarring, turning blue, and death. ARRRRGH!!! It is

also contraindicated when someone has a thyroid condition, which I

made quite clear to the dr that I had. Needless to say I refused to

take the medication any longer. But Amiodarone stays in your body

for a long time. It has a very long half-life. So yes I think mito

symptoms can be triggered.

Joanne